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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Non-Rebreather masks
        
(Message started by: Elfdelite on Jan 9^th, 2008, 1:54pm)

Title: Non-Rebreather masks
Post by Elfdelite on Jan 9^th, 2008, 1:54pm

Hello, The last time I posted was about a year ago when I finally figured out what was wrong with my head. This being after having been misdiagnosed with sinus problems, migraines etc... So after I finally took matters into my own hands and after doing a little research on the internet I found this site and O.U.C.H., and I can't tell you what a relief it was to find others with the same symptoms as me and to know that my headaches had a name. The unfortunate thing was that shortly after my first post here I reached the end of my cycle and I never followed up with my neurologist. Well as you can tell I am back and I'm carrying the "devil" with me, so to speak. After my first "dancing" lesson I got on the phone and called my neurologist and got in to see him ASAP, so armed with a ton of info from this site and others I went in and begged, pleated and offered my first born to let me give oxygen a try. Dr. Reichert looked a little skeptical at first but I described all my symptoms going back 10+ years and convinced him to let me try oxygen and verapamil. I have to tell you that the first time I aborted the pain with oxygen I swear I heard Beethoven's Ode to Joy! The only problem I am having now is the medical supply company that gave me the oxygen stated they did not give out non-rebreather masks for home use due to the risk of suffocation. So when I have to go on oxygen I have to cup the mask with my hands in order for it to do any good. So my question is does anyone know if the non-rebreathers sold on Amazon are any good? Or do you know of another place on the web where I can get a decent one for a fair price?

Here are the ones found on Amazon:

1st one (http://www.amazon.com/Non-Rebreather-Reservoir-Safety-Tubing-description/dp/B000IFBFNS/ref=sr_1_2?ie=UTF8&s=hpc&qid=1199901361&sr=8-2)
2nd one (http://www.amazon.com/Non-Rebreather-Reservoir-Safety-Tubing-description/dp/B000IFBFNS/ref=sr_1_2?ie=UTF8&s=hpc&qid=1199901361&sr=8-2)
3rd one (http://www.amazon.com/NON-REBREATHER-TUBING-DISCONNECT-RESERVOIR-SAFETY/dp/B000TQK2P8/ref=sr_1_12?ie=UTF8&s=hpc&qid=1199901361&sr=8-12)
4th one (http://www.amazon.com/Item-Non-Rebreather-Additional-NON-REBREATHER-DISCONNECT/dp/B000PKDTLC/ref=sr_1_17?ie=UTF8&s=hpc&qid=1199901391&sr=8-17)
5th one (http://www.amazon.com/Disposable-Oxygen-Masks-Non-Rebreather-Reservoir/dp/B000VSVIB6/ref=sr_1_29?ie=UTF8&s=hpc&qid=1199901391&sr=8-29)
Last one (http://www.amazon.com/Allied-Healthcare-Non-Rebreather-Safety-Adult/dp/B000ROPRYS/ref=sr_1_41?ie=UTF8&s=hpc&qid=1199901418&sr=8-41)

As always, thanks for all your support.
Ellis

Title: Re: Non-Rebreather masks
Post by E-Double on Jan 9^th, 2008, 9:27pm

GET THIS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

http://www.clustermasx.com/

Created by a cluster head and superior to anythin many of us have used by far

RE: suffocation
Never heard that as a reason for denial.
I am just given what is perscribed.
you can also get things like you posted which should do the trick but do not compare to the link I gave ya

Title: Re: Non-Rebreather masks
Post by DennisM1045 on Jan 9^th, 2008, 9:31pm

I don't think Ben has resumed selling them yet.

Hey Linda, this guy needs a mask ;;D

-Dennis-

Title: Re: Non-Rebreather masks
Post by thebbz on Jan 9^th, 2008, 10:14pm

You have an 02 supplier there that has them. Salt Lake City has to have a home med place. http://www.vitalitymedical.com/vitalitymedical.storefront/47858ced013e06812719424d36230619/Catalog/129
Jeez..right there in town.
all the best
02 rulez

Title: Re: Non-Rebreather masks
Post by Guiseppi on Jan 10^th, 2008, 10:34am

Just a side note. Cut the straps off of the mask. There is a slight chance of suffocation if you put the straps on, fall asleep, and run the tank dry. I suspect that was the company's "concern"...as chicken sh$# as it sounds!!!!

Way to be your own advocate and DEMAND the 02. My wife swears when I'm on cycle I look at the green E-Tank with more love then I show her!!!! ;;D

Guiseppi