|
||||||||
|
Title: any aussies tried the clusterbusters method?? Post by Turts on Oct 31st, 2006, 10:40pm interested to hear if any from down under, has tried the mushroom wonder?? Turts |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by AussieBrian on Nov 1st, 2006, 2:53am Certainly no-one I'm aware of, Turts. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by LeeS on Nov 1st, 2006, 4:28am I know a Kiwi clusterbuster Turts; does he count? -Lee |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by AussieBrian on Nov 1st, 2006, 4:58am on 11/01/06 at 04:28:40, LeeS wrote:
Off the sports field, the Kiwis are very good friends of ours. Certainly he counts and thanks for mentioning it. You may even care to PM Turts with the details. Onya. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by LeeS on Nov 1st, 2006, 10:37am I suppose you beat them at cricket (again) today ::) :) Will do. -Lee |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BikerBob on Nov 1st, 2006, 2:36pm There's a clusterbuster who's in the process of moving from the Mozzie Coast to Oz. She expects to be there by the end of December. G'day, BB |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 2nd, 2006, 5:35am Its difficult to obtain the seeds or shrooms in Australia. I took a quick look at it and apparently would have to order online from overseas, not sure about it clearing customs though. Have not looked into it seriously enough to tell you, sorry Turts. Hope you are well and painfree. Take care, comrade. Annette |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by ben_uk on Nov 2nd, 2006, 5:59am I can personally recommend the shrooms on the Island of Bali ( short hop/cheap flight from Oz.) Most beach bars along Kuta/Legion will sort you, but by far the best place is Ubud, (small town set in the mountains/by Monkey forest). At some Losmen (guest houses) shroom omelet’s and shroom pancakes are advertised on the menu! Just ask shocked |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by AussieBrian on Nov 2nd, 2006, 6:19am on 11/02/06 at 05:59:01, ben_uk wrote:
Are we talking here about serious investigation into a med that may help, or chatting happily about where best to get bombed out the cheapest? I'm sure your personal recommendation was meant in good faith but I worry about ch.com being brought into bad repute in that we may be seen to be promoting the use of illicit substances for entirely the wrong purposes. I respectfully ask all 'clusterbusters' to consider this. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BikerBob on Nov 2nd, 2006, 7:44am on 11/02/06 at 05:35:18, BB wrote:
Wrong again. Many clusterheads have found that Rivea corymbosa seeds are an effective treatment for CH. Dr. Sewell at Harvard Medical School/ McLean Hospital is now conducting a study of cluster headache patients about their use of these LSA seeds. They are legal to possess and sell in Australia. Here's one source from a quick search, I'm sure there are others... http://www.shaman-australis.com.au/Website/Shamanmainpageframeset.htm click on Shamanic Seeds and Plants P-Z, then Rivea. Read the clusterbusters.com LSA FAQ in its entirety before proceding. BB |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by AussieBrian on Nov 2nd, 2006, 8:11am on 11/02/06 at 07:44:26, BikerBob wrote:
He's right, ya know, but check out para 4, (the bit he failed to mention). Rivea corymbosa (syn. Turbina corymbosa) Ololiuqui Important legal information for all customers: NO EXPORT !! 1) The importation of Rivea corymbosa seeds into Australia is prohibited under the Customs Act 1901, Regulations, Schedule 4 (Drugs). The seeds offered by Shaman Australis Botanicals are grown in Australia. 2) The export of Rivea corymbosa plant parts (including seeds) is specifically prohibited under Schedule 8 (export regulations) of the Customs Act. 3) Possession of LSA containing material such as Rivea corymbosa seeds may (or may not) be illegal under the Standard for the uniform scheduling of drugs and poisons (Australia), Schedule 9 (the same schedule as Heroin!!!!!), but treated seeds are excluded under Appendix A, and are thus legal to trade and possess. Our seeds are treated with either food grade sulphur dust or UV sterilisation procedure. These treatments have no effect on viability or alkaloid profile and are non-toxic (food grade). 4) Consumption of any LSA containing material is prohibited under state legislation in all Australian states. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BikerBob on Nov 2nd, 2006, 8:21am on 11/02/06 at 08:11:08, AussieBrian wrote:
They're legal to possess. So close the door and don't let the police watch you ingest them. BB |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by AussieBrian on Nov 2nd, 2006, 8:36am on 11/02/06 at 08:21:02, BikerBob wrote:
The snake oil salesman strikes again using the good name of ch.com to promote the illicit use of an illicit drug. To all newbies visiting our site, I beg you to read everything you can here. There's heaps of terrific information available and people who'll assist you at every step. Form your own opinions, certainly, but consider all options first. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BikerBob on Nov 2nd, 2006, 8:51am Snake oil salesman? Haven't you been reading the posts in this forum about the effectiveness of Rivea corymbosa seeds? BB |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by AussieBrian on Nov 2nd, 2006, 9:32am To all newbies, see my post immediately above. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by LeLimey on Nov 2nd, 2006, 1:00pm on 11/02/06 at 08:11:08, AussieBrian wrote:
Thats pretty black and white legal info and it certainly doesn't say they are legal to possess in Oz however I would just like to point out they aren't a snake oil option. RC Seeds are the only thing ever to give me pain free time and I've tried alot of preventatives. There are pro's and con's you have to weigh up and I would strongly urge everyone to do just that from both a legal and a medicinal perspective. As with all treatments you should seek advice. In the case of Rc seeds for instance you should go to clusterbusters. I would never advocate this option for anyone without having them discuss procedures and all necessary info with the experts at clusterbusters first. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by tanner on Nov 2nd, 2006, 1:54pm on 11/02/06 at 08:36:40, AussieBrian wrote:
LOW BLOW >:( Uncalled for.....Tim |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BikerBob on Nov 2nd, 2006, 4:56pm on 11/02/06 at 13:00:04, LeLimey wrote:
If they were illegal to possess in Oz I'm quite sure that the company in the link I posted (Shaman Australis Botanicals, Byron Bay NSW, Australia) wouldn't be in business selling them. It's wonderful to hear that you and so many others have found RC seeds to be an effective preventive for CH. "procedures and all necessary info with the experts at clusterbusters" can be read on clusterbusters.com BB |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by LeLimey on Nov 2nd, 2006, 5:45pm Sorry Bob, I was reading from Brians post. I've been a bit woolly today and I missed that bit (Which is also why I prefer public posts to IM's as when we muck it up someone else can pick up on it!) I've dosed today incidentally so I'll let you know how I go :) |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by tommyD on Nov 2nd, 2006, 6:21pm Quote:
