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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> started a “new” treatment  -  UPDATE - UPDATE 2
        
(Message started by: wildhaus on Jun 10th, 2006, 3:59am)
Title: started a “new” treatment  -  UPDATE - UPDATE 2
Post by wildhaus on Jun 10th, 2006, 3:59am
I have started a “new” treatment which promises a lot of successes……… NO it will not stop the beast or reduce the pain! And it’s a scientifically sound and fully researched method (for all the sceptics among us)……… It is not a psychological or psychiatrical treatment.
Its done by a “pain” specialist (MD) at the pain clinic in the hospital where I get treated, and in close conjunction with the neurologist and anesthesiologist that have and still treat me at the clinic.

BUT it will help to deal better (efficiently) with the effects that the CH brings along.
All the anxiety, the frustration, anger and more…..
It’s (as my wife already posted under supporters board) the “self hypnosis”…., and its not the
“Spectacular” hypnosis one would think of – as a show, or the one done by charlatans, promising
the “stars”.
It’s a way, trying to teach yourself how  to “Push a reset button” in oneself, in order to get the said effects under better control.

It might be wrong of me to post this…….  As I am aware that some of us struggle to get the most
essential medications, and therefore cant even think of getting this “novelty”, and I wish I could help those struggling….

And still might be good to know that there is (possibly) a way to get (for me the most problematic part, and if I recall it right for some others on this board to some degree as well) the said effects – frustrations anxiety, etc. in better control. And in a way, very intriguing might even increase the “sleep” efficiency and therefore reduce yet another side effect od the beast:  the sleep deficiency during a cycle.
I can’t say (yet) if it will work, (due to my personality) and still I will give it more then just a shot. It’s more than important for me (and I assume for all of us), to have if not all, at least most of the side effects under better control, and therefore lead (my) life with a higher quality, during a cycle.

Michael


UPDATE  ----->   SEE END OF THREAD  ----->   SEE END OF THREAD
Title: Re: started a “new” treatment
Post by julieknfla on Jun 10th, 2006, 5:09am
 Hi Michael, I too agree that it is VERY important to have tools to learn how to deal with the fear, anxiety, frustration and dread that comes with having cluster headaches. Is the self-hypnosis a relaxation tool to reduce stress and anxiety during an attack?
Cognitive therapy and rationale thinking has made me more able to control negative thinking I had toward panic attacks which has lessened the suffering they have caused. I just only recently after joining this group, started to learn to apply it to my CH's.
 In many threads, including one I started a few days ago about "any connection with panic attacks" Bob offers an email  "Pain Vs. Suffering" a summary of coping tools and resources for reading. This has already helped me. thanks, Bob  :)
 Changing our way of negative thinking into a more positive one alleviates our suffering.  
Good luck to you, I am sure this treatment will be very helpful.
Julie
Title: Re: started a “new” treatment
Post by chewy on Jun 10th, 2006, 5:45pm

Quote:
NO it will not stop the beast or reduce the pain!


That sounds promising.
Title: Re: started a “new” treatment
Post by Kingjames1 on Jun 10th, 2006, 8:42pm
Thank you Julie. The next time I'm rockin' and head bangin'. I will think positive thoughts, and that will help.

xxoo.
Title: Re: started a “new” treatment
Post by Guiseppi on Jun 11th, 2006, 12:32am
I hope it works for you. Since everyone seems to agree there is no magic bullet cure, the fact is they aren't going to go away.  What we can change is our frame of mind. If self hypnosis gives you the confidence to face these damn things head on, go for it. It's all about attatining quality of life. Wishing you peace,

Guiseppi
Title: Re: started a “new” treatment
Post by wildhaus on Jun 11th, 2006, 1:54am
Hi
1.) QUOTE - Is the self-hypnosis a relaxation tool to reduce stress and anxiety during an attack? No, it is not, its a tool that helps (as you write yourself) to control the frustrations anxiety, act.
2.) Chewy, as most of us.... I don’t like when on the board one can find posts which (at times) promise just about magic in treating CH.... and you as well as we all know its not likely..... As I have no interest to give false impression,
And try to give accurate info. And as treatments are not always just for the pain but also for the effects that the CH brings along. Was your comment Quote - That sounds promising. If  I may,  sarcasm in the wrong place. Or you didn’t bother to go through the post, and just had to comment - which is let me put it mildly sad!
I might be a newbie chewy but I am not stupid!!
and to you Kingjames, I think you missed the point....
Or didn’t go through the post as well! But had to put you comment.....
I have not stated or for that matter Julie, that this "treatment“is to reduce pain or help during an attack...
It for the in between times!

And as it is Sunday and the sun is  :) I just don’t feel like going into any silly discussions!

