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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> The Topamax Tingle
        
(Message started by: CostaRicaKris on Nov 4^th, 2007, 12:05am)

Title: The Topamax Tingle
Post by CostaRicaKris on Nov 4^th, 2007, 12:05am

Anyone have any tricks to making these better? I was in a meeting at work the other day when I started getting the tingle in my heels and the only thing that helps is banging my feet on the floor. Which I did under the table ;-)

Title: Re: The Topamax Tingle
Post by billyjoe on Nov 4^th, 2007, 10:34am

When I was doing this, I reduced my dosage and mixed in some verapamil. For me, 50mg of Topomax was tolerable and no tingling. This cocktail worked pretty good. Eventually went to all Verapamil.

Title: Re: The Topamax Tingle
Post by Saffy on Nov 4^th, 2007, 3:39pm

I take 50 mg of Topamax night and morning - not a large dose and yet my hands and feet "buzzed" quite alot at first - less now I have been on it longer.

Also you do get used to the feeling and become more able to ignore it.

Saffy

Title: Re: The Topamax Tingle
Post by Wayne on Nov 5^th, 2007, 5:35am

Hi, they seem to pass after a while, as I remember it was about 6 weeks or so in my case.

Title: Re: The Topamax Tingle
Post by lashultz on Nov 6^th, 2007, 2:23am

If I remember right. It is the lack of potasium. Eat a couple of bananas a day.

PS Topamax was not a good drug for me.

Lee

Title: Re: The Topamax Tingle
Post by cash5542 on Nov 11^th, 2007, 7:48pm

Taking the whole dose at night seemed to help. It is short term.

Charlotte

Title: Re: The Topamax Tingle
Post by Lizzie2 on Nov 11^th, 2007, 8:14pm

I second what was said above about the potassium. The first time I tried topamax, I came off it because of the tingling in my feet. The second time, I had a new neuro, and he suggested eating more bananas and foods high in potassium, and I had no problem with the tingling after I did that!

Best of luck!

PF Wishes,
Carrie :)