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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Liquid Oxygen
        
(Message started by: LeLimey on Aug 4^th, 2006, 1:30pm)

Title: Liquid Oxygen
Post by LeLimey on Aug 4^th, 2006, 1:30pm

Hello everyone,
I have recently trialed Liquid Oxygen or LOX for use with Chronic CH and its been hugely successful for me.

I've had it (LOX) for two weeks now and when it was first delivered I was shown how it all worked and made sure I could fill the portable unit myself etc. It really is idiot proof because I haven't had any problems!

This is definitely a good thing for people who are chronic and using a lot of Oxygen. I was under the impression that the dewar held 25,000 litres but I was told its actually closer to 40,000 - almost impossible to imagine how many cylinders you would need to have that lung power isn't it?!

The portable unit you get holds at least 90 minutes worth of o2 at 15lpm so thats a good few hit's and even more with a clustermasx as I've found.

The other really nice part to it is that sometimes I've found a "taint" to the O2 - like a smell or a taste sort of a thing, this is caused by the metal of the tanks apparently but because you fill the tank each time the O2 is fresher and it's always cool too because of the cooling for the LOX.

You will lose some through evaporation through the day so I've been told you do need to keep an eye on the gauge if you don't actually need to use it for a couple of days.

The "CompanionT" which is the type of cylinder I have weighs 3.9 KG full, its capacity is 1.25 litres of LOX which equates to 1058 litres of gas - thats like carrying two and a half E tanks everywhere!

I've taken some pics, if anyone would like any further info please ask! I'll help gladly.
Helen

LOX Set up photo's (http://community.webshots.com/myphotos?action=viewAllPhotos&albumID=552514708&security=iXlIFm)

Title: Re: Liquid Oxygen
Post by wildhaus on Aug 4^th, 2006, 2:31pm

Hi Hellen....

Could you give me the link to the supplier..... so I Know what to tell my O2 supplier..... looks better then I thought...... going to get one for my self.....

Tks.

Michael

Title: Re: Liquid Oxygen
Post by LeLimey on Aug 4^th, 2006, 4:28pm

Michael the supplier here in the UK is Air Products. Their contact details are as follows:
Air Products Medical
2 Millenium House
Westmere Drive
Crewe
Cheshire
CW1 6AP
England

Phone 0800 373580
Fax 0800 214709

Website www.airproductsmedical.com

Let me know if I can be of any more help okay?
Helen

Title: Re: Liquid Oxygen
Post by maffumatt on Aug 4^th, 2006, 5:20pm

Sounds cool, isn't liquid O2 super cold?

Title: Re: Liquid Oxygen
Post by LeLimey on Aug 4^th, 2006, 8:21pm

Yes it is, that makes it nicer to breathe too as it's always cool! It's so incredible, I can't believe how simple, easy and convenient it is and its very discreet looking too for the fashion conscious amongst us ;)

Title: Re: Liquid Oxygen
Post by Bond007 on Aug 4^th, 2006, 10:33pm

That looks awesome, Helen! I may have to talk to my neuro about this when I see him next. The Companion T fits much better with my Metro-Sexual lifstyle!!! ;;D

Title: Re: Liquid Oxygen
Post by rhino on Aug 5^th, 2006, 9:54am

What does it cost??? How much money??? :)

Title: Re: Liquid Oxygen
Post by E-Double on Aug 5^th, 2006, 10:33am

on 08/04/06 at 22:33:38, Bond007 wrote:

That looks awesome, Helen! I may have to talk to my neuro about this when I see him next. The Companion T fits much better with my Metro-Sexual lifstyle!!! ;;D

[smiley=laugh.gif] me too 8) just ask Helen

Title: Re: Liquid Oxygen
Post by LeLimey on Aug 5^th, 2006, 12:15pm

hi rhino
I have no idea how much it costs, its just issued to me by the O2 company here but I have this because its cheaper long term than ordinary o2 for the oxygen company to supply.

Eric, what can I say you big stud?! :-*

Title: Re: Liquid Oxygen
Post by wildhaus on Aug 5^th, 2006, 12:32pm

on 08/04/06 at 22:33:38, Bond007 wrote:

That looks awesome, Helen! The Companion T fits much better with my Metro-Sexual lifstyle!!!

What is a Metro Sexual? Dose one need Oxygen for it?

Michael

Title: Re: Liquid Oxygen
Post by mcf69 on Aug 5^th, 2006, 1:27pm

Helen,
I've read that the liquid o2 evaporates pretty quickly, especially in warm weather. I'm interested in seeing how long you can go between refills of the big resevoir, let us know please.
Thanks,
Ben
BTW, did you know if you dip popsickle sticks in liquid o2 you can tie them into knots? :D

Title: Re: Liquid Oxygen
Post by rhino on Aug 5^th, 2006, 1:28pm

If they are issueing thoses things, just tell me what line to get in.

