Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> RC Seeds and me
        
(Message started by: LeLimey on Jan 14^th, 2006, 7:29am)

Title: RC Seeds and me
Post by LeLimey on Jan 14^th, 2006, 7:29am

Hello everyone.
I just wanted to share my personal experience with Rivea Corymbosa seeds.

Owing to all the other medical conditions I have I've been asking questions and having people look stuff up for me as far back as last August. I know there has been a lot of discussion about me and my problems and other treatments and an awful lot of research has been done on my behalf for which I'm incredibly grateful.

I've had two tests with tiny amounts of seeds to test stomach sensitivity. The first time I had quite a bit of discomfort from stomach cramps so we changed the way I tried the second attempt and that was much better.

I decided to go the whole hog and try a "normal" dose of 15 seeds and the only concession I made to my stomach sensitivity was to have a normal meal 2 hours beforehand instead of just a light one as is usually recommended.

I crushed the seeds in water and soaked them for two hours and I have to say two hours have NEVER past by more slowly! I was the archetypal clock watcher!

I had them in about an inch and a half of water in a whisky tumbler and drank it, added some more water to rinse around the last little bits and drank that too.
This was at about 9pm last night. I then sat here at the pc for the next couple of hours and apart from feeling slightly more aware of what I was doing I didn't feel a thing. It was an awareness like when you have had a drink and need to make sure you put your glass down carefully rather than banging it if that makes sense. Either way I was quite happy, calm and "with it".. well.. as much as I ever am!

I didn't see anything crawling out of the walls and sadly Harrison Ford didn't put in an appearance but I can't have everything I guess!

I got hit last night at quarter to twelve and then again at 1am. Both hits were easily aborted with o2 but felt "remote".. they bloody hurt but it still seemed to almost feel like they were happening to someone else and not me. Very strange. I'm sorry I can't explain it better than that.

A very slightly grumbly tummy but no pain, minor discomfort is probably the worst I can call it and that's only if anyone wants to feel sympathetic and send flowers or anything!

I usually have a "sore spot" on my forehead, right above my left eye. Its always sensitive if I touch it and this morning its gone. I've prodded so much I'll probably end up with a bruise but I can't feel a thing!

I don't know (obviously) what will happen later or anything but I feel so positive and happy. Really, really HAPPY.

This reminds me of when I first tried the clustermasx. I honestly thought the guy who recommended it to me (Tom) was yanking my chain but he was so helpful I thought "What the hell" and ordered one anyway.

I couldn't believe the difference it made and I feel the same about these seeds. I cannot believe how easy it is to dose and how much of a difference it makes almost immediately.. I know I have a way to go but just the difference in the sensation of being hit already is noticeable and nothing else I've tried has ever made any difference to me so this really is a first.

Its almost indescribable and for the first time ever.. I really do feel I'm on my way to beating this.

Oh now I'm going to cry!

Title: Re: RC Seeds and me
Post by Melissa on Jan 14^th, 2006, 8:57am

on 01/14/06 at 07:29:11, LeLimey wrote:

I usually have a "sore spot" on my forehead, right above my left eye. Its always sensitive if I touch it and this morning its gone. I've prodded so much I'll probably end up with a bruise but I can't feel a thing!

I keep poking that exact same spot too Helen, to see if If it's still "active". :-/ I got a 10min hit last night and kept poking it to see if it was still there... Guess I'm a masochist?? ;;D

I am so happy the 3rd time wasn't as bad as the first two! It seems something "took" with this time, right? I sure hope so...

I'm keeping tabs on you lady! ;)

love,
melly

Title: Re: RC Seeds and me
Post by Roxy on Jan 14^th, 2006, 10:06am

Good luck Helen.....I'll be thinking about you, and I hope this treatment just kicks ass!

I know what you mean about the absolutely clear head feeling....it's amazing.

I have to wait another four days...... :-/.

Roxy

Title: Re: RC Seeds and me
Post by E-Double on Jan 14^th, 2006, 10:28am

Elated !!!!!!!!

Title: Re: RC Seeds and me
Post by Beastfodder on Jan 14^th, 2006, 11:48am

There was a rumour about a joke you told last night that you wanted to share with everyone....

