Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> O2 Tips?
        
(Message started by: TomM on Jun 14^th, 2007, 5:56pm)

Title: O2 Tips?
Post by TomM on Jun 14^th, 2007, 5:56pm

After 15 years of CH, I recceived my first O2 tanks an hour ago. I was told to use 7 LPM.

Anyone have some tips to share? I bought a few rebreather masks, nebulizers, and tubes from Moore Medical.

Tips? Suggestions?

TomM

Title: Re: O2 Tips?
Post by Ray on Jun 14^th, 2007, 6:04pm

Click on the Oxygen Info link to the left for one. I would try to use 12-15 liters per minute for 10-15 minutes per attack. Attempt to use the Oxygen ASAP when you feel that an attack may be coming on. As in the EPA mileage data, your mileage may vary.

Best of luck to be PF,

Ray

Title: Re: O2 Tips?
Post by Guiseppi on Jun 14^th, 2007, 6:14pm

The re breather masks are not as effective as the non re breather mask as the idea is for you to deliver 100% 02 to the lungs. You may have to tape over the holes on the rebreather and modify how you use it so you don't get outside air.

VERY IMPORTANT NOTE No matter what else you do, cut the elastic bands off the masks so if you fall asleep the mask falls away from your face and you don't suffocate!!!!

The flow rate can vary depending on how fast/deep you breathe. You need to breathe pure oxygen into your lungs. If you're a heavy fast breather you may need to crank up the flow rate to keep pace with your breathing. If the flow rate is too low, you start breathing faster then it can deliver, you get outside air and the constricting factor gets compromised.

I'm like Ray, the faster I get it started, the more likely it is to abort. Started at the first "oh sh%$ here it comes" feling, I can abort in 8-10 minutes. Hoping you experience the same level of success I have!

Guiseppi

Title: Re: O2 Tips?
Post by TomM on Jun 14^th, 2007, 6:23pm

Thanks guys. I misspoke: I bought non-rebreather masks. I cut off the straps.

You'd think that after being around this site since 98, I would have done this sooner!
Thanks again.
TomM

Title: Re: O2 Tips?
Post by thebbz on Jun 14^th, 2007, 7:02pm

Breathe easy Tom your going to love the 02. You have to administer properly to have the best effect.
all the best
jb

Title: Re: O2 Tips?
Post by Mr. Happy on Jun 14^th, 2007, 10:04pm

on 06/14/07 at 18:23:44, TomM wrote:

You'd think that after being around this site since 98, I would have done this sooner!

Yup. I'da thought that. Take two virgins outta petty cash, and huff ho.

Get a fukkin Clustermasx (http://clustermasx.com), too...
RJ

Title: Re: O2 Tips?
Post by Linda_Howell on Jun 14^th, 2007, 10:18pm

Jeeze, you've been here since 1998 and are just now getting 02? WE here at ch.com have NOT been doing our job very well, have we?

I agree though...15 lpm and start it at the very 1st. twinge.

Note to self: Be more observant of family needing help.

Title: Re: O2 Tips?
Post by Lotus on Jun 14^th, 2007, 10:20pm

Excellent information on the Ouch website on oxygen

http://www.ouch-us.org/medications/oxygen/o2links.htm

Take a look at the supplement guide. You can download it as pdf file too.

Painfree wishes to you

Annette

Title: Re: O2 Tips?
Post by TomM on Jun 16^th, 2007, 9:30am

on 06/14/07 at 22:04:23, Mr. Happy wrote:

Yup. I'da thought that. Take two virgins outta petty cash, and huff ho.
Get a fukkin Clustermasx (http://clustermasx.com), too...
RJ

Thanks, Randy. I look forward to huffin' sum Ho's. ;;D

on 06/14/07 at 22:18:12, Linda_Howell wrote:

Jeeze, you've been here since 1998 and are just now getting 02? WE here at ch.com have NOT been doing our job very well, have we?
I agree though...15 lpm and start it at the very 1st. twinge.
Note to self: Be more observant of family needing help.

