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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Done w/ Topamax
        
(Message started by: Bond007 on Oct 17^th, 2006, 10:45am)

Title: Done w/ Topamax
Post by Bond007 on Oct 17^th, 2006, 10:45am

That's friggin IT! After the last few days, I've finally decided that I'm discontinuing this damn drug. Not only have I been suffering from some pretty severe dizzy spells whenever I'm doing anything strenuous or getting up from a seated or squatting position, but this past weekend I passed at least 2 kidney stones! I'm NOT a happy camper! So, not only do I have CH, but now I'm dealing with dizziness & kidney stones to boot!!!! FUCK THAT SHIT! I called my GP yesterday and asked him how to taper off this drug. No more. I'm done. I need a new drug!!!! The sides aren't worth the shoddy positive effects of Topamax.

Title: Re: Done w/ Topamax
Post by caseman on Oct 17^th, 2006, 12:18pm

Topomax did NOT work at all for me. All it did was make me fall asleep uncontrollably at all times of the day. I would be watching TV or something and before I knew it, it was 2 hours later. It was really wierd..

Title: Re: Done w/ Topamax
Post by Ozark_E on Oct 17^th, 2006, 12:29pm

I've been on Topamax 2.5 weeks. Definitely feeling Dopey, sleepy at night. I have not had any kidney stones. I have resisted my Dr wanting me to up the dosage, so I've stayed at 75mg per day for the past 10 day or so. IT has been working for me. I've had one CH in the past 2 weeks that I aborted successfully with oxygen and 50mg Imitrex PILL. I've been in my cycle for about 3-4 weeks. Just tapered off of prednisone yesterday, now thats a different story. I was at 60mg for 10 days then decreased by 5mg per day until off completely. I am glad to be done with it, but damn, the aches are no good. Topamax seems to be beneficial for me right now though.

Title: Re: Done w/ Topamax
Post by unsolved1 on Oct 17^th, 2006, 3:23pm

Topamax was an aweful drug for me too. Made me dumber than a bag O hammers ... gave me kidney stones twice (the first time requiring surgery & a stent) ... and it never helped the 'headaches' at all.

UNsolved

Title: Re: Done w/ Topamax
Post by brewcrew on Oct 17^th, 2006, 3:27pm

on 10/17/06 at 12:18:23, caseman wrote:

That shit happens when you get to be an old guy, too. ;)

Title: Re: Done w/ Topamax
Post by Squanto on Oct 17^th, 2006, 5:54pm

Bond007,

I mgiht have missed a post or two (or three) but:

Was Topomax prescribed for you by the highly touted and highly recommended Mayo Clinic of Jacksonville, Florida?

Squanto

Title: Re: Done w/ Topamax
Post by lashultz on Oct 17^th, 2006, 6:27pm

You remember the ones that work and you remember the ones that are terrible. Topomax falls in the latter.

Lee

Title: Re: Done w/ Topamax
Post by roy21302 on Oct 18^th, 2006, 12:48pm

I agree with Lee, topo sucks
Cheers Roy ;)