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Title: Bubble Gum & Water Post by malkidm on Sep 26th, 2007, 12:20pm OK, I know this will sound odd, but I am 100% serious. I hope that this technique will work for some of you. I'm in the middle of a cycle and up until this past weekend, I've been hit with KIP-8's at night. In a fit of desperation, I tried something new. Chug 10oz of COLD water (a la "water X 3" technique) and chew a piece of gum (Vigorously). The result: pain peaks at KIP-6 and the hit is over after about 10 minutes. Go ahead and call me nuts, but it works for me every time. Anyway, if anyone is willing to try this technique, please let us know how it works out for you. Just an FYI, I don't have any scripts for REAL medications yet. My first neuro appt is in November. So, I'm just trying to get through the next few months. |
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Title: Re: Bubble Gum & Water Post by Linda_Howell on Sep 26th, 2007, 2:43pm In the meantime print out everything you can to take with you to the new Dr. when you go. Chug one of the energy drinks like rock star, red bull, etc. Strong coffee, ice packs, sit in front of the AC or a fan...these might help you get through til November too. I won't call you nuts but I have never heard of the bubble gum technique. :-/ |
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Title: Re: Bubble Gum & Water Post by vietvet2tours on Sep 26th, 2007, 4:10pm on 09/26/07 at 14:43:49, Linda_Howell wrote:
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Title: Re: Bubble Gum & Water Post by Linda_Howell on Sep 26th, 2007, 5:14pm Smart ass. ::) |
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Title: Re: Bubble Gum & Water Post by Wayne on Sep 26th, 2007, 5:21pm on 09/26/07 at 16:10:58, vietvet2tours wrote:
So if a new person on the board who makes stupid comments is defined as a troll then what is an oldie who just hangs around making crappy comments about other peoples posts? A Hobgoblin????? |
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Title: Re: Bubble Gum & Water Post by seasonalboomer on Sep 26th, 2007, 5:28pm on 09/26/07 at 17:21:18, Wayne wrote:
easily entertained. ;) |
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Title: Re: Bubble Gum & Water Post by Wayne on Sep 26th, 2007, 5:35pm on 09/26/07 at 17:28:27, seasonalboomer wrote:
Fair enough, maybe a donation of a jigsaw puzzle or such would keep them off the board. |
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Title: Re: Bubble Gum & Water Post by vietvet2tours on Sep 26th, 2007, 5:40pm on 09/26/07 at 17:35:26, Wayne wrote:
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Title: Re: Bubble Gum & Water Post by Wayne on Sep 26th, 2007, 5:44pm I'm suggesting that if you don't have anything positive to say then either use the PM or shut up!! I've been around here for a while and I have had guts full of the negative comments creeping in all over the board lately! |
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Title: Re: Bubble Gum & Water Post by vietvet2tours on Sep 26th, 2007, 5:48pm on 09/26/07 at 17:44:40, Wayne wrote:
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Title: Re: Bubble Gum & Water Post by Wayne on Sep 26th, 2007, 5:50pm As I suggested - a Hobgoblin. |
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Title: Re: Bubble Gum & Water Post by Jonny on Sep 26th, 2007, 5:55pm on 09/26/07 at 17:50:29, Wayne wrote:
Hey!, your giving my kind a bad name.....LOL Have some gum, Wayne. ;) |
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Title: Re: Bubble Gum & Water Post by Wayne on Sep 26th, 2007, 5:57pm I'm chewing like a mad cow as we type. Actually I rather like the name! |
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Title: Re: Bubble Gum & Water Post by Linda_Howell on Sep 26th, 2007, 6:00pm OMG, Wayne, please get a grip. Potter was kidding around with ME.. Let's not start a brew-ha-ha on this board too, over something that was so innocent. Jeeze.......... |
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Title: Re: Bubble Gum & Water Post by Wayne on Sep 26th, 2007, 6:09pm That's why I said use the PM for a private joke, no need to hijack the blokes thread. |
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Title: Re: Bubble Gum & Water Post by nani on Sep 26th, 2007, 6:20pm on 09/26/07 at 18:00:58, Linda_Howell wrote:
