Clusterheadaches.com Message Board (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Need more INF from Chronic CH about mash use
(Message started by: sevim on Sep 25th, 2006, 7:02am)

Title: Need more INF from Chronic CH about mash use
Post by sevim on Sep 25th, 2006, 7:02am
I am bit confused my husband chronic CH sufferer and I need to know people who is like him and experienced mashrooms or Philosophers Stones
How much do you take?
If you have pain everyday with no break when do you suppose to take it?
How you can stay with out other medication during Detoxing
How often do you take?
My husband got very bad headaches its bit difficult to do detoxing
Also how long did you guys get break

Is this method really working for chronic people did anyone had Ch free time longer I need to learn all this because my husband going through bad time and I don’t think so he is gone hold longer. I’ve got prints and I am starting this week to make syringes and start growing. Also he had Philosophers Stones 5 days ago but didn’t have detoxation. He only used .9gr and 4 hours later 1.0gr and 5 hrs later he get up with pain and he used another .9gr he didn’t have pain last 5 days but it started again suddenly and this morning he end up taking zomig because that’s what he does every morning out of habit taking zomig using oxygen then go back to sleep.

Pls send me any experience you guys had so I can find the right direction.

thanks

Title: Re: Need more INF from Chronic CH about mash use
Post by Carl1958 on Sep 25th, 2006, 9:55am
Hello Sevim..I assume by Mashrooms, you mean Mushrooms..

All you need to know here dear.. :)

http://www.clusterbusters.com/

TC CArl... 8)

Title: Re: Need more INF from Chronic CH about mash use
Post by sevim on Sep 25th, 2006, 10:29am
yes carl thats defenitly mushroom ;;D got broken english

I read everythink in the web page but it not many testemonials about chronic suferer more about episodic. I like to know about people experiences how long they can broke the cycle.
My husband has been suffering for more then a year and only last during xmas he had 5 days break with teasing all that 5 days and last month he had 2 weeks off other then that he hasent relaxed yet basicaly he is sitting and waiting for pain every hour if he doesnt have pain he will have teasing so i did check all informations but i ned to read more about people experiences (CHRONIC)

Title: Re: Need more INF from Chronic CH about mash use
Post by nani on Sep 25th, 2006, 10:42am
Hi sevim.
Read this:
http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=meds;action=display;num=1122088913
I haven't updated in a while, but the treatments are still working very well.  ;;D
hugs, nani

Title: Re: Need more INF from Chronic CH about mash use
Post by Carl1958 on Sep 26th, 2006, 1:39am
Hello Sevim...Here's my latest update.
I hope it doesn't offend anyone..Thats not my intension..Just trying to help..However you will be given all the help,& advice you need on Clusterbusters,why not ask Bob W for a password...

Be well...CArl... 8)


Update...Case No A218

Until recently my last dose of Pcilocybin was 6 months, & 4 days ago... As a Chronic sufferer of Cluster headache, this had been my longest remission in over three, & a half years, & my first Christmas without being in the company of the Beast... During this 6 month period, I have not had to use any Medication what so ever... No Verapamil, & I was on 800mlg a day, & looking to increase again...No Imigran/Trex... No Oxygen...No LSA...No Pcilocybin... Not so much as an Asprin...

Several weeks ago, & with a vengeance, the Beast raised it's ugly head once more, & I was upward of 7 attacks each day, all High KIP level... So I dosed with Pcilocybin. I pretty soon new that the Pcilocybin I had used, was of a poor grade, (for want of a better phrase) & for those of you who are unfamiliar of how this treatment regime works, I felt it best to wait another 5 days before my Receptors would be ready to accept anymore treatment... Needless to say, those 5 days were hell, & IMHO the poor grade Pcilocybin made things even worse...Or the flip side of the coin could be, because I didn't treat the condition quickly enough, as per usual it just vamped up even higher...Who know's... Another topic for discussion maybe...

Moving on. I decided to hit the Beast hard, & used a combination of Pcilocybin, & RC Seeds... Without going into too much detail...All I will say is... The evening was pleasant... My Guitar playing improved, & I am considering growing my hair to Hip length once again...  

I had the usual post dose activity for several days after... Which were easily aborted with 02, & some were so weak I chose just to sit them out... After 5/6 days all CH activity stopped, & my CH symptoms had dissapeared...
I had a very mild attack several weeks ago in the early hours of the morning... A low level KIP 2, so I decided to do a small dose of the RC seeds, & I have been pain free now for the past several weeks...

I would just like to finish by saying that.... For me this treatment is without doubt the most effective treatment I have used in 20 years as a CH sufferer... However if anyone is considering embarking on this treatment.... READ,& ASK... As my dear old Dad use to say... Don't knock it, till yuv tried it son...

Be Well.

CArl...  

PS...Still PF Sevim.. ;;D

Title: Re: Need more INF from Chronic CH about mash use
Post by Pinkfloyd on Sep 26th, 2006, 3:00am

on 09/25/06 at 07:02:03, sevim wrote:
Also he had Philosophers Stones 5 days ago but didn’t have detoxation. He only used .9gr and 4 hours later 1.0gr and 5 hrs later he get up with pain and he used another .9gr he didn’t have pain last 5 days but it started again suddenly and this morning he end up taking zomig


5 days pain free from basically one dose, sounds pretty encouraging to me. I'll bet he never got 5 days pain free from one zomig. I understand the use of zomig after the 5 days....habits are hard to break, especially when we panic, as we all do. He should have dosed again with the P.Stones, as I'm sure you know. Hopefully that 2nd dose would have given him more time than 5 days.
Chronics are often more difficult to break, but it can be done. They usually just continue to spread out the doses a little further each time if the first few doses don't completely break the cycle.
Philosphers Stones contain psilocybin just like the shrooms so they are just as effective as shrooms.

All the best...feel free to post anytime with questions. Based upon the early success he had from the first dose, I think he has a good chance of beating these things back.

I'd also suggest dosing again asap rather than using triptans (zomig) again for several days.

Bobw

Title: Re: Need more INF from Chronic CH about mash use
Post by Karla on Sep 26th, 2006, 12:16pm
I am chronic and would get 8 ch/day.  This went on for years.  I tried 4g of dried shrooms and was pain free for 4-5 months.   It was heaven.   I know that is a high dose.  I decieded after that because of legal implications etc. that could occur to not try it again.   Good luck to you.  If you don't mind the legal implications go for it!  I highly recomend it.

Title: Re: Need more INF from Chronic CH about mash use
Post by sevim on Sep 27th, 2006, 1:44am
Hi Everone thanks for all your reply. I have to say this even he didn’t take it based on instruction not because it’s his fault because of his condition. But anyway last week he was pain free for 5 day and pain back again he took another dose and he was ok in 20 min with using O2 but next day we went to specialist and he start getting pain we only had zomig not O2 so he took it but it was very low pain and went away in 15 to 20 min which is impossible with out the O2 before its been 2 days even he took zomig he has no pain little teasing so I am very pleased by result we start growing our mushrooms. Until it groves if he get pain he will take zomig once mashrooms ready we will go back to therapy.
Thanks guys..

PS:Dont have problem with legal implcation.. Want him to take control of his life again

Title: Re: Need more INF from Chronic CH about mash use
Post by Pinkfloyd on Sep 27th, 2006, 2:22am
Best of luck to you both Sevim.

May your garden grow quickly.

Bobw

Title: Re: Need more INF from Chronic CH about mash use
Post by Barry_T_Coles on Sep 29th, 2006, 3:16am
Stuff the legal implications go for it; if you don’t tell them who will know and if it’s working for him I’m happy for you and thank you for supporting him the way you do, support is a very special part of dealing with this tricky little shit. :)

Kind Regards
Barry



Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.