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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> something seems to be working
        
(Message started by: clavers on Feb 28^th, 2006, 9:10am)

Title: something seems to be working
Post by clavers on Feb 28^th, 2006, 9:10am

I have been chronic for 8 years and have been a clusterhead for 22 years. I can abort the things with standard remedys but have never been able to prevent them. Recently I went to the doctor for a very irritated nose (allergies apparently) and he prescribed flonase. The flonase did nothing for my nose but I have not had a CH since I started using it, and that was two months ago. I know that it is a steroid but the dose does not seem to be that great. Has anyone else had a similar experience?

Title: Re: something seems to be working
Post by Jasmyn on Feb 28^th, 2006, 9:15am

Hi Clavers, I cannot comment on it medically but it is great that you stumbled across it and that it halted your CH. There is nothing like being pain free for a change. ;;D

Title: Re: something seems to be working
Post by Dragnlance on Mar 1^st, 2006, 11:02am

Glad to hear you are pain free for now!

I have used Flonase, with little success with the allergies. It did give me a bloody nose, which it says it will do over time.
I hope it keeps working!!

Dragnlance

Title: Re: something seems to be working
Post by ABarham on Mar 1^st, 2006, 12:05pm

glad to hear about the flonase. what dosage are you using? I have some but never thought about it for ch. How long did it take to be effective? I know, just full of questions. But you know how it is, if you don't ask, you don't get.

Thanks for info,
Louise

Title: Re: something seems to be working
Post by nani on Mar 1^st, 2006, 1:39pm

I'm glad it's working. I've heard of someone who is triggered by Flonase. I had to use it for a severe sinus infection (that was triggering a 15 minute kip 9 every 30 minutes) and after a few days, the CHs let up. But it wasn't so much the Flonase as it was the fact that the swelling was going way down. Just my 2 cents.
pf wishes, nani

Title: Re: something seems to be working
Post by clavers on Mar 2^nd, 2006, 9:24am

I am using the standard squirt thing, I don't know the strength, but I use two shots in each nostril each morning. It started working in just a couple of days. It does not seem possible that there could be enough steroid in a dose, but maybe up the nose is more effective than prednisone pills.

Title: Re: something seems to be working
Post by sandie99 on Mar 4^th, 2006, 3:08am

I'm so glad to hear that another chronic is PF! Congratulations! :)

Wishing you lots of PF time,
Sanna