Linda, I am stuborn and some might even say a little slooooow. No need to blame yourself or da family for my ignorance. ::)

on 06/14/07 at 22:20:58, Lotus wrote:

Excellent information on the Ouch website on oxygen
http://www.ouch-us.org/medications/oxygen/o2links.htm
Take a look at the supplement guide. You can download it as pdf file too.
Painfree wishes to you
Annette

Read it from top to bottom. Good tips. Thank you.
TomM

Title: Re: O2 Tips?
Post by ClusterChuck on Jun 18^th, 2007, 9:40pm

on 06/14/07 at 17:56:44, TomM wrote:

After 15 years of CH, I recceived my first O2 tanks an hour ago.

Geeze ... I wonder where wimminz get the idea that menz (ESPECIALLY clusterhead menz) are stubborn?

on 06/14/07 at 17:56:44, TomM wrote:

I was told to use 7 LPM.

7 LPM is the very LOWEST rate to get results. Most do not get quick results until they go to at least 10 LPM .. Myself, I start at 15 LPM, and then drop down, once I start to feel results. You are VERY lucky if you can get results at that low a flow rate.

Good luck, ~~you stubborn, pigheaded individual~~ O₂ newbie!!! ;) ;;D

Chuck

Title: Re: O2 Tips?
Post by horsegirl on Jun 26^th, 2007, 5:10pm

my daughter had heard about 02 for clusters then i had to ask my doctor for scrip ,i started on it now three cycles ago helped good first two then this one it seemed to abort but more like postpone the maybe even 10 min later another like it would do that up to 10 times a night then ,4 nights i would go through bottles with no help ,now that they slowed down it takes it away great and im fine till the next night.I dont know what you mean about mask ,mine has a circle with holes but as a flex disc deal over it? i usualy hold my finger over it,but i think its for out breaths

Title: Re: O2 Tips?
Post by TomM on Jul 18^th, 2007, 10:15am

I'm getting the hang of this O2 stuff. Believe it or not, I don't seem to have the patience to lay down and just huff away but I'mma learnin'. :)
Like ClusterChuck wrote, I'm a tad stubborn. My spousal unit would not disagree with at all. ;;D
TomM

Title: Re: O2 Tips?
Post by Guiseppi on Jul 18^th, 2007, 10:25am

I don't lay down either, I walk in circles, constantly reversing as the hose gets tangled!!! And stubbornness........clearly a male genetic trait!!!! So glad to hear it's helping!!

Guiseppi

Title: Re: O2 Tips?
Post by godsjoy777 on Jul 21^st, 2007, 9:00am

Clustermasx You gotta get one...seriously, it helps you preserve O2 and get the best bang for your buck....I just threw away my other mask after getting the Clustermasx. It helps you breathe more steadily and get plenty of O2....and like everyone else said...keep breathing it on a lower flow rate after th HA is aborted.....O2 and Ambertose and I'm set for the rest of my life on earth.
Karen

Title: Re: O2 Tips?
Post by BMoneeTheMoneeMan on Jul 21^st, 2007, 1:55pm

Definately have to go higher than 7LPM with a non-rebreather mask.
Those masks arent supposed to be used below 8LPM. Its just not enough air.

Also, rather than lie down, u might wanna try standing (or sitting) up. It's easier to dance that way ;)

Title: Re: O2 Tips?
Post by GrandPotentate on Jul 24^th, 2007, 9:05pm

I can't sit or lie still. Without O2, I'm pacing the house. Once I got set up, I found a rocker works well, but sometimes still need to stroll.

I also endorse the clustermasx. Do your best to relax, adjust the flow simply to the point where there is the right amount filling the bag between breaths. For me, its around 8-9lpm; anything higher just leaks out.

Let us know how it works out, mule.

Jon