Title: Re: RC Seeds and me
Post by Linda_Howell on Jan 14^th, 2006, 2:03pm

Well, blimey Limey, that is simply smashing ol girl. ;;D

HIP-HIP......horray. HIP-HIP horray.

Linda

Title: Re: RC Seeds and me
Post by LeeS on Jan 16^th, 2006, 10:30am

Congratulations. How's it progressing Helen?

-Lee

Title: Re: RC Seeds and me
Post by LeLimey on Jan 16^th, 2006, 11:15am

Well I wasn't going to update this thread until something happend.. and so far over 60 hours of nothing has!
Not a single hit, not as much as a shadow.
I feel like I've had an amputation. You know how people say when they've had a leg cut off that they still look for it to be there? Well that's how I feel about my head now. Its a peculiar feeling, not having any background awareness at all of the pain. Not having had any hits. In the last 18 months I've had 4 PF days and that was when I was in Dallas.

FOR SALE
One clustermasx. Used. No Longer Needed ;)

Im only joking, I know this isn't "forever"... but I'm enjoying every minute! I cannot believe how exhilarating it is to feel nothing.. not a flippin' thing!
60 hours so far without a twinge.. I don't even feel I'm pushing my luck or tempting fate. I know this isn't a cure. I know it will come back and I know I'll have to continue to take doses and maintain it all but I have every confidence that I can do so.

I am literally shaking my head here. I haven't used o2 since Friday night! I'm going to have to dust my clustermasx! It's NEVER got dusty before!

I'm saving a fortune in shoes too as my feet haven't touched the ground yet (Actually that might count as a BAD side effect eh girls?! ;) )

Title: Re: RC Seeds and me
Post by pattik on Jan 16^th, 2006, 11:25am

YES!!! [smiley=headbanger.gif] Keep it going. And you can always PM me the joke if you want. ;;D
xxxPatti

Title: Re: RC Seeds and me
Post by nani on Jan 16^th, 2006, 11:38am

http://bestsmileys.com/big/1.gif

Great feeling, isn't it?
I'm probably going to be fighting this battle for a long time, I'm sure glad I found a weapon that's actually helping. love ya, nani

Title: Re: RC Seeds and me
Post by MJ on Jan 16^th, 2006, 10:19pm

"FOR SALE"
"One clustermasx. Used. No Longer Needed"

Now that would be cool.

Wishing the best

MJ

Title: Re: RC Seeds and me
Post by godsjoy777 on Jan 21^st, 2006, 7:53am

Yippeeeeeee Helen!

You have helped me....telling your story....Hopeing I'll never go into cycle again and not have to do anything ever again....BUT.......IF I do.....I'm going to try it just like you did.....

Love you,
Karen

Title: Re: RC Seeds and me
Post by sandie99 on Jan 22^nd, 2006, 9:47am

That's wonderful, Helen!!!!!!!
;;D ;;D ;;D ;;D ;;D

Best wishes,
Sanna

Title: Re: RC Seeds and me
Post by MJ on Feb 4^th, 2006, 4:12pm

Lelimey

Care to update on the RC experience if any?

Title: Re: RC Seeds and me
Post by LeLimey on Feb 5^th, 2006, 6:49am

Hi MJ and whoever else wants to read this :)
After my first dose I had five days completely pain free, I then started having a few niggly shadows which I tried a 3 seed sput for on day seven.
This involved keeping three seeds in my mouth until they went soft and I then bit them, kept the "bits" in my mouth for another few minutes and spat them out. They didn't actually taste that bad, a little bitter but not disgusting (unlike potassium but that's another story!)
I didn't have any more pain that day incidentally. Shadows returned about 22 hours later and I finally redosed on day 10 after having had 5 hits in three days.
At my best prior to dosing I was getting a minimum of three hits a day so this was still 50% better than usual.
My second dosing has been hampered by alot of stress here, major life changing stress which has been very difficult and also a really bad cold and the bungest uppest sinuses I've ever had! It's still been a huge improvement but I have had some hits in the last ten days but I've been holding back on redosing for two reasons, trying to improve my mental position and hoping to shift this cold a bit.
I'll be redosing on Tuesday so I'll let you know more after that.
Interestingly the last time I dosed was almost exactly the same as the first, Within half an hour or so I had that "I'd love another drink" feeling (although I hadn't had any booze). The seeds make me feel relaxed and happy exactly like I've had a couple of drinks and that third one is looking really good! That wears off and after about four hours I feel a bit queasy, not sick, just "Oooh.. next time I'll stop at two" sort of thing!
After approx five hours I got hit twice within an hour but both hits were easily aborted and then that was it. It was almost a mirror image of the first time but what was different was the time of day. First time I dosed in the evening at about 9pm and second time was at 11am.
Well I hope that helps anyone else thinking of going down this route. I have to say the seeds aren't something I would do for pleasure, I prefer real alcohol to induced alcohol feelings and I prefer being with other people when I drink too but as a method of pain relief which is all this is intended as its certainly doing the trick for me better than any other preventative I've tried.
Helen

