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Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Seven
(Message started by: LeLimey on Aug 8th, 2006, 10:37am)

Title: Seven
Post by LeLimey on Aug 8th, 2006, 10:37am
Isn't that a lovely number?
Seven days AND seven lovely blissful pain free nights since I last dosed with RC seeds last Tuesday. Just wanted to share that with you all because I know how I feel when I read of someone else having any PF time  :)
Have a triffic day you lot!
love
Helen

Title: Re: Seven
Post by nani on Aug 8th, 2006, 10:47am
;;D   Happy dancing for ya, girlfriend!!!!
http://forums.offtopic.com/images/smilies/hsdance.gif?SSImageQuality=Full

Title: Re: Seven
Post by Pinkfloyd on Aug 8th, 2006, 11:24am

on 08/08/06 at 10:37:52, LeLimey wrote:
Seven days AND seven lovely blissful pain free nights
Helen


On the seventh day of Christmas,
my true love friend sent to me  ;;D
Seven swans a-swimming,
Six geese a-laying,
Five golden rings,
Four calling birds,
Three French hens,
Two turtle doves,
And a partridge in a pear tree.

I'll expect to come here tomorrow and find eight maids a-milking

;;D
Bobw

Title: Re: Seven
Post by Bond007 on Aug 8th, 2006, 12:05pm
That's some seriously great news, Helen!  I'm really happy for you!  I hope it keeps up for you.

Title: Re: Seven
Post by georgej on Aug 8th, 2006, 12:09pm
Sounds great, Helen.  I'm happy to hear that it's working for you.

Keep it up, okay?  

Best wishes and regards,

George

Title: Re: Seven
Post by Grandma_Sweet_Boy on Aug 8th, 2006, 6:44pm
Great news Helen and I hope it continues this way for at least seventy eleventy days!

Hugs
Carol

Title: Re: Seven
Post by maffumatt on Aug 8th, 2006, 9:08pm
Thats a good start Helen, keep up the good work.
Matt

Title: Re: Seven
Post by broomhilda on Aug 8th, 2006, 9:20pm
YAY!!!I am so excited and happy for you! May this be the beggining of a lifetime of pain free time!

Big hugs

Title: Re: Seven
Post by alchemy on Aug 8th, 2006, 9:31pm
Helen, I just saw this post. Goddam good for you!!!!
gives some of us hope

Title: Re: Seven
Post by pattik on Aug 8th, 2006, 9:50pm
You're right, Helen.  Hearing about someone else's pain-free time is really heartening.  Thank you for posting this and brightening my day.  May the pf days march on! ;;D

Patti

edited to add:  eight, nine and ten are also really fine numbers too.  ;)

Title: Re: Seven
Post by Charlotte on Aug 8th, 2006, 10:11pm
That is wonderful.  Better than a winning lottery ticket, by far.

Charlotte

Title: Re: Seven
Post by Radha on Aug 8th, 2006, 11:48pm
so glad you are getting relief, hope it continues,
radha

Title: Re: Seven
Post by sandie99 on Aug 9th, 2006, 5:40am
Helen,

that is just fantastic!!! :D :D :D
I hope that you can soon tell us that you've been PF for 14, then 21, then 30...  ;;D

Here's to more PF time!
Sanna

Title: Re: Seven
Post by kayarr on Aug 9th, 2006, 7:12am
Helen,
I hope you remain painfree so long that you forget to count the days.
I am happy for you!
Kimberly

Title: Re: Seven
Post by LadyLuv on Aug 9th, 2006, 6:04pm
That's Jamming [smiley=jammin.gif] Helen...

May your PF days continue...

Luv Ya  [smiley=hug.gif] [smiley=hug.gif]

Title: Re: Seven
Post by kcopelin on Aug 9th, 2006, 7:24pm
Yahhh!  Way to go Helen!
Open a can of LeLimey kick butt on that beast!
kathy

Title: Re: Seven
Post by Bond007 on Aug 11th, 2006, 2:17pm
Hey Helen, how's it going?  Just thought I'd check up on ya and see if you're still in a PF groove.  I certainly hope you are!

