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Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Verapamil is helping but.........
(Message started by: midwestbeth on May 23rd, 2007, 7:30pm)

Title: Verapamil is helping but.........
Post by midwestbeth on May 23rd, 2007, 7:30pm
I am so swollen up.  I can't even see my ankles and I have really skinny ankles!  My fingers are also swollen.  I read up and found out that this is a side effect I should immeadiately contact my Dr. about and I will be calling him tomorrow.  I'm also more tired than ussual.  Hard for me to stay awake until 10:00pm and that is not at all like me.  I have no other side effects, not even the constipation that many do experience.

Has anyone else experienced these side effects?  I've been mostly pf since starting the verap except when I ran out on a Friday and thought I could wait until Monday for the refill.....(Don't do that!!!!!)

Guess it's back to the drawing board for me  :-[.

Beth

Title: Re: Verapamil is helping but.........
Post by lovina300 on May 23rd, 2007, 7:38pm
i love you very very much

Title: Re: Verapamil is helping but.........
Post by midwestbeth on May 23rd, 2007, 7:57pm
lovina300?????  Do I know you? Or should I be very, very scared?

Beth,

Title: Re: Verapamil is helping but.........
Post by Redd on May 23rd, 2007, 7:58pm

on 05/23/07 at 19:38:25, lovina300 wrote:
i love you very very much



So it doesn't get lost if they delete it.

I'm getting out the popcorn..


Title: Re: Verapamil is helping but.........
Post by BMoneeTheMoneeMan on May 23rd, 2007, 7:58pm

on 05/23/07 at 19:38:25, lovina300 wrote:
i love you very very much
I love you too, snookie wookums!!  



Beth, I would call the doc and see what they say.  I never was swollen like that, but i did develop tremors and shakes like I have parkinsons in the north pole.  That is also one of possible side effects.



Title: Re: Verapamil is helping but.........
Post by Redd on May 23rd, 2007, 7:58pm

on 05/23/07 at 19:57:55, midwestbeth wrote:
lovina300?????  Do I know you? Or should I be very, very scared?

Beth,



Yep...my stick is right wehre it should be.

Title: Re: Verapamil is helping but.........
Post by midwestbeth on May 23rd, 2007, 8:01pm
I love ch.com  ;;D ;;D ;;D.

Beth

Title: Re: Verapamil is helping but.........
Post by barry_sword on May 23rd, 2007, 8:40pm
My 480mg of Verap. daily is working for me but nothing is swelling on this body, absolutely NOTHING! [smiley=laugh.gif]

Tried going off Verap. for a bit and that was a mistake. Memory loss is my side effect, but can live with that.

I think if it was me I'd be seeing a Doc soon.

Best to you Beth, hang in there.

  Barry

Title: Re: Verapamil is helping but.........
Post by Lotus on May 23rd, 2007, 8:57pm

Verapamil can cause peripheral edema, my husband experienced swelling of the ankles when he got to 960 mg and it disappeared when the dose was reduced.

Was the dose increased lately? Have you had blood test to check electrolytes and ECG to check your heart?

It can also cause constipation.

Please check with you doctor.

Take care.


Annette

Title: Re: Verapamil is helping but.........
Post by E-Double on May 23rd, 2007, 9:32pm
I developed really bad edema during DalCon in 2005.

My ankles were bigger than my grandmother's.

Good luck

Title: Re: Verapamil is helping but.........
Post by midwestbeth on May 23rd, 2007, 10:00pm
My dosage hasn't been increased lately.  On 560 mgs XR.  Haven't had any tests.  BP has been normal 100-110/ 60-70.  

I've been like this for awhile.  I thought it was effects of steroids and I was just having a hard time getting back to normal.  The skin on my lower legs and ankles feels tight, like it's streched to the limit.  I'm calling Dr. first thing am.

Thanks,
Beth

Title: Re: Verapamil is helping but.........
Post by E-Double on May 23rd, 2007, 10:03pm
yuppers.......sounds like edema.

can ya push down on it and it looks like putty?
deep indentatuions that don't bounce back?

these are fun games for the whole family ;)

Title: Re: Verapamil is helping but.........
Post by midwestbeth on May 23rd, 2007, 11:31pm
Read about symptoms of Edema and yes everything sounds like thats what this is.  I also had some chest pain a couple days ago.....not good.

I'll let you know what happens with the Dr.

Thanks for all the replies.

Beth

Title: Re: Verapamil is helping but.........
Post by midwestbeth on May 24th, 2007, 9:38pm
Called the Dr. & he wants me to ween off the verapamil in the next two weeks.  I'm to call back in a week and let him know how everything is going.  Hopefully the beast stays away.

Beth

Title: Re: Verapamil is helping but.........
Post by Lotus on May 24th, 2007, 10:35pm

on 05/24/07 at 21:38:16, midwestbeth wrote:
Called the Dr. & he wants me to ween off the verapamil in the next two weeks.  I'm to call back in a week and let him know how everything is going.  Hopefully the beast stays away.

Beth



Praying for you that all will be well  :-*

Title: Re: Verapamil is helping but.........
Post by burnt-toast on May 25th, 2007, 8:20am
At 720mg Verapamil I had no swelling/pain in my lower legs and ankles.  Increasing to 960mg caused my lower legs/ankles to swell and become extremely painful.   Dropping back to 720mg resolved the problem.

Leg/ankle swelling and pain is a common side effect.  My Neuro. wasn't very concerned about it but didn't ignore it either.  It's an issue that should be addressed.

Tom      


Title: Re: Verapamil is helping but.........
Post by TonyG1 on May 25th, 2007, 6:08pm
Occasional swelling in hands and ankles.... not too often.

Title: Re: Verapamil is helping but.........
Post by midwestbeth on May 27th, 2007, 7:49am
Verap dosage now at 360 and swelling has gone away!!  

Beth

Title: Re: Verapamil is helping but.........
Post by ClusterChuck on May 27th, 2007, 7:53am
WOOHOO, girl!!!!

GREAT news!!

Chuck

Title: Re: Verapamil is helping but.........
Post by midwestbeth on May 27th, 2007, 11:35pm
360 mgs low enough to keep swelling down, but not high enough to keep the beast away  :-[

Beth

Title: Re: Verapamil is helping but.........
Post by JohnWF on May 28th, 2007, 4:59pm
When I first went on Verapamil my ankles, legs, and wrist swelled-- I think as a side affect to the drug.  After about 1 week of swelling, it subsided and everything was great.  That was a year ago.

Now, my doctor has increased the dosage from two 240 mg. tablets to three, but I haven't noticed any big changes.

Hope this helps.

Take care.



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