Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Oxygen Therapy/Clustermasx Question
        
(Message started by: eGAD on Apr 10^th, 2006, 4:16pm)

Title: Oxygen Therapy/Clustermasx Question
Post by eGAD on Apr 10^th, 2006, 4:16pm

Was thinking about ordering this Custermasx people here are talking about. I'm admittedly Oxygen therapy handicapped and generally a newbie to all things related, but am about to ask my neuro for the Rx for Oxygen therapy for my clusters.

Where does one start?

At the Clustermasx page, the valve and bag looks different (bigger) from the thread pictures I saw here.

My Q is: Is Clustermasx all I need to buy to start this therapy? What all do I need to buy, where do I buy it ect.?

Any help is tops on this one thx.

Title: Re: Oxygen Therapy/Clustermasx Question
Post by seasonalboomer on Apr 10^th, 2006, 4:37pm

The Clustermasx is simply part of the delivery system. Typically the "home care" folks will give you either, a.) the wrong type of mask altogether (a rebreather), or b.) the cheapest kind of rebreather. Clustermasx is a step up from the cheapo's they're inclined to give you with your tank. And, yes the bag is little bigger. Everything is bit more rugged too.

This is not ALL you will need. Of course you will need a tank of O2, but most importantly you will need a regulator capable of delivering 10-15 liters per minute (lpm). Again, the home care folks are most used to giving people the ability to get up to 8 lpm through a nasal canula, as that is what most emphysema patients seem to need. 8 lpm will rarely do the trcik for us, we like to really suck it back. If I'm calm I'm good at around 10 lpm, but if I've just come in from running (a tirgger for me) - I'm pumping at 12-15 lpm.

Hope this helps.

Scott

Title: Re: Oxygen Therapy/Clustermasx Question
Post by eGAD on Apr 10^th, 2006, 5:38pm

Thx for that 411.

Maybe you or someone else can answer my last Q's.

Is there an ideal regulator suited for the Clustermasx? I just looked up 15 lpm regulators and found about 40 different types.

How big should the 02 tank be? Does it need to match the regulator and mask + tubing ect?

Is there a site most people go to get their stuff?

It would be cool to find a kit somewhere that has all I need in one type of thing if that exists.

Again, Thx in advance.

Title: Re: Oxygen Therapy/Clustermasx Question
Post by nani on Apr 10^th, 2006, 5:56pm

on 04/10/06 at 17:38:24, eGAD wrote:

It would be cool to find a kit somewhere that has all I need in one type of thing if that exists.

I don't know of a kit, but I know a guy...LOL
Send a PM to Mr Happy. He's not really happy, but he's good at hook-ups. :) He might have the answers to your questions.

Title: Re: Oxygen Therapy/Clustermasx Question
Post by mynm156 on Apr 11^th, 2006, 10:00pm

Just FYI,

A rebreather is a device used in scuba diving as far as Oxygen delivery devices there is not one called a rebreather. There use to be a Partial rebreather which was one that did not have the one way valve over the bag. However, these are no longer made because you can easily create one from a Non-rebreather. The Non-rebreather is the mask you are going to want until you can get a chance to try the cluster masx. Dont let the oxygen delivery company leave you without the right equipment. Good Luck and Good Vibes

MYNM156

Title: Re: Oxygen Therapy/Clustermasx Question
Post by NotH20 on Apr 12^th, 2006, 10:38am

eGAD,

Just a few other things to mention here....click on the oxygen link on the left side and see if that helps you out a little bit too. Also, make sure your doctor writes "high flow" on your prescription. If that isn't written down for the exact 10-15 lmp, you will get the normal 8 lmp delivered.

Good luck and hopefully you'll get some relief soon.

Mia

Title: Re: Oxygen Therapy/Clustermasx Question
Post by Mr. Happy on Apr 12^th, 2006, 12:35pm

on 04/10/06 at 17:38:24, eGAD wrote:

Is there a site most people go to get their stuff?
It would be cool to find a kit somewhere that has all I need in one type of thing if that exists.

Glad you asked, mate! Forced me to do an inventory.
Here's what's left:

Regulators	Quantity	Per unit
870 dual gauge	4	$25
870 cylinder-15 lpm	1	$25
540 dual gauge-15 lpm	7	$12.50
540 cylinder-15 lpm	1	$25
	http://www.mushys.com/O2/regulatorsmall.jpg
Accessories	Quantity	Cost per Unit
Clustermasx	3	$25
Bubblers	3	$2
Xmas Trees	24	$1
870 tank wrench (plastic)	7	$1.50
870 Bodok Washer	24	$2

Actual shipping cost will be added when sent.
All regulators are from eBay. Used. They're at cost, along with everything else. No profit margin included.

While they last.
RJ