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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Did you talk to Dr. 'bout it?
        
(Message started by: soulroach on Jul 28^th, 2007, 8:40pm)

Title: Did you talk to Dr. 'bout it?
Post by soulroach on Jul 28^th, 2007, 8:40pm

I was just wondering if anyone talked to their doctors about using mushrooms or seeds? If so what did you say? To me it seems like a sensative subject, being illegal and all. But it seems I would have to tell him if I plan to try and get off my meds in order to have effctive dose of either. I'm torn. [smiley=huh.gif]

Title: Re: Did you talk to Dr. 'bout it?
Post by thebbz on Jul 28^th, 2007, 9:14pm

I would. They deserve to know.

Title: Re: Did you talk to Dr. 'bout it?
Post by nani on Jul 29^th, 2007, 12:26am

Yes, I did. I told my neuro before I ever tried it. I told him about the pending study at Harvard, and he was quite interested.
My PCP and Cardiologist also know. While none have "officially" approved, all are happy to see the relief I've gotten.

Title: Re: Did you talk to Dr. 'bout it?
Post by Brewcrew on Jul 29^th, 2007, 10:12am

I told my doc that I would go this route if'n things ever got too bad (you see, I work for a company that is governed by both the DOT and FAA, so I'm subject to random pee-pee tests). He said that he had read a few things about using them for intractable migraine back in the 50's and 60's, and that he encouraged me to be safe but to go for it if I thought it would be of help.

He then proceeded to tell me how methysergide and LSD are chemically very similar.

He's a cool doc.

Title: Re: Did you talk to Dr. 'bout it?
Post by soulroach on Jul 29^th, 2007, 10:50am

Thank you all for the input. I guess I'll just have to man up and discuss the possibilties like an adult!? It will be difficult, but I know it's the proper procedure, and if I'm gonna do it, I want to do it right. Thanks again for the justification to my thought process.

Title: Re: Did you talk to Dr. 'bout it?
Post by BMoneeTheMoneeMan on Jul 29^th, 2007, 11:47am

I am hesitant to talk to my neuro about this. It was difficult a few weeks back as he basically demanded that i get on a preventative. I should have told him about the shrooms then, but I just dont know if i am comfy with that.
I cam home with a script for Topomax.
;)

Title: Re: Did you talk to Dr. 'bout it?
Post by Pinkfloyd on Jul 31^st, 2007, 6:10pm

I (we) always recommend people talk to their doctors about this subject or anything for that matter when you consider a change from normal routine, diet, supplements, or medication changes/options.

Even grapefruit juice can have an effect on your medications, for crying out loud. You're paying for his/her advice and they know better than anyone (or should) what might be a good or bad option based upon your current physical condition and medication regimen.

I think the easiest way to broach the subject with your doc about this alternative, or any that you may wonder about his reaction, is to not necessarily tell them you are thinking about it, but ask their opinion on the subject.
Print out and bring in any one of a number of articles on the subject, and ask his/her opinion. You'll find out quickly about their position on the subject.

Some are quick to dismiss anything that you say you found during an internet search and that might start the conversation off on the wrong note. So, I would suggest mentioning seeing an article in either Nature Magazine, The L.A. Times, The Chicago Sun Times, the trade publication "Neurology" (tell him you found it in his waiting room) or on the tv show House for that matter.

If they know their stuff at all, pharmacologically speaking, they should have a similar view as Brewcrew's doc about the substance(s), even if they don't concur on its use, unofficially.

Bobw

Title: Re: Did you talk to Dr. 'bout it?
Post by pattik on Jul 31^st, 2007, 10:23pm

I was a little nervous telling my doctor what I was intending to do, but having the Harvard study to refer him to got his attention. I didn't receive any approval or disapproval, but he's been with me for ten years and has an open mind. I'll be giving him even more information about my positive results during my next appointment, and it should be interesting to see if he reacts any differently.