It’s sad, you know, that shrooms and RC seeds are illegal. It means that in most countries we have to break the law to use the tryptamine treatment. With shrooms, it means the source must necessarily be illegal (whether you grow, pick or buy them) and with both it means using these medicines is illegal. And they are medicines. For those seeking relief, traveling to a country where the medicine is legal (or laws aren’t enforced) is a valid option. You can find shrooms legally in the Netherlands, in some of the Caribbean, as Ben says in Bali, and perhaps other nations. Why shouldn’t we discuss this option? It is a way to use tryptamines without breaking the law. I see no problem with that, legally or morally. -tommyD |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by AussieBrian on Nov 2nd, 2006, 9:43pm My concern isn't the efficacy of the product and I wish all the best to all those who are getting any sort of relief from it. My concern was, and is, that ch.com not be seen to be promoting an illegal substance or drugs for recreation. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by ben_uk on Nov 3rd, 2006, 4:43am on 11/02/06 at 06:19:56, AussieBrian wrote:
With respect to those who tragically lost their lives in the Bali bombing, their family and friends - I suggest that replying to my “Bali post” with “get bombed” as crass indeed. shocked |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Carl1958 on Nov 3rd, 2006, 6:52am on 11/02/06 at 21:43:27, AussieBrian wrote:
Well It should be mate, because what we are doing could pave the way for new drugs to treat your children, & your grandchildren... I see by your Avatar you don't have a problem advertising Alcohol...A known trigger for most Clusterheads... CArl... |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Bob P on Nov 3rd, 2006, 7:10am Brian, Some people just don't get it. It's just the way they are. Have a cold one for me. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by AussieBrian on Nov 3rd, 2006, 8:03am Really,Ben, if you're going to quote me at least do it in context. And Carl, perhaps your cursor slipped so here's the complete sentence - on 11/02/06 at 21:43:27, AussieBrian wrote:
Bob P? Here's to your health! |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 3rd, 2006, 7:50pm I guess the short answer is NO, doesnt LOOK like any of us DOWNUNDER has tried the clusterbusters method yet. It is NOT EASY to get it here to even look at , let alone try. I am sorry to say that the comments so far from people who are familiar with the method ( apart from Helens ) have not been helpful, supporting nor educational. I am in fact looking into it right now and taking time reading the information on the bustercluster board, but I havent felt welcomed nor been helped by any of their representative. I read that the people from Clusterbusters are trying to EDUCATE people, including doctors to understand more about the treatments and the research going on. Yet so far I have been told to be "wrong again" , told to go to Bali and order it from beach bars and to eat shroom omelets , to travel to other countries where it is legal to get shroom and to close my door and eat it while the police isnt watching. ::) I am sorry to say but thats less than professional. Annette |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by MJ on Nov 4th, 2006, 1:07am BB I am not a "member" of clusterbusters but I did bust clusters with RC seeds and have done a wee bit of research into history and have a little experience with the seeds, There are several others here as well who have gained considerable insight through neccesity. I think that a lot of the knowledge for CH and CB may lie with the clusterbusters and is written well on the sight. Though I recieved considerable help from clusterbusters here at CH.com They are only the begginning and the work done there has opened the book to the rest of us. It is unfortunate that even the seeds are illegal to consume in many places including in the U.S.. But it should also be noted that most drugs taken for CH are also illegal to possess without proper channels and in my opinion are far more dangerous than what I have learned and experienced with the RC seeds. I have never tried the psilocybe methods because frankly the shrooms and tripping scare me but the seeds certainly hold forth tremendous hope for me. I am neither a chemist or medical person but if I can help I am sure myself and others would be happy to share our little bits of knowledge and experience here. I agree with aussie brian that the recreational approach is not the way to approach things and it opens the door to alot of ridicule and doubt, but that is most likely the way the treatments were discovered. Some of the best information I have found in some very unlikely places (www sites) I have seen posts from CH suffers here seeking answers from some pretty bizarre places and getting them. Many of the more knowledgable have moved on (perhaps due to the fact they may no longer suffer) but many more remain here. Unfortunately the druggy side exists side by side with those of us who simply seek relief from this nasty thing called cluster headaches. One must accept the bad info that comes with all the good that I have found with the only thing that has ever given me relief in over 30 some years that I have hoped for it. Theres a saying repeated here often "take what you need and leave the rest" or something to that affect. What would you like to know today? Someone here most likely has an answer or tidbit that may answer or redirect your questions. I would very much like to see an open and knowledgable discussion here from people down under above and to the sides on the subjects of treating CH with more of the alternative methods and especially about the RC seeds. Like you I have often been turned off by the lack of input from others in a public forum for all to learn and strengthen the knowledge its allways, see clusterbusters.com, and one should allways start there and be aware of the cautions and the vast amount of quality work done by the clusterbusters. its there for info but its not an open communication. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by AussieBrian on Nov 4th, 2006, 1:52am Nicely written, MJ, and good on you. All CH discussion is good discussion and must be continued on an open and informed basis between thinking adults. We all worship that holy grail, the cure, and goodness knows which particular little crack of light is going to show us the pathway. I correspond regularly with a number of 'busters' and their one great regret about the whole thing is the secrecy, as though they have this great shame hanging over their heads, along with the risk of prosecution. They'd love nothing more than to be able to talk openly but, regrettably, others who take centre stage on the subject would cast them in a bad light. More posts like yours may encourage them out of the closet regarding the efficacy of their chosen product and be a serious help to CHeads everywhere in making an informed opinion, rather than having to rely on what we hear from a loud and egotistical few. Only good can come from this, and while the good name of ch.com is considered every step of the way, the only direction is up. A great future for us all, Brian down under. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Pinkfloyd on Nov 4th, 2006, 5:22am on 11/03/06 at 19:50:16, BB wrote:
"Clusterbusters" the organization, does not have an open message board so I'm not sure what you are reading, but if it's our website, there will not be anyone coming to help unless you ask. Clusterbusters, the people, are everywhere....some might say, like rats. ;) If you ask specific questions, I would hope you would get some answers. Maybe not as quickly as anyone would like, or as legal as anyone would like, or as cordial as ......you get the picture. on 11/03/06 at 19:50:16, BB wrote:
What has Clusterbusters, the organization, done that is less than professional? Just so you (and others) know, when people post on ch.com, they post as people, unless they state they are speaking for another organization, and have the right to do so. Many people here are members of OUCH but their actions here, are not actions of OUCH. Same with Clusterbusters. If you have questions for CLusterbusters, the org, people would normally tell you to write to the contact on the website, or give you the email address of the contact ....but in this case....that contact is...ME ;;D So....ask any questions you have. And if anyone here wants to know why there is an invitation only message board for Clusterbusters, the org, ask Helen because I just told her [smiley=laugh.gif] Bobw |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Pinkfloyd on Nov 4th, 2006, 5:30am on 11/04/06 at 01:07:28, MJ wrote:
You're decoder ring is in the mail ;-) You are a clusterbuster....whether you like it or not. I appreciate all your posts on the subject MJ. Bobw |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by ben_uk on Nov 4th, 2006, 6:43am Hi Annette, Please can I direct you back to some of your statements – Reply #6 Quote -“I took a quick look” Quote -“Have not looked into it seriously” I am delighted that recently you have chosen to “look into it “.- the more peeps that do – the more we should find out. From my own (now two and a half year) study “into it” I have found that I can make much more accelerated progress by paying more attention to the information from those who have actual experience, less to those with none and even lesser to those who’s sole intention seems only to stigmatize and alienate. Although my statement about Bali was succinct Quote -“ shroom omelet’s and shroom pancakes are advertised on the menu!” Your callus interpretation that I Quote - “told you to go to Bali and order it from beach bars and to eat shroom omelets," is, to borrow your phrase – “less than professional” My statement was meant as an indication that, the stigma, alienation, legal, ethical and moral objections and arguments are not apparent everywhere and in some places even advertised/celebrated. For you to comment Quote – “the comments so far from people who are familiar with the method ( apart from Helens ) have not been helpful,” indicates either your bias reading of this thread or just how little you have yet learned. This from TommyD would be very helpful and informative to many, all over the world (not just down under) – Note; Tommy is one of the most senior/long standing and well respected researchers into the use tryptamines for CH. Quote - “the source must necessarily be illegal (whether you grow, pick or buy them) and with both it means using these medicines is illegal.” “For those seeking relief, traveling to a country where the medicine is legal (or laws aren’t enforced) is a valid option.” Shocked PS, With reference to Brians statement Quote - “they have this great shame hanging over their heads,” Please do not include me in your “they”, I'm proud of what I do |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Sean_C on Nov 4th, 2006, 7:36am on 11/03/06 at 19:50:16, BB wrote:
Am I reading that wrong or was that bait Annette ?? |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by AussieBrian on Nov 4th, 2006, 7:41am on 11/04/06 at 06:43:17, ben_uk wrote:
Benny darling, kindly use your dictionary to look up the word "quote". Then when you "quote" me you'll do so in full, rather than taking a single sentence and twisting it to suit your personal agenda. "They" have been sending me some lovely PMs, but "they" are rather embarassed by you. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Kevin_M on Nov 4th, 2006, 8:04am I hope personalities don't come to the forefront between a proven method of cluster treatment and someone curious and as of yet maybe finding it elusive to grasp and different. I am reading a frustrating beginning which can be rectified. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by andrewjb on Nov 4th, 2006, 8:12am :).yup, trim those sails. avoid those rocks. andrew. modified, cause i spell, badley ! |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by pattik on Nov 4th, 2006, 8:14am Hi Turts. I am fairly new the the Clusterbuster treatment, but I can speak to the results I have personally seen, as well as make a comment on the legality issue. During my last cycle of CH, I experienced a substantial improvement not only in the severity and numbers of headaches, but also in the overall length of the cycle. Everyone who considerers using an illegal substance for medication must weigh the risk to the reward. Here in the U.S., medical use of marijuana has been paving this road for many, many years. The medical community is finally taking notice to the benefits of natural triptans, due in large part to the Clusterbuster organization. As individuals, we must make our own decisions in regards to the risks--legal or otherwise. For me, this risk/reward decision was also the basis for my refraining from further use of many pharmaceuticals I have tried over the years for CH. Good luck with the treatment if you decide to try it. patk |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 4th, 2006, 9:08am Thank you very much for all the replies, I appreciate them all. Thank you Bob for offering your assistance via IM and email, I will definitely take you up on that. :) I admit that at this stage I know very little about shroom or seeds, but I am keen to learn, just frustrated at the lack of information and assistance, and the seemingly secretive "air" to the whole thing. I am glad that there are currently researches being conducted and I sincerely hope that soon we will have legal "shroom tablets" that work well and that can be prescribed. In the mean time, I am going to learn as much as I can about the topic to be able to make an informed opinion for myself. I hope that my many curious questions will be welcomed and answered. Painfree wishes to all. Annette |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by LeLimey on Nov 4th, 2006, 9:13am I know what you mean Annette, I too want the reliability of "mushietrex" :) If I can help in any way I will with anecdotes but I wouldn't presume to say I know enough to answer proper questions. Helen |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 4th, 2006, 9:29am on 11/04/06 at 07:36:59, Sean_C wrote:
No Sean, I dont do "bait", but I do speak my mind exactly as I feel, that was just venting frustration. I dont have any problem with the use of shroom or seeds for CH and I do wish that effective and legal forms of either will be available soon for anyone who wants to try. In fact I had asked questions in the past about what are RC seeds and how to obtain them, even just to have a look. The only person who responded was the wife of a newbie who PMed me telling me how to ship them past custom by buying with a false name and a false address. Then BikerBob suggested that I buy them online from a Shahman and close my door and consume them while the police wasnt watching. These types of advices concerned me a great deal. However, I am on a new learning curve so I am not going to pass anymore judgement until I gain more knowledge about the whole thing. Peace, Annette |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 4th, 2006, 9:42am on 11/02/06 at 05:59:01, ben_uk wrote:
Ben, I wasnt attacking you, I didnt get the message you were trying to convey through that post to mean " there are places where shroom are not considered illegal". I read it as you were shocked that one could go to Bali and just ask at any beach bar for shroom and/or just go eat shroom omelettes as a form of serious treatment for CH ! Thanks for clearing it up. Annette |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 4th, 2006, 9:44am on 11/04/06 at 09:13:56, LeLimey wrote:
Thanks Helen, I will definitely ask you HEAPS of questions :) Annette |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Pinkfloyd on Nov 4th, 2006, 1:53pm on 11/04/06 at 07:41:03, AussieBrian wrote:
See....it's so much easier to work these things out in IMs. :( No acrimony here...just a couple comments. Not exactly sure why this is becoming so contentious in this thread. Too bad that people are being lumped together by some here that like to use the word "they" as if it's all-encompasing. "They just don't get it, "They are embarrassed" Sort of like using the term, "those people" :( I can tell you that "some" people are not only not embarrassed, but proud of the work Ben has done. I'm getting the feeling that no-one in Australia uses illegal drugs. Maybe they just begin that when they come to the states and use our drug rehab clinics before being allowed back into OZ. Ya learn something every day here. ;) Also....I can tell whomever used the word shame.... I feel absolutely no shame. Bobw |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by andrewjb on Nov 4th, 2006, 6:00pm " i feel absolutely no shame ". thats cause your a very *friendly* person, Bobw ! seariously though, like my gran used to say, " you cant know, unless youve tried it " ! she was talking of brussel sprouts at the time. i try one from time to time, still think of her. andrew. "modified". i had tried to write s- l- u- t-. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 4th, 2006, 6:26pm I PMed Bob/Pinkfloyd asking questions and double checked to make sure that questions on shroom and seeds can/should be posted openly on the Board here. He assured me that its alright to do so , so here is copy of the questions and answers. Thanks Bob. on Today at 10:14am, BB wrote:Hello Bob, Just taking up your offer to answer questions and thanks. No problem. Hope I can help. I have skimmed through the information on the Clusterbuster website , havent had enough time to properly digest them all, but I couldnt find the information to answer this particular question that I have had for a while. Many approved meds are close relatives of LSD, such as ergotamine and sansert, and they do work to abort cluster attack. They all contain indole rings. The only difference is that the psychedelic component had been removed. Is it correct to assume that chemicals containing indole rings will abort a cluster attack but only those with psychedelic component can abort a cycle ? Well, it appears that way at this point but until a lot more clinical research takes place, we won't know for sure. We don't know even IF the psychedelic component is the only one responsible for aborting the cycles. Many people break their cycles without ever reaching any psychedelic levels. So, it's definately not a matter of having to reach some level of psychedelic activity, for this to work. In those things that chemists "tried" to remove the psychedelic components, they: 1. Didn't remove all the components because with sansert, people STILL hallucinate, some even at very low doses. 2. In removing, or attempting to remove those aspects, the molecular changes increased dramatically, other very nasty side effects that were not present before they started tampering with mother nature. In trying to remove the possible mental heath issues that do exist for some, they made them much more destructive to the liver and other soft tissue organs, for everyone. And if that is true, why is it ? Not sure...that's why we need approved clinical trials in clinical settings so we can look more deeply into these questions. If someone can for instance, remove the psychedelic effects from psilocybin, without causing other, more damaging side effects, all the better. No one here is using these drugs for the psychedelic effects. They are using them for the effects they are having on their clusters. If they can get the same results on their clusters, without the psychedelic effects and possible mental health issues.....we would all rejoice. This is waht was tried with sansert....it failed, but research was stopped 40 years ago and we've made no progress and have not been able to improve upon sansert. Thanks for answering , much appreciated. Annette PS: I dont know if you prefer me asking these types of questions privately or publicly, due to the difficulty you have with the laws. Please let me know, thanks. I have no problem with the laws. I prefer to answer these types of questions on the board so that everyone has a chance to read and learn, and ask more questions. We do not want to hold the dialog in private. We all want to learn more....and discuss this openly. be well, Bob -------------------------------------------------------------------------------- Destiny is not a matter of chance, it is a matter of choice; it is not a thing to be waited for, it is a thing to be achieved. William J. Bryant www.clusterbusters.com www.obscuredview.blogspot.com -------------------------------------------------------------------------------- WWW Email |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 4th, 2006, 6:31pm I also received correspondence from The BBZ and has his permission to post the question and reply for public viewing and discussion. Thank you very much BBZ. Subject: (No subject) Date: Today at 2:47pm -------------------------------------------------------------------------------- Pardon me, I dont know you so please forgive the pm. Regarding alternative therapy. I can personally attest to it's effectiveness. So I am trying to understand your interest? Is it for you to judge? Judge what? Its legality? It's effectiveness? Is it for you to determine what would be good for your sufferer? Some have experimental brain surgury. Some cannot use constrictors. Some choose to seek less toxic treatments. Others choose none. When I was young I could battle through them. Now being older that is not an option. Soon the trex will not be wise because of age. I believe that mushrooms are less toxic that prednisone and trex,with less side effects. This is a viable option for some. Be careful and try not to pre judge. To withhold treatment that works (legal or not) for pain this fierce is inhuman. Again I apologize for the intrusion. And am personally disgusted I live in a society that makes me break a law to treat my affliction..shame on them. You may post any of this. thebbz -------------------------------------------------------------------------------- It wasn't me I didn't do it -------------------------------------------------------------------------------- Email Quote Reply Remove Annette |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 4th, 2006, 6:38pm This is a copy of my reply to BBZ. Subject: Re: (No subject) Date: Today at 6:17pm -------------------------------------------------------------------------------- Hi BBZ, Thank you very much for your message and for sharing your view, much appreciated. I was talking about understanding how it works and its safety and effectiveness. If to me it is then I will try to push for its acceptance in any way I can. I dont judge for anyone who does not wish/need to ask me for my opinion or recommendation. However, I have patients who trust me 100% and value my opinion, so I need to become educated enough in it to be able to explain the pros and cons to them. I am all for effective and safe treatment for CH. I dont care whether it has roots in illegal or legal chemicals. However, due to the society and the laws we have, one should go through the right channels. I would like to add that its not a bad thing that we have stringent laws regarding drugs effectivness and safety. It helps to protect us even if in the process it delays availability. In some way, that laws is no different to what many of us here in CH.com watching out for snake oil salesmen. Thank you for allowing me to post a copy of our exchanges on the Board. It makes for very interesting and valid discussion. Painfree wishes to you. Annette -------------------------------------------------------------------------------- Email Quote Reply Remove |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by chewy on Nov 4th, 2006, 8:22pm Quote:
When did BobW assume control of ch.com. Always thought it was Deej who made those decisions. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 4th, 2006, 9:51pm on 11/04/06 at 05:22:58, Pinkfloyd wrote:
Forgot to ask ... Why invitation only message board ? Helen please .. Thanks :-* Annette |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Pinkfloyd on Nov 5th, 2006, 2:06am on 11/04/06 at 20:22:51, chewy wrote:
It was and always has been DJs decision. He has allowed questions and answers on shrooms and seeds from the beginning. You can ask him but it was probably his way of balancing the useless swill you post, with some helpful information. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by LeLimey on Nov 5th, 2006, 4:54am on 11/04/06 at 21:51:09, BB wrote:
Hi Annette, Here is what Bob told me Quote:
Since Bob told me this (and it was at 4am his time!) I've also been told by someone else that alot of confidential medical information gets posted there for Dr Sewell which wouldn't be possible if it was open for general viewing. Hope this helps! Helen |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 5th, 2006, 6:50am Thanks Helen :) So, whats the requirement for invitation ? And are Dr Sewell and Dr Halpern contactable ? Annette |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by LeLimey on Nov 5th, 2006, 7:32am Annette I did have email addy's but lost them both when I had to reformat my pc, lost all my old emails too :'( I haven't got around to doing it yet but I know you can find all that info on the Harvard web site if you google it. As to invitation to the clusterbusters message board, thats out of my realm of knowledge, Bob W is the man to ask on that point :) |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by chewy on Nov 5th, 2006, 1:37pm Quote:
;;D ;;D ;;D |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by pattik on Nov 5th, 2006, 1:56pm on 11/05/06 at 04:54:54, LeLimey wrote:
Bob, thank you for answering this via Helen. If it aint broke, don't fix it. ;) Quote:
You mean like your speedy invitation onto the alumnus board here? |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Jonny on Nov 5th, 2006, 2:07pm on 11/05/06 at 13:56:50, pattik wrote:
Nobody invited anyone to be here, its come if you wish ;;D |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by chewy on Nov 5th, 2006, 2:15pm Quote:
If your waiting for an invite it will be awhile. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Sandy_C on Nov 5th, 2006, 3:18pm Annette, I'm episodic with, fortunately, quite a bit of pain free time between cycles. But, last year's cycle was very different, and much harder on me than any previous ones. I was using Imitrex to abort, with mixed results. When I brought this up with my doc, we again went over my medical history, and then delved in to the histories of my parents and extended family - which, pardon the expression - sucked. Imitrex, for me, is no longer a valid treatment, as well as many of the other prescribed medications. I went to the Clusterbuster site and started reading. I PM'd Bob/Pinkfloyd, Flash, and others who had tried the various alternatives, and asked questions. Up until this point in my life, I had never experimented with any recreational drug in my life (shared one joint one time - but I didn't inhale ;;D) So, I was very concerned about the possibility of "tripping", the illegality of it, and whether it would actually help. As I learned from the CB site and the guys, even though I was out of cycle, I should take a maintenance dose once a month in the hopes of completely warding off the next cycle. I decided to try the rc seeds rather than the shrooms, and my husband will attest that I was very frightened the first time I dosed, not knowing how I would react. A maintenance dose consists of a sub-psychedelic dose, and I really felt nothing but relaxed, and promptly fell asleep. I have been doing this for the past 8 months. About three months ago, the beast decided to try to pay me a visit with heavy shadows, ice picks, even the sagging eyelid. I did not wait until my next "scheduled" dose, but took a larger dose immediately. Even with the larger dose, I still did not experience what I would have defined as a "trip". All I felt was relaxed, more mellow than I would normally describe myself. The next day, all CH symptoms were completely gone - GONE. This has happened twice again since that time, and both times, with a larger dose between the usual monthly maintenance dose, the symptoms have disappeared. I am a firm believer that the rc seeds are helping me to avoid my the cycle. I will continue doing this for as long as it takes to keep me pain free. So far so good. If the seeds keep me out of cycle - marvelous! If I still go in to another one - OK - I'll deal with it with seeds, 02, Melatonin, and tons of ice. That will be it - what comes, will come. In that case, I hope the seeds will play a part in shortening the cycle and reducing the intensity of the hits. It's unfortunate, that we have to resort to becoming a criminal in order to find relief. It's also unfortunate that, because we are an open forum here, that we have to be careful (or at least we should be), about posting our "illegal" activities without knowing who might be reading it. So by open posting, we personally run a risk, and, as Brian said, we need to try at all costs not to appear to be advocating the use of illegal drugs for the sake of CH.com. I, too, think open discussions are the best way to share all information - so I guess, I've accepted the risk involved, but I will share only my personal experience, and won't necessarily advocate that anyone else should try it. That will be their decision. Sandy |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 5th, 2006, 4:41pm on 11/05/06 at 13:56:50, pattik wrote:
Looks like Helen is going to be busy with me for a while :) DeeJ invites people to the Alumnus Board as a way to say thank you to those who have donated to the Board, either in time or money. The Paypal button is down below , please check it out :) Pattik, If you have a problem with my "speedy" invitation to the Alumnus Board, please take it up with DeeJ. Did you have the same problem with Dr Halpern and Dr Sewell 's ( no doubt ) speedy invitation to the CB Board too ? Just wondering .... Annette |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Jonny on Nov 5th, 2006, 4:50pm How long will the witch hunt last? Bob, youve already proven yourself to be a stupid Mother-Fucker and bash inoccent people........anyone else want to pile on? |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 5th, 2006, 5:06pm Thank you very much Sandy for posting your experience, its much appreciated :-* I admit that I am confused as to what one should or shouldnt discuss here on the subject of using shrooms/seeds for CH. BobW said he prefers to keep questions in the open for all to learn, yet have an invitation Board only ? And so far no one seems able to enlighten me with the requirement for invitation. Annette |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 5th, 2006, 5:19pm For myself and others interested, I will continue to do research on my own and post here. If I am wrong somewhere please someone with the right knowledge let me know, thanks. Found this while googling for Dr Halpern and Dr Sewell's contact details: http://headaches.about.com/od/clusterheadaches/a/mushrooms_lsd.htm Magic Mushrooms or LSD for Cluster Headaches? From Teri Robert, Your Guide to Headaches & Migraines. FREE Newsletter. Sign Up Now! Psilocybin and LSD show promise for cluster sufferers. The International Headache Society describes cluster headaches this way: "Attacks of severe, strictly unilateral pain which is orbital, supraorbital, temporal or in any combination of these sites, lasting 15–180 minutes and occurring from once every other day to 8 times a day. The attacks are associated with one or more of the following, all of which are ipsilateral: conjunctival injection, lacrimation, nasal congestion, rhinorrhoea, forehead and facial sweating, miosis, ptosis, eyelid edema. Most patients are restless or agitated during an attack." Dr. R. Andrew Sewell and Dr. John H. Halpern, Harvard researchers, are studying the effects of two substances -- psilocybin (found in certain mushrooms) and lysergic acid diethylamide (LSD) -- on cluster headaches. Their work will be published in an upcoming issue of Neurology, the journal of the American Academy of Neurology. In February, Dr. Sewell presented "The Effects Of Psilocybin And LSD On Cluster Headache: A Series Of 53 Cases" at the National Headache Foundation’s Annual Headache Research Summit. Study objective: "To describe the use of psilocybin and lysergic acid diethylamide (LSD) for treatment of cluster headache." Patient selection: They included all respondents who, reported cluster headaches, had attempted treatment of their cluster headaches with either psilocybin or LSD, agreed to be contacted for evaluation, allowed review of their medical records. Measuring the outcome: abortive treatment a subjective rating of effective"-- termination of a cluster attack in less than 20 minutes ineffective preventive treatment: a subjective rating of effective -- total remission of the cluster period partially effective -- cluster attack frequency or intensity diminished ineffective -- subsequent cluster period occurred at the expected time Study results: Of the 53 participants: 22 (85%) who had used psilocybin reported that it had reported attacks. 