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Title: Brain surgery or a cup of tea? hmmm I cant d Post by van101 on Oct 3rd, 2007, 11:20pm Ok people settle down, this aint rocket surgery... You know what works for you and that is all that matters. If it is a placebo effect then great. to those who are on the fence.... Good luck finding any clinical study that suggests a minimum 50% placebo effect. Response of cluster headache to psilocybin and LSD R. Andrew Sewell, John H. Halpern and Harrison G. Pope, Jr Abstract—The authors interviewed 53 cluster headache patients who had used psilocybin or lysergic acid diethylamide (LSD) to treat their condition. Twenty-two of 26 psilocybin users reported that psilocybin aborted attacks; 25 of 48 psilocybin users and 7 of 8 LSD users reported cluster period termination; 18 of 19 psilocybin users and 4 of 5 LSD users reported remission period extension. Research on the effects of psilocybin and LSD on cluster headache may be warranted. This information is current as of August 3, 2007 Ill bet my last dollar that if a clinical study were done using chronic CH sufferers, the placebo effect would be <1%. The Surgery is a last resort radical attempt to bring some relief to CH sufferers. So before letting a scalpel wielding skeptic, who obviously has not done his research, cut into your brain... brew a cup of shroom tea (as per clusterbusters recommended dosage) sit on your couch and giggle for a few hours. Only then can you decide if this treatment can help you. Just for fun, heres is a multiple choice question: Imagine you have the most excruciating pain of your life in your head. One of the following choices might help. Which do you choose first? A. a cup of Ps. shroom tea B. Brain surgery it aint rocket surgery... Van |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by Beastfodder on Oct 4th, 2007, 4:54am With you on this one all the way. Albert Hoffmann first synthesised LSD as part of research for a pharmaceutical company but had no idea what his 'problem child' would lead into with its adoption by youth culture. Through the 50s and 60s it was extensively tested in a range of clinical applications with no evidence whatsoever of long term harm. As the evidence grows for the role it and associated relatives such as RC/HBR seeds and mushrooms plays in CH the problem is that there's a scarcity of funding from the pharma industry as a whole. Not to mention the stigma of being seen to dance with the devil, especially when there are more profitable avenues of patenting various triptans for the Global market. Through clusterbusters an immense amount of work's been done on incredibly tight budgets leading to treatments that are virtually free from the psychedelic side effects associated with hallucinogens. Not to mention those who post here on the long term benefits they receive from alternatives. Brain surgery and associated techniques of stimulation obviously have a role to play in deep rooted chronic sufferers - but only after all else has failed. But given from what I've seen are unconvincing long term tests, coupled with the cost of the procedure you've got to be open minded to alternatives. |
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Title: Re: Brain surgery or a cup of tea? hmmm I cant d Post by clusterwife on Oct 6th, 2007, 9:16pm Hmmmmm, how about, Having surgery to kill the nerves of the affected side or killing yourself? Easy one there!!! Leah |
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Title: Re: Brain surgery or a cup of tea? hmmm I cant d Post by Kevin_M on Oct 6th, 2007, 9:46pm on 10/06/07 at 21:16:01, clusterwife wrote:
How about those being neither as an option when this and an alternative site is thoroughly read. |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by Jill on Oct 7th, 2007, 8:23am Hi... How about you guys NOT be like that about surgery and automatically assume that it is the worst possible surgery. It seems to me that none of you are updated on the latest approaches or why people get it. I have had two surgeries in the last year and neither one of them involved digging into my brain or killing any nerves. Both were nerve stimulators that are being studied on cluster headaches and are being found to work. Maybe I am not the best example of this since it didnt work for me but my clusters arent ''normal'' or easy to treat. I have not found a preventative or a good abortive so surgery was an option. And I would do it again, if I had to do it over again because the chance was there of relief. Not everyone can try shrooms or LSA seeds - dont forget that shrooms arent legal. Some people have to turn to surgery to even think about getting relief and when we are chronic, getting hit ever two hours than that is a real possibility. People come to this site for advice and support, try not to knock what you havent tried and dont know much about. That is all that I ask. Jill |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by Kevin_M on Oct 7th, 2007, 9:35am on 10/07/07 at 08:23:38, Jill wrote:
Some comments are based on the emboldened being not unusual as opposed to not knowing because it wasn't tried. |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by Jill on Oct 7th, 2007, 9:44am Kevin- I am not sure what you mean, sorry. All I meant is that everytime that someone comes to the board with questions about surgical approaches, everyone knocks it. It is like saying that narcotics dont work at all for CH, for some people they do. Just because oxygen doesnt work for everyone doesnt mean that people should say that it doesnt work at all. Or because it does work on most, no one should say that oxygen works for every person and aborts every headaches. The one common thing (and I am sure there is others) is that what works for one person doesnt work for another. Does that make sense? My head is hurting right now so I am not sure if what I am saying makes much sense. Surgery is not an easy option and not something to look lightly at, that is a given. But they are doing more and more studies on nerve stimulators which start out as temporary and cause no nerve damage. I just think that people (me included) have to know all of the facts before they make jokes and make it seem like a stupid decision to have the surgery. And doing shrooms or LSA seeds is not an easy decision either. I have tried the LSA seeds but not the shrooms, they scare me. There is alot to consider when exploring both options That is all that I meant and that is just my opinion. Take it or leave it. Jill |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by Kevin_M on Oct 7th, 2007, 10:12am on 10/07/07 at 09:44:11, Jill wrote:
No joke to say it is not unusual to be unsuccessful over time. |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by Jill on Oct 7th, 2007, 10:30am on 10/07/07 at 10:12:01, Kevin_M wrote:
How do you know that it is going to be unsuccessful overtime? Have you had experience with these surgeries? Is there research to back that up? From what I know and have learned from my neurologist, these studies are in the newer phases and are proving to be effective for some with CH. Does that mean that everyone should go out and do it? No but for those like me that are chronic, have found nothing else to be helpful and get hit too hard and too often to work and sometimes even function, it is a possibility. Who knows what is in the future, arent we supposed to look at all the options? Jill |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by andrewjb on Oct 7th, 2007, 10:38am on 10/07/07 at 10:30:04, Jill wrote:
:), there it is in a nutshell realy. andrew. |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by Kevin_M on Oct 7th, 2007, 10:38am on 10/07/07 at 10:30:04, Jill wrote:
Quote:
Do you think you are the first or only to post this here? And I said it is "not unusual". |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by Jill on Oct 7th, 2007, 11:00am on 10/07/07 at 10:38:42, Kevin_M wrote:
I didnt say that I was the first to post about surgery here and I am not in anyway saying that this is a ''cure all'' for anyone. I am not selling anything and I am not telling people that, 'hey you should go out and try this.' All I am asking is that people not jump to conclusions or automatically say that something is wrong or bad or stupid when it is a legitimate option for some. I am sorry that you dont see that. And I apologize if I in anyway misunderstood you. When you said that it is not unusual that it that it be unsuccessful overtime, that said to me that you dont think that it will work. Is that wrong? No one knows if this will be successful in the long run, no one. How could you know if it is going to work or not? Just try not to judge people for what they are willing to try or not try. Jill |
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Title: Re: Brain surgery or a cup of tea? hmmm I cant d Post by Lotus on Oct 7th, 2007, 11:14am Hello Jill I am interested in learning more about the surgery you are talking about, especially from a person who has personally been through it. Would you be able to share with us exactly what type of surgery you had done and how it was done, plus your personal experiences with the procedure please? Thank you very much. Annette PS: I dont think Kevin is rubbishing your choice of treatment, he was simply commenting that there are other options to consider than just either surgery to kill the nerves or to kill oneself, as posted by Leah. |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by Kevin_M on Oct 7th, 2007, 11:16am on 10/07/07 at 11:00:06, Jill wrote:
I don't recall you saying you were the first to post about surgery here, in fact referred to the opposite. Nope, no mention of cure all either, that wasn't mentioned in any of my posts or any selling either. All needless to be said. You asked for any research but I would think you'd already have loads of links that would have been posted in your first reply here obtained prior to your procedure. There are threads with links about it here, feel free to explore what this site has provided for all over time. Perhaps the name and intent of this thread eluded you. Quote:
The ending can be reasonably imagined. I understand your inhibition about the other option referred to, but I think results are visibly posted to examine and determine for consideration anyway. Aren't these your words? Quote:
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by Jill on Oct 7th, 2007, 12:09pm I am sorry but I am having a hard time understanding what exactly your point is. Maybe it is because I just hurt and cant focus. Who knows... :-/ I didnt post links of my research because I wasnt 'selling' anything or telling anyone that is the route to take. The whole point in what I wrote was to ask people not to jump to conclusions. I did get the jist of this thread - it seems that it says that it is so much wiser to chose to do shrooms than to do any kind of surgery. There was no real reason to start it, that is my thought anyway. I am in no way against trying shrooms nor anything else that people want to try. I know the desperation in trying anything, I have been there and am there many days. I think that you have totally missed my point which is fine. The is the last that I will write to you right now, I have stated my opinion - do with it whatever you want. My goal isnt to argue with you or have a debate, it is to help people who are looking for other options. Just as shrooms might be an option for one person, surgery might be for another - that is their decision. The board is to help people, not make them feel stupid for the options that they look for. That is my point. I hope that this made some sense. Jill |
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Title: Re: Brain surgery or a cup of tea? hmmm I cant d Post by Lotus on Oct 7th, 2007, 12:14pm Sorry you are hurting Jill . I hope you get a break soon and will be in a better mood to share with us your experiences with surgery. Painfree wishes to you. Annette |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by Kevin_M on Oct 7th, 2007, 12:18pm Quote:
on 10/07/07 at 12:09:53, Jill wrote:
Yes, it made sense because you now may understand that people may feel the same way about surgery as opposed to "actually having the experience" of reading the clusterbusters site fully or realizing its benefit. No argument here, Jill. |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by Jill on Oct 7th, 2007, 1:15pm on 10/07/07 at 12:14:47, Lotus wrote:
Hi Annette, I am not in a bad mood, sorry if I came across that way. It has just been a very rough day. What would you like to know about the surgeries? I can give you the basics on it, feel free to ask me any questions. The first surgery that I had done was called an occipital nerve stimulator - they put two probes into the nerves in the back of the head. They did it on both sides even though my clusters are on the left so that they wouldnt switch sides. The second surgery was a super-orbital nerve stimulator and with that one the put a probe above my right eyebrow. Both surgeries were trials, I had the probes in for a week and looked life a goof because I had wires (big wires) coming out of my head and into a little box that controlled the settings. With the permanant stimulator, you dont see the probe or the wires, it all goes under the skin with the biggest part being the battery pack. They told me that it isnt noticeable, more like having a pacemaker under the skin. The idea is to cause stimulation to the nerves, the amount of which I controlled. They gave me four programs to play around with which moved the stimulation around a bit and it allowed me to control the amount. The sensation was a little weird, kind like a bee buzzing under the skin of your head. Given time, one can adjust to this sensation without a problem. Unfortunatly for me, the second surgery helped reduce my pain like five percent which wasnt enough for me to be considered for the permanent one. I have heard though that it takes about six months to notice the full effect and the percentage of improvement after that time is higher. This, having the surgeries, was not an easy decision to make and there is alot to take into account when you are considering the permanent one. I have decided that it didnt help enough to have it done permanently right now, it is still in consideration though. I hope that this made some sense. If you have any questions, feel free to ask me. And, Kevin, it seems that we were pretty much on the same page. People can make their decisions based on the information that they find. There is the good and bad with everything. Jill |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by Kevin_M on Oct 7th, 2007, 1:28pm on 10/07/07 at 13:15:23, Jill wrote:
I will agree Jill, but have noticed by extremely far, more effective testimony to the clusterbusters method, better study results, and being a much safer method. I simply preferred to be of that opinion on the matter being their site is extremely well managed and carefully considerate in all aspects of people coming to them because of CH. I only hope also you can somehow not be a subjected to the capabilities of CH. |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by Jill on Oct 7th, 2007, 1:55pm I understand Kevin - they do have a good site with lots of information. But it has taken some time for them to get where they are. Maybe in time other approaches will also be studied as much. I wish that there was more information on clusters out there and that more research was being done to find a cause and a cure. But wishes wont get me far. Right now we all do what we can. [quote author=Kevin_M link=board=meds;num=1191468051;start=0#18 date=10/07/07 at 13:28:50]I only hope also you can somehow not be a subjected to the capabilities of CH. /quote] What do you mean? I am chronic and have been for the past five and a half years. I know the capabilities of clusters. Meaning that I know what they do to a person on both the physical and mental level - they have taken alot away from me. And I hate it. Jill |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by Kevin_M on Oct 7th, 2007, 2:55pm on 10/07/07 at 13:55:51, Jill wrote:
Agreeably Jill, in big part due to the perception of the method. Taken time, but quite patiently, thoroughly, and successfully. Quote:
Chronic here too and aware of the levels mentioned. Within the capabilities also are what they take away. That is a part of what this site helps with also. If you read the tagline of some, such as "Never postpone life for fear of CH", among others coping also, you will know to be among a very similar minded. Hating it is a part and so options that are effective are a shared importance. Wanting to share ways effective to live life fully despite CH with management techniques acquired here is so much a part. Sharing and helping with the struggle improving life is challenging with CH but I hope you stick around and use the vast resources of so many to inquire and expand. Quote:
On the left, one of the options is O.U.C.H., our organization at the forefront of advocasy and with the best compilation of research and study of CH. Navigate there also, although a cure would not be there. Ideas on causes are being done but we are a small crowd comparatively and though much is being done, there remains a certain cloudiness, and understandably research money cannot be easily attained. But check out the link and there is accumulated knowledgable experience here. :) |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by van101 on Oct 7th, 2007, 3:31pm on 10/07/07 at 09:44:11, Jill wrote:
Jill This statement really surprises me. People have used shrooms for thousands of years for all sorts of reasons with widely varying doses depending on the desired effect. The Clusterbusters.com recommended dose is less than the recreational dose, approximately 1 gram of dried Ps. mushroom. Potency can vary so being careful is a good idea, like starting with 1/2 or 1/4 of a gram and waiting 20-60 minutes before using the the other 1/2 or another 1/4. Dr.Sewell told me some people sip the tea (of one gram) all day. He also told me that if people do not get results from one dose after 5 days they should try another of the same amount. And then if necessary a third of the same amount. He said some people try a larger dose the third time, and get good results, but he felt it was unnecessary to increase the dose and they probably would have had the same result from a third dose of the same 1 gram. What can you expect? after about 30-60 minutes a feeling i have described as a one beer buzz on a empty stomach, then a few hours of laughing or giggling and finding things to be funny, even if they are not, and maybe some intense colors. Cluster sufferers may experience some shadows during dosing and possibly a hungover feeling the next day. As I understand both of these symptoms are an indication that the dose is working. There is much more to know before trying a dose, so go to clusterbusters.com and do your research and read about others experiences. There are many people there who have achieved incredible results from one dose and once monthly for maintenance. It might not work, but as little as one dose can work and gives many people pain free days and weeks. I believe your fear is of the unknown. Good luck and PF wishes Van |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by Jill on Oct 7th, 2007, 4:17pm Kevin... I have been on this board for sometime now and I know how it works. I have read what is said about clusters, I have listened to what people have tried and I have tried just about everything that has been suggested. I have tried everything but the shrooms. There is research being done but not much and I know that that is because we are such a small group. I was wishing that there was more done and more awareness out there. Maybe in time. I also know what it is like to live with chronic CH and sometimes it isnt as ''simple'' to just get on with life. I get hit just about every two hours with nothing lower than a KIP 8. I have no known good abortive and nothing has worked for me. I have had to stop schooling, stop working and just try to make it through every day. It is impossible for me to hold a steady job right now, it takes all that I have to get through the day. I am not trying to whine here though it might sound that way. I know that people live with being chronic and work but I have also noticed that these same people have a preventative and/or an abortive that works. That makes all of the difference. This is just my history though and my situation, we are all different and we deal with this differently. Quote:
Van, My fear is not of the unknown, there is more to it than that. I understand that many people have had good, great, results with shrooms. I have read the clusterbusters website. I also realize that shrooms are not legal and that there are risks to be associated with it. I have to weigh those risks in my life. I have no place to try shrooms, I will not bring them into my moms house when I stay there or my aunts house when I stay there. And I will not bring them into my own home and put at risk those that live with me. This is just my decision though, others make decisions based on their life. I am happy that people have had this work, good for them. Me - I am hesitant. Right now, I will deal with the tools that I have and go from there. I hope that this, again, makes sense. All in all, I have my reasons for not wanting to try shrooms and I havent said all of them here. But know I will never knock anyone who does them just as I would hope that no one will knock me for what I do. Thank you though for the information. Jill |
