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Title: Works for me, sort of... Post by AL1 on Mar 6th, 2007, 9:57am Hello All, I have been having CHs for about 5 years now, they roll around once a year, sometimes twice for about a month. I don't need to tell people here how bad they are. I was diagnosed by a very good neurologist and he prescribed a medication to me called L-Tryptophan, and I must say that it has been helping me a whole lot. My CHs have not disappeared completely (I don't think they ever will) but the medicine reduced the intensity from a 10 - actually banged my head on the headboard so hard it cracked (the headboard ;;D) to a 4 at most, but often just shadows lingering. I just felt compelled to let people here know about this medication. Something that you may want to discuss with your doc. |
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Title: Re: Works for me, sort of... Post by jmc on Mar 6th, 2007, 10:34am Hello Al1, glad you've had success with this treatment!!! Isn't L-Tryptophan a sleep aid supplement? OTC? |
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Title: Re: Works for me, sort of... Post by georgej on Mar 6th, 2007, 10:34am Interesting. It's an indole-ring compound with relationships to melatonin and serotonin. Was available as an OTC dietary supplement and sleep aid for a time, present naturally in mammalian proteins. See the FDA caution regarding its importation as a dietary supplement without prescription: http://vm.cfsan.fda.gov/~dms/ds-tryp1.html It appears that most of the potential danger is associated with the manufacturing process. I've not heard of it being prescribed for CH. Anyone else? Best, George |
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Title: Re: Works for me, sort of... Post by Lobster on Mar 6th, 2007, 1:36pm on 03/06/07 at 09:57:54, AL1 wrote:
Post a pic please. Not cuz I do not believe you, but because pics like that tell the story... it would be uber cool. I have a pic here somewhere I took right after a hit. During the hit I pressed my skull HARD against a the corner edge of a door jamb. The pic is of my skull... a 4-inch long line of inflamed ugliness. |
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Title: Re: Works for me, sort of... Post by LeeS on Mar 6th, 2007, 1:48pm Flo covered this a while back: http://www.med-owl.com/clusterheadaches/tiki-index.php?page=Tryptophan I had a go with 5-HTP last year, and although at the time it seemed to make things worse for me (other contraindications possibly), I have not yet disregarded its potential, and may well throw it back into the mix at some stage: http://www.med-owl.com/clusterheadaches/tiki-index.php?page=5-HTP All the best with it AL1 -Lee Edited to add, in case it's missed: Those taking triptans, anti-depressants (tricylics, SSRIs, MAOIs) or lithium or other drugs with serotonergic activities should not take 5-HTP. There is concern that the combination could result in serotonin syndrome, which is potentially life threatening. |
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Title: Re: Works for me, sort of... Post by AL1 on Mar 7th, 2007, 12:28am Hi Guys/Girls, To answer some of the questions: Yes I do believe that particular medicine is used as a sleep aid as well treatment for a host of other disorders. I am not at all qualified to talk about the prescribed uses though since I am a not a doc. However from what my GP told me is that it acts as a balancing agent for certain neuro-chemicals such as seratonin. I am also trying a nasal spray right now - Sinus Buster, will see how it goes. P.S. Sorry Lobster no pics, I've since moved and replaced the bed, but I am sure there will be other things broken if I cant get these damned headaches under control. ;) |
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Title: Re: Works for me, sort of... Post by sandie99 on Mar 8th, 2007, 4:37am AL1, it's great to hear that you've found something which helps you with your ch. :) I wish you a PF future! :) Sanna |
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