25 (52%) of the psilocybin users and 7 (88%) of 8 LSD users reported termination of at least one cluster period. 18 (95%) of 19 psilocybin users and 4 (80%) of 5 LSD users reported extension of their remission periods. 22 (42%) psilocybin users and 2 (22%) LSD users found therapeutic effects with sub-hallucinogenic doses. In secondary analysis, 76 (52%) respondents reported that psilocybin terminated at least one cluster period. Study conclusions: "Our observations suggest that psilocybin and LSD may be effective in treating cluster attacks, possibly by a mechanism that is unrelated to their hallucinogenic properties. This report should not be misinterpreted as an endorsement of the use of illegal substances for self-treatment of cluster headaches." It's common for medications originally developed for one condition to then coincidentally discovered to be helpful for others. For example, we have not a single medication for Migraine prevention that was originally developed for that purpose, yet there are over 100 medications in use for Migraine prevention today. A few are now approved by the FDA for Migraine prevention, but the vast majority are still prescribed off-label. This study runs along those lines with one major exception -- both psilocybin and LSD are Schedule I drugs. It is illegal to manufacture, sell, or possess them. Dr. Sewell and Dr. Halpern did not provide the study participants with psilocybin or LSD. The participants were cluster headache sufferers who had not found relief in "standard" medications and had turned to "magic mushrooms" and LSD out of desperation. Although the results of this trial warrant further study, the politicization of the "war on drugs" makes it unlikely that it will occur any time soon. The pure spirit of the war on drugs is true and good, but the politicized spirit of it claims legitimate patients as victims. One can only hope that those who can change this will come to their senses. If you want to know more about how cluster headache sufferers are working to help themselves, please visit ClusterBusters. >>Condensed from the original, Cluster Headaches? Are Mushrooms and LSD Answers?.<< ___________________ Resources: International Headache Society, “The International Classification of Headache Disorders, Second Edition.” Cephalalgia: An International Journal of Headache, Vol. 24, Supplement 1, 2004. Sewell, R. Andrew, M.D.; Halpern, John M., M.D. "The Effects Of Psilocybin And LSD On Cluster Headache: A Series Of 53 Cases." Abstract. Presented to the National Headache Foundation’s Annual Headache Research Summit. February, 2006. Updated: July 17, 2006 Interesting :) Going to contact Dr Helpern and Dr Sewell soon. Annette |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by chewy on Nov 5th, 2006, 5:27pm Quote:
Out in the open as long as it's on someone elses site. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Pinkfloyd on Nov 5th, 2006, 6:34pm on 11/05/06 at 16:50:13, Jonny wrote:
What exactly have I supposedly done now? ::) |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 5th, 2006, 6:41pm Hello Bob Glad you are here :) Does one have to be an user to get an invitation to the CB message board ? Thanks Painfree wishes to you. Annette |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by MJ on Nov 5th, 2006, 6:56pm on 11/05/06 at 17:06:11, BB wrote:
Hi BB Its not my place to say what should and shouldnt be discussed here, but I think anything regarding the CB ways is probably ok as long as no one attempts to sell, distribute or push their methods on another. This after all is a medication and treatment forum Where you can ask,direct and discuss specific meds and treatments. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 5th, 2006, 7:11pm MJ, I have asked the same question " whats the requirement to get an invitation to the CB message board " 3 times and got no answer [smiley=huh.gif] I dont have a problem discussing the topic anywhere, but there seems to be some legal/political/personal/whatever sense of hesitation for people to discuss it here, thats why I asked about the CB message board, but not got anywhere. :( I will try to ask Dr Halpern and Dr Sewell directly. I am sure they will appreciate a bit of peer reviews :) Annette |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Pinkfloyd on Nov 5th, 2006, 7:50pm on 11/05/06 at 19:11:29, BB wrote:
The requirement is that I and the group need to trust the person being invited and they need to have questions that can't be answered here. on 11/05/06 at 19:11:29, BB wrote:
Do you have any questions about the treatment...or not? If we can answer them here, we will. If we can point you to where the answers can be found on the website, we will do that. Thousand of hours have gone into building the website so that most answers to most questions are just a click away. So...again, what would you like to know about the treatment? If DJ doesn't want the questions or answers here, he'll delete them. So far, I don't belive he has ever done so, and there have been thousands of them. If DJ ever sets out ground rules on what can and can not be discussed here, they will be followed. Up until now, he has never put any restriction on the discussion. As i said in the IM that you posted here....Ask questions here so everyone can learn. Any questions about the treatment?? Bobw |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by chewy on Nov 5th, 2006, 9:38pm Quote:
The plot thickens. http://crash.neotope.com/images/icons/by_me/spy-vs-spy.gif |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 5th, 2006, 9:50pm on 11/05/06 at 19:50:52, Pinkfloyd wrote:
Guess that meant you and the group dont trust me enough for an invitation, at least for now so I hope DeeJ wont mind me asking questions here. If I ask anything out of line it would be out of ignorance from lack of information, not because I plan to attack or flame anyone, so please dont take it the wrong way. My first 3 immediate questions are: 1- Who would be considered suitable for the treatments ? 2- Is there any data on long term use and (cognitive ) brain damage ? 3- How important is it to detox prior to treatment and does the length of the detoxing period affect the treatments ? Thank you very much Annette PS: edited for spelling mistakes, duh! |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by andrewjb on Nov 5th, 2006, 9:53pm :). feels like a spring breeze passing by here. andrew. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 5th, 2006, 10:04pm I asked the question on long term ( chronic ) use and cognitive brain damage as Dr Halpern himself warns about it here: http://evidence.no/en/halpern I believe this is a very important point for CHers to consider. If a psychedelic subtance works for them to abort CH attacks and/or a cycle, as its still not a cure, how long and how often can they use the treatment before such risk/damage is real? and is one person more at risk than the next? whats the contra-indications for the treatments? With prescribed medication such as imitrex, there is always a recommended safe dose. It may not be 100% but it has the backing of the companies. If one takes precribed drugs, uses it properly within the recommended range and something bad happens to them, they can sue the companies/the doctors for compensation. Is there a similar guideline here? Thank you very much. Annette |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 5th, 2006, 10:59pm I have a subscription to the Neurology Journal so I digged up the paper by Dr Halpern and Dr Sewell to read. Its titled " Response of cluster headache to psilocybin and LSD ". Due to copyright legislation I cant copy it and post it here but anyone can purchase a copy to view online for 1 day at the cost of $20 http://www.neurology.org Dr Halpern's email address is there too. I have written to him to ask more questions. Its actually not a study , its unblinded, uncontrolled and subjected to several limitations. Its a case study where datas from people are collected to see if there is enough evidence to even start considering doing further researches into psilocybin as treatment for CH. In some primitive way its similar to the height survey I conducted earlier to see if the topic is worth looking at. The conclusion is that there appears to be practical evidence that shrooms and RC may be effective in treating cluster headaches and that further studies should be considered. However neither Dr Halpern nor Dr Sewell made any comment whether or not they themselves are subjecting to such studies in the near future. Anyone knows if any studie/research into the topic is currently being conducted or is in the pipeline ? Looks like the search hasnt even started yet with the professionals. Its gonna be a looooooong road folks. :( Painfree wishes to all. Annette |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by nani on Nov 5th, 2006, 11:33pm on 11/05/06 at 22:04:07, BB wrote:
From the article: It is therefore important that professionals currently involved in the drug field participate and contribute to this debate. Here it is especially critical to communicate clearly that there is a difference between the risks involved with uncontrolled recreational use compared to guided therapeutic sessions. The clusterbuster treatments would not, IMO, be considered long term chronic use. It seems that is the point Dr Halpern is making. My last doses were 52 days apart. I would be far more likely to get brain damage from the head banging I'd be doing if I were having attacks. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 5th, 2006, 11:40pm Hi Nani , I agree completely. Where can one get guided therapeutic sessions and who would be the guide? Thats why I asked about guidelines . If you can help me out Nani, I would appreciate it. Thank you very much. Annette |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by nani on Nov 5th, 2006, 11:49pm The guided studies that John discusses in that article are not CH studies. The article states that he is involved in Ecstacy studies. John is not the primary researcher for the pending CH study. As far as the questions you asked above, Annette, which ones in particular are you not finding answers to on the CB site? Have you thoroughly read over the mushroom and LSA FAQs ? All of what you ask is addressed there. All we can give you are personal experiences. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 6th, 2006, 12:01am Thanks Nani, I have read the FAQs. I will go back and reread again and will post more specific questions. Annette |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by LeLimey on Nov 6th, 2006, 5:04am Annette the "recreational level" for RC seeds is supposed to be 80-100 seeds. I use 15 at a time approx once every three weeks which doesn't change the way I feel or perceive things at all although I treat it as though I have drank and behave accordingly (ie don't drive) The most I have tried was 25 seeds and it made me quite nauseous so I can't imagine for the life of me how anyone would be able to get to a hallucinogenic level on these little babies! [smiley=laugh.gif] I don't enjoy the experience, I don't like the limitations I feel I should put on myself (through caution on my own part I hasten to add) Its an inconvenience and I always find half an hour after I've dosed I want to go somewhere (I think that's cos I'm contrary anyway!) I'm a lifelong wuss. I've never so much as smoked a cigarette never mind anything stronger and although I joke about to the contrary all the time I'm actually a very moderate drinker too. For me, deciding to try the seeds was born of desperation rather than choice. I had tried so many preventatives, some with horrific side effects and I was left with being told my next options were all invasive. I was terrifed, I didn't know what to expect and it finally dawned on me that nothing could really be worse than the hallucinations I'd already had on both pred and topiramate so I took a deep breath and gave it a go. That first time I had six days pain free and it was a miracle. It was unbelievable! I can't tell you how elated I was but I'm sure you can understand as you know how Daniel (not to mention you!) would feel. I read a book called Psychedelic Perceptions by John Joseph which really helped clear up any last remaining concerns I had too I have to say. I'm not worried about long term use, I don't feel I use it enough for it to be a problem, I'm far more concerned about my tomato addiction and my need to eat a couple of lbs of them each day ;;D I know this is all anecdotal but I hope it helps. Helen |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 6th, 2006, 5:45am Thank you very much Helen, :) It helps tremendously. I am going to get the book you mentioned and have a read too. I am so glad it worked well for you and that you are pain free Helen. Hugs Annette |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Flash on Nov 6th, 2006, 8:00am Don't get too hung up on whether or not you are invited to the private CB board. You'll get exactly the same advice and quantity of advice here on CH.com, then only difference is that occaisonally the posts get interleaved with the odd troll. I post here much less often now because... well... the trolls beat me LOL! The trolls shall inherit what's left of the earth after they finish fucking it with it. Then the rats get to take a turn. But I also removed myself from the CB board and have distanced myself from that organisation. BobW favours a dimplomatic approach, whereas I will always attempt to batter someone into submission (both here and in real life - you should see the state of my hands LOL). The fallout from my more aggressive tactics was often being unfairly blamed on CB, and occasionally dragging them through the mud. And on the flipside I prefer not have a leash because then nobody gets upset when I slip it to go off and bite some fucker in the testicles heh heh grrr! As BobW has stated, the main benefit of the private board is anonimity, and quite clearly you don't have a problem with that as you are plastered all over this one. The only other benefit is the absence of trolls, but hey - you're a big girl :) So read the CB FAQ, and post any questions here, and there shall be plenty of experienced people along to offer assistance. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 6th, 2006, 9:23am Hi Flash, Nice to meet you. :) on 11/06/06 at 08:00:59, Flash wrote:
I never get hung up on things like that, I was just curious. ;) Quote:
From what I have experienced, it seemed like BobW had changed his approach lately, preferring to use yours instead, and the dragging through the mud bit happened quite well by itself. 8) Quote:
Actually I am rather petite, but I have the spirit of a street fighter so I guess in some way I am a bit like you ( checking the state of my hands .... ;) ) Quote:
Thank you, will do ! Cheers Annette |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Margi on Nov 6th, 2006, 10:01am What Flash fails to tell you in his post, Annette, is that he is the one that first brought the psilocybin treatment to the attention of the old ch.com board. Then, in conjuction with another fellow who doesn't post here anymore (PinkSharkMark), they worked tirelessly to lay the groundwork for the Clusterbuster ogranization that we know today. Flash also introduced the idea of the candida overgrowth in clusterheads, but that's a subject that's even more controversial than this one (even though there is a lot of merit to it!). Most of the questions you've asked here can be answered on the home page of the clusterbuster site. They have lots of links to some very good information there. While the psilocybin treatment ultimately failed Mike, we believe it kept him in remission longer than he would have been at that point in his cluster career. Flash and Pinky(Mark) were wonderful in coaching us through all of our trials and I will have no problem bugging the hell out of BobW when it's time for Mike to try the seeds. They're a good group of people, Annette, and they've all done a lot for cluster research. It's man that has made these natural earthgrown cures illegal - think about that. Hallucinogens have been used for centuries to treat headache and, without wanting to racially profile, it's very rare that we see sufferers from the Asian or Native Indian races here. I don't doubt for a second that these groups are using their own "alternative" meds so that cluster headache isn't a problem for them. ok, flame away folks. It's Monday morning, I've got a strong cup of black coffee in front of me, I can take it. :D |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by BB on Nov 6th, 2006, 10:20am Hello Margi, Thanks for sharing your story :) I am sorry to hear that the first treatment didnt work as well for Mike. I sincerely wish him and you better luck with the seeds next time around. What frustrates me no end is that I have been asking all questions in good faith but for some reasons being treated as if I am the FBI investing a crime scene ? I am not here to flame anyone nor get anyone into trouble ... Heck I have enough on my hands keeping myself out of troubles ! LOL ! Its rather late here so I am going to bed, please wait until I am out of range before starting firing if anyone must. Take care and painfree wishes to all. Annette |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Margi on Nov 6th, 2006, 10:42am on 11/05/06 at 21:50:15, BB wrote:
Annette, I've just gone over this thread again. I'm confused as to why you say your questions aren't being answered - it seems they are being answered. As you can see, there isn't a huge veil of secrecy here at ch.com about this treatment, so I'm also confused as to why you're concerned about a private message board over at the CB site. :-/ Not trying to attack you - it just seems that this has been repeatedly asked and answered. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Redd715 on Nov 6th, 2006, 10:45am No flames from me Margi, because I agree with you. Humans placed the legal limitations on these natural remedies "for our own good" ( :-/). And if the Indians hadn't taught us how to use willow bark tea to reduce fever and pain eons ago, Bayer wouldn't be a household Brand name. I too believe that the earth holds remedies for most everything that ails us in their natural forms, and that the ingenuity of man can either hinder or help finding them and utilizing them. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Flash on Nov 6th, 2006, 10:55am Thank You Margi! on 11/06/06 at 10:01:36, Margi wrote:
This could be misinterpreted, so I think I better clarify. Pinky and myself spent long hours on CH.com advocating using shrooms to treat CH, hypothesising about why they worked, and helping to guide other people - those early pioneers - through treating their CH with them. Another thing we did was to help design the EROWID survery, and BobP contributed there too. All three of us were also involved in the very intial contact with MAPS. The article in The Guardian (UK) newspaper last year was instigated by me. I've also had some discussions with the BBC, spoken to R&D at Glaxo, and exchanged some email with a researcher who was using ibograine to treat drug addicts. But the founding of Clusterbusters was entirely BobW's baby. I didn't even get around to joining up for about 6 months cause I was busy with material concerns. The people who are affiliated to Clusterbusters will post on here with guidance etc, but the organisation itself was setup to do much more than just that. The major progress with MAPS and the work at Harvard was mainly pushed through by Clusterbusters, and they have been responsible for generating the funding. The New Scientist article indirectly came through that channel also. BobW expends a lot more time and effort on this (away from this forum) than I ever did. I have had some dialogue with Andrew Sewel, but only on my own case history, because mine (obviously) goes back the furthest. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Margi on Nov 6th, 2006, 11:12am sorry, Craig - you're right - my glossing over could have been misinterpreted. My bad. off topic (but should be ON topic, really) - how's YOUR punkin? Did you get through that cycle finally? totally untreated, right? |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Bob P on Nov 6th, 2006, 11:42am Hi Flash. Ditto Margi's ? how's the old noggin? |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by seasonalboomer on Nov 6th, 2006, 11:47am on 11/06/06 at 10:20:42, BB wrote:
Based on the present "reality" with regard to most of the treatment options regarding clusterbuster techniques, I personally believe that anyone asking detailed questions regarding CB should be viewed very suspiciously. Annette, you've spent a good bit of time here and I respect that, but I think you miss the subtlety on this single subject. There is a helluva lot of information you could build on a lot of people on this site regarding CB. The importance using a "nudge, nudge, wink, wink" approach for some questions is valid, as almost all questions are answered on the CB site or on threads here. Taking detailed info or questions to a different "secure" channel is absolutely appopriate and I applaud these guys for building these safety mechanisms into the communication. Proud or not, we must all be careful on the internet, whether you are talking about CB or your particular income tax situation with someone you've met on the internet for all to see. Scott |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by nani on Nov 6th, 2006, 11:48am on 11/05/06 at 22:59:01, BB wrote:
Hi Annette, many of us have already read the article in Neurology. In fact, most of the early busters are in it, and BobW helped write it. The article does not include any LSA cases, only psilocybin and LSD. The LSA case info is being gathered now. You discussed risk earlier, and I think I can say, for myself anyway, given my heart issues triptan treatments are much more likely to harm me than busting. In fact, I am forbidden to use triptans by my docs. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Bob P on Nov 6th, 2006, 12:01pm Quote:
|
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Flash on Nov 6th, 2006, 12:54pm on 11/06/06 at 11:12:06, Margi wrote:
Oh yeah, think I posted than in my thread. Been clear for a couple of months now I think. Was still the cushiest episode ever, with only 2 bad attacks the whole time. |
||||||||
|
Title: Re: any aussies tried the clusterbusters method?? Post by Margi on Nov 6th, 2006, 1:02pm cool beans, babycakes. :) and who says prescription meds don't prolong things! ::) |
||||||||
|
Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1! YaBB © 2000-2003. All Rights Reserved. |