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Title: Re: Brain surgery or a cup of tea? hmmm I cant d Post by Jonny on Oct 7th, 2007, 4:31pm Things that make you go.....Hmmmmmm! ;) Quote:
Quote:
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Title: Re: Brain surgery or a cup of tea? hmmm I cant d Post by van101 on Oct 7th, 2007, 4:51pm on 10/07/07 at 16:31:39, Jonny wrote:
LOL and I was called a troll, or maybe jon has a point? V |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by assaultme on Oct 7th, 2007, 4:58pm Whether Van is real or not...I have been wondering about this for some time That is: How could a surgeon possibly identify and isolate the part of the main nerve that only carries the CH pain??? I mean if the pain from CH travels down that main Trimengial nerve (SP??) from the upper part of the nerves around the eye socket, how could a Doc. possibly isolate the very part that the Ch pain travels through without damaging other parts of the nerve. Like, if he deleted the part of the nerve to give relief to CH pain, who's to say it wouldn't paralyze the face, jaw, eyelid?? Know what I mean?? Dave |
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Title: Re: Brain surgery or a cup of tea? hmmm I cant d Post by van101 on Oct 7th, 2007, 4:59pm You are very welcome Jill, we all make decisions based on our own reasons. Maybe others will benefit from our posts. After all the intelligent posts and the meaningless posts equal only a small percentage of people reading the threads. Good Luck Van |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by Kevin_M on Oct 7th, 2007, 5:14pm on 10/07/07 at 16:17:07, Jill wrote:
Assuming I meant it was simple was not the intended message. Reminders of what can be could be needed in hard times. Quote:
Sorry I've not noticed and seem to have missed any elaboration of your methods used. But if we look at it as the procedures you had haven't helped, then the search continues. Many things mentioned don't work for me, too. Continuing to find management is the option, remaining hopeful most important. Correct oxygen technique usage or triptans being abortive help, preventatives are varied and level of dosage important, which you acknowledge being absorbed from reading and maintaining an awareness. Seed usage you mentioned has developed good guidance, and for some, individual slightly varied techniques among the better informed. There exists something to help. Keep the interest here and confer freely about whatever possibility, some maybe revisited again in a different way. Hoping changes for you, Jill. :) |
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Title: Re: Brain surgery or a cup of tea? hmmm I cant d Post by Jonny on Oct 7th, 2007, 6:35pm on 10/07/07 at 16:51:12, van101 wrote:
Very well could be a valid point, no? |
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Title: Re: Brain surgery or a cup of tea? hmmm I cant d Post by MJ on Oct 8th, 2007, 1:17am Whatever treatment you seek it needs to be about how comfortable you are. I have had CH over 30 plus years and many years ago I was setup to have my nerve cut or whatever they were gonna do in AZ when they first opened the Mayo clinic their at Scstdl north memorial. Miraculously a 3 year cycle ended just before and we cancelled the surgery. Having researched further since, I have not been sorry about that one. Many more years of CH with absolutely nothing ever found to help the pain and at last I have been longer pain free with the buster treatment (RCseeds) than I can ever remember. Even then It took a lot of trial to make them work for me. If ones comfort is found drilling a hole in your head with a very low success rate or using an illegal drug with a much higher success rate, so be it. I chose the drug the second time. |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by MJ on Oct 8th, 2007, 1:30am on 10/07/07 at 16:58:38, assaultme wrote:
That is the risk and the reality of that particular treatment. However when one suffers with 8 or more hits for 20-24 hours a day of excruciating level 10 pain its a price many are willing to pay if it was known to work absolutely. Sadly it doesnt work absolutely. Many who have it done still suffer. |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by Jill on Oct 8th, 2007, 3:03am on 10/07/07 at 16:58:38, assaultme wrote:
Dave, There are some surgeries where they do cut the nerve and that does lead to numbness and tingling on that side of the face. I have, however, learned that many times the clusters switch sides in this case. My surgeries, on the other hand, did not cut any nerves nor did it put any risk to damaging the nerves. The goal was to cause the nerve, super-orbital and the occipital, to be stimulated thus causing less pain. I am research on this but I will have to find it as I have just moved. The risks for my procedures were extremely minimal, basically just the risk of infection which is a risk everytime we take a shot. Being as how I get hit ALOT, it was something to try and though it didnt work for me, I have heard about people who have had it work. I suppose that it depends on how the CH is affecting your life and if there are any other options for you. Kevin, I appreciate the help. Just a little background on me - I have been on every medication that the neurologist at Jefferson can think of and nothing has worked. Some of the more common ones like Verapamil, lithium and others I have tried more than once. For some reason, I just dont respond. I cannot take imitrex and oxygen has no effect - I have tried many times. The only abortive that I have right now are benedryl shots and they calm me down more than they help my head. Right now, I have taken a break from looking for a preventative because there was basically nothing else to try. I do have other meds that help but they are not looked highly at on this board. That is me. I guess that we all have to find what works for us and for some of us, that is hard to find. To have hope is to believe that the end result will be happy, that is hard for me to find many days. I hope that everyone has a painfree and happy day today. Jill |
