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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Question about Zomig Nasal Spray
        
(Message started by: F1World on Aug 17^th, 2006, 1:41pm)

Title: Question about Zomig Nasal Spray
Post by F1World on Aug 17^th, 2006, 1:41pm

Hello.

I was wondering if anyone had a disturbing experience with Zomig nasal spray, like I had last night/ early this am.

I have been taking Zoming rapid melts, and they seem to do the trick. I had read here about the nasal spray, so I went to my doc to get a Px for it.

About 2:30 this am I was awakened with a rocker of an attack, so I thought I'd give the nasal spray a shot, as I had the Px filled and sitting there. Now, I was in substantial pain, rocking, moaning, 'why me', hitting my head as per usual, so I don't know if this had something to do with it ... I reached for the nasal spray, and gave a good shot up the right nostril. That was all I remember. I breathed in a couple of times, and the next thing I knew, I woke up 3 1/2 hours later, still holding the spent inhaler. I feel absolutely horrible now as I sit here typing this. Extremely nauseated, worn out, and a persistent shadow. As you can imagine, I am concerned as this has never happened before.

Is it the inhaler? Has anyone had any kind of similar experience? Is it a combination of things? I have 4 more inhalers, and now I am a little gun shy to reach for one for my next attack.

Any feedback or similar stories would be greatly appreciated.

Thanks,
Jeff.

Title: Re: Question about Zomig Nasal Spray
Post by Gator on Aug 17^th, 2006, 3:26pm

on 08/17/06 at 13:41:29, F1World wrote:

Sounds scary. I used Zomig NS and never had anything but relief. Some people have reported passing out due to the pain of ch, but I haven't heard of Zomig knocking anyone out - not that it couldn't happen.

I tried Relpax tablets and they made me feel like shit for hours and hours after an attack was over. Imitrex tabs were not much better, which seems strange, because Imitrex Injections work quite well with no ill feelings. I guess this demonstrates how different delivery systems can result in different reactions.

You should always discuss negative or abnormal reactions to medications and medication interactions with your doctor and your pharmacist.

Be careful and keep us posted.

Title: Re: Question about Zomig Nasal Spray
Post by Jonny on Aug 17^th, 2006, 3:30pm

Hey Jeff,

Its good to see you again even though the reason sucks.

The Zomig NS works great for me, just as fast as an Imitrex shot. it could be that you breathed in to hard, your suppose to breath in real slow so that it absorbs in your nose. the last thing you want is for it to go down your throat......this may or may not be your problem.

Hope this helps, Bro.

...........................jonny

Title: Re: Question about Zomig Nasal Spray
Post by F1World on Aug 17^th, 2006, 4:23pm

Ah Jonny, ALWAYS great to hear from you in any condition man that I'm in, man! Makes me feel better to see you post in my thread at least once before I'm finished with my cycle.

Well, I think you hit it spot on then .... I inhaled that sucker with one full draw as I pressed on the plunger. Just one motion, not as you stated I needed to do. Bloody hell.

Yeah, that just totally blew me away, never passed out like that, but again, the pain was through the roof as well ... the aftereffects are still bothering me though, kind of feeling hung over.

I wonder Gator, is this why I'm feeling like shizen too? I don't feel bad with the rapidmelts, but perhaps this delivery system is the cause?

I'll give the inhaler another go though ... this time Jonny, I WILL take it easier and breathe slow! I'll let you know if this made a difference!

I hope one day to not find you here Jonny, really, I do. It's easier for a non-chronic to say I hope your condition will someday have a cure, one can only hope, as you probably have abandoned all. Until then though, I'm glad you're here.

In my prayers bro,

Lates man.

Jeff.

Title: Re: Question about Zomig Nasal Spray
Post by Jonny on Aug 17^th, 2006, 4:36pm

on 08/17/06 at 16:23:20, F1World wrote:

I hope one day to not find you here Jonny, really, I do. It's easier for a non-chronic to say I hope your condition will someday have a cure, one can only hope, as you probably have abandoned all. Until then though, I'm glad you're here.

I guess you didnt get the memo, Bro......over a year ago my HA's stopped for no reason, I have no idea why and I dont care to know.....LOL

Im off all meds and loving it ;;D ...although I did have one fluke HA in all that time. so, who knows what the deal is....its one day at a time for me just like it was when I was getting hit.

Yeah, give the NS another go, just tilt your head back and give the sucker a nice even push as you breath in slowly.

Good luck to you my friend!!!!