Now you're bringing Bill into this!?! ;) Actually, someone else posted about this before (I believe that was the day don came back as chewy)... If you really think about it... could chewing vigorously actually help draw blood away from your head and into your jaw? Maybe... Probably useless for a full on k10...but a k5? |
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Title: Re: Bubble Gum & Water Post by Kevin_M on Sep 26th, 2007, 6:35pm on 09/26/07 at 18:20:07, nani wrote:
Why, you remember the very day he came back into your life again. You have a crush on him, don't you. Ah, the serenading sound of bagpipes under your bedroom window at 3:00am. Damn, I remember that too. He appeared a stranger like CIA undercover, more like Peter Sellers though, which jonny ID'd in about 20 minutes. ;;D |
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Title: Re: Bubble Gum & Water Post by assaultme on Sep 26th, 2007, 8:22pm on 09/26/07 at 18:00:58, Linda_Howell wrote:
You crazy kids cut out the malarkey and brew ha ha [smiley=laugh.gif] [smiley=laugh.gif] [smiley=laugh.gif] Just teasin' Linda [smiley=laugh.gif] Dave |
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Title: Re: Bubble Gum & Water Post by chewy on Sep 26th, 2007, 8:33pm on 09/26/07 at 17:44:40, Wayne wrote:
I would suggest that you STFU entirely for awhile. Save up a buck and go get yourself a handful of Bazzokas to get you through the learning process. Quote:
I honestly can not believe you guys remember that! Most people think Chewy is a knockoff for Chewbacca. It was actually a stupid and ludicrist post about chewing gum (like this one) that drew me out. Jonny sucked then. Jonny sucks now. |
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Title: Re: Bubble Gum & Water Post by seasonalboomer on Sep 26th, 2007, 8:40pm on 09/26/07 at 17:35:26, Wayne wrote:
I hate puzzles. Not entertaining at all. |
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Title: Re: Bubble Gum & Water Post by ski2k on Sep 26th, 2007, 9:00pm Um... I hate to admit it, but Nani might be right on the chewing thing... Before I was diagnosed... No... Before I had ever HEARD of cluster headaches, I used to think these "things" had something to do with my issues with low blood sugar. Whenever I felt "that feeling" coming on, I'd quickly make a couple of peanut butter sandwiches and chew them up as fast as I could. Now, after reading this post, it dawns on me that it did seem to help a little. Like malkidm posted, it didn't take them away, just help calm them a bit. There just might be something to that! Weird! [smiley=confused2.gif] Whatever is working for you, keep doing it! Good luck finding some relief, and hope your appt. with the new doc helps out! Adam |
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Title: Re: Bubble Gum & Water Post by Kevin_M on Sep 26th, 2007, 9:12pm on 09/26/07 at 21:00:00, ski2k wrote:
I thought I heard a gas leak can cause painful headaches. First thing I did was have the house checked for gas leaks in the basement and near the furnace. Nothing to do with gum but you just reminded me of that. I chewed gum in class once and had to stick it in my hair. I guess the teacher knew it was drawing blood away from my brain. Wish she had explained that to me. |
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Title: Re: Bubble Gum & Water Post by Ctech on Sep 26th, 2007, 9:59pm I had a doctor tell me that I might have TMJ and that I should not chew gum before I new that I had CH (and sadly I stopped chewing gum for a while...) You never know what might work with CH - it's like voodoo [smiley=eek.gif] -Chris |
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Title: Re: Bubble Gum & Water Post by seasonalboomer on Sep 26th, 2007, 10:04pm on 09/26/07 at 21:59:43, Ctech wrote:
Voodoo? Not really. |
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Title: Re: Bubble Gum & Water Post by Kevin_M on Sep 26th, 2007, 10:37pm on 09/26/07 at 21:59:43, Ctech wrote:
It's never too late to start. I miss the three minutes of flavor. I swallowed it once and was surprised a gum tree didn't grow in my stomach, so you never know. |
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Title: Re: Bubble Gum & Water Post by Ctech on Sep 26th, 2007, 10:54pm What other medical problem has so many crazy treatments? redbull, kudzu, shrooms, water X3, etc... |
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Title: Re: Bubble Gum & Water Post by BMoneeTheMoneeMan on Sep 26th, 2007, 11:06pm rapid chewing does not work for me. It's been several times I have been hit while eating. Go to a restaurant and the second the food comes, bam. So i try to scarf down food as fast as i can so i can get out to the car and get on the O2. But as many times as it has happened, rapid chewing of a half a meal sure didnt make it go away!! |
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Title: Re: Bubble Gum & Water Post by Kevin_M on Sep 26th, 2007, 11:06pm on 09/26/07 at 22:54:35, Ctech wrote:
I haven't looked into all the ways of warding off voodoo spells, which I hear can be fatal at times, or doing things for good luck for medical problems but I'd be cautious about being as expansive with clusters. |
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Title: Re: Bubble Gum & Water Post by nani on Sep 26th, 2007, 11:39pm on 09/26/07 at 20:33:39, chewy wrote:
That was some of the most hilarious stuff you've ever written here. I PM'd you right away asking who you were, and you sent a pic of chewbacca. Then you gave it away by spelling a certain word wrong, and I knew it was you. I think my next PM asked about Tucker. LOL... I'm still kinda chuckling about those posts. |
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Title: Re: Bubble Gum & Water Post by Kevin_M on Sep 27th, 2007, 12:01am on 09/26/07 at 23:39:24, nani wrote:
And I'm very willing to bet he used "too" in a sentence but spelled it "to". ;) His posts certainly raised curiosity but that's when I caught on. A post by jonny many replies previous was a bit more knowing. ;;D |
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Title: Re: Bubble Gum & Water Post by nani on Sep 27th, 2007, 12:39am Nope, not too...it was a differant word. |
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Title: Re: Bubble Gum & Water Post by Ctech on Sep 27th, 2007, 2:00am on 09/26/07 at 23:06:48, Kevin_M wrote:
I'm sure if someone saw me dance and bang my head during an attack they would think that I was performing some sort of voodoo dance. |
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Title: Re: Bubble Gum & Water Post by sandie99 on Sep 27th, 2007, 2:44am malkidm, I'm curious: which one you believe to be more helping; the cold water or the gum/chewing? I'm asking, because I drink a lot of cold water and I do chew a lot of gum. I do admit that I haven't been chewing gum during shadows/hit, but I've tried loads of other things in the past.... And I happen to have chewing gum with guarana in it and I know that I can get chewing gum with caffeine and taurine as well - and because energy drinks and caffeine tabs help me, they could, too. PF days, Sanna who is open to new ideas in case they could help her |
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Title: Re: Bubble Gum & Water Post by seasonalboomer on Sep 27th, 2007, 6:19am on 09/26/07 at 22:54:35, Ctech wrote:
Okay, I'll try.... How bout hangovers? Or, the common cold? Or cancer (type "alternative cancer treatment" into your google slot)? |
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Title: Re: Bubble Gum & Water Post by Lotus on Sep 27th, 2007, 6:49am Please go back to basic and remember that during a CH hit the trigeminal nerve is activated. The pain one feels behind the eye is the opthalmic nerve firing away. The trigeminal nerve is the largest of all cranial nerves and it has 3 branches : opthalmic ( eye ), maxilla ( cheek ) and mandibular ( jaw ), that is why during a hit one can feel pain in all these areas. The pain behind the eye is the most common as the opthalmic nerve is almost always involved. Some feel pain along the cheek and sinuses from the maxilla nerve causing the confusion that one has sinus problems. Other feels pain in their jaws or teeth if the mandibular nerve is affected. Many people got their teeth pulled out mistakenly because of this. Chewing vigorously may draw more blood to the jaw but then you risk irritating the mandibular branch of the trigeminal nerve, that may give you new pain as well as the risk of biting your tongue. Rocking and chewing vigorously arent safe to be performed simultaneously in my opinion. You are all welcome to try this method, but please take a minute to consider the mechanisms behind CH and apply some thinking before doing so. Should you give yourself new pain in the jaw or bite your own tongue, dont say you werent warned! :P Annette |
