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Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Starting Kudzu again...
(Message started by: Melissa on Dec 4th, 2005, 7:51am)

Title: Starting Kudzu again...
Post by Melissa on Dec 4th, 2005, 7:51am
I think I may be in cycle.

My hit dates and times so far are:

11/27- 2:53am to 3:01am
12/02- 6:42am to 7:13am
12/03- 11:40pm to 12:20am

And right now, I cannot cope without anything.  I am having high anxiety, with attacks, so I am going to go back on the Kudzu to see if I'll have any sort of relief.  One cannot live on asprin and Xanax alone, especially if you're me, lol.

Current medications & vitamins I am on are:
Cymbalta 30mg daily
Xanax (quick acting) as needed
Multivitamin 1x daily
Calcium 1x daily
Magnesium 1x daily
Vit C 1x daily

and now I'll be adding (to begin with):

Kudzu once daily unless I need to increase.

Thank you so much everyone, for all your imput on everything you try.  

Mel


edited to add: that the location of the pain has changed somewhat.  Instead of all around my eye, it has moved back a bit into my upper temple and about 5" back from that, so that whole part is in pain.  I still can't touch my eye though while getting hit. :-/

Title: Re: Starting Kudzu again...
Post by E-Double on Dec 4th, 2005, 8:40am
Breathe!!!!

Try to knock back that cluster angst sweetie, it'll make for an easier ride.

Hugs and wishing you a quick and easy ride ;)

:-*

Title: Re: Starting Kudzu again...
Post by LeLimey on Dec 4th, 2005, 8:41am
Good luck with it Mel, knock that beastie flat  :-*

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 4th, 2005, 12:42pm
Thanks you guys! :-*

This morning sucked, but I'm feeling better as the day goes on...sort of.  When my head starts that "feeling", I start feeling something weird, like the 'zu stepping in to stop whatever is happening in my head. :-/  Almost feels like medicine head, but not quite.  I also have noticed, that I'm a bit more calm...  Could it be due to the blood pressure lowering qualities of the kudzu?  I do know that with my anxiety, my blood pressure had gone up some, and my panic attacks began 2 days after I quit taking the 'zu a couple months ago.  Coincidence?  Who knows.

Anyway, I'll keep this thread updated...again...as to how I'm doing.

Thank you again!
mel

Title: Re: Starting Kudzu again...
Post by broomhilda on Dec 4th, 2005, 1:41pm
[smiley=hug.gif]'s on over and kick some a$$ Mel, you know where to find me!

All I have on over to you


Andrea

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 4th, 2005, 8:08pm
Thanks Andrea hon!

Well, now since I'm a wee bit paranoid about waking up tonight with an attack, I decided to take another Kudzu at 7pm also.  That way, I SHOULD have a steady 12 hour stream of the stuff in my system, so hopefully it won't wear off too soon.

Wish me luck!

*crossing fingers, knees, toes and eyes*

Title: Re: Starting Kudzu again...
Post by nani on Dec 4th, 2005, 8:15pm
Crossing what I'm still able to cross, sending luck, and vibes, and good kudzu ju ju...  :-*
kick butt, melly girl!!

Title: Re: Starting Kudzu again...
Post by unsolved1 on Dec 4th, 2005, 11:29pm
Goodluck Mel! Keep us posted.

Best Wishes
UNsolved

Title: Re: Starting Kudzu again...
Post by BikerBob on Dec 5th, 2005, 1:57am
Mel, what's your situation with O2 ??

Wishing you well,

BB

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 5th, 2005, 10:15am
Thanks again everyone. :-*

Last nights fun...

12/04/05- 11:40pm woke up from sleep, was such a low kