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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Clustermasx help
        
(Message started by: Emily on Oct 8^th, 2007, 6:06pm)

Title: Clustermasx help
Post by Emily on Oct 8^th, 2007, 6:06pm

Hi all,

I'm sure this has been posted a few times already, but where can I get hold of a clustermasx?

I tried to get my doc to give me a bubbler to stop me sounding like Darth Vader after a hit or two, but apparently it's not suitable for short burst oxygen therapy and now he won't give me the kind of mask that's required because I don't qualify for tht either. Grrr... My current mask is a normal one with two holes in it. Surely with my tank revved up to 15lpm, the holes defeat the purpose?

The o2 is helping to bring the attack down to a kip 2/3, but I'm sure it would be more effective with the right equipment.

Help someone!

Em

Title: Re: Clustermasx help
Post by BMoneeTheMoneeMan on Oct 8^th, 2007, 7:30pm

www.clustermasx.com

It sounds like what your doc gave you is a regular non-rebreather. The mask on those are pretty bad. What I do it take the mask off of the reservoir bag and throw the mask in the garbage. I just breathe directly from the reservoir bag. In through the mouth, out through the nose.

Hope this helps
B$

Title: Re: Clustermasx help
Post by Sometimes on Oct 8^th, 2007, 9:15pm

Em,

Just put tape over the holes and make sure you hold the mask up to your face, don't strap it to your head.

Even though this may help more, a tiny investment in a clustermasx is SO worth it and makes a big difference!

Good luck!

Title: Re: Clustermasx help
Post by Beastfodder on Oct 9^th, 2007, 6:24am

Bite the bullet and buy a clustermasx.

Also if you're now on a HOOF (Home Oxygen Order Form that your GP fills in) to get O2 at home you'll probably find your local oxygen supplier can be very helpful if you speak to them.

All the best

Title: Re: Clustermasx help
Post by Emily on Oct 9^th, 2007, 7:29am

Thanks for the tips all.

BMonee - There isn't a bag on my mask - just a mask and a hose and that's it. It's pretty lame.

I think I will just get a clustermasx myself. I am on a HOOF, but have to go to my GP for any little amendment to what I already have.

Em

Title: Re: Clustermasx help
Post by Ctech on Oct 9^th, 2007, 6:55pm

Just do a search online for a 02 mask - you can by them all day without a doctors approval.

-Chris

Title: Re: Clustermasx help
Post by DennisM1045 on Oct 9^th, 2007, 10:16pm

I don't think Ben is selling clustermasx yet. Unless I missed something?

-Dennis-

Title: Re: Clustermasx help
Post by Mr. Happy on Oct 9^th, 2007, 10:23pm

This will work as good as the best of them until you get a Mask of the Gods. (http://clustermasx.com)

http://www.mushys.com/O2/tempmask.jpg

Title: Re: Clustermasx help
Post by Emily on Oct 10^th, 2007, 7:06am

That is amazing! I'm SO going to have a go at making that now. Unfortunately, I usually let my dogs have the cardboard tubes to chew, so I'm going to have to be extra careful with my new contraption.

Thanks for the great advice all!

Em

Title: Re: Clustermasx help
Post by Melissa on Oct 10^th, 2007, 12:40pm

::) Now Chris, that was just stupid.

;)

Title: Re: Clustermasx help
Post by luveemom on Oct 10^th, 2007, 3:09pm

Hi Emily,
Correct me if I am wrong, but last time I tried to get a clustermasx from the website I was told they are having problems with orders and payment processing. Check and see if it is back up and running.......I'd like to get one myself...
Good Luck
Alicia

Title: Re: Clustermasx help
Post by CostaRicaKris on Oct 11^th, 2007, 1:15am

I'm sorry guys, we're supposed to use this to smoke what?

;;D

Couldn't help myself

;;D

~Kris

Title: Re: Clustermasx help
Post by BMoneeTheMoneeMan on Oct 13^th, 2007, 10:44pm

I have used that contraption suggested by Mr Hap. It works well.

Like he says, though, 'Dont drool, it shortens the useful life"