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Title: This may sound weird but... Post by Gadget_Ollie on Jan 3rd, 2008, 12:14pm Okay, this may sound a little weird but here goes... I'm chronic for the past 27 months. Usually 2 to 5 hits a day ranging from 3 to 8 on the KIP scale (multiple 10's over the 27 month period). I've tried the medical route, doctors and nuerologists, enough different medications to sink a ship and little to no success in preventing or aborting CH. I quit the doctors and medications about 6 months ago (my body was over polluted with the stuff and their solution was to keep increasing the dosages) and tried the "natural" route. Feverfew, green tea, red tea, butter bur, water, etc. with, again, little to no relief. I decided to experiment on myself since nothing was working anyway. I did the coffee guzzeling which seems to work about 50% of the time but one unfortunate downfall is downing several cups of coffee at 1:00 in the morning keeps me from going back to sleep and getting up at 5:00 for work really affects my day. (I'm sure Red Bull would have the same affect on me) So I did a lot of research on a theory I have and I'm using myself as the test subject. After two weeks, it has never failed yet in aborting a CH hit. The finding...take 3 to 5 teaspoons of yellow mustard anytime during a beast attack. For me, the pain diminishes almost immediately and is usually gone within 2 minutes (the longest was 7 minutes). I've been using Plochman's yellow mustard (the one in our fridge, so I was forced to try it). I haven't tried any other brand of mustard or brown mustards, etc. so I'm not sure if they would have the same impact or not. The benefits for me are, quick abort, no caffeine effect, and no calories. The drawback...it's sometimes hard to down 3 to 5 teaspoons of yellow mustard. (downing the mustard...pain, downing the mustard...pain... I think I'll down the mustard ;;D ) I said this may sound weird ;). If anyone else is willing to try, let me know if this really does help or maybe I'm so desperate that I'm willing to believe it helps. |
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Title: Re: This may sound weird but... Post by nani on Jan 3rd, 2008, 12:18pm I'm curious. What research led you to mustard? What properties does it have that led you to try it? |
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Title: Re: This may sound weird but... Post by vietvet2tours on Jan 3rd, 2008, 12:19pm I think we got a weiner here. Potter http://images.jupiterimages.com/common/detail/80/30/22183080.jpg |
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Title: Re: This may sound weird but... Post by K-MAN on Jan 3rd, 2008, 12:25pm I'm having one hell of an attack right now. The Red Bull made a serious dent, and the RC seeds are keeping the intensity and frequency down. Trying not to use the triptans unless it's absolutely unbearable. Hell, I'll try eating mustard. It's cheap, and it's no crazier than anything else we've all tried. And yes, it does sound weird. K-Man |
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Title: Re: This may sound weird but... Post by monty on Jan 3rd, 2008, 12:35pm Mustard has some similarities to hot pepper and capsaicin, as well as some differences. The yellow stuff is usually not so hot, and has turmeric to make it yellow. If you really have clusters, I don't think there is much of a placebo effect. It doesn't matter how desperate you are - the attack is not shut off by a placebo. A placebo might convince you that a 6 was a 5.5, but would not shut off the pain or other symptoms. |
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Title: Re: This may sound weird but... Post by LeLimey on Jan 3rd, 2008, 12:42pm on 01/03/08 at 12:35:59, monty wrote:
Not if it's english mustard. That's bright yellow and pretty fierce! It snot like that yellow wallpaper paste you lot call "french" ;) It's not a selling thing, we aren't being directed to a mustard sales site so I don't think this is complete rubbish and as far as I'm concerned if it works for you Ollie then bloody good luck to you! Read up on some of the other stuff here though as you might find something more effective. I wish you pain free days regardless Helen |
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Title: Re: This may sound weird but... Post by monty on Jan 3rd, 2008, 12:46pm Mustard contains isothiocyanates - along the lines of what wiped out a few thousand people in Bhopal, India a while back. This acts on the TRPV/Substance P receptors - causes a type of warming or burning that is somewhat like hot pepper. Mustard gas is not chemically related to mustard. But Bruce Ames (the guy who developed the first lab test for mutagens) doesn't like mustard as a spice, because it makes cells mutate. Curious that you report it doesn't take several doses to abort (as capsaicin does), or that it doesn't sometimes make things worse before they get better. Over here, the yellow stuff is weak, and the gourmet stuff like grey poupon or Plochman's natural is somewhat stronger ... dunno what it is like straight, but 2 spoonfuls round out the flavor of chili. |
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Title: Re: This may sound weird but... Post by monty on Jan 3rd, 2008, 1:05pm If mustard works for you and it takes 3-5 spoons of the stuff, you might consider a really good horseradish. Same isothiocyantes, but it usually takes much less horseradish to cause the impression that molten lava has been poured in your sinuses. Wait. Maybe not so strong is better? |
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Title: Re: This may sound weird but... Post by Gadget_Ollie on Jan 3rd, 2008, 1:34pm on 01/03/08 at 13:05:34, monty wrote:
It's not a sinus effect that I'm trying to achieve. I have read some studies that indicate that breathing cold air can relieve CH pain. Also, the indication from others on this board (including myself) demonstrates that coffee (caffeine) can sometimes rapidly reduce the pain. Still, some others I have talked to say that during an attack, smoking actually helps (NOT Recommended). Standing outside in the winter, drinking coffee and smoking cigarettes should be ultimate pain relief ;;D This is not scientific by any stretch of the imagination, but the one common factor is each of these constrict blood vessels (cold, caffeine, and smoking). Mustard is a food item that also constricts blood vessels, so I decided to give it a whirl. I'm sure drinking Red Bull sounded pretty weird at first until some tried it and actually found relief. Constricting blood vessels sounds 180 degrees away from the direction medical science was taking me with the medications. But medical science also admits that they don't know the cause or the solution for CH. Since nothing was working anyway, maybe 180 degrees is the right way for me to go. I posted this in hope that if it is helping me (so far), maybe it could help one or two others. |
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Title: Re: This may sound weird but... Post by LeLimey on Jan 3rd, 2008, 1:39pm on 01/03/08 at 13:34:27, Gadget_Ollie wrote:
And that is what the spirit of this place is all about - thank you Ollie! |
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Title: Re: This may sound weird but... Post by sandie99 on Jan 3rd, 2008, 3:29pm Lots of good luck with the mustard, Ollie! :) I'm glad that you've found something which helps you. :) Lots of PF time, Sanna |
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Title: Re: This may sound weird but... Post by mummymac on Jan 3rd, 2008, 3:32pm Quote:
I would give this a try , Being British I am confused which is what. Is the yellow mustard being talked about french mustard or the hotdog mustard? |
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Title: Re: This may sound weird but... Post by LeLimey on Jan 3rd, 2008, 4:08pm the hotdog crap Tanya - there is a brand there called French's which in no way resembles what we call French mustard here. That stuff is so mild it's not worth using. |
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Title: Re: This may sound weird but... Post by thomas on Jan 4th, 2008, 11:29am on 01/03/08 at 12:25:29, K-MAN wrote:
I'm with ya. |
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Title: Re: This may sound weird but... Post by Melissa on Jan 4th, 2008, 9:49pm go one step better and use horseradish. ;) |
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Title: Re: This may sound weird but... Post by LarryM on Jan 7th, 2008, 3:38am I've used horseradish for years. If you go the mustard route, try Colman's English mustard in the yellow tin. It's a powder so you can mix it to the strength you like. For you that have never tasted it , it's what Chinese Americans use to substitute for the hot mustard you get in Chinese resturants. I also use Kim Chee and Thai garlic chili sauces. All these can help with shadows and < than 6's. Past a 6 and I don't get much help. I can say I can down hot sauce with the best of em, can't even eat ketchup anymore without mixing it 50/50. |
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Title: Re: This may sound weird but... Post by brewcrew on Jan 7th, 2008, 7:27am In order to make it go down easier, would it be defeating the purpose if I mixed it with bratwurst (mustard) or medium rare roast beef (horseradish)? |
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Title: Re: This may sound weird but... Post by hotprestwich on Jan 7th, 2008, 12:02pm what about Wasabi????? could that work? strongest out of the lot of em innit? |
