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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Trilital Update
        
(Message started by: Tom K on May 9^th, 2006, 3:04pm)

Title: Trilital Update
Post by Tom K on May 9^th, 2006, 3:04pm

Ok, so I started on the Triliptal the other day, four days ago, actually. I was told by my dr to do 75mg at night for 4 days, then 150mg for four days, then 300mg after that. Well, it is day 4 of 75mg and I haven't been hit in 2 days!! I am still tapering off the verap, am at 270mg for the next 2 days, but haven't been hit during the first step down. Before I went on the tri, I was getting hit 2 times a day. Goes to show that this stupid CH thing is totally different from person to person. Now if we could just find a cure.....

Title: Re: Trilital Update
Post by Gator on May 9^th, 2006, 3:58pm

Congrats, Tom! I hope it just keeps getting better.

Oh, and Amen on the cure.

Title: Re: Trilital Update
Post by Guiseppi on May 9^th, 2006, 4:01pm

What is the trilital? My lithium is working for now but I save all this info up for the day the beast morphs and gets past it! And congrats on finding a weapon that works. What an awesome feeling huh?

Guiseppi

Title: Re: Trilital Update
Post by Tom K on May 9^th, 2006, 4:19pm

on 05/09/06 at 16:01:25, Guiseppi wrote:

Trileptal is an anticonvulsant drug commonly used to treat epilepsy (Thank you, Karla). My doc put me on it since I screwed up my verap and dopamax made me a babbling idiot (refrain from comment! LOL!!). So far, so good, we will see what happens with the next step down in verap. Just noticed that I'm an idiot when it comes to spelling and I spelled trileptal wrong in the subject heading...sheesh...

Title: Re: Trilital Update
Post by Guiseppi on May 10^th, 2006, 10:34am

Spelling was never my strong point either! Thanks again for the information, it's how everyone learns. Hope it works long term for you.

Guiseppi

Title: Re: Trilital Update
Post by I Cant Dance on May 10^th, 2006, 12:15pm

Tom,

Congratulations! I am going to bring it up to my neuro again this Friday. He didn't particularly like the idea when I saw him two weeks ago, but I may take a print out of your post. Congrats! Verap is doing nothing for me, yet I guess that makes it the same as everything else.

Title: Re: Trilital Update
Post by Barry_T_Coles on May 10^th, 2006, 7:47pm

Tom
Congratulations on finding something that works for you, any bit of ammo we can put in our arsenal to beat the beast can only make life better.
Like Guiseppi says, it’s good to have something up your sleeve in case the beast pulls a shifty on ya.

Kind Regards
Barry

Title: Re: Trilital Update
Post by Tom K on May 10^th, 2006, 10:44pm

on 05/10/06 at 12:15:02, I Cant Dance wrote:

Let us know what he says. Hope that it works for you, too!

Title: Re: Trilital Update
Post by BobG on May 11^th, 2006, 12:07am

Good for you Tom.
One more weapon in the battle against the devil.