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Title: Re: Bubble Gum & Water Post by Kevin_M on Sep 27th, 2007, 7:15am on 09/26/07 at 21:59:43, Ctech wrote:
on 09/27/07 at 02:00:51, Ctech wrote:
Would it be at this point you'd be happy to remember the Bubblicious in your shirt pocket? |
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Title: Re: Bubble Gum & Water Post by Kevin_M on Sep 27th, 2007, 8:39am on 09/26/07 at 12:20:30, malkidm wrote:
I see I erred in my previous post. If you had remembered the Bubblicious earlier, the dance would not have even occurred. Now you make me feel so selfish and guilty. Prior to knowledge of preventatives, I had a seriously ramping hit at work but just kept on reading about the Tigers winning in the sports page, box score and all. Suddenly, the pain just started going away and to my amazement, disappeared. Sadly, I never chose to follow up on that or kept the sports section by the bed as an abortive like I do oxygen now. I should have immediately ran here to the board and shared that when the Tigers win and you read the whole story, a hit will disappear. Nowadays, there are perhaps two to three daytime hits trying to progress but in time subside, that I attribute to preventive measures though. Stopping a speeding freight train everytime by putting gum on the tracks never seemed to occur to me. |
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Title: Re: Bubble Gum & Water Post by malkidm on Sep 27th, 2007, 11:20am Sorry I caused such a stir. I'll keep my mouth shut from now on. Thanks everyone! |
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Title: Re: Bubble Gum & Water Post by Kevin_M on Sep 27th, 2007, 11:32am No concerning stir really, more like a bubble. Feel free to read, question, and comment concerning CH. |
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Title: Re: Bubble Gum & Water Post by Kevin_M on Sep 27th, 2007, 12:00pm Malkidm, No offense intended but after reading your first post on the newbie board: on 09/25/07 at 15:21:52, malkidm wrote:
and then reading a next day post here: on 09/26/07 at 12:20:30, malkidm wrote:
You must understand the "works for me every time" constrasting greatly with the newbie post left huge room for doubt, expressed in many different ways. Good luck to you and hope the appointment is beneficial. In the meantime, there are suggestions and options that have helped some here that may be of use if you need. Welcome |
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Title: Re: Bubble Gum & Water Post by EstieSA on Sep 27th, 2007, 12:42pm on 09/26/07 at 18:09:22, Wayne wrote:
YHPM ;) |
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Title: Re: Bubble Gum & Water Post by Wayne on Sep 27th, 2007, 2:36pm on 09/27/07 at 11:20:03, malkidm wrote:
You didn't cause the stir, there are just some a'holes here that think that, because they have a thousand plus posts under the finger, they own the board. Just remember that if everyone thought inside the box like that we'd all still be taking panado and banging our heads against the wall - alone. Can you imagine the reaction to the first person who suggested Topomax or Shrooms as a method of controlling these things?? |
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Title: Re: Bubble Gum & Water Post by BlueMeanie on Sep 27th, 2007, 2:42pm on 09/27/07 at 14:36:24, Wayne wrote:
::) :-X |
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Title: Re: Bubble Gum & Water Post by seasonalboomer on Sep 27th, 2007, 2:58pm on 09/27/07 at 14:36:24, Wayne wrote:
yeah, those darn a'holes. nothing better to do than to declare dominion over a public message board. There greatest goal is to keep the sufferers banging their head against the wall taking Panado (whatever that is). who the f are you? how do you know what each of the people who have offered some degree of healthy skepticism about the bubble gum method have gone through? what they've personally tested? how open their minds are? I'll say it again, if one of your first posts is to tout a new cure, or a miracle, or something resembling that, and you aren't willing to stand by it and test it with others, then you'll experience some critical review of your method. why shouldn't you? scott |
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Title: Re: Bubble Gum & Water Post by vietvet2tours on Sep 27th, 2007, 3:06pm on 09/27/07 at 14:36:24, Wayne wrote:
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Title: Re: Bubble Gum & Water Post by chewy on Sep 27th, 2007, 7:36pm on 09/27/07 at 14:36:24, Wayne wrote:
About the same reaction people are getting from you. Can you spell P*E*C*K*E*R*H*E*A*D ? |
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Title: Re: Bubble Gum & Water Post by Lotus on Sep 28th, 2007, 4:41pm on 09/27/07 at 14:36:24, Wayne wrote:
In the case of Topamax, it was the research team at Janssen - Cilag who recommended its use for migraine and CH. This recommendation is based firstly on scientific knowledge. The trigeminal nerve in both migraines and CH is activated and is the main cause of the severe pain felt. Topamax being an anticonvulsant which can dampen down nerve activity will have a preventative effect for both conditions. This speculation is then further investigated by several clinical trials before the final recommendation is released to the public. I dont know who was the first person who suggested shroom use, but it would be based on scientific knowledge as well. Its well known that the ergots in ergotamin and DHE are derived from similar mushrooms. It was wellknown what is the effect of the indole ring on the blood vessels. New ideas and suggestions are always welcome, but they should be at least based on scientific knowledge and then some reliable testings, prior to sale pitch. Annette |
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Title: Re: Bubble Gum & Water Post by pattik on Sep 28th, 2007, 4:54pm Quote:
It's a good thing that Flash wasn't listening to your advice, or he would have never shared his personal findings regarding the way that mushrooms eliminated his CH episodes. Fortunately for some of us, DJ was open minded enough to allow this ground-breaking information to get into the open. Pinkfloyd and others had the courage and forsight to run with the idea, and now the science is catching up....finally. |
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Title: Re: Bubble Gum & Water Post by Lotus on Sep 28th, 2007, 5:10pm So Flash was the first person to suggest shroom use for CH? Would you be able to share the history so that we would learn how it all came about? Thank you very much. From what I have read, Flash is very knowledgable about shrooms and its molecular structures as well as its therapeutic effects. The clusterbusters website has all the scientific information on shrooms and seeds for people to learn from, and that is the way it should be. If Malkidm could do a bit more research and put forth his idea of how vigorous chewing can help CH then I am all ears, until then I will remain skeptical. Annette |
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Title: Re: Bubble Gum & Water Post by nani on Sep 28th, 2007, 5:54pm on 09/28/07 at 17:10:15, Lotus wrote:
http://www.clusterbusters.com/2000.html Start at the bottom of the page. I'm pretty sure Flash didn't know much about the molecular structure in the beginning. He just knew it was working for him. |
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Title: Re: Bubble Gum & Water Post by Lotus on Sep 28th, 2007, 6:10pm Thank you very much Nani I am reading more but this is what Craig ( AKA Flash ) wrote back in 1998 I use small doses of LSD to prevent CH -------------------------------------------------------------------------------- [ Follow Ups ] [ Post Followup ] [ Cluster Headaches Messages ] -------------------------------------------------------------------------------- Posted by Craig on July 28, 1998 at 10:25:15: Thank God for this site! I am 28 years old and I have suffered from CH since the age of 16. Typically two bouts 6 months apart lasting 1 month, up to 8 headaches a day, 30-60 mins but have been longer recently. The GPs and neurologist I have seen haven't been much help. The best thing I've been prescribed is propanolol with amitriptylene. My last cluster was over Christmas, ending in January and the next one is starting :( Last time it was so bad I really thought I was going to burst a vessel. The GP put this down to excessive use of analgesics (prescribed by her colleague). I can believe that... moral don't use analgesics! In October I'm going to do something horrible in an effort to prevent CH recurring for a while. I'm going to take a very low dose of LSD type substance obtained from liberty cap mushrooms. My GP went ballistic when I told him about this plan during last cluster. Let me explain. I'm not a recreational drug user, but I used to be. These days I run a