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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> worse than ever
        
(Message started by: jckgales on Feb 28^th, 2006, 3:18pm)

Title: worse than ever
Post by jckgales on Feb 28^th, 2006, 3:18pm

I am coming off predisone taper and the ha's are worse than ever before. Does anyone know is this temporary? Went from one hit every night to 3 to 5 per day the last 5 days have been hell. just had one k-12 feels like the left side of my face is numb now.
Jackie

Title: Re: worse than ever
Post by Bob_Johnson on Feb 28^th, 2006, 4:38pm

Were you started on a preventive med WHILE on the pred? If not, your doc dropped the ball.

The idea is to abort the cycle with pred and start a preventive med, often verapamil, at the same time, because it takes some days to become effective.

Yes, pred without another med will leave you naked....

Title: Re: worse than ever
Post by thebbz on Feb 28^th, 2006, 7:59pm

What Bob said. Happens often at the taper. Sometimes it works sometimes it doesn't. I know that will not make it feel any better. I used to hit the O2 at the last end of the taper,it helps. prevents never worked for me.
clusterbusters.com
all the best
jb

Title: Re: worse than ever
Post by MJ on Feb 28^th, 2006, 9:37pm

high dose pred tapers in the past, generally gave me a much needed break at times but allways the CH came back with a vengeance towards the end of the taper

Title: Re: worse than ever
Post by Richr8 on Feb 28^th, 2006, 9:49pm

on 02/28/06 at 15:18:23, jckgales wrote:

I agree with Bob's comments. I am up to 480 mg of Verapamil before I begin the taper. In additon, many times when I step down the dose of pred while tapering, I'll relapse and have to jump back up a few mg's for a day or two until things settle down.

PFDAN,

Rich