Title: Re: Seven
Post by LeLimey on Aug 11th, 2006, 4:16pm
Hi Bond and everyone else
I'm up to day 10 (and a half!) and nothing, not even my sore spot is back! I have just realised I didn't say that I'd had a shroom sput that I crumbled up and added to the mix so I'm not redosing yet, I'm going to wait and see how long I can go without redosing to see if that makes a significant difference. I shall try the same trick again next dose as I have one more little bit and see if I get the same results as this time next time too.

If this keeps up my bloody red bull's gonna go out of date and I've already had to dust my clustermasx.. sheesh! Who'd have thought being pain free would give you all this extra housework? Talk about a downside... ;)

Title: Re: Seven
Post by E-Double on Aug 11th, 2006, 4:19pm
MWAH! :-*

Title: Re: Seven
Post by maffumatt on Aug 11th, 2006, 4:20pm
Keep up the good work Helen, I'm pulling for you.
Matt

Title: Re: Seven
Post by kcopelin on Aug 11th, 2006, 6:32pm
You DUSTED! your clustermasx!  Right on!
kathy

Title: Re: Seven
Post by Charlotte on Aug 11th, 2006, 6:51pm
This is great.

Charlotte

Title: Re: Seven
Post by MJ on Aug 12th, 2006, 1:41am

on 08/08/06 at 18:44:38, Grandma_Sweet_Boy wrote:
Great news Helen and I hope it continues this way for at least seventy eleventy days!


Ditto and more.  :)

Title: Re: Seven
Post by LeLimey on Aug 13th, 2006, 8:02am
Up to day 12 now, its getting exciting! I've already beaten my normal ten days and fifteen is my record - so we'll see if I can beat it!!  ;;D

Title: Re: Seven
Post by Sandy_C on Aug 13th, 2006, 8:28am
Beat that record, Helen!  GO FOR IT!!!!

Wonderful news!

Hugs

Sandy

Title: Re: Seven
Post by Bond007 on Aug 14th, 2006, 10:25am
WOW!  I'm speechless!  And, trust me, that's nearly impossible!!!!   :o

Title: Re: Seven
Post by nani on Aug 14th, 2006, 10:37am
http://bestsmileys.com/cheering/2.gif

*cheering* 16 days! 16 days! And many more!

:-*

Title: Re: Seven
Post by LeeS on Aug 14th, 2006, 12:02pm
Bloody marvellous! 8)

12 eh? You'll be overtaking your IQ in no time ;) ;;D

Long may it continue :)

-Lee

Title: Re: Seven
Post by rickyshot on Aug 14th, 2006, 3:00pm
[smiley=bigguns.gif] [smiley=headbanger.gif] [smiley=headbanger.gif] [smiley=me&mb.gif] [smiley=shore.gif] [smiley=sayyes.gif]

Title: Re: Seven
Post by LeLimey on Aug 14th, 2006, 6:37pm

on 08/14/06 at 12:02:03, LeeS wrote:
Bloody marvellous! 8)

12 eh? You'll be overtaking your IQ in no time ;) ;;D

Long may it continue :)

-Lee


Lets face it honeybun, you only have to be pain free for minutes to overtake yours  :P  ::)


6.5 hours from now until its exactly two weeks since my last hit and 10.5 hours to when I last dosed so eitjer way I'm bulldozing through to day 14  ;;D

Title: Re: Seven
Post by LeLimey on Aug 16th, 2006, 6:01am
15 days!
For the first time in months I've made it past ten days and I've equalled my all time pain free record!
If you have a whiteout where you live I apologise but NOTHING is wiping this smile off my face today  ;;D

I cooked a huge roast dinner for ten last night so you can imagine how hot and steamy the kitchen was. Inevitably I did start shadowing so I know its still there, lurking in the background like a bad smell but - and this is the good bit, I feel like I've got a force field around me blocking it from getting through.
I know its there, but for now at least it can't get me and lets face it, if I can get 15 days and maybe more then I'm finally on the right track with beating this little bugger!
I have no intention of redosing at present. I want to see how far I can go with this.

Melly if you read this I want balloons tomorrow when I smash my record  ;)



Title: Re: Seven
Post by rickyshot on Aug 16th, 2006, 9:43am
Helen I think those damn shadows is the beasts way of saying I am not cured just controlled. WTG GF. I am estatic for you :)

Did you try the ginger powder for the shadows?

Title: Re: Seven
Post by chopmyheadoff on Aug 16th, 2006, 9:48am
[smiley=me&mb.gif]

Title: Re: Seven
Post by Charlotte on Aug 16th, 2006, 9:53am
Going for a record.  Still better than a winning lottery ticket.

Charlotte

Title: Re: Seven
Post by LeLimey on Aug 16th, 2006, 9:56am
Hi Ricky,
I didn't do anything for the shadows at all, Just kept leaving the kitchen LOL
I have always got a few can's of red bull in the fridge so I would chug one if I had to but I didn't need to so its all good!
No pain no nuffink today  ;;D

Title: Re: Seven
Post by pattik on Aug 16th, 2006, 10:17am
Well, tomorrow is only a few hours from now across the pond, I will be celebrating early. ;;D

Title: Re: Seven
Post by Sandy_C on Aug 16th, 2006, 10:39am
Helen, I am just thrilled for you!  Beat that record by years and years!

I really think the seeds work!  As I said, last Friday, I was showing all the symptoms of beginning another cycle - shadows, ice pics, droopy eyelid.  Dosed Friday night, light shadows for a few days with an occasional pick, yesterday and today - absolutely NOTHING!  Hoping my cycle can be completely stopped.

By the way - get out of that kitchen and do a little dancing in the streets!

Hugs

Sandy


Title: Re: Seven
Post by maureenv on Aug 16th, 2006, 5:11pm
[smiley=sayyes.gif] I am so happy for you!  May you have many more PF days to come!

Title: Re: Seven
Post by pattik on Aug 16th, 2006, 7:01pm
It's now tomorrow...YES, a new record!  Keep it up, Helen. ;;D [smiley=hug.gif]

Title: Re: Seven
Post by Jasmyn on Aug 16th, 2006, 8:33pm
You Go Girl! [smiley=sayyes.gif] [smiley=sayyes.gif] [smiley=sayyes.gif]

Title: Re: Seven
Post by E-Double on Aug 16th, 2006, 8:45pm
:-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* ;;D

Title: Re: Seven
Post by lionsound on Aug 16th, 2006, 9:25pm
:-* [smiley=hug.gif]  YAY!!!!!!

Title: Re: Seven
Post by LeLimey on Aug 17th, 2006, 5:46am
16 days!!
Its 16 days and two hours since I last dosed and I've beaten my previous record for pain free time!
I feel exultant!

FAN-FLIPPIN-TASTIC!!! WOOOOOOOOHOOOOOOOOOO!!!

Title: Re: Seven
Post by Shazza on Aug 17th, 2006, 5:52am
Fingers are crossed that you beat 15 days Helen  :)

Title: Re: Seven
Post by LeeS on Aug 17th, 2006, 6:45am
*YAY* and Happy Dance here!  I'm not even going to make any snide comments (yet anyway).

Long may it continue 8)

-Lee

Title: Re: Seven
Post by Sandy_C on Aug 17th, 2006, 1:24pm
How bout a really, really great brand new record

NEVER AGAIN!

I'm so happy for you Helen!  

Sandy

Title: Re: Seven
Post by Bond007 on Aug 18th, 2006, 3:29pm
Man, that's so DAMN AWESOME!!!!!  I'm so psyched for you Helen!

Now, I've only got one question.....what are RC seeds and where can I buy some myself????   ;;D

Ooooops!   I s'ppose that's 2 really.   ;)

Title: Re: Seven
Post by LeLimey on Aug 18th, 2006, 7:28pm
RC seeds are Rivea Corymbosa seeds silly!

Title: Re: Seven
Post by Bond007 on Aug 18th, 2006, 7:58pm
Oh......well........right........that if it was that easy it should've been on Wheel Of Fortune!   ;)

Oh, and "trouble"?  Should I be changin' my moniker?   [smiley=laugh.gif]

Title: Re: Seven
Post by LeLimey on Aug 19th, 2006, 5:06am
Well if you were female maybe you'd have gotten a few brain cells in that ol' gene pool as well as those Y CHromosones eh stinkybum?!  :P

I wouldn't bother changing your name to trouble, if you change it every time I call you something different you'll be sat on your profile all day long  ;;D

For more info about seeds etc you should make ClusterBusters (http://www.clusterbusters.com) your first point of call every time. I can provide anecdotal experience but they can provide education!

