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Title: POT? Post by Mattrf on Mar 27th, 2006, 1:29pm A friend talked me into smoking some pot to see if it helped with my pain, well after smoking it I was very stoned but at the same time did not feel any of my normal symptoms. First time I felt normal, well as normal as you can while stoned, in months. Not sure if this is normal affect of smoking pot and CH but would be interested in knowing if anyone else has tried pot and what luck they have had. To bad it’s illegal and hard to get but at least I live in CA where the penalties are not severe if you do get caught with it. My wife thinks I should get some and use it but I am afraid of getting caught by my kids and needing to explain why I am using something I have preached is so bad for them to even try. 8) |
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Title: Re: POT? Post by BobG on Mar 27th, 2006, 1:46pm Many people have tried it. Many people have ended up with a really bad headache. |
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Title: Re: POT? Post by Mattrf on Mar 27th, 2006, 1:51pm I think I will try it again to see for myself if it does work for me but it is something I can only do when my kids are not around, since it would be hard to explain why dad is doing something he has preached against for so long. |
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Title: Re: POT? Post by Linda_Howell on Mar 27th, 2006, 1:54pm I'm sorry I didn't know of you before this week-end but Californians just had a get-together in Sacramento. We would have loved if you could have been there. One thing that was discussed was this subject and the concensus was exactly what Bob just told you. BIG trigger. Linda |
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Title: Re: POT? Post by Mattrf on Mar 27th, 2006, 2:01pm Yes to bad but long drives are not my friend right now. I used to live and work in Sacramento, have been back in the bay area for 3.5 years now but used to live in Antelope. |
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Title: Re: POT? Post by Chillrmn1 on Mar 27th, 2006, 7:01pm I also tried it hoping for relief but it was a trigger for me also. We're all different and if it provides relief for you then that's great. |
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Title: Re: POT? Post by teajay5779 on Mar 28th, 2006, 10:36am It doesn't help or hurt me. Can't smoke during a CH of cource, but it's calming effect helps me after one ends. |
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Title: Re: POT? Post by BMoneeTheMoneeMan on Mar 31st, 2006, 10:31am I have heard quite a few people say that it causes more harm than good. Although from personal experience, I have noticed no relation at all as a trigger. I personally think its not bad at all. I dont know if it can help with this pain like it can help with other types of pain though. Some people also say that smoking cigs is also a bad idea, but others, including myself, smoke cigs regularly and think it has no relation to the pain, and may help settle nerves just after an attack. Good luck, let us know what happens. Maybe you can tell your kids that smoking pot for a high is not good, but smoking it for medical reasons in a controlled environment is not bad........just like pain pills. PF Wishes BMonee |
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Title: Re: POT? Post by pfunk on Mar 31st, 2006, 10:56am Definite trigger for me. Although I am personally against taking drugs for recreational purposes (this includes alcohol for me now as well. Don't have anything against anyone who does just a personal thing), I did try it because I was desperate and willing to try anything. The HA I got required one of those beloved trips to the ER and could not be aborted by any means available to me. My guess is just that with cigarettes, even more in the marajuana, the tar is the issue that any of "us" should be concerned with b/c it may cause circulation issues. My [smiley=twocents.gif] hope it helped a bit. PF wishes. Patrick |
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Title: Re: POT? Post by PV on Mar 31st, 2006, 12:41pm Big trigger for me as well, as bad as alcohol! |
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Title: Re: POT? Post by vietvet2tours on Mar 31st, 2006, 1:56pm Uhhhhhhh what was the question again. I been smokin that shit for forty years and I like it, but when I am cycling I stop, stone cold stop. Huge trigger. Potter |
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Title: Re: POT? Post by rbmb on Mar 31st, 2006, 2:09pm Pot doesn't act as a trigger at all for me when in cycle, but it doesn't help with the pain either. I just use it as a substitute for drinking which I definitely can't do when in cycle. I guess everyone is different. Rich |
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Title: Re: POT? Post by Professor on Apr 28th, 2006, 11:16pm I've had a similar experience. Six years (and three cycles) ago, I had some great successes aborting individual attacks with pot. My last cycle, however, I actually tried to preempt one of my evening attack by getting high, and was later hit hard, and found no relief in smoking more (this was a terrible night). This current cycle, as an evening attack peaked, I turned to pot again, after having already used two imitrex injections earlier in the day, and found considerable relief on a walk outside. But later in the night I got hit with a CH, which I perhaps blunted with more grass. I was pretty wiped out the next day. So there was a period when it seemed almost as effective for me as an Imitrex injection, but at this point I really don't feel like I can afford the mixed results of my last attempt. The kid wakes up to early, bless his soul. (As for your children, I don't see why they need to know; there are plenty of things we keep private from our children out of a sense of appropriateness. If they are not mature enough to make the distinction between medicinal use and drug abuse, be discreet--that's my advice). |
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Title: Re: POT? Post by ccbiggsoo7 on Apr 29th, 2006, 3:25pm smoking cigs, guys please read my post in meds section. 04/ 29 |
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Title: Re: POT? Post by mynm156 on Apr 29th, 2006, 4:02pm on 03/27/06 at 13:46:15, BobG wrote:
Lets just say that I have HEARD about this thing called POT and yep it gives you a headache. Great for Dorito sales though. MYNM156 |
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Title: Re: POT? Post by Jasmyn on Apr 30th, 2006, 5:01am In cycle it is a trigger for me. Was not like that years ago but then like every other med, it changes face when you least expect it. |
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Title: Re: POT? Post by Richr8 on May 1st, 2006, 12:15pm Trigger for me. |
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Title: Re: POT? Post by zanychef on May 6th, 2006, 3:15am not a trigger for me but doesnt help any when in high cycle (makes the ha worse) try shrooms:) been 16 weeks pf now:D Ian |
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Title: Re: POT? Post by thomas on May 7th, 2006, 10:44pm on 03/27/06 at 13:46:15, BobG wrote:
Word.^ Never EVER again! at least while in cycle. ;;D |
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Title: Re: POT? Post by mrnice on May 14th, 2006, 7:21pm so it seems like pretty mixed feelings.. no real consensus is apparent to me. FIRST of all, you are not all smoking the same thing. Most of the shit you all were smoking was most likely commerically, poorly grown, full of nutrient crap herb that was also probably picked prematurely. This stuff will give you headaches. I only smoke weed that has been fully flushed of its nutrients and has been grown with care. I have been getting clusters chronically for at least a year now, for the last few years I've always woken up and smoked one. Very recently I found that if I smoke too early in the morning, it causes my clusters to be higher on the pain scale than they may have been if I had not smoked. I can never know for sure because if I had not smoked I may have been in the same pain, but will never know...on the other hand I have not smoked all day and still been hit with some of the hardest clusters i've ever experienced... I smoke everyday and am just about as committed as anybody is to this sacred plant. I am not ready to believe that it has the ability to be a sole contributor to clusters, I think that it can worsen a cluster that was going to come already.. but why this happens for me i'm not yet sure.. at least for me I believe it has something to do with my anxiety and the stress that it causes. (If I smoke one in the morning I spend the rest of the day worrying that I made my cluster come on that afternoon...largely because people who shouldnt be commenting say that weed is a trigger.. thing im wrong.. show me a study.) |
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Title: Re: POT? Post by mrnice on May 14th, 2006, 7:24pm on 05/14/06 at 19:21:27, mrnice wrote:
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Title: Re: POT? Post by BobG on May 14th, 2006, 8:05pm on 05/14/06 at 19:21:27, mrnice wrote:
Huh? no consensus? Here's your mixed feelings just from this thread..........12- Against the use of pot for cluster pain relief, 2- No effect, 1- didn't know and a zero score for those in favor of this treatment (except for you, mrnice) Study? OK Go back about 7 years in the archives and start reading the posts about pot. I think you will find that the clusterheads posting on this site, the real experts on our disease, overwhelmingly say do not use pot for cluster pain. Do you have a study that proves pot is a treatment for cluster pain? |