...................................jonny

Title: Re: Question about Zomig Nasal Spray
Post by rhino on Aug 17^th, 2006, 10:48pm

Zomig nasal is way way past Imitrex, thank God.
That passing out stuff blows me away, I can't imagin
what the hell would have happen to you.
Maybe you ought to go and get your self a physical,
could to be something else going on with you.
Are you sure you blew that thing up your nose? [smiley=oops.gif]

Title: Re: Question about Zomig Nasal Spray
Post by F1World on Aug 17^th, 2006, 11:02pm

on 08/17/06 at 16:36:54, Jonny wrote:

I guess you didnt get the memo, Bro......over a year ago my HA's stopped for no reason, I have no idea why and I dont care to know.....LOL

Well a Hell Yeah to you Jonny! That's awesome news man! I can't tell you how great that is to hear!

I guess I did miss the memo, lol, us eposiodics! I skipped cycle last year, thank God, so I wasn't about on the boards.

It's great that you stuck around, I know I picked up on tons thanks to you. ;;D Though I do recall you saying that you would never leave here either ... so our/my gain for sure, heh.

I'll be posting back here to let you know how I am making out.

Peace bro!

Title: Re: Question about Zomig Nasal Spray
Post by F1World on Aug 17^th, 2006, 11:14pm

on 08/17/06 at 22:48:38, rhino wrote:

Maybe you ought to go and get your self a physical,
could to be something else going on with you.
Are you sure you blew that thing up your nose? [smiley=oops.gif]

Nah, nothing wrong with me physically, am in pretty good shape, workout 5x week for the last 15 years, eat good, rest well, last physical I checked out healthy as a horse, not really a drinker ... though I do admit to having a penchant for martini's when my friends come to town, but again, very rare ... 2x a year kind of thing, and maybe a Heineken or two every couple months in the summer.

My only medical problem, are these blasted Clusters.

Trust me Rhino, I was freaked out too ... though like Jonny stated, maybe too fast with the delivery and also as Gator said, he's heard of people passing out from CH attacks, and I have to admit, last night was one of the better ones I've had to date ... easy tenner. I probably would have had my wife drive me to the merge, but it was after 2am, she's 7 months pregnant, and well, heh, I was passed out on the couch downstairs in no time after taking the inhaler.

I'll try again, hopefully without the same result :P

Cheers!

Title: Re: Question about Zomig Nasal Spray
Post by mynm156 on Aug 19^th, 2006, 10:31pm

Hey Jeff,

Zomig is a great drug and I have never had an experence such as you have described but it could be that your body went into a sort of shock from the pain. That and the blood pressure issues involved with triptans may have caused you to black out like that due to hypotension the oxygen to your brain decreased so much that you blacked out and it would leave you with somthing of a hangover type feeling all over. Zomig is basically Imitrex just slightly different.

Hope that helps

Good Vibes my friend

your Brother in Pain

MYNM156

Title: Re: Question about Zomig Nasal Spray
Post by Radha on Aug 19^th, 2006, 11:44pm

when i use the imitrex or zomig spray i always taste it in back of my throat, are you not supposed to get it to your throat? i thought that meant it got all the way up,
radha

Title: Re: Question about Zomig Nasal Spray
Post by mynm156 on Aug 20^th, 2006, 3:52am

Dude there is no way to avoid the after taste what doesnt make it into the capillary beds in your sinus cavities will drain down to your stomach.

Title: Re: Question about Zomig Nasal Spray
Post by rhino on Aug 20^th, 2006, 8:56pm

Hello Jeff
You talked about your workout schedual,, do you keep that up while you are in cycle? I turn into a mushroom
while in cycle and have been here 4 months. Needless to say inbetween the Prednisone and setting on my ass
I am in pretty sorry shape now.
Me to,, I love my Martini, every friday or saturday evening,, I have not had one in maybe 3 months now.
Watch your self,, that passing out stuff is not just an accident. [smiley=smokin.gif]

Title: Re: Question about Zomig Nasal Spray
Post by F1World on Aug 23^rd, 2006, 1:32am

Hey guys and gals.

Well, been away for a couple of days, just been fighting like mad here in purgatory. I'm hitting a high with total number of attacks, and the pain is off the freakin scale.