Michael
Title: Re: started a “new” treatment
Post by Jasmyn on Jun 11th, 2006, 5:02am

Quote:
BUT it will help to deal better (efficiently) with the effects that the CH brings along.


In the middle of a cycle(not a hit), a lot of us despair because of the effects of sleepless nights, too much and frequent pain and the overwhelming sense of helplessness.

I do think this is a very good tool, that looks promising, in helping us deal with that side of CH.

It is like, I know it has another name but I call it Charlie's method, that does help when you experience shadowing and lower Kips, when you are still able to concentrate.

When you make these a habit, it really helps one mentally to cope better.  Like anything else it is not a cure and does not work all of the time but it is worth using, as anything that makes this condition less of a hell to go through, is.

It is still an individual choice but at least we have more choices.
Title: Re: started a “new” treatment
Post by chewy on Jun 11th, 2006, 6:54am

Quote:
If  I may,  sarcasm in the wrong place.


No. Right place.
Title: Re: started a “new” treatment
Post by wildhaus on Jun 11th, 2006, 8:58am
Chewy (Quote)  - No. Right place.  just popping in and throwing slogans, it just doesn’t do!
And yet if my point of view does not suit you - just to deny the possible correctness of ones opinion, without giving even a glimpse of explanation or grounds - reminds me of a child answering to his parents - NO and stamping his feet.......  and I hope this hint is a way to wisdom!
And still if you think I am wrong, do explain!

Michael
Title: Re: started a “new” treatment
Post by brewcrew on Jun 11th, 2006, 9:07am
Michael - Damn the torpedoes, full speed ahead!

If I have a toolbox which contains a hammer, a screwdriver, and and a wrench, do I refuse to put a saw in there because I think I have enough tools? That's bullshit, and so is chewy's response to you.

chewy - Flame away if you must. Your response to this thread is like being a turd in the punchbowl.
Title: Re: started a “new” treatment
Post by chewy on Jun 11th, 2006, 7:52pm
Newbies.

Just what evreyone needs.  A treatment that will not stop the beast or reduce the pain!

I had a whole string of uneducated Docs administer those treatments  in my first 25 years until I found something useful.


Quote:
and I hope this hint is a way to wisdom


I'll just follow your wise ways.

Want effective treatment. Get a CH educated neuro and start listening to sufferers who have been here a few years.

And dont drink the punch.
Title: Re: started a “new” treatment
Post by brewcrew on Jun 11th, 2006, 8:11pm

on 06/11/06 at 19:52:10, chewy wrote:
Newbies.

Just what evreyone needs.  A treatment that will not stop the beast or reduce the pain!

I had a whole string of uneducated Docs administer those treatments  in my first 25 years until I found something useful.


I'll just follow your wise ways.

Want effective treatment. Get a CH educated neuro and start listening to sufferers who have been here a few years.

And dont drink the punch.

Can't disagree with finding a CH-educated neuro. I've got a great one. But for you to discount a tool that helps someone gain a mental edge over the beast is bullshit.

And don't worry - I ain't drinkin' your punch. Remember - you were a newbie once, too.
Title: Re: started a “new” treatment
Post by chewy on Jun 11th, 2006, 8:59pm
Want a mental edge? Try this.

In between hits get on with the life the hits take away.

Play with your kids, dine out with the wife, pet the dog, take a walk, go fishing, etc. etc.

Or you can spend that time at a pain clinic learning self hypnosis and continue to feed the beast any quality time you may be allowed between hits.
Title: Re:  started a “new” treatment
Post by brewcrew on Jun 11th, 2006, 9:22pm

on 06/11/06 at 20:59:10, chewy wrote:
Want a mental edge? Try this.

In between hits get on with the life the hits take away.

Play with your kids, dine out with the wife, pet the dog, take a walk, go fishing, etc. etc.

Or you can spend that time at a pain clinic learning self hypnosis and continue to feed the beast any quality time you may be allowed between hits.

I guess you're an expert, eh? Remind me to consult with you anytime I encounter some little tidbit about CH that I haven't come across. I wouldn't want to get it wrong.

And while you're at it, why not ask DJ to just ban all of us newbies. We obviously have nothing to contribute.
Title: Re: started a “new” treatment
Post by chewy on Jun 11th, 2006, 9:38pm

Quote:
I guess you're an expert, eh?


30 years of CH qualifies me for something.


Quote:
Remind me to consult with you


Dont bother. I dont consult with meatheads.
Title: Re: started a “new” treatment
Post by brewcrew on Jun 11th, 2006, 9:45pm

on 06/11/06 at 21:38:45, chewy wrote:
30 years of CH qualifies me for something.


Dont bother. I dont consult with meatheads.

So now the expert has resorted to name-calling.

