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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> is this normal ?
        
(Message started by: Tattoo on Aug 9^th, 2006, 3:46pm)

Title: is this normal ?
Post by Tattoo on Aug 9^th, 2006, 3:46pm

Well Im new to these forums and new to CH as this is only my second "cycle" My first was 4 years ago and lasted about two months or less . this cycle started the last week of june and I thought it was done last week :( But no it came back and bad this week so far .
My family doctor gave me some imitrex pills in june and I went thru those in a few days so then he gave me 6 shots and I went thru those in a day ,then he tells me thats a big no no and it could kill me .
Well anyways my question is , is it normal to have a few days with no real clusters ? all I had for 3 days was this weird half a HA ,no full nose or droopy eye thing .Then all the sudden Im back up to 4-5 CH a day and real bad ones again . I started out with a few 3-4 kip and about what I thought was mid way thru had a few 8-9 and a real 10 that lasted 2 1/2 hours . Now today I have had 3 that are around a 7 and right now Im getting that half a HA feeling . The imitrex only works about half the time too . Anything more than a 7 kip and it doesnt even touch it . Im going to the Diamond HA center in chicago Aug. 25th Maybe they can hook me up with something better than the imitrex because now I have to decide what HA gets the imtrex and what ones I walk off .
thanks Ron

Title: Re: is this normal ?
Post by Jonny on Aug 9^th, 2006, 7:16pm

Yes, its normal....the beast makes the rules...no one else!!!

Try to stock up on meds even when you are pain free....ask your doc for free samples every time you see him.

Also, ask your doc for 02, it helps kill the beast in its tracks for many of us.

Good luck brother!!!

Title: Re: is this normal ?
Post by Tattoo on Aug 9^th, 2006, 8:27pm

Thank man ! sorry I posted this in the wrong section
What I thought was what I have been calling the 1/2 HA
turned into one . And I kinda had my head in my butt ;;D

are what I have seen people call shadows ,are those what I call 1/2 HA ?

Title: Re: is this normal ?
Post by Jonny on Aug 9^th, 2006, 10:09pm

on 08/09/06 at 20:27:15, Tattoo wrote:

are what I have seen people call shadows ,are those what I call 1/2 HA ?

Ya bro, half strength hits or less are shadows.....it feels like a big one is coming on but never does....then again sometimes it does.

Title: Re: is this normal ?
Post by floridian on Aug 10^th, 2006, 8:02am

Hard to say what is normal - the beast is a shape-shifter that can mutate at unpredictable times.

One thing to consider - there is a lot of debate on whether triptans like imitrex actually increase the length of cycles. No body knows for sure, it may only affect some people, but it is something that many people here believe in, and some doctors are starting to.