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Title: Re: This may sound weird but... Post by GuitarBill on Jan 8th, 2008, 3:07am Wow! Thanks for this post! I am seriously going to try this before I bow to the old 02 tank just to see if it works...or use it along with o2. It's funny but come to think of it I have in the past eaten a dish with alot of jalapeno (spicy) peppers before and it did seem to ward off an attack..I didn't pay any mind to it though. I don't know if it's the exact same as mustard?... thanks again and pain free wishes...keep us updated about this too... |
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Title: Re: This may sound weird but... Post by kcopelin on Jan 8th, 2008, 9:09am Looked inthe fridge...we have the pale imitation mustard, but do have some horseradish..ahha found the Colemans in the cupboard, remember the first time I used it...being an American I had no idea that mustard is Suppossed to be spicy-recipe called for 2 tsp and that hardly seemed sufficient-also didn't change the color, so I bumped it up a few notches. Dang! :o New respect for mustard. Thanks for the input...any port in a storm.. PFDAN y'all kathy |
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Title: Re: This may sound weird but... Post by Garys_Girl on Jan 19th, 2008, 12:25pm Just wanted to follow-up, if possible - anybody else tried this yet? Gary's still got the problem with the chronic vomiting, so is hesitant to give it a go in case it just makes him throw up. A few people said they were going to try it, and I'm just wondering if we have any more success stories? Thanks! Laurie |
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Title: Re: This may sound weird but... Post by vietvet2tours on Jan 19th, 2008, 12:54pm on 01/19/08 at 12:25:03, Garys_Girl wrote:
Chronic vomiting and a couple of big spoons of mustard oughta work real good. |
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Title: Re: This may sound weird but... Post by Melissa on Jan 19th, 2008, 1:41pm on 01/19/08 at 12:54:18, vietvet2tours wrote:
Oh man, reminds me when I threw up ginger root capsules. Burned like a mother and I refuse to swallow them ever again! :P |
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Title: Re: This may sound weird but... Post by Garys_Girl on Jan 19th, 2008, 1:42pm on 01/19/08 at 12:54:18, vietvet2tours wrote:
http://pages.prodigy.net/indianahawkeye/newpage12/19.gif That's real helpful, thanks. http://pages.prodigy.net/rogerlori1/emoticons/NONO.GIF WTF? |
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Title: Re: This may sound weird but... Post by Gator on Jan 19th, 2008, 3:25pm on 01/03/08 at 12:42:53, LeLimey wrote:
The people who recommended rubbing cat shit on your head and neck weren't selling anything either. Now before someone gets their feathers ruffled, I'm not saying this guy is trying to get people to hurt themselves for his amusement. Just explaining why we are initially skeptical when someone posts something that "may sound a little weird" Quote:
I agree. Whatever works! |
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Title: Re: This may sound weird but... Post by vietvet2tours on Jan 19th, 2008, 3:45pm on 01/19/08 at 13:42:22, Garys_Girl wrote:
Where's yer sign. |
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Title: Re: This may sound weird but... Post by Garys_Girl on Jan 19th, 2008, 4:42pm on 01/19/08 at 15:45:43, vietvet2tours wrote:
Sorry - don't understand your question? |
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Title: Re: This may sound weird but... Post by Jonny on Jan 20th, 2008, 1:06am on 01/19/08 at 15:25:45, Gator wrote:
LMMFAO....(Catshit)....LOL ;;D |
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Title: Re: This may sound weird but... Post by chewy on Jan 20th, 2008, 4:55pm http://www.worth1000.com/entries/237000/237166ChJG_w.jpg |
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Title: Re: This may sound weird but... Post by Gadget_Ollie on Jan 23rd, 2008, 3:10pm No, I wasn't joking to see how many people I could get to try this and no I don't sell mustard. For me, this really helped. Mustard, like coffee, constricts blood vessels. I'm really surprised at some of the responses in this board, (not just this post, many other posts as well, including a few Private Messages in my mailbox.. Some were very kind, others were down-right insulting). I thought we were here to try to help each other through an impossible struggle, not ridicule people who post different (and, yes, sometimes weird) suggestions or ideas. Medications don't help all of us, so after more than 2 years of constant suffering and my liver becoming toxic from medication, I tried alternative methods. Coffee/caffeine was thought of as strange at one time for helping CH pain (and guess what...it's actually herbal not medicinal). Water also seemed strange at first (hmmm...not medicinal either). I figure some people believe that if it doesn't have a child-proof cap and it didn't cost $150 at the pharmacy then it can't possibly be any good. I am suffering. I am trying anything and everything that I can to relieve this nightmare. I don''t care if it's herbal, medicinal, or cat shit. If it gets rid of this pain, I'll do it. When something helps, I want to pass it on. Just because something is a weird idea, doesn't make it a bad idea. If just one person tried this and found some relief, then it wasn't a wasted post. |
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Title: Re: This may sound weird but... Post by brewcrew on Jan 23rd, 2008, 3:17pm on 01/23/08 at 15:10:56, Gadget_Ollie wrote:
Then why go on like your a card-carrying member of the perpetually offended party? Weird ideas are going to generate some cynical (and sometimes hilarious) responses. Get over it. Grow thicker skin. Suck it up, buttercup. |
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Title: Re: This may sound weird but... Post by Gadget_Ollie on Jan 23rd, 2008, 5:08pm I'm not offended. As I stated, "I'm surprised". Let's look at the number of stars under member's names. Four to five stars means these people have been around for a long time on this board and have seen alot and have a lot to contribute...let's call these the Wise and Trusted group. Three stars..not around as long but still have been here long enough to be valuable contributors..let's call them the Respected group. Then there are people like me, One star...New Comers. When reading posts some may look at the replies and value the topic based on the comments posted. For example, the 3rd post in this topic was by a Wise and Trusted person. His post was 5 minutes after the original post by me. This person obviously did not have the time to try the soultion or research anything, but right away I was full of shit (and he didn't hesitate to tell me so in a PM). New Comers may respect the opinions of the Wise and Trusted group members and look no further into the topic. In essence the New Comers may be robbed of an opportunity to explore something that may have helped them by listening to the negative comments (which, again could not have possibly been validated by the Wise and Trusted person). Another example is the topic on the Goji berries. They may indeed have helped this person but the Wise and Trusted Group blasted it into shreds within an hour of the original post. Maybe it is a farse...maybe for some it may actually help. Can anyone here guarantee 100% that any post of a "Try This" will NOT help anyone? I'm not saying everything is on the up-and-up with every post, I'm just saying that every post deserves a little consideration or factual research before a verdict is passed onto the rest of us. Everyone is entitled to their opinion but unexplored, "quick judgement" opinions may hurt more people than it helps. I have stepped down from my soapbox. |
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Title: Re: This may sound weird but... Post by brewcrew on Jan 23rd, 2008, 5:26pm My opinion only: You put way too much time and effort into thinking about this stuff. Here's how it works: You eat mustard to relieve you of the symptoms of CH. It works great. You share. Some people tell you to pound sand. Maybe one or two say they're going to try it. Did I leave anything out? |
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Title: Re: This may sound weird but... Post by vietvet2tours on Jan 23rd, 2008, 5:29pm on 01/23/08 at 17:26:41, brewcrew wrote:
Yep cuz last time this maroon was extolling the virtues of ice as the complete abortive. Potter |
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Title: Re: This may sound weird but... Post by Gadget_Ollie on Jan 23rd, 2008, 5:43pm Guess that blows my theory about the "Wise and Trusted" right out of the water :D |
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Title: Re: This may sound weird but... Post by BlueMeanie on Jan 23rd, 2008, 6:09pm I really hate to invite someone to get sick, but gotta ask. Would one of you that say you'd do anything to stop a CH please eat 2 tablespoons of mustard and get back to us with the outcome. Then we will know to either use this method, or add it to the mile long list of bullshit remedies. |
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Title: Re: This may sound weird but... Post by chewy on Jan 23rd, 2008, 9:32pm on 01/23/08 at 17:08:03, Gadget_Ollie wrote:
LMAO! How long do you think it takes to eat mustard? |
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Title: Re: This may sound weird but... Post by kcopelin on Jan 23rd, 2008, 11:10pm Tried it :-[ pretty dang sorry I did, but for the sake of science and fairness....mixed up a concoction of american yellow with colemans powder...was very spicy. Made my nose run more, CH ramped up faster...sorry, for me this was a bust. PFDAN y'all kathy |
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Title: Re: This may sound weird but... Post by brewcrew on Jan 23rd, 2008, 11:16pm Kathy - We're not worthy. [smiley=bow.gif] |
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Title: Re: This may sound weird but... Post by vietvet2tours on Jan 23rd, 2008, 11:59pm on 01/23/08 at 23:10:52, kcopelin wrote:
Good on ya fer that. potter |
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Title: Re: This may sound weird but... Post by Gator on Jan 24th, 2008, 11:07am Well, he's gone (but probably still watching) now, but what he and other newcomers with the latest cure fail to realize is that because we have been here a long time, in a lot of cases we have seen the same information posted as something new over and over again. Over and over again, it has frequently turned out that the person was either selling something, trying to stir up controversy or was the victim of timing, ie the person's cycle ending about the same time as they tried their miracle cure. Granted, this is the first time I've heard someone post that they consumed mustard to fight clusters, but generally it's the Same Shit - Different Shi+head. Some people just do not get that with all the lack of information, misinformation and unscrupulous people out to either make a buck or get a laugh off our pain, skepticism (preferably polite skepticism) is the order of the day. For the most part, the replies in this thread were constructive or at least polite. There wasn't anything here in this thread that should have run the dude off. If the boy's skin is that thin, even his life outside of ch must be a total bitch. Edited to get by the Damned censor |
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Title: Re: This may sound weird but... Post by thomas on Jan 24th, 2008, 11:58am Case in point is how long it took me to post about 4-way. Even after discussing it with a fellow member of this board who also used it. People have to be careful with wording and things like that. And for God's sake don't make promises. |
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Title: Re: This may sound weird but... Post by thebbz on Jan 24th, 2008, 12:00pm Pardon me but do you have any grey poupon? ::) Mustard..he..hee.hee. thebb |
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Title: Re: This may sound weird but... Post by JDH on Jan 24th, 2008, 12:29pm on 01/24/08 at 11:58:47, thomas wrote:
I think it was Flash but can you imagine the first person to bring 'shrooms to the MB? I for one am grateful he was persistant and didn't get run off. |
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Title: Re: This may sound weird but... Post by Redd on Jan 24th, 2008, 1:42pm on 01/24/08 at 12:29:22, JDH wrote:
That deserves... Blessed Be Amen HuuRah and Fukenay |
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Title: Re: This may sound weird but... Post by danielpeterson on Jan 24th, 2008, 2:03pm YES, I don't mind being seen as weird (I was a hippie in the 'Sixities) but it doesn't feel cool to sit in front of a quick-draw jury. ONCE I thought I might question some assumtions about our bodies being biological robots, and I felt overreacted toward. PSYCHOSOMATIC simply means that there is a mind and body connection, not necessarily that the pain is unreal or we are going nuts. (I have gone to ER twice with my CH.) IS there something wrong with me talking to my head? (Just in case there is a "warring in my members" as the bible calls it.) Does talking to Archangel Michael about my condition make me a bad guy? LOVE, Daniel R Peterson |
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Title: Re: This may sound weird but... Post by vietvet2tours on Jan 24th, 2008, 2:24pm on 01/24/08 at 14:03:59, danielpeterson wrote:
January 23: Your Wisdom Crown radiates with abundant light, this light has a crystalline matrix within it that attaches itself, so to speak, to your heart, illuminates your heart, anchoring your heart. When you anchor the heart with the Wisdom Crown that you carry, then the kernels of divine wisdom become you, you do not need to find them, you do not need to seek for them, you are them. Beloved Ones, be in the preciousness of your wisdom as Oneness comes forward. |
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Title: Re: This may sound weird but... Post by chewy on Jan 24th, 2008, 3:28pm Who flipped over the "whacko stone" out in the garden unleashing a turrent of whackos? |
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Title: Re: This may sound weird but... Post by Gator on Jan 24th, 2008, 9:45pm It's the full moon, dude. All the weirdos are coming out. 8) |
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Title: Re: This may sound weird but... Post by Melissa on Jan 24th, 2008, 9:51pm [smiley=moonwiggle.gif] |
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Title: Re: This may sound weird but... Post by Gator on Jan 24th, 2008, 9:55pm on 01/24/08 at 21:51:53, Melissa wrote:
See? LOL ;;D :-* |
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Title: Re: This may sound weird but... Post by sandie99 on Jan 25th, 2008, 12:12pm Full moon, that must be it. ;;D |
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