I think 16 years of them qualifies me for something as well.

But wait - I'm a newbie. Nevermind.
Title: Re: started a “new” treatment
Post by chewy on Jun 11th, 2006, 9:51pm
If the meat fits where it.

Fits you perfectly. Later!
Title: Re: started a “new” treatment
Post by brewcrew on Jun 11th, 2006, 10:04pm

on 06/11/06 at 21:51:47, chewy wrote:
If the meat fits where it.

Fits you perfectly. Later!

How absolutely adult of you.

Have a nice day.

Wildhaus - we're not all like this.
Title: Re: started a “new” treatment
Post by wildhaus on Jun 12th, 2006, 1:12am
Hi

Let me first move this thread to the general
Posts board! As this board was created by the
Respectful DJ to exchange Know-how, and
only knowledge and not Punches!

I will answer, But chewy I have to work.....  like you say,
I am going on with my life.......
So until later..........

Michael
Title: Re: started a “new” treatment
Post by kcopelin on Jun 12th, 2006, 10:42am
Michael, et al,
Years ago I went through hypnosis, self-hypnosis, biofeedback, progressive relaxation and even holotropic breathwork...It was very nice to learn to lower my blood pressure a bit, or warm up my fingers.  But the relaxation part of al lthe treatments triggered CH for me.  If it works for you...any port in a storm..then go for it.
And Chewy can indeed be a turd but he is a fellow CHer with alot of info and many of us overlook his turdiness because sometimes he can be really funny.  Plese don't get all offended and take your marbles and go home.  Newbies are welcomed here-we really all started out that way.
Hope the hypno works for you!
PFDAN y'all,
Kathy
Title: Re: started a “new” treatment
Post by seasonalboomer on Jun 12th, 2006, 11:00am
From time to time the benefits of various meditation, self-hypnosis, and mind-focusing methods have been discussed. And invariably they lead to exposing those with open minds and closed minds.

I've felt the benefit of such efforts from a dedicated period of yoga practice. No, it doesn't alleviate a CH hit, but the mental focus allows me to stay focused on living my life to its fullest outside of the hits when I'm in cycle. Feeling some sense of control over some portion of your world when in cycle DOES have benefit. These methods can help in maintaining that kind of focus.

And, no that's not an answer for everybody -- nor, will many people choose to even consider this a good thing. For those of us who have benefitted in even the smallest way, the belittling of the methods isn't offensive to me. CH is a condition that requires fighting. So, just as I'm fully on-board with having the arsenal of items ready (O2, Trex, Red Bull), I also believe it is my responsibility to keep my mental arsenal (as well as my physical condition) attuned for the inevitable fight to come.

I believe it helps and as I've said many times here in different ways, the answer to CH has many layers and requires focused effort to overcome. In addition the mental work will benefit other parts of your life as well.

Scott
Title: Re: started a “new” treatment -update
Post by wildhaus on Aug 20th, 2006, 1:27am

on 06/10/06 at 03:59:29, wildhaus wrote:
I have started a “new” treatment which promises a lot of successes……… NO it will not stop the beast or reduce the pain! And it’s a scientifically sound and fully researched method (for all the sceptics among us)……… It is not a psychological or psychiatrical treatment.
Its done by a “pain” specialist (MD) at the pain clinic in the hospital where I get treated, and in close conjunction with the neurologist and anesthesiologist that have and still treat me at the clinic.

BUT it will help to deal better (efficiently) with the effects that the CH brings along.
All the anxiety, the frustration, anger and more…..
It’s (as my wife already posted under supporters board) the “self hypnosis”…., and its not the
“Spectacular” hypnosis one would think of – as a show, or the one done by charlatans, promising
the “stars”.
It’s a way, trying to teach yourself how  to “Push a reset button” in oneself, in order to get the said effects under better control.

It might be wrong of me to post this…….  As I am aware that some of us struggle to get the most
essential medications, and therefore cant even think of getting this “novelty”, and I wish I could help those struggling….

And still might be good to know that there is (possibly) a way to get (for me the most problematic part, and if I recall it right for some others on this board to some degree as well) the said effects – frustrations anxiety, etc. in better control. And in a way, very intriguing might even increase the “sleep” efficiency and therefore reduce yet another side effect od the beast:  the sleep deficiency during a cycle.
I can’t say (yet) if it will work, (due to my personality) and still I will give it more then just a shot. It’s more than important for me (and I assume for all of us), to have if not all, at least most of the side effects under better control, and therefore lead (my) life with a higher quality, during a cycle.

Michael




Its now about 3 month into the treatment, and as I said above, it dose not stop the beast or reduce the pain.
But
I have now better "tools"  to help deal better (efficiently) with the effects that the CH brings along - anxiety,  frustrations and the (at times) panic.
With the shedows, lately a problematic part, and as I avoid (mostly) using meds. (Zomig nasal) or O2, it helps get the shedows under better control, I deal with the pain better......
So all in all its a good way....... and therefore I can lead (my) life with a higher quality, during a cycle.
Michael
Title: Re: started a “new” treatment
Post by sandie99 on Aug 20th, 2006, 3:20am
Michael,

I meditate time to time and do yoga. I should do both more often, because they, too, are tools for me to deal with the mental part of ch better.

I know that here are lots of folks who laugh at those two ways of coping  - and many other methods as well. But, this is how I see it: whatever helps you to live a happier, better life while you're dealing with ch is welcomed. And nobody else should have a say concerning what YOU try, only what they'll try themselves - or share their own experiences on the matter.

I'm glad that you've found new tools to help you with ch! :)

Best wishes,
Sanna
Title: Re: started a “new” treatment  -  UPDATE
Post by unsolved1 on Aug 20th, 2006, 10:35am
I'm no 'newbie' ... and here's my  [smiley=twocents.gif]

I don't think that hypnosis is going to help everybody ... but I do believe it may help some (with the mental issues). Why? Not sure. But whatever helps you deal with it is a plus. I say GO FOR IT Michael !

Goodluck

UNsolved

Dealing with the mental part of this $hit is just as important as dealing with the pain !! ( You won't make it if you can't handle it mentally ! )
Title: Re: started a “new” treatment  -  UPDATE
Post by rickyshot on Aug 20th, 2006, 6:53pm
Michael Ingnore flames and do what you have to do. I would be interested in a journal. Although I agree with Don to enjoy life in between hits and not let this thing overtake us, I fully understand that not everyone is alike and have the same coping skills. I am of strong stuff. Between cycles I am a joyous, energetic, optimistic person. During cycle Mrs Hyde comes out. I used to think I was crazy.
I saw you get hit at the convention. I saw what it did to you. I silently prayed for you.
Hey if the hypnosis gives you some coping tools in life go for it. You got nothing to lose but money which is just another tool in life. I like brews comparison to adding the saw in the toolbox.

Let us face it. WE all have other problems outside of CH. life is life right? Some of us here are on antidepressants. do we flame those too because "they can't cope" There but for the grace of God go I.

You have my full support. God bless you and let us know what has happened.
Title: Re: started a “new” treatment  -  UPDATE - UPDATE
Post by wildhaus on Sep 29th, 2006, 4:18pm
After about 4 month of the “hypnosis therapy”…. that is “self hypnosis” therapy
I can say that now when my head gives me a rough time, and my unwelcome
dates with the beast is a multiple daily dance, I have gained through this treatment:
tools to deal better and more efficiently with the inevitable said effects like anxiety
and other psychologically unwelcome situations. I can’t say that I have gained total
control over my fears or anxieties, but I do have a much easyer time dealing with
the situation.
And to avoid misunderstandings, the pain is still the same, I'm just dealing with it easier!

In now way am I advocating or promoting any type of treatment!

It’s just that sleep is coming better and easier even so I know I will be kicked out of
sleep after an hour or so….. and the mood swings are mostly under control: in a very short sentence:
Life is even more beautiful for my family and me, even if I am going trough
rough times…..


Michael
Title: Re: started a “new” treatment  -  UPDATE - UPDATE
Post by Jimi on Sep 29th, 2006, 11:04pm
I am glad to hear that is has helped you. Whatever helps I am all for it. It was really nice meeting you at the convention. Ruthie says hi. :)
Title: Re: started a “new” treatment  -  UPDATE - UPDATE
Post by MJ on Sep 30th, 2006, 1:40am
In the words of Squanto "ATTA BOY" the more you learn the easier it gets.
Title: Re: started a “new” treatment  -  UPDATE - UPDATE
Post by TxBasslady on Sep 30th, 2006, 2:17am
Good for you, Michael    ;;D

It's so much better when we CH'ers find that little something that helps make it thru the pain, and still keep our sanity.

I've never tried the "self hypnosis", but I do believe the calmer we stay during a hit...the easier it goes, IMHO.

Congrats, sweetie!   Keep up the good work.   ;;D

Jean



 







Title: Re: started a “new” treatment  -  UPDATE - UPDATE
Post by wildhaus on Sep 30th, 2006, 5:00am
Tks Jean, MJ  and Jimi and do give my rgds. to Ruthi…..

What was even a nicer compliment was to find my wifes post……
on the supporters board……
I must be very lucky being blessed with my family at home…..
and all of you out there …. my extended “family” for a support beyond
ones imagination……..  how important it its for me!
and for all of us….. to be there for one another at any time, for the good times and the bad times…..

Michael


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