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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Surgery worked for me.
        
(Message started by: cagey on Jan 5^th, 2006, 7:09pm)

Title: Surgery worked for me.
Post by cagey on Jan 5^th, 2006, 7:09pm

There seems to be some concern about Dr Ali Sultaneh. I followed one of his minor procedures in April 2004 and haven't had a CH since. As far as I'm concerned, he's about par with God. Somebody tell me how to attach .pdf's to this forum and then you can all see and judge for yourselves. I had it done and it has worked for me.
P.S I tried to post this in 2004 but didn't work.

Title: Re: Surgery worked for me.
Post by Ueli on Jan 5^th, 2006, 11:51pm

cagey, reading your post some questions pop up:

1) What that "minor procedure" of Dr Ali Sultaneh?
Was it his surgery, the one other neurosurgeons are less than enthusiastic about,
or
was it that contraption that looks like headphones without phones:

http://www.migrainesurgery.8m.net/images/_1_copy_2.jpg?

2) Why didn't we hear of this success story in almost 2 years? (There wasn't a change in posting here in the last 4 years.)

3) Why did Dr Ali Sultaneh not use your case as an example of his success?

4) It is known that Dr Ali Sultaneh doesn't hardly distinguish between migraines and clusters, so I'm curious if you had been diagnosed before with clusters by a neuro specializing in headaches.

5) A 2 year remission is a nice stretch (I can only dream of that), but it would be interesting to know about the length of your remissions before that "minor procedure".

Ueli [smiley=smokin.gif]

PS. Your .pdf file must be stored somewhere on the net, and you post just its url. If the file exists only on your computer, you must upload it to a suitable site. I could give you free sites for pictures, videos or music, but I don't know any for .pdf files.

Title: Re: Surgery worked for me.
Post by Globi77411 on Jan 6^th, 2006, 4:41am

http://www.migrainesurgery.4t.com/index.html

Looks like REALLY serious!

Well worth a trip to Damascus....

The sad thing is that nobody recognises this wonder

Title: Re: Surgery worked for me.
Post by LeLimey on Jan 6^th, 2006, 6:20am

For the attention of anyone new reading this.
Ali Sultaneh is a troll.
He has registered on this site under many names and deleted all of them after being run off for dangerous, ridiculous and worthless views.
He is not a doctor.
He has no medical training and his so called medical certification comes from schools with no medical education programmes.
Do not be deceived.
His opinion and views are worth their weight in manure so unless you have roses read no further!
Oh and he does not have cluster headaches so if you are looking for help his views are of no value to you.

Globbi and Cagey.. WHICH BIT OF THAT CAN YOU NOT UNDERSTAND?!!
If any person who isn't one of Ali's nom de plume's is reading this.. ask your neuro if they have ever heard of this marvel. The cluster community is so small every neuro within it know's what the other's have had for dinner.

Do you REALLY think if there was someone out there sitting on a cure like this it wouldn't be broadcast from the rooftops in creditable medical journals?
No.. neither do I!

Ali, you've done something I didn't think you had in you.. you've actually tried to think of a way around us working out it's you.. keep practising. You might be able to fool my four year old if you work at it for a few years..

Title: Re: Surgery worked for me.
Post by zanychef on Jan 6^th, 2006, 6:25am

bugger off helen jasper could spot him a mile off with his eyes shut ;)

Title: Re: Surgery worked for me.
Post by BobG on Jan 6^th, 2006, 6:50am

I have a question for Globi and cagey.

Globi, you signed on here May 12th, 2003 and have made 13 posted since then.

Cagey, you signed on here Feb 16th, 2002 and have 3 posts.

That’s quite a few years to just sit back and make no posts until now and your posts are in support of Ali-the-quack.

What is your real connection to Ali?