So ... I did try another inhaler 2 nights ago, and I'm sad to say that I nearly passed out again. I state nearly, as I heard Jonny in the back of my head telling me to take it slow, but even still, I was woozy as a clubhopper at 3am ... I had to fight to keep conscious. I stood up to a spinning room, and staggered to the bathroom where I was attempting to climb into a cold shower with my duds still on, no less. My right eye was pouring out fluid to the point that my vision was totally obscured. Part of me told me to stop with the shower, in case I hit the floor and drowned or something, which could easily happen to me, such is my luck ... but I just turned on the icy cold and stood there for a bit, cursing and well .... crying, as much as I hate to admit to that. I don't know what else to say, other than it must be the delivery system, as the Zomig rapidmelts are much more kind to me. I don't feel at all the same taking them, as I do with the inhaler, which again made the next day feel like I was on a bender to end all benders.

I've been drinking tons of RedBull as well ... 3-5 cans a day, which is probably too much Taurine, but I have to admit, it's aborted quite a few attacks ... though, doesn't do diddly when I got a full blown one going on, but in all fairness, nothing really helps at that point ... well, passing out did stop the pain, but I feel that probably isn't the best thing for me.

I guess me + Zomig NS = bad trip.

I have no qualms about continuing with the rapidmelt ... takes a bit longer, but I still get relief, to an extent, nonetheless.

I've phoned the pharmacy, and they will trade me the remaining inhalers for the rapidmelts, so I guess it's not a total loss to the pocketbook.

I'll keep ya'll posted.

rhino:

Yeah man, I keep on working out. I don't care, I get really mad at the gym, so I take allot of anger out there. I have a 24hr one that closes the pro shop and stuff at 10pm. No no one else likes to bang iron late at night, so this pretty much leaves me with the gym all to myself, which is cool in case of an onset attack ( got my rapidmelts and RB with me) and I also get to curse the hell out of the beast while the tunes are just blaring. Granted, I have to shut it down if the pain escalates into 5/6+, but less than that, my rage keeps my hate up, and arms flexed!

I'm not a quitter, and I don't like to lose. I told myself I can't stop living my life because of this illness.

I hope it all ends for us all soon.

PFDAN's peeps.

Ciao,
Jeff.

Title: Re: Question about Zomig Nasal Spray
Post by Margi on Aug 23^rd, 2006, 10:33am

aw, Jeff, I am so sorry to read this. Hang in there, bud. Good for you for going back to the rapid melts. Sounds like you're just not a good candidate for the spray.

Forgive my brain fart here but...are you using oxygen? Medigas is great in Canada for helping clusterheads and it's relatively cheap.

Hugs,
Margi

Title: Re: Question about Zomig Nasal Spray
Post by Melissa on Aug 23^rd, 2006, 11:15am

on 08/23/06 at 01:32:06, F1World wrote:

I've been drinking tons of RedBull as well ... 3-5 cans a day, which is probably too much Taurine,

3-5 cans a day? Holy shit! :o If you're drinking it for the Taurine, why not try just a taurine supplement?

I can't touch Red Bull myself, not even Mt. Dew or Coke as the caffeine gives me heart palpatations. :-/

I wish I had an answer for you as far as the Zomig NS, but I would consult with your doc about the passing out.

Sorry for your pain. :(

hugs,
mel

Title: Re: Question about Zomig Nasal Spray
Post by F1World on Aug 23^rd, 2006, 12:00pm

on 08/23/06 at 11:15:10, Melissa wrote:

3-5 cans a day? Holy shit! :o If you're drinking it for the Taurine, why not try just a taurine supplement?

A: I cannot find Taurine supplements around my city, so I would have to order from the UK most likely

B: My wife brought me home approximately 100 cans of RB that she got for free from work. Free is always better, even though the Taurine tabs seem pretty dirt cheap from what Barry has stated.

C: I love RB! I prefer it over any cola beverage out there, though of course I would not drink this much without the CH, but I'm at an all time high in averaging around 6 CH attacks a day/night, so mostly using it as an abortive, with some success ..... and some fall flat on my face failures to boot :o

I'd drink just about ANYTHING right at this moment if it would rid me of this crap. I have not slept in days, I'm completely worn out mentally, physically, and I just want this to end already, which it probably won't as this is only week 3. Plus I have a high stress job that I cannot call in sick for ... another corporation that feels headaches are something a couple Asprin will fix ... so they are very unwilling to pay me sick leave for CH. Add it all up, and you're staring at on unhappy pappy!

I realize others out there are worse, but, we all deal with things on our own unfortunately. I know I hurt pretty damn good though, heh!