Pat

Title: Re: Did you talk to Dr. 'bout it?
Post by soulroach on Jul 31^st, 2007, 11:12pm

Yea, actually I went to the neuro. today and was armed with all kinds of info I learned from or was directed to by this site and everyone in here, and for that I thank you all. I did bring up the subject of shrooms and seeds. He was cool too, I was suprised. He said how he's heard more from seeds and that how he also heard you would benefit more if you were med free. He followed that with a reminder that I am not and I can't just stop the meds cold turkey(true). Then he even joked about it, he said "I can't write you a prescription for shrooms, guess you'll have to grow your own." So yea, I don't think he endorses it but I think he at least understands.

Title: Re: Did you talk to Dr. 'bout it?
Post by Brewcrew on Jul 31^st, 2007, 11:24pm

on 07/31/07 at 22:23:00, pattik wrote:

I was a little nervous telling my doctor what I was intending to do, but having the Harvard study to refer him to got his attention.

Do you have a link you could share? ;;D

Title: Re: Did you talk to Dr. 'bout it?
Post by pattik on Jul 31^st, 2007, 11:30pm

This is just a synopsis, but it could help...it's not about the seeds, though.

http://www.neurology.org/cgi/content/abstract/66/12/1920

Title: Re: Did you talk to Dr. 'bout it?
Post by Pinkfloyd on Aug 1^st, 2007, 1:21am

on 07/31/07 at 23:12:40, soulroach wrote:

he also heard you would benefit more if you were med free.

Well that is incredibly cool. That means that either he has read quite a bit on the subject (its not a detail that appears in many of the articles) or the conversations among docs includes some of the finer points. The fact that he'd want to pass that info along is.....heartwarming.

Bobw

Title: Re: Did you talk to Dr. 'bout it?
Post by Brewcrew on Aug 1^st, 2007, 8:29am

on 07/31/07 at 23:30:06, pattik wrote:

This is just a synopsis, but it could help...it's not about the seeds, though.

http://www.neurology.org/cgi/content/abstract/66/12/1920

Thank you, ma'am.

Title: Re: Did you talk to Dr. 'bout it?
Post by birdman on Aug 1^st, 2007, 9:23am

Always wanted to but feel that they will back off. Promising myself that I will bring it up at my next appointment. Nothing to lose.

Title: Re: Did you talk to Dr. 'bout it?
Post by soulroach on Aug 1^st, 2007, 9:42am

Exactly how I felt, but like you said, nothing to lose. I just started talking about things I heard and or read, and then just kind of threw that in the mix. I was going to read his reaction and if he would have bawked I would have denounced as well. But like I said he just seemed indifferent, not for, but not totally against, just a field where he doesn't go. It really is just another fact that we have learned along the way.

Title: Re: Did you talk to Dr. 'bout it?
Post by Squanto on Aug 1^st, 2007, 9:43am

Timely topic for me.

I had an appointment with my Neuro yesterday - going-in I had every intention of discussing shrooms and seeds with him. In the middle of the visit I decided not to tell hiim about my experience with shrooms. (And that i'm heading to Amsterdam to get some more.)

Why'd I chicken out? Well, it's my impression that he's the kind of guy who gets out of the shower to pee. So I didn't tell all.

Squanto

Title: Re: Did you talk to Dr. 'bout it?
Post by fiftyamp on Aug 1^st, 2007, 4:03pm

If your DR has a closed mind to alternative therapies, especially those that have helped so many, maybe you should look to a different Dr. Anything that helps aleviate this fucked up condition has to be considered. I'm all for being completlt open to the Drs. It's not like they can call the cops on you. Closed mindedness is a sure sign of ignorence.

Title: Re: Did you talk to Dr. 'bout it?
Post by Brewcrew on Aug 1^st, 2007, 5:06pm

on 08/01/07 at 16:03:23, fiftyamp wrote:

And open-minded doctors are in the minority.

Title: Re: Did you talk to Dr. 'bout it?
Post by UN solved on Aug 1^st, 2007, 7:18pm

I talked to several neuros before I tried shrooms and they were all interested. 2 of the 3 I've seen since have asked about it, the dose, the effects, etc. No doctor said "Don't Do It".

UNsolved