Title: Re: RC Seeds and me
Post by maffumatt on Feb 5^th, 2006, 7:11am

we're pullin for you Helen, keep up the good fight..........

Title: Re: RC Seeds and me
Post by nani on Feb 5^th, 2006, 11:25am

I'm keeping you in my thoughts and prayers, luv. The cold could indeed be triggering more activity. Hopefully your head will get clearer as your nose does. hugs, nani

Title: Re: RC Seeds and me
Post by MJ on Feb 5^th, 2006, 6:32pm

Thanks for the update Helen.

Sounds like the seeds are doing their thing for you too.

In my little experience with the RC seeds, I think it is better to dose at night, maybe a couple hours before sleep. Makes nice dreams while fighting CH too with low doses like we take.

On the oral soak or absorbtion method if you crush or powder the seeds first that works pretty quick too. The LSA containing powders absorbed in about 15-20 minutes and you can either spit out the husk remnants (wich might be the cause of stomach upset) or swallow them.

I agree with you on the not doing for pleasure aspect, makes you feel sort of empty for just a little bit. Not condusive to quality socializing.

So happy to hear you got some results.
Wishing you much more.

MJ

Title: Re: RC Seeds and me
Post by vig on Feb 5^th, 2006, 7:30pm

fngresi crsosde!

Title: Re: RC Seeds and me
Post by Jenny G on Feb 6^th, 2006, 11:55am

Does one need to "detox" off other meds like you need to do for shrooms?

Title: Re: RC Seeds and me
Post by nani on Feb 6^th, 2006, 11:59am

Yes, it's best to bee detoxed from most of the standard CH meds. Look here and read the LSA and Mushroom FAQs
www.clusterbusters.com

pain free wishes, nani

Title: Re: RC Seeds and me
Post by Jimi on Feb 6^th, 2006, 12:25pm

Good luck tomorrow Helen!

Title: Re: RC Seeds and me
Post by boybath on Feb 6^th, 2006, 3:02pm

WELL DONE HUN
But more to the point what were you hoping to happen with Harrison Ford???

wibble

Le Looney

Title: Re: RC Seeds and me
Post by LeLimey on Feb 6^th, 2006, 3:57pm

on 02/06/06 at 15:02:29, boybath wrote:

WELL DONE HUN
But more to the point what were you hoping to happen with Harrison Ford???

What happens in Seedville STAYS in Seedville..... :-X ;)

Title: Re: RC Seeds and me
Post by mrs mac on Feb 6^th, 2006, 4:03pm

hope you get loads of pf time Helen!!!

tc sandra xx

Title: Re: RC Seeds and me
Post by LeeS on Feb 7^th, 2006, 11:28am

on 02/05/06 at 06:49:55, LeLimey wrote:

I prefer real alcohol to induced alcohol feelings and I prefer being with other people when I drink too

Me too 8)

All the best with it tonight Helen :-*

-Lee

Title: Re: RC Seeds and me
Post by Rock_Lobster on Feb 7^th, 2006, 11:18pm

Try using a pepper grinder on them. I forget who suggested it, but that is what I went with.
Picked up a cheap $5 grinder, which pretty much pulverizes the little things.

No 'tender spot' on my skull either. And at this time of night in February I am usually preparing my 2 or 3 trex syringes for the evening. [smiley=thumb.gif]