And Margi:

No O2 for me, alas. I know I should try. I don't even think we have Medigas here? I might check into it though. Thanks for the prodding :)

Title: Re: Question about Zomig Nasal Spray
Post by Margi on Aug 23^rd, 2006, 12:40pm

You're in Toon Town, right, Jeff? Yep, you have Medigas there. And...oh, trust me, I'll keep prodding. ;)

Actually, there are three outlets in Saskatoon...

http://ecatalog.praxair.com/storelocator/cansksaskatoonas.html

Home Depot, Praxair and Medigas. (Praxair is the distributor for all three).

They're also in Regina. Here's their website:

www.praxair.com

And here's the info on oxygen:

http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm

And here's the info on the Clustermasx:

www.clustermasx.com

Didja feel THAT prod? Huh? Didja? It really can work wonders AND give you your life back, Jeff.

Hang in there, bud.
Margi

Title: Re: Question about Zomig Nasal Spray
Post by F1World on Aug 23^rd, 2006, 12:52pm

on 08/23/06 at 12:40:13, Margi wrote:

You're in Toon Town, right, Jeff? Yep, you have Medigas there. And...oh, trust me, I'll keep prodding. ;)

Didja feel THAT prod? Huh? Didja?

Oww .. quit it, that poking can be interpreted as a form of abuse ... lol.

Yeah, I checked the phonebook after I wrote, and indeed, there is a Medigas on Henderson Drive. I live in Regina though, not S'toon ... right church, wrong pew kinda thing .. lol, but I won't dock you points, as I'm still impressed you remembered any details! You rule!

OK OK ... I'll check into it :P ;;D

Thank you Margi ;)

Title: Re: Question about Zomig Nasal Spray
Post by Margi on Aug 23^rd, 2006, 12:56pm

LOL sorry, Jeff - my bad. That's like calling a Calgarian an Edmontonian. Man, that's a fate worth than death! LOL

I deeply apologize.

Let me know how you make out. Because you know I WILL check. ;)

Title: Re: Question about Zomig Nasal Spray
Post by Sandy_C on Aug 23^rd, 2006, 1:11pm

Ok, anybody, please feel free to correct me, but at Milcon, we had a presentation and asking for sign ups for a Zomig nasal spray clinical trial.

Those who were able to sign up for trial were directed to put their heads down, not up, when spraying into the nostril. She explained that if your head is up, the majority of the medicine will go down your throat, not where it is supposed to go - which is absorbed within the nasal cavity.

In other words, tilt down, not back, when using this nasal spray.

Am I right or wrong?

Sandy

Title: Re: Question about Zomig Nasal Spray
Post by Jonny on Aug 23^rd, 2006, 4:37pm

on 08/23/06 at 12:00:03, F1World wrote:

another corporation that feels headaches are something a couple Asprin will fix

Not sure if you have seen this, bro...or even if it will help, but I thought id throw it out here.

http://www.ouch-us.org/chgeneral/colleagueletter.htm

Title: Re: Question about Zomig Nasal Spray
Post by rhino on Aug 24^th, 2006, 8:15pm

Hey Jeff
I just figured out why your passing out,, you have brain damage. How do I know you have brain damage,, you are not using oxygen. Haul your ass down to the weilding supply and get yourself some relief. [smiley=sayyes.gif]

Title: Re: Question about Zomig Nasal Spray
Post by Mr. Happy on Aug 24^th, 2006, 10:03pm

Jeff......try one more nasal Beta test. First, lay off the filthy Red Bull for a day. That much caffine may be the kicker. Then, "waste" a NS during a non-CH period of the day, and see if you have the same results. It's possible you may be sensitive to rapid drug onset.
Another good test would be to ask the doc for a Trex injector (used w/a 24 hour break from Zomig, both sides). Just an idea to see if you're sensitive to rapid vasoconstrictors.
May not be the Best idea, but I'm a firm beliver in Beta testing.
Good luck, and oh, yeah......I only do snorts when I lay down on my back in bed with my head hanging over the edge. Do the snort, and keep yer head back so the "stuff" stays in the nasal cavity longer. You can still let yer body thrash uncontrollably, just keep yer head down.
Zyprexa would be worth another shot in the test realm.

They're _My_ stupid pet tricks.
RJ

Ps: O2, damnit.

Title: Re: Question about Zomig Nasal Spray
Post by chopmyheadoff on Aug 25^th, 2006, 7:14am

no no no , when using nasal sprays i have been told time and again by numerous doctors, nurses and neuros that the head must be tilted FORWARDS.

as stated above if the head is tilted back then the fluid condenses on the lining of the nasal cavitl and runs straight down the throat.