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Title: CH study in Dallas Texas Post by CH_investigator on Aug 17th, 2006, 2:48pm Notice for North Texas CH sufferers: Enrollment into a CH study by a headache speciality clinic ran by Neurology doctors. The study will start in November, please contact Tosha or Amy at 214-345-1299 to be added on the list. You must be able to come to Dallas for three clinic visits (initial and two 2 week interval follow up visits) to be in the study. The study involves a new medication available in the US which is similiar in mechanism of action as melatonin. |
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Title: Re: CH study in Dallas Texas Post by Jonny on Aug 17th, 2006, 6:35pm on 08/17/06 at 14:48:43, CH_investigator wrote:
Whats it called? |
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Title: Re: CH study in Dallas Texas Post by CH_investigator on Aug 17th, 2006, 6:41pm The study medication is called rozerem or generic ramelteon. Rozerem has recently been FDA approved for insomnia. The medication acts at the same receptors as melatonin. There have several studies in CH with melatonon indicating that the melatonin may help reduce duration and number of attacks in the cluster episode. |
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Title: Re: CH study in Dallas Texas Post by Jonny on Aug 17th, 2006, 6:58pm There are plenty of clusterheads living in Texas, prehaps the will respond here. In the mean time try checking the archives of this meds board. I came up with this link real quick. http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=meds;action=display;num=1136184258 |
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Title: Re: CH study in Dallas Texas Post by chewy on Aug 17th, 2006, 7:01pm Quote:
I think they are called neurologists. |
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Title: Re: CH study in Dallas Texas Post by georgej on Aug 17th, 2006, 7:03pm What clinic is it? Regards, George |
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Title: Re: CH study in Dallas Texas Post by chewy on Aug 17th, 2006, 7:13pm Sounds promising. http://www.eurekalert.org/pub_releases/2005-07/k-far072205.php As georgej asked. What clinic ? |
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Title: Re: CH study in Dallas Texas Post by E-Double on Aug 17th, 2006, 7:33pm I was perscribed that from NECH........never did it though. |
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Title: Re: CH study in Dallas Texas Post by rhino on Aug 17th, 2006, 8:29pm I'm going to Dallas,, hell nothing else is working, I was looking for another Doc anyway. . Would have made the 3rd one this cycle. I will stay in touch and let you guys know whats up. [smiley=cowboy.gif] |
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Title: Re: CH study in Dallas Texas Post by CH_investigator on Aug 17th, 2006, 11:01pm One of the problems with melatonin is that we assume 9mg is 9mg. But there is much less quality control with over the counter products. A dose may potential vary widely in potency. Some brands have better consistency than others. This adds validity the findings that may be concluded from a study with a medication such as rozerem which is precription and is regulated for purity and accurate strength. |
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Title: Re: CH study in Dallas Texas Post by Gator on Aug 18th, 2006, 12:57am I called several times, trying many of the automated options. The automated answering system (never could get through to a human being) answers as Neurology Specialists of Dallas. One of the alternate numbers you hear when going through their instructions and options comes back as the Dallas Headache Association using a reverse phone directory search. I'm still waiting for a call-back to confirm the status of the clinical trial. |
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Title: Re: CH study in Dallas Texas Post by SophiaK on Aug 18th, 2006, 11:57am Melatonin gives me bad dreams, I had to stop taking it. It did not do for me what it has done for so many on this board. It didn't get me through the night, still had 2 hits and woke exhausted. I wonder if their new formula would do the same. |
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Title: Re: CH study in Dallas Texas Post by CH_investigator on Aug 18th, 2006, 1:06pm Regarding clinic return calls, the rozerem study will not start until November. You may leave a message for indication of your interest or, better yet, leave a posting here. But we are not authorized to return clinic calls regarding the study yet. |
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Title: Re: CH study in Dallas Texas Post by Pinkfloyd on Aug 18th, 2006, 2:02pm on 08/17/06 at 14:48:43, CH_investigator wrote:
on 08/18/06 at 13:06:37, CH_investigator wrote:
You are authorized to recruit but can't return phone calls? A little confusing. You can answer questions about the study online on a public message board but not in a private phone call? Bobw |
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Title: Re: CH study in Dallas Texas Post by Pinkfloyd on Aug 18th, 2006, 2:08pm on 08/18/06 at 11:57:26, SophiaK wrote:
I don't know. The new formula shows a guy talking to Abe Lincoln and a gopher. Might depend on what you consider a bad dream. ;-) I've seen the commercial a bunch of times and I figured the guy that came up with the idea must have used pretty high doses of melatonin. Maybe he/she was a cluster sufferer. Not knockin the study.....its just a weird commercial ;-) Bobw |
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Title: Re: CH study in Dallas Texas Post by chewy on Aug 19th, 2006, 9:47pm Quote:
Who is we? What is your role in this study? |
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Title: Re: CH study in Dallas Texas Post by georgej on Aug 19th, 2006, 10:15pm on 08/19/06 at 21:47:15, chewy wrote:
Gettin' some weird vibes with this thing. It ain't passin' the smell test. Did you ever call Gator back? I know you "aren't authorized to return phone calls", but his is one that you might want to reconsider. George |
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Title: Re: CH study in Dallas Texas Post by Gator on Aug 20th, 2006, 1:05am Sometimes it takes a while for messages to go up the chain and for answers to come back down. Let's give this a little more time before we start sharpening the sticks. Please. |
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Title: Re: CH study in Dallas Texas Post by georgej on Aug 20th, 2006, 2:29am on 08/20/06 at 01:05:18, Gator wrote:
Thanks, Gator. You're right. Perhaps I'm jumping the gun. I think things could definitely be made a bit less murky, however. I don't have a lot of tolerance for cloak and dagger stuff. George |
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Title: Re: CH study in Dallas Texas Post by rhino on Aug 20th, 2006, 5:26pm You may leave a message for indication of your interest or, better yet, leave a posting here. But we are not authorized to return clinic calls regarding the study yet.[/quote] With this kind of arrogance, I can only assume CH_investigator is a Neurologist. >:( |
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Title: Re: CH study in Dallas Texas Post by Charlotte on Aug 22nd, 2006, 6:47pm Are we suspicious by nature, do ya think? I emailed the person to see if they were working or needed info, and was informed of the study & asked if I wanted to participate, so (not direct but) the answer was working. I don't think I can go to texas. Charlotte |
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Title: Re: CH study in Dallas Texas Post by rhino on Aug 22nd, 2006, 7:35pm Charlotte What is their e-mail adress,, I will crawl on my hands & knees, kiss their feet and pay them untold amounts of money if they can help me get rid of these headaches. :o |
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Title: Re: CH study in Dallas Texas Post by Charlotte on Aug 22nd, 2006, 9:43pm I don't want to break any rules, so I'll tell you where it is. It is in the profile if you click on his/her name to the upper left. |
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Title: Re: CH study in Dallas Texas Post by chewy on Aug 23rd, 2006, 6:34am http://texashealth.org/main.asp?level=1&id=08419E676BB141D2834E4818078643C1 |
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Title: Re: CH study in Dallas Texas Post by rhino on Aug 23rd, 2006, 8:08pm Thanks Charlotte,, I got it.. ;) |
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