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Title: Re: POT? Post by chewy on May 14th, 2006, 8:15pm Quote:
If your not looking for comments then dont post the question. Are you thick? Read Bob's post for your concensus. |
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Title: Re: POT? Post by unsolved1 on May 14th, 2006, 8:55pm It can be a trigger for me. It's calming effects is the best depression med I've ever tried. [smiley=smokin.gif] UNsolved |
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Title: Re: POT? Post by chewy on May 15th, 2006, 7:28am You can state "trigger" a thousand times and it wont matter. Beating a dead horse. Mrnice is trying to justify lighting up. Try this site www.norml.org |
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Title: Re: POT? Post by nani on May 15th, 2006, 8:41am Mrnice, If you want to keep smoking weed, please do so. However, it's a good idea to start paying attention to whether it's a trigger or not. If it is, then stop, or suffer the consequences. If it isn't... then just enjoy. It is a given that it won't help at all. |
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Title: Re: POT? Post by mrnice on May 15th, 2006, 8:50am If I wanted to pick a fight i would've gone somewhere else to do so. Obviously I'm dealing with Americans. You all seemed to completely disregard my point that we are not all smoking the same "pot". Anyway, I've wasted enough time on these boards and i've only been here a few days. I wish you all the best. |
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Title: Re: POT? Post by Ueli on May 15th, 2006, 9:15am Now look what the "people who shouldnt be commenting say that weed is a trigger" have done to this eminent expert on pot and CH: they have driven him to guest status. Now we are deprived of his highly scientific musings. :-[ |
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Title: Re: POT? Post by seasonalboomer on May 15th, 2006, 9:52am on 05/15/06 at 08:50:08, mrnice wrote:
Out of respect for the many Canadians who are all my relatives, and for the many Canadians who contribute to this board in a meaningful fashion, I will refrain from saying all that should be said to this twit. He's young. He's stupid. And he will hopefully one day arrive at a point where he can deal with his many issues without having to sling crap around like this. Scott |
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Title: Re: POT? Post by chewy on May 15th, 2006, 2:25pm Quote:
What he meant to say was he has wasted enough of OUR time http://www.14kgoldpendants.com/gold-pendants/14-karat-gold-pendants/cj_C1098_14K_Gold_American_Flag_on_Oval_Pendants_14kgoldpendantssm.jpg |
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Title: Re: POT? Post by Mr. Happy on May 15th, 2006, 8:19pm on 05/14/06 at 19:21:27, mrnice wrote:
That's the part that got me. Nothin sacred about it......just nature's way of saying "Hi." Big deal. Role in CH treatment? Nyet. Vasodilator. From Estonia, with Love. RJ |
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Title: Re: POT? Post by Tom K on May 15th, 2006, 9:14pm on 05/15/06 at 08:50:08, mrnice wrote:
Shhhaaaa...don't borgnine my high end weed maaan... No? Car crash? Cricket noise? |
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Title: Re: POT? Post by Beastfodder on May 18th, 2006, 7:44am Never been a trigger for me, but then alcohol doesn't trigger attacks either. I know, I know I'm lucky. |
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Title: Re: POT? Post by rhino on Jul 25th, 2006, 11:46pm I think I will go test some pot and a double martini.. I will get back to you with the results in a couple of days. ;;D |
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Title: Re: POT? Post by Bingerboo on Jul 26th, 2006, 12:19am Pot can be a trigger for me, but usually it is not. I think Mr. Nice had a good point talking about wether or not it's been flushed of fertilizers and what not, but I think it goes farther than that. What a lot of people don't realize is how many different strains there are, and how different they act on you. Some make you tired, some wake you up. Some make you laugh, some just get you stoned. The list goes on forever. I know I have found certain strains that definetely are a trigger, some that don't effect the ch much at all, and some wonderful strains that help immensely. (For me it seems like these are what people call the more "Sativa" strains.) Unfortunately, because it is illegal, this is not something that can be explored scientifically, and there is no legitamate info. You have pot heads saying it will cure every headache you get, and people on the other side of the fence saying it will cause cancer, DNA damage, and whatever else they can think up that has not been already disproved. Also, it is hard to get a real concensus, even on a site like this, because people going for a therapy like this are very hesitant to admit it. (and for good reason) It helps me, but I would have a tough time recomending it. |
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Title: Re: POT? Post by thomas on Jul 26th, 2006, 8:56am on 07/26/06 at 00:19:37, Bingerboo wrote:
Yeah, but I'm not gonna sit and subject myself to over the top CH hits to try and find one straing of pot that might give me some help. Not all vodka is the same either, nor Scotch, nor tequilla....... maybe alcohol can help people too, they've just got to keep drinking and triggering CH's until they find a brand of booze that doesn't send them racing to find the O2 tank. Very flawed logic, mrnice couldn't see passed the end of his nose, I for one am pretty damned pleased that he left. |
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Title: Re: POT? Post by CHvsTN on Jul 26th, 2006, 9:10am Would the real Mr Nice (aka Howard Marks - "Interpol's most wanted") ) please step forward. [smiley=bow.gif] Great novelist! [smiley=thumbsup.gif] |
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Title: Re: POT? Post by JeffB on Jul 26th, 2006, 1:25pm I have smoked since 79 and I do not see myself quiting.Even during a cyce and between headaches I have smoked some doobage, it helped me relax and cope to be honest with you. In a cycle I know about how many times and when I will get hit and I know it's inevitable so why stop? And Matt, since we do live in NorCal we are blessed with the best, the weed we have today makes your oldest hippiest uncles pot look like ragweed. Lets see there's: Juicy Fruit Northern Lights Purple Haze Train Wreck Purple Cush and many more types. ;;D 8) |
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Title: Re: POT? Post by JJA on Jul 26th, 2006, 3:34pm on 07/26/06 at 08:56:06, thomas wrote:
The logic isn't so flawed. There is a major difference between vodka and pot. Vodka, or any alcoholic beverage contains only one drug i.e. alcohol. Cannabis contains many cannabinoids (THC and CBD and CBN being the major ones) occuring in different concentrations from strain to strain. Having said that, I am very skeptical that there is a strain out there that would help most CH'ers. Of all the reports on CH and pot, certainly many strains have been tried. Relaxation is about the greatest benefit I've seen claimed. On the other hand, there is reason to suspect that chronic use of pot could act as a preventative rather than as an abortive. One article [Neurology (2005;65:1145)] suggests cannabis use narrows brain blood vessels for chronic users. It's possible that this would help CH. I am not suggesting chronic use of pot to help CH. |
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Title: Re: POT? Post by thomas on Jul 26th, 2006, 3:48pm on 07/26/06 at 15:34:50, JJA wrote:
Good, because I would rather have CH and some cognitive abilities and motivation to do something besides eat twinkies all day. ;) Even LSD/LSA/Shrooms you only have to dose a few times a year, much preferable than being a stoner in my book. I'm all for legalizing pot btw. I think it would be a great tax revenue source. But I'm not sure I fall in lock-step with the whole "medical marijuanna" spin doctors. Keep in mind these are only MY opinions and the last time I checked I still had the right to form and voice my own opinions. ;) |
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Title: Re: POT? Post by Bingerboo on Jul 26th, 2006, 3:50pm Couldn't find any studies but I found case after case of people claiming it works for them----These are a few: http://www.pinknoiz.com/covert/forfeit5.txt http://www.aegis.com/news/lt/2001/LT011006.html http://www.marijuananews.org/news/under_attack.html http://www.coastalpost.com/98/8/13.htm http://www.texansformedicalmarijuana.org/new%20profiles/neurological%20disorders/paul.htm TMM -- Texas Patient Paul http://www.remedyfind.com/treatments/89/2574/ RemedyFind: patient ratings of Marijuana (Cannabis Sativa / Indica) for Cluster Headaches http://www.mult-sclerosis.org/news/Jul2002/CalifornianMedMJBill.html These are just a few, there were quite a few more, while there were also a bunch saying it didn't help or made it worse. (Some of these you will have to read in entirety to ffind info relating to clusters) I think just the fact that there are people saying it is helping there clusters combined with the fact very few people are willing to get on the net and admit it, shows there are probably quite a few getting relief this way. |
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Title: Re: POT? Post by thomas on Jul 26th, 2006, 3:54pm on 07/26/06 at 15:50:19, Bingerboo wrote:
I disagree with that point, all you have to do is check www.clusterbusters.com and see people have no problem getting on the net and talking about using halucenigenics as a treatment for CH. Pot is much more socially "acceptable" than LSD/LSA and shrooms. I think if it helps some one with CH they would be shouting it from the mountain tops. Again, just my personal opinion. |
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Title: Re: POT? Post by Bingerboo on Jul 26th, 2006, 3:55pm Here's something else interesting talking about cannabis possibly working like certain SSRI's----(increasing serotonin?) http://www.newscientist.com/article.ns?id=dn8155 New Scientist Breaking News - Marijuana might cause new cell growth in the brain |
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Title: Re: POT? Post by thomas on Jul 26th, 2006, 3:58pm on 07/26/06 at 15:55:12, Bingerboo wrote:
That's why you feel good when you smoke it. As far as new cell growth goes, I know it increases a man's breast size, but I'm not buying that it makes you smarter. ;) |
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Title: Re: POT? Post by Bingerboo on Jul 26th, 2006, 3:59pm I agree---they should be, but I personally know people who get help and won't tell anyone. It's one thing if you're a hippie wearing tie-dies and Bob Marley shirts---people assume you are anyway. When you have positions in different parts of society, though (lawyer, teacher, etc) It can be quite different. I know it's taken a while for me to get up the nerve to tell everyone I smoke weed. Hell, I have no idea who any of you are! |
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Title: Re: POT? Post by Bingerboo on Jul 26th, 2006, 4:02pm I have seen surveys pointing towards a lot of women who like men who eat twinkies and have big boobs. ;) |
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Title: Re: POT? Post by thomas on Jul 26th, 2006, 4:03pm Hey it's a great recreational drug. I've used it, even grown my own years ago. But I love how all the people, that I personally know, clamoring that it isn't addictive, can't function without hitting it a couple times a day. Wake and bakers amaze me. What exactly is a "jones" if not withdrawl from an addictive substance? |
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Title: Re: POT? Post by Margi on Jul 26th, 2006, 4:04pm I've said it before and I'll say it again - if we found that smoking frozen dog poo cured clusters, we'd be shouting about it here, ok? Folks aren't backwards about coming forwards here if they find something that helps cluster headaches. For 99.9% of sufferers (ok, I'm generalizing) - pot is a huge no-no whilst in cycle. Worse than booze in a lot of cases. I have heard that it helps some forms of migraines (not mine though), but this is yet again another difference between the two types of h/a. Maybe all these links you're finding are from misdiagnosed migrainers. There are many who fall into that category. |
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Title: Re: POT? Post by thomas on Jul 26th, 2006, 4:11pm on 07/26/06 at 16:04:29, Margi wrote:
Ain't that the truth?! ;) |
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Title: Re: POT? Post by Bingerboo on Jul 26th, 2006, 4:13pm I'm sure there is some mis-diagnosis, but all of 'em? I stand by my thoughts that there are many people who won't tell anyone. I was one of those people, and I'm sure there are more out there. It was the same way with the shroom therapy. Also, like I was saying those were only a few of what I found, and I didn't have to look to far. As far as addiction, I think Doctors are wrong when they say it is not physically addictive. It will not produce effects like the addictions to alcohol or opiates, but I've known people who had no hunger and could not sleep at all until they took a toke. They were not like this before they started and this stops after a week of no weed. To me, this points towards a physical addiction |
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Title: Re: POT? Post by StressFree on Jul 26th, 2006, 4:25pm Used extensively in early years of cluster experience. Seems like it was benefitial for lighter hits. Able to keep from head banging on higher hits. In the 15 years or so since stopping smoking everything and limiting alcohol, I've noticed I remember things much better than I used to. I'm pretty sure all the propoganda they used to give us in school was correct as to the memory impairment. It seems to be at least somewhat temporary though! Haven't tried it in so long, can't say for sure one way or the other regarding benefit with cluster attacks. Rich |
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Title: Re: POT? Post by Margi on Jul 26th, 2006, 4:29pm ok, first of all Bingerwhatever - to me, that says "mental addiction" not physical. having just quit smoking cigarettes myself, I'm pretty up on these terminologies. Hell, even hearing Thomas say "jonesing" made me crave. You can't tell me that that is a physical addiction because I haven't had any nicotine in my system for 46 days...but it's still on my mind after this long. Nictoine, for example, is 1% physical, 99% mental. I'd say the same for pot, only it's probably only a 20% mental addiction. I'm a child of the 70's. I've smoked a lot of pot in my day - for a long time, a daily smoker. I've also smoked a lot of cigarettes. Yet I can put pot down a HELL of a lot easier than I can tobacco. Without even thinking twice about it. Tobacco? yep, had to think about that one long and hard. Still do. Do I miss pot? Not so much. Do I crave it? Nope. Would I do it again? Sure, why not. I can't look at nicotine that way. Second of all, I'll be honest and let you know I didn't read any of your links because, well, ...um...I don't want to. All I'm saying is that pot is a trigger for most clusterheads. An immediate and brutal, never go there again trigger. For some all they have to do is smell it, let alone smoke it, for it to launch them into an ugly attack. High commonality in this category. It's been repeated on this and all the other cluster headache message boards for years and years. That's all there is to it. |
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Title: Re: POT? Post by thomas on Jul 26th, 2006, 4:32pm on 07/26/06 at 16:29:29, Margi wrote:
*bangs gavel* Court's adjouned! ;;D |
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Title: Re: POT? Post by Bingerboo on Jul 26th, 2006, 5:34pm And all I'm saying is that it's hard to come to a real concensus when only one side of the story can comfortabley comment. I agree, it seems like a lot of ch sufferers can not deal with pot. But I also think it's a bit ridiculous to claim that every person who gets relief has been misdiagnosed. I get relief, and I am certain I have not been misdiagnosed. I get tension, migraine, and clusters. They are all very different, and thus I am certain that when I get a cluster, it's not a migraine. It would be very hard to confuse the two. By the way, you can call me Binger--I just put the Boo cause somebody else already had my name. An important point---I am not advocating this as therapy, but I'm not going to claim all these people don't have clusters. |
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Title: Re: POT? Post by Margi on Jul 26th, 2006, 5:42pm uh, that's not really what I said - you're kind of missing my point. Like I said, I didn't read the links. But I did notice that none of them are from here or any of the other cluster headache websites. I'd say you'd find a larger gathering of clusterheads here than at the sights you mentioned. I'm a migrainer and pot doesn't help my migraines. Like I said, you're missing my point. My POINT is that there is a resounding "NO" response here, traditionally, when asked the question: does pot help your clusters. There are still a lot of misdiagnosed migrainers though. But that's a whole other discussion. spark 'er up, dude - if it helps you, man, go for it. p.s. obviously, there aren't a lot of people here who are shy to admit to their extra-curricular activities, legal or otherwise. So that's kind of sinking the point you're trying to drive home as well. With so many screennames or just first names used here, anonimity is pretty much a given. I doubt too many people worry about black squiggles on an internet message board. |
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Title: Re: POT? Post by Bingerboo on Jul 26th, 2006, 5:48pm I agree, it seems like most people on the site feel like it is a major trigger. |
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Title: Re: POT? Post by thomas on Jul 26th, 2006, 6:09pm on 07/26/06 at 17:48:37, Bingerboo wrote:
That's only because for most people on this site who have tried it, it is a major trigger. |
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Title: Re: POT? Post by Dissident on Jul 29th, 2006, 6:37pm Hard core weed smoker through every cycle I've ever had. Never was a trigger for me. I couldn't smoke during a hit but who the hell would want to. It DID help my spirits after the hit though. Helps the depression associated with CH (to bad I quit...I miss it sooooooooooo much)! |
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Title: Re: POT? Post by prcole18 on Jul 29th, 2006, 10:01pm trigger for me also |
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