I think I might be a Metro sexual too,, first you tell me what you do when you are alone with your oxygen bottle, then if it's the same thing I do, I might let you know. ;;D

Title: Re: Liquid Oxygen
Post by LeLimey on Aug 5^th, 2006, 1:59pm

Hi Ben, having not got hit since Monday night I can tell you that I'm refilling my tank today for the first time and it's about half full. Its been quite warm here this week, the lowest temp I've had here where I live was 78 degrees and its been lovely and hot again yesterday and today in the high 80's so I've lost about half a tank in five days. Not too bad I think
Helen

Rhino.. what is it with you boys today?! its all sex, sex, sex! ::) I won't tell you what I do with my o2 because I'd only break your heart :P

Title: Re: Liquid Oxygen
Post by totka2 on Aug 5^th, 2006, 3:45pm

Cool. [smiley=thumb.gif] Really cool!

Title: Re: Liquid Oxygen
Post by AlienSpaceGuy on Aug 6^th, 2006, 12:04am

Wow, it looks like some progress is made for the treatment of clusterheads!

Up to now liquid oxygen systems were only suitable for respiratory diseases, where only low flow rates (2 l/min) are needed. At a higher flow, as needed for CH, the valve got covered with ice (from frozen air moisture) to an extent that the desired flow rate could not be reached.

So a word of warning for those that want to switch to liquid oxygen: Be sure to get a set-up with the same specification as LeLimey's and don't go for an older model with the ice problem.

Title: Re: Liquid Oxygen
Post by cjc68 on Aug 7^th, 2006, 10:08pm

Is the LOX something I could ask my Doc for? He does'nt really know much about CH but has always been willing to prescribe just about anything I ask for as long as I can show that I have done my research on what ever form of treatment I deceide to go with every cluster period. What's the cost?

Title: Re: Liquid Oxygen
Post by nani on Aug 7^th, 2006, 10:11pm

Hi Chris. Check your PMs...I just sent a hello.
Are you still uninsured? If so, a welders set up might be the cheaper way to go. PM me if you want...it's what I use. hugs, nani

Title: Re: Liquid Oxygen
Post by LeLimey on May 9^th, 2007, 3:02pm

Bumping for info for Cluster Chris and others.

Helen

Title: Re: Liquid Oxygen
Post by BMoneeTheMoneeMan on May 9^th, 2007, 6:15pm

Holy CRAP!!
I have never seen this thread.

Helen, do you still use this?

Does the liquid O2 evaporate and turn to gas? How cool!!!

Title: Re: Liquid Oxygen
Post by Rosybabe on May 9^th, 2007, 6:24pm

on 08/05/06 at 12:32:38, wildhaus wrote:

What is a Metro Sexual? Dose one need Oxygen for it?

Michael

metrosexual = http://i43.photobucket.com/albums/e351/kleineDeluxe/David%20Beckham/beckham2.jpg

David Beckham

and if He needs Oxygen, here I am ready to give him some mouth by mouth ;;D for as long as he needs it...

Title: Re: Liquid Oxygen
Post by LeLimey on May 10^th, 2007, 3:37am

on 05/09/07 at 18:15:05, BMoneeTheMoneeMan wrote:

Holy CRAP!!
I have never seen this thread.

Helen, do you still use this?

Does the liquid O2 evaporate and turn to gas? How cool!!!

Yup Brian I still use this. I have it delivered once every two weeks whether it needs changing or not as it does evaporate slightly. The only time I've ever run out I did have a second tank on standby as it was the week Matt and Carrie werehere and I had DavyP visiting too and everyone was on the O2!

It is always "Fresh" if that makes sense, the O2 never has that slight smell it can have from an older cylinder and its always cool as obviously it's kept in a refrigerated unit (the companiont I can carry around) The small tank comes with a shoulder strap and its the size of a 2L coke bottle as you can see from the pics. People seem to think its a posh vacuum flask as it doesn't look "medical" at all.

The only thing you HAVE to do with it is keep it upright at all times as if it falls onto it's side it makes a screaming noise and you do get "steam" from O2 hissing out of the bottom. I just put it inside a seat belt when in the car!

Hope that helps, I recommend it to all chronic's in an "Air Products" region here as they are the only O2 company currently investing in it but they have a high demand as once people try it they love it.

Title: Re: Liquid Oxygen
Post by ClusterChris on May 10^th, 2007, 8:36am

Awsome post Lelimey,

I should be getting it next week. Can't wait to give it a shot. As far as cost goes, I was told by my supplier that the LOX usually costs between 200 and 400 a month, please remember that is in Canadian funds. So it is at least double the cost of the normal o2. They also said I will need to be tested with it to ensure I can take it, I guess it's not for everyone!

Cheers
Chris