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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Everyone using seeds....HOW ABOUT SOME UPDATES??
        
(Message started by: Roxy on Feb 16^th, 2006, 11:03am)

Title: Everyone using seeds....HOW ABOUT SOME UPDATES??
Post by Roxy on Feb 16^th, 2006, 11:03am

How is everyone doing? How is the head behaving? How many seeds are you using.....how often?

Haven't seen any updates for awhile, and I want to know how the seed usage is progressing?

Just curious,
Rox

Title: Re: Everyone using seeds....HOW ABOUT SOME UPDATES
Post by nani on Feb 16^th, 2006, 1:27pm

OK, twist my arm... ::)

I'm still battling, but with a very effective weapon. I continue to dose with maintenance doses every 4 - 8 weeks. I average about 95% PF time most of the time. I have noticed a significant change in duration of hits. The average "long" hit is about 20 minutes ( I've gotten a few one hour plus hits (never higher than a 7) when it's close to dosing time...that's often my sign that it's time).
A "bad" day for me now is maybe 45 minutes (total) of shadowing and maybe one 5 minute k4 hit. I get occasional "twinges and niggles" that are not painful, and have many 100% PF days. ;;D

edited to add: I am using about 20 RC seeds soaked in water for 2 - 6 hours.
Next...

Title: Re: Everyone using seeds....HOW ABOUT SOME UPDATES
Post by MJ on Feb 17^th, 2006, 12:27am

Doing similar to Nani.

Last dosed a couple weeks ago with 20 seeds soaked and 2 day follow-up with 5 powdered seeds sublingualy morning and night.

Cant seem to bust the morning hits totally. They are very low level but aggravating. 20-45 minutes. occasional night wake ups for an hour at maybe k7.

Beats the hell out of 8-12, hour and a half k10s a day.

next...

MJ

Title: Re: Everyone using seeds....HOW ABOUT SOME UPDATES
Post by Roxy on Feb 17^th, 2006, 6:18pm

Wow....can't believe their aren't more people trying the seeds.

I started using five seeds on a daily basis. The dosing and then waiting wasn't working too well after the good start I got with them.

The first four days of daily dosing worked great. Then yesterday I had three hits that 02 worked pretty well on. And the three hits were while I was sleeping, so I was clear during the day.... ;;D.

Hell....I'm happy. I'll take three a day with a few twinges thrown in.

Title: Re: Everyone using seeds....HOW ABOUT SOME UPDATES
Post by BlueMeanie on Feb 17^th, 2006, 7:14pm

Congrats to you Seedbusters. Glad to hear they're helping. What do you think is a better choice. The seeds or the Kudzu ?

Title: Re: Everyone using seeds....HOW ABOUT SOME UPDATES
Post by Chillrmn1 on Feb 17^th, 2006, 11:15pm

First and only use of HBWR busted my cycle in 5/05. Continue to maintenance dose with psilo, still PF to date. Should have a good idea on the efficacy of the maintenance dosing by 7/06 since that would be the
expected start of my next cycle at 12-14 month interval. So far so good.

Blue - Unable to offer opin, haven't tried kudzu.

Sincere PF Wishes To All,
Bob

Title: Re: Everyone using seeds....HOW ABOUT SOME UPDATES
Post by Rock_Lobster on Feb 18^th, 2006, 1:19am

25 RC ground and soaked monthly.
PF when I should be going into an episode. Plan to stop come springtime.

Title: Re: Everyone using seeds....HOW ABOUT SOME UPDATES
Post by MJ on Feb 19^th, 2006, 1:49pm

on 02/17/06 at 19:14:35, BlueMeanie wrote:

Congrats to you Seedbusters. Glad to hear they're helping. What do you think is a better choice. The seeds or the Kudzu ?

Never used Kudzu, But if I were to compare all the other conventional meds.

There is no comparison.

RC seeds are the answer for me this cycle.

Total treatment costs are around 20 bucks so far this cycle over the last 5 months.

Feeling good
MJ

Title: Re: Everyone using seeds....HOW ABOUT SOME UPDATES
Post by ArCane on Feb 20^th, 2006, 12:59pm

I have been maintance dosing every month with 8 HBWR seeds. Im PF and loving it 8).