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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Help with a doctor
        
(Message started by: neurrorist on Nov 25^th, 2006, 5:58am)

Title: Help with a doctor
Post by neurrorist on Nov 25^th, 2006, 5:58am

I recently joined clusterbusters and am wondering if anyone can help me find a competent and understanding doctor in the tampa brandon florida area. The doctors I have seen dismiss my problems and prescribe me expensive pain killers which I refuse to take. They are unhelpful, and have on multiple occasions given me contradictory information. The only manner I have found to treat myself, is with unconvential and illicit substances. Whereas these have had a world of improvement on my life (I don't think I could have made it otherwise and I thank my plant friends), I am still searching for a sympathetic doctor who will work with me in trying to treat them. If anyone in the area has someone they can recommend, I would greatly and deeply appreciate.
Thank you

Title: Re: Help with a doctor
Post by goof1031 on Nov 25^th, 2006, 6:10am

Like everyone here has told me...... Educate yourself ( and there is alot of very useful information), then print out material and Educate the Doctor.
Do you currently have a neuro??

Title: Re: Help with a doctor
Post by bothofus on Nov 25^th, 2006, 6:30am

Somebody on here has a list of recommended docs, hang on and see if they post. Can't remember it.

Also, search these boards.

Carl

Title: Re: Help with a doctor
Post by E-Double on Nov 25^th, 2006, 7:25am

I'm sure we can help you locate a decent doc.

Tell us a bit about yourself.
How long have you danced with the devil?
How long did it take you to get a diagnosis?
How old are you?
Black or light and sweet? (coffee)
Do you enjoy stomping on chickens?
Do you crochet?
Anything?

Title: Re: Help with a doctor
Post by Bob_Johnson on Nov 25^th, 2006, 8:30am

1. Search the OUCH site (button on left) for a list of recommended M.D.s.

2. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

3. Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

4. http://www.achenet.org/physicians/ On-line screen to find a physician.

5. http://www.headaches.org/consumer/index.html Call 1-800-643-5552; they will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

Title: Re: Help with a doctor
Post by UN solved on Nov 25^th, 2006, 8:59pm

Finding a good doctor is one thing ... but finding one who would have anything to do with 'unconvential and illicit substances' is another. I don't think you'll find one who'll do anything more than listen to your experiences with it and ask questions. They couldn't legally prescribe or supply any illegal substances and they couldn't recommend how to use them either.

Why do you need a doctor if 'illicit substances' are helping you?

UNsolved

Title: Re: Help with a doctor
Post by chopmyheadoff on Nov 27^th, 2006, 7:58am

on 11/25/06 at 20:59:32, UN solved wrote:

Why do you need a doctor if 'illicit substances' are helping you?

UNsolved

doood :o
thats a bit irresponsible - its this guys first post - shouldnt he be encouraged to find a good doc ? we dont even know if he's had a diagnosis

Title: Re: Help with a doctor
Post by UN solved on Nov 27^th, 2006, 8:23am

Seriously Chop ... where would they find a doc anywhere that would help or consult a patient that is using illegal drugs ? That would be malpractice for sure !!

UNsolved

Besides, if somethings working - don't try and fix it ! ;)

Title: Re: Help with a doctor
Post by chopmyheadoff on Nov 27^th, 2006, 8:26am

on 11/27/06 at 08:23:38, UN solved wrote:

Besides, if somethings working - don't try and fix it ! ;)

LOL - has this ever worked for you btw matey ??
i know youve not had any luck with the other preventatives . . .

Title: Re: Help with a doctor
Post by UN solved on Nov 27^th, 2006, 8:43am

No. I tried a single, small dose of shrooms not too long ago. It didn't help at all and I didn't like the 'effects'. I haven't tried any of the various seeds or kudzu (yet).

UNsolved

Title: Re: Help with a doctor
Post by stargirl50 on Nov 30^th, 2006, 3:34pm

Try to find a neurologist who specializes in headaches. Believe it or not I went to a neurologist earlier this year who seemingly knew next to nothing about CH

Title: Re: Help with a doctor
Post by seasonalboomer on Nov 30^th, 2006, 3:40pm

on 11/30/06 at 15:34:19, stargirl50 wrote:

Believe it or not I went to a neurologist earlier this year who seemingly knew next to nothing about CH

Maybe he was a "new-urologist"....

;)