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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> The Indomethacin question??
        
(Message started by: rolo65 on Jul 30^th, 2007, 11:58pm)

Title: The Indomethacin question??
Post by rolo65 on Jul 30^th, 2007, 11:58pm

After the last tree nights of 2-3 hrs sleep and getting hit regularly every 2 hrs (I should have shot the DHE but it’s too hard to prep and shoot during the hit, and then I’m sooo tired I just go back to sleep for an hour till the next hit).

When I woke up this morning, feeling the all day HA thing coming on, I was desperate for some help but didn’t want to drag my leg for the next hour from DHE. I grabbed the bottle of Indomethacin out of the failed med box. Took one and low and behold the shit worked! I wonder if it was useless last time I tried it because of the other five meds I was on at the time. Got to thinking about it last night while reading the post on DBS for CPH.

I was thinking maybe I have CPH but my hits go 30-60 min usually so it doesn’t fit the CPH mold, but who knows? Maybe it’s the troll?

I always get hit around 5 PM on and off till 8 PM. Tonight I didn’t feel the shadow till 7:50 and only got a kip point 5 (tiny twinge) for 10-15 min. Like the first week off a prednisone taper. Rare for me (a 5 yr chronic cluster banger) for sure – for sure.

I quit all the neurologists crap two months ago. The only thing I’ve been on for the last two weeks is RC seeds, and DHE when I need sleep so bad I have no choice.

The Indomethacin is hard on the tummy but if it works does that mean I have CPH?

Just thinking with my keyboard and fingers, using my head for once maybe!

Last time I took it I was breaking out in hives and suspected the Indomethacin, but later determined it to be the anticonvulsants. Go figure!

PF to all,

Roland.

Title: Re: The Indomethacin question??
Post by rolo65 on Jul 31^st, 2007, 3:11am

Well I got the usual 1 AM hit, went to 6 in like 3 min. then weaned away fast (maybe 5 min) and gone in 10-15 min. The 1 AM’er hit is always 45-60 min of horror!

I know the RC seeds didn’t do this instantly, it must be the Indomethacin causing this change.

I’m hopeful, but history tells me it’ll only last for a week or so before becoming ineffective. Same as all the other prevents, but I can only hope.

Rolo..

Title: Re: The Indomethacin question??
Post by E-Double on Jul 31^st, 2007, 8:04am

indomethacin in the suppository form is an old school abortive which some have reported in the past as giving them relief.

you said that you had an all day headache...the indomethin being a harcore nsaid could have taken away the ha but not necessarily the ch attack.....th all day could have been a tension ha.

good luck

e

Title: Re: The Indomethacin question??
Post by Charlotte on Jul 31^st, 2007, 8:22am

all I can say is relax and enjoy your week, kid.

Charlotte

Title: Re: The Indomethacin question??
Post by rolo65 on Jul 31^st, 2007, 8:12pm

That stuf don't work! I'm still recovering from K9 40 min. hit at 2:30 in the work van in a parking lot. The people there must have thought I was phantom fighting with a O2 mask on, in need of an excorsisim.

I should have brought the DHE with me today. I'm afraid to do it out in public fearing someone will call the cops on the junkie in the lot with that big needle!

Someone save me please!! As if that where even posible.

RoloRedEye.

Title: Re: The Indomethacin question??
Post by E-Double on Aug 1^st, 2007, 8:11am

Get over it my friend!!!!

People take their asthma inhalers in public and diabetics shoot up in public.

We are no different with exception to not having a risk of death if we do not take our meds.

good luck!

E

Title: Re: The Indomethacin question??
Post by dbsworks4me on Aug 1^st, 2007, 11:25pm

Here I must say that I have been diagnosed with both cluster headaches anc chronic parocysmal hemicrainia. I had a deep brain stimulator implanted in November 2006. I am 7nmonths out from the surgery and just spent 5 days in hospital whrere the dbs was programmed to astonishing possitive results! I am pain free!!!! Indomethasin did not work after a time, but when it did, it was heaven.
If it works for you, keep on with it and just get your regular checkups and blood work done. I have known of several patients that hve taken up to 300 mg a day for the CHP disorder. Just didn't work for me since I apparently have ch as well as cph.
The deep brain stimulator has made all the difference, but since nithing helped me I had no choice but to hav4 the dbs surgey.

I am hopeful that it will become widely available for relief from the unspeakable pain of both disorders. The disorders are linked and work along the same pathways in the brain.

I am cooperating with an excellent neurologist at Loyola, Maywood and have absolute cofidence. Her name is Dr. Dafer and she consults with Dr, Peter Goadsby regarding the treatment of the headache disorders in this category.

Please don't stop taking the indomethacin and keep inisting on getting a diagoisis It took me a year and a half....
I am painfree after the surgey and I would do it again in a heartbeat,, given the relief I did not think was possible!

Love, peace and courage!
Kris