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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Yes or No ? ( with mini-rant )
        
(Message started by: UN solved on May 21^st, 2007, 12:35am)

Title: Yes or No ? ( with mini-rant )
Post by UN solved on May 21^st, 2007, 12:35am

Averaging 3 - 8 severe attacks everyday & night. Real headbangers !! Plus having to take an Imitrex injection for every attack.

OR

Spend 11 days in the hospital getting Histamine. Insurance company is paying between $25,000 - $35,000 each stay.

This time it only lasted for 2 1/2 weeks after I left the hospital. (PF bliss) Was it worth it ??

I had to pull over on the side of the hwy I-65 and jab, then wait it out before I could drive. It was my second attack of the day. :( This SUCKS !!

UNsolved

Title: Re: Yes or No ? ( with mini-rant )
Post by artonio7 on May 21^st, 2007, 2:25am

Sorry that the beast crept back in and found you. Is this the shortest length of time the procedure has kept you pain free?

?????? $35,000.00 for two and a half weeks of PF Bliss. Sounds like a bargain.

with warm regards,
Tony

Title: Re: Yes or No ? ( with mini-rant )
Post by UN solved on May 21^st, 2007, 12:13pm

No Tony. It's comepletely failed on a few occassions. Once it failed completely twice in a row, but worked good on the next try. ??

It's not the cure*, but it has helped tremendously a few times. I guess I'll take what I can get !!

UNsolved

Title: Re: Yes or No ? ( with mini-rant )
Post by tanner on May 21^st, 2007, 12:42pm

Sorry, I can't give an opinion as neither has worked for me because of other med issues.

Whichever way you go I will be pullin for ya........Tim

Title: Re: Yes or No ? ( with mini-rant )
Post by taraann on May 21^st, 2007, 6:17pm

Well the insurance is paying up so that's a plus... do you want to try for another 2 week pf break? I personally try my best to avoid hospital stays. Cause of the kids and I go right back to pain usually the day I get home so not worth it in my case... (I have not tried the histimine tho)

Sorry things are shitty again. Weigh your pros and cons then make a choice.

Title: Re: Yes or No ? ( with mini-rant )
Post by thebbz on May 21^st, 2007, 9:29pm

[smiley=huh.gif] Dammit man! Fargin Demon anyhow. Pullin for anyway.
all the best
jb

Title: Re: Yes or No ? ( with mini-rant )
Post by MR_FLOOR on May 21^st, 2007, 9:53pm

UnSolved,

Do you take preventatives?I know it sounds like a stupid question to a Hall of famer but without my preventatives my Histamine don't work either.I'm truly sorry your treatment didn't work thats alot to go through for a small amount of relief. I know IV in hand 10 hrs a day SUCKS.
[smiley=bigcry.gif]. Not to change the subject but the last time I was there they were talking about taking out the smoking room.Did they?Hope you feel better.

Dave

Title: Re: Yes or No ? ( with mini-rant )
Post by UN solved on May 22^nd, 2007, 12:47am

There's no more smoking on the property. No smoking room.

And yes, we're re-trying an old med, one of the doctors' favorites ... Lithium. It never helped the first 4 times, so I think it's still doing nothing !! I also take Doxepin, and bp meds. ( I'm too lazy to list all the meds I've tried. It's a long list )

I still have to do my balancing act ... alternating between using Imitrex, DHE, steroids, and Histamine. It's my only relief from HELL !!

Thanks and PF Wishes

UNsolved

Title: Re: Yes or No ? ( with mini-rant )
Post by MR_FLOOR on May 23^rd, 2007, 12:30am

Man my heart goes out to ya brother. Does DHE work for you I never tried it except at the clinic and that was in my IV and I did not like that.I sure hope you start to get some relief .Major pain free wishes.

Dave