Title: Re: Seven
Post by prcole18 on Aug 19th, 2006, 5:58am
Well done Helen really pleased for ya

Title: Re: Seven
Post by Bond007 on Aug 19th, 2006, 2:29pm
Cool!  I'll check it out, Helen.  Thanks for the link!

Title: Re: Seven
Post by unsolved1 on Aug 19th, 2006, 5:05pm
Glad to hear you're getting some PF Time ! Keep it up Helen !!

UNsolved

Title: Re: Seven
Post by kayarr on Aug 19th, 2006, 7:36pm
How darned exciting!!!!!!
Keep on dustin' off that mask:)

Title: Re: Seven
Post by mynm156 on Aug 19th, 2006, 10:35pm
U GO GIRL


Lots of cluster luv!!

mynm156

Title: Re: Seven
Post by LeLimey on Aug 21st, 2006, 6:32am
Well I'm up to 20 days!
I can't quite believe it, its just fantastic  :) I have had two days with mild shadowing so far, it felt sort of like the beast was sticking a paw out of its cage but it couldn't get me. I didn't need to do anything, I was just aware more than anything. They were three days apart too.
Last night I had some pretty heavy shadowing, I was very close to slamming a red bull but I didn't (pigheaded!) I don't know if that means I'm winding down or just that stress got to me.. we'll see.
Either way, 20 days is pretty flippin' brilliant and if I could get this every time you wouldn't hear me whining!
Helen

Title: Re: Seven
Post by pattik on Aug 21st, 2006, 7:23am
;;D ;;D ;;D ;;D ;;D ;;D

Title: Re: Seven
Post by Sandy_C on Aug 21st, 2006, 1:22pm
You never whine, you silly Limey, you!   ;;D  I'm absolutely thrilled for you!  Let's hope you can keep this up forever.

Unfortunately, I had to dose again yesterday.  Since I dosed on Friday 11th, things were great.  Then last Thursday, at my "witching" hour of 8:30 pm, had more than shadows but not a hit.  Drank ice water and held cubes in my mouth and it went away in about 20 min.  Friday was a great day!  Then again Sat at 8:30, had more.  This time, it was definitely not a shadow.  pain in the eye, & temple, stuffy nostril.  Since a K1 is supposed to be pain free, this was probably a K2 hit, but it was not a shadow.  Dosed yesterday about 5:30 pm, (lowered the number of seeds, so no "floaties"  :-/), and did not have anything happen at 8:30, or any time later.  So far today has been good.

I think the beast is trying to come in, but my seeds keep locking the door on him.   :).  

Keep it up Helen!

[smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif]

Sandy

Title: Re: Seven
Post by E-Double on Aug 21st, 2006, 2:09pm
Damn Brits ;)

Loving it!!! :-*

Title: Re: Seven
Post by Bond007 on Aug 21st, 2006, 4:09pm
That's great Helen!!  I'm really, really happy for you!!

Title: Re: Seven
Post by LeLimey on Aug 22nd, 2006, 5:09am
Well.. it all came to an abrupt end yesterday afternoon just after 2pm. I got belted with a absolute whopper right out of the blue. Typically it came back witha vengeance in that each time after dosing I seem to get a hit which goes from 0-7/8 in Oh My God. I barely know what I'm doing trying to get on the O2 and it took a fair old while to abort it too which is very unusual for me. I was on the o2 for over 20 minutes BUT it did start winding down almost instantaneously. I just couldn't kill it for a while.
Nothing since apart from some shadowing so I've decided not to re dose until I get hit two days in a row or twice in one day.
Thanks for all the support everyone, I'm still delighted with how far I got and I'm determined to make it to the magic month!

Title: Re: Seven
Post by lionsound on Aug 22nd, 2006, 8:19am
[smiley=hug.gif]
I'm so sorry Helen.

More PF time awaits you!!! :)



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