Title: Re: Surgery worked for me.
Post by cagey on Jan 6^th, 2006, 7:20am

Ok, all of you, stuff off. I've no connection with him at all, don't even know him. I was grasping at straws like most of us have and I found something that has worked (so far). All I did was to post something that I tried, like this section of the site asks for, nothing more. As far as not DIVULGING this before, I tried to back then. But being new to computing back then, I apologise for not being as brainy as the rest of you who want to have a dig at me. What were you like when you first started using a PC.
Thanks CH. comminity

Title: Re: Surgery worked for me.
Post by LeLimey on Jan 6^th, 2006, 7:39am

Let's see.. you were able to use a PC well enough to use a search engine and find this site and Ali.. but you were too "incompetant" to post a message back then even though your post count is 4?? Two today so you've posted twice before but couldn't work out how to??
Hmm... what a load of old clap trap! [smiley=laugh.gif]

Title: Re: Surgery worked for me.
Post by chewy on Jan 6^th, 2006, 8:39am

You dont by any chance live in an alley do you?

Title: Re: Surgery worked for me.
Post by Ueli on Jan 6^th, 2006, 9:15am

on 01/06/06 at 07:20:24, cagey wrote:

... All I did was to post something that I tried, like this section of the site asks for, nothing more. ...

Quite the contrary, not even that. You didn't answer any of my questions, so we still don't know what actually did help you. This board is also about to share what worked for some. Since you don't divulge, I must conclude that either

You placed a shameless plug for Ali

or

You are Ali himself in yet another disguise.

http://img.photobucket.com/albums/v396/Ueli/TrollAlert1.gif

Title: Re: Surgery worked for me.
Post by Gator on Jan 6^th, 2006, 9:33am

a minor alteration, Ueli...

on 01/06/06 at 09:15:29, Ueli wrote:

Quite the contrary, not even that. You didn't answer any of my questions, so we still don't know what, if anything - assuming you do have CH, actually did help you. This board is also about to share what worked for some. Since you don't divulge, I must conclude that either

You placed a shameless plug for Ali

or

You are Ali himself in yet another disguise.

OR you just have nothing better to do than stir the shit and stand back and watch it fly.

I know. He's the girly boy in the picture modeling the migraine clamp.

Title: Re: Surgery worked for me.
Post by zanychef on Jan 6^th, 2006, 10:32am

nah man with a brain like his he'd be the clamp!!

Title: Re: Surgery worked for me.
Post by MJ on Jan 6^th, 2006, 11:09am

Ali

What do you mean when saying you lose your time?

I am new enough to this site that I am not aware of previous issues with you. Obviously there are some.
I did read the critiscisms by peers, and others.
The pressure points testing seem to make some sense to me.

Dr Guryons muscle removal might make a little sense.
Why would your extra cranial blood vessel removal work differently?
Do the veins regenerate themselves?
Isnt blood flow required to maintain healthy tissues?
Will your skin die and fall off in that area?
How would you determine which vessels to remove out of the many in our heads?
When it seems the pain of CH is generated intracranially, causing the extra cranial reactions, wouldnt other reactive issues come into play because of this?
If not why not?

Please respond and folks give him a chance if you would
for us newbies.

MJ

Title: Re: Surgery worked for me.
Post by vig on Jan 6^th, 2006, 11:23am

one of the biggest problems with Ali is integrity.
He's never argued the technical points or answered questions.

He comes back regularly pretending to be someone new.
...pretending to be helped.

...but never an explanation of the procedure, or case studies, or good examples.

He had the benefit of the doubt at the beginning but has lost it due to his own behavior/tactics.

Title: Re: Surgery worked for me.
Post by chewy on Jan 6^th, 2006, 12:28pm

Dr. Ali Sultan

"The Sultan of Spin"

"The Spin Doctor"

I bought his product. Plugged it into my MP3 player and couldn't hear shit!

Title: Re: Surgery worked for me.
Post by BMoneeTheMoneeMan on Jan 6^th, 2006, 1:30pm

on 01/06/06 at 09:33:02, Gator wrote:

the migraine clamp.

ROFLMAO [smiley=laugh.gif] [smiley=laugh.gif]
Good stuff. Gator's always good for a good laugh.
BMonee