successful IT business, employing 12 people. From 1989-1994 I experimented with soft drugs for fun, among them cannabis and LSD. Cannabis tended to bring on a headache during a cluster. I didn't take LSD during a cluster. By 1995 I had out grown recreational drugs, in fact I'd become a little scared of them! I had clusters in 1986,87,88,89,90,91,92,95,98. Spot the gaps! After 2 cluster free years I had a cluster in 1995, that's when I started to look at what was different in 1993 & 1994. The only thing I could think of was that I had taken LSD a couple of time those years. By this time I had a good contract job and knew that a cluster would jeopardize that. I searched the web for LSD + migraine. The first article I found was on the discovery of LSD by a Swiss chemist researching a cure for migraine. This research was initially focussed on the liberty cap mushroom. This mushroom had reportedly been use in the treatment of migraine for many years. Lewis Carrol may have been among those who tried it. This tenuous link wasn't much but worth investigating (I wasn't doing anything that I hadn't already done). I am scared of LSD. It can be an extremely unpleasant drug. I was also worried about taking it since I had a good job etc. and didn't want to go back to recreational drug taking... however if a cluster started I could kiss the job bye bye. I decided to use liberty cap mushrooms opposed to blotter acid, since the mushrooms are legal. At this point I didn't know how much LSD each mushroom contained, but I wanted to start with the equivalant of a street dose. To cut a long story short this is approx 50 mushrooms. Through trial and error I learned that the mushrooms could be preserved in honey for at least a year. I also learned to prepare them by boiling in water for 5 minutes then digarding the mushrooms and drinking the water. Subsequent testing has reduced the required quantity of mushrooms down to a more acceptable 10 - this almost eliminates the undesirable effects of the drug. As I've stated I was due a bout in November 1995, so I took the first dose immediately. I took them again in May 1996 and finally in January 1997. During this period I remained headache free. I stopped the mushrooms to see if the headaches would return. They did, but not until January 1998. I can't do much about the cluster starting now, but I intend to pick more mushrooms in October and see if I can prevent any future clusters. If this is successful then I will continue to take mushrooms for the foreseeable future. I think proper clinical research should be done on the affects of LSD on our condition. Perhaps they could combine the drug in a pill that also contains a sedative! Hang in there! As I thought, despite already having experiences with LSD, Flash DID do some researches before embarking on it. He used it with caution and recommended further clinical research on its use. I totally agree with him. So far with our bubblegum friend here, no research of any kind was done as far as I could see. Annette Edited to add: Pattik, Flash wouldnt need to listen to my advice, he gave out the same. |
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Title: Re: Bubble Gum & Water Post by Kevin_M on Sep 28th, 2007, 7:29pm on 09/28/07 at 18:10:26, Lotus wrote:
A catch-phrase and some picture of actors in long white coats was missing. 4 out of 5 dentists recommend Trident for their patients who chew gum. |
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Title: Re: Bubble Gum & Water Post by assaultme on Sep 28th, 2007, 7:39pm [smiley=laugh.gif] [smiley=laugh.gif] [smiley=laugh.gif] |
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Title: Re: Bubble Gum & Water Post by Ctech on Oct 1st, 2007, 8:17pm on 09/27/07 at 06:19:55, seasonalboomer wrote:
Wow! Red bull and water X3 wards off cancer :o Man I didn’t know treatments for our condition had so much in common with other ailments... ::) |
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Title: Re: Bubble Gum & Water Post by Kevin_M on Oct 1st, 2007, 8:30pm And I thought I had displayed a poor comprehension of what someone posted recently. |
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Title: Re: Bubble Gum & Water Post by Ctech on Oct 1st, 2007, 8:49pm I was being sarcastic. It seems like that is the hip thing to do around here with the newcomers, so I thought that I would just return the favor ;) |
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