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Title: Re: Brain surgery or a cup of tea? hmmm I cant d Post by Pinkfloyd on Oct 8th, 2007, 12:09pm Jill, First off, let me say that I respect your (as anyone's) decision not to try psilocybin. Yes we all must make decisions based upon our own circumstances. The only exception to this, IMHO, is when people make such major, life altering decisions without learning all the facts. It seems you've done your homework. Not an easy thing to do when you're constantly being bombarded with pain. I see you had less that good success with the seeds. I'd be happy to review your procedures and see if there is anything that might be done to offer better results. We are learning new techniques and small "tweeks" all the time, not all of which end up on the website immediately. Please feel free to write me any time if you'd like to discuss this, or any treatment. be well, Bobw P.S. Thanks very much to everyone for your contributions to this thread. |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by assaultme on Oct 8th, 2007, 5:31pm on 10/08/07 at 01:30:22, MJ wrote:
Yeah MJ, even though my Ch has been pretty tame compared to others here... I ABSOLUTELY understand. I felt enough of it to understand the total desperation. And if they decided to have surgery done, I would never fault them for it. Would only wish them good luck with it. The attacks feel like they are an actual "entity" who is attacking. This entity has what seems like actual "intelligence" Like some kind of physical assault from an opponent you cant see or fight back against...then it leaves. Leaving you with fear of when it might return!!! Of course, there isn't a monster inside my head with a hammer. But my description sums up for me the feeling I get about the nature of the attacks. Anyways, I hope those who have surgery have 100% good luck. No one deserves this terrible condition. Cheers, Dave Oh and BTW, thank you for your reply Jill !!! :) |
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Title: Re: Brain surgery or a cup of tea? hmmm I ca Post by Beastfodder on Oct 9th, 2007, 6:20am Jill, Really do wish you well, me - I'm just grateful I'm episodic. Having done more than a fair share of 11 week clusters without abortives or preventatives I do know how it can tear your life apart. Do think the lesson here is that we're all different - and if after everything else has failed then surgery is a perfectly valid choice. Equally having found a treatment that's working for me, it's easy to turn into an uber evangelical running roughshod over other people's sensibilities. More so when the fear of the unknown seems to be the biggest hurdle - especially if you feel left on your own to fight this. Hopefully this thread will show that above anything else you're not on your own fighting this - and there's a lot of people here who are more than happy to help you. Shame Bob Wold/Pinkfloyd isn't British or I'd be nominating him for a knighthood for the work he's done - pushing the envelope of alternative therapies. I should know - maybe, just maybe, I've managed to miss the Autumn cycle altogether for the first time in years. That's something I'd gladly wish for all CH sufferers. |
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Title: Re: Brain surgery or a cup of tea? hmmm I cant d Post by vig on Oct 12th, 2007, 2:58pm I'll take a cup of tea and a little honey. all kidding aside. I think Mushrooms enhance whatever mood you are in, to a large degree. If you are in a good mood when you eat them, you will be in a great mood.... If you are in a fowl mood, God help ya. it's gonna be a long, hard day. or do what I do and abort the mission.... and wait for a good day. ============ I'm really not sure what there is to be afraid of with Psilocybin after all the toxic/dangerous things we've taken to stop Cluster HeadaCHes. It's very mild in small doses. no lingering after effects. It's NOT taken daily or even frequently. Prednisone does FAR more damage to us. |
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Title: Re: Brain surgery or a cup of tea? hmmm I cant d Post by clusterwife on Oct 15th, 2007, 7:43pm Jill, pm me and I'm sure kevin will explain all the pills that he has taken and all the hospital stays to try a "new" cure. He did his homework and decided to have the surgery. It worked great for 2 years, now he getS them on the non-numb side too. He still believes he made the correct decision. He uses 02 when they "break" through bad. Is it, the surgery, a cure-all? Nope. It is another treatment. Good luck, and painfree wishes, Leah. |
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