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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Hemochromatosis and CH
        
(Message started by: Globi on Oct 14^th, 2007, 3:07am)

Title: Hemochromatosis and CH
Post by Globi on Oct 14^th, 2007, 3:07am

Hi,

Not a cure for CH but maybe something to think about. I have just found out that i have something called hemochromatosis (iron build up). Browsing the internet some researchers do make a connection between this disease and CH. 1 in 200 people have this disease.....many of them do not know about it. So if you go for a blood check you might ask your doctor to check ferritin and transfirin.

Symptoms: different for each person (see link below)....but feeling very tired is one clue. I always blamed CH for feeling so tired...... know for sure many of you do the same.

My treatment start this week. It's simple. Blood letting (?). Same as giving blood. I realy hope it wil make a change.

So....if one of you has the same....just let me know.

Info: http://en.wikipedia.org/wiki/Hemochromatosis

Title: Re: Hemochromatosis and CH
Post by seasonalboomer on Oct 14^th, 2007, 7:54am

Here's some info for you from one of our expert sites on this issue:

http://www.med-owl.com/clusterheadaches/tiki-index.php?page=Hematochromatosis

I think I'll hold off on the bloodletting for now.

Scott

Title: Re: Hemochromatosis and CH
Post by Globi on Oct 14^th, 2007, 8:38am

Thanks for the info.

I have been tested positive on 2 DNA mutations. So first they will test ferritin and transferin. If those levels are high they will go for a DNA test.

So....blood letting is not an option if only your ferritin en transferin levels are up......DNA testing has to be done as well.

Globi