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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> some succeess in treatment of non-ch ha
        
(Message started by: Charlotte on Aug 15^th, 2006, 1:45pm)

Title: some succeess in treatment of non-ch ha
Post by Charlotte on Aug 15^th, 2006, 1:45pm

Thank you for everyone who has been so supportive.

I am starting to have some success in the treatment plan of kudzu, neurontin, and Indocin. I have actually made it through several of the time slots for my every 2 hour ha with only a shadow and not the pain. The Indocin alone did not help, but combined with the kudzu & neurontin, it is helping.

I am very hopeful.

Charlotte

Title: Re: some succeess in treatment of non-ch ha
Post by Margi on Aug 15^th, 2006, 3:49pm

I'm hopeful for you too, Charlotte. I'm not all that sure that your docs are right that you're not going through cluster. I've just skimmed some of your posts and I know I don't have all the details, but...I dunno, sure could be cluster IMHO.

Title: Re: some succeess in treatment of non-ch ha
Post by kcopelin on Aug 15^th, 2006, 10:23pm

Charlotte,
I don't care what kind of headaches you have-you are still my friend and I pray for pain free days for you! I'm glad to hear this combo is helping-but I'm with Margi on this-still think you mught be a clusterhead.
Love ya anyway... :D
kathy

Title: Re: some succeess in treatment of non-ch ha
Post by Charlotte on Aug 15^th, 2006, 11:55pm

It is kind of wierd and it is a struggle, but this is day 5 of week 2 on my neurontin escalation, and day 3 using Indocin.

Some of my friends at work discussed the meds today and told me they can see it is working. I am very fortunate in my support system. Love at home, love at work, and love here.

Charlotte

Title: Re: some succeess in treatment of non-ch ha
Post by E-Double on Aug 16^th, 2006, 5:01am

on 08/15/06 at 23:55:43, Charlotte wrote:

It is kind of wierd and it is a struggle, but this is day 5 of week 2 on my neurontin escalation, and day 3 using Indocin.

Some of my friends at work discussed the meds today and told me they can see it is working. I am very fortunate in my support system. Love at home, love at work, and love here.

Charlotte

If a HA type is going tobe responsive to indocin you are right on path withwhat the literature suggests. You can consider this effective.

It may just be the indocin

Like everyone siad.......don't care what you have!
Glad you are finding relief

Title: Re: some succeess in treatment of non-ch ha
Post by Charlotte on Aug 16^th, 2006, 9:48am

the instructions in 2000 were 1 indocin every 8 hours and that did not work any better than over the counter stuff. The new directions are 1 or 2 every 8 hours. The Kaiser pharmacy is out of Indocin (lol) so I am using the 2000 Indocin. 2 works, 1 does not work.

New doc was going to phone in a time release version & see if that was in stock.

My understanding is that Indocin is the only drug in that family. Is that correct?

Charlotte

ps whew, the time release version is in stock & I will get it after work.

Title: Re: some succeess in treatment of non-ch ha
Post by E-Double on Aug 16^th, 2006, 9:53am

It is stilla NSAID yet for some reason it is the only one that works with many of these damn headaches

Title: Re: some succeess in treatment of non-ch ha
Post by Charlotte on Aug 17^th, 2006, 9:05am

I just wanted to share this. I just had 12 good hours.

Charlotte

Title: Re: some succeess in treatment of non-ch ha
Post by pattik on Aug 17^th, 2006, 9:16am

That's wonderful news, Charlotte. :)

Pat