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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> med plan seems to be working
        
(Message started by: Charlotte on Sep 5^th, 2006, 10:56pm)

Title: med plan seems to be working
Post by Charlotte on Sep 5^th, 2006, 10:56pm

There are so many heavy things on the board that I was hesitant to talk about my med plan, but I wanted people to know that something is working.

When I found the board in February 06, it was because I had started getting hit every 2 hours at an 8. I didn't think I could make it without help. People here said get a new doc, and I did on 2-25-06. Inderal & maxalt melt for 6 weeks, then 5 mg paxil & maxalt melt for a month, around May 6 - the liquid kudzu & maxalt melt, eventually tried & added red bull.

The new doc felt stumped by the every 2 hours thing & referred me to the neuro who thinks it is not ch or cph but has elements of both, & is not in any other category either. His goal was to get me off the maxalt. He prescribed an escalation of neurontin, 1 a day on the first week, 2 a day on 2nd week, etc, up to 9 a day. I'm on week 5.

On week 2, my pain tolerance went down as the pain eased a little. My doc prescribed 75 mg time released Indocin twice a day. It helped immediately - not pf but much improved. E-Dub believes this should be tried much earlier than this point.

The neurontin dulls me so much that I can't use more than 1 at a time so I have been spacing them throuigh the day.

Today, I felt really close to good. I may just be in a low cycle, or the meds may be working. I used only liquid kudzu & neurontin. No maxalt, no indocin, no red bull.

As far as I'm concerned, the neuro's goal has been met - no maxalt. I hate that the neuro answered my email of concerns basically with - continue the escalation, see you in 5 weeks.

It may only last a day, but I wanted to share that I had a good day.

Thanks for all the moral support.

Charlotte

Title: Re: med plan seems to be working
Post by alchemy on Sep 5^th, 2006, 10:59pm

Great knews, hope the pain free time continues forever.

Title: Re: med plan seems to be working
Post by lionsound on Sep 5^th, 2006, 11:16pm

YAY! a good day!
I love to hear about good days....feel free to have many more!! :D

Title: Re: med plan seems to be working
Post by nani on Sep 5^th, 2006, 11:50pm

Gotta love the good days... :D

Title: Re: med plan seems to be working
Post by TxBasslady on Sep 5^th, 2006, 11:51pm

It's always good to hear when one has a good day.

Congrats....and I wish many more for you. 8)

Jean

Title: Re: med plan seems to be working
Post by sandie99 on Sep 6^th, 2006, 4:31am

on 09/05/06 at 23:50:31, nani wrote:

Gotta love the good days... :D

Amen to that.

I hope that lots of good days are on their way to you, Charlotte! :)

Best wishes,
Sanna

Title: Re: med plan seems to be working
Post by pattik on Sep 6^th, 2006, 8:18am

Charlotte, thanks for the informative update. It's always great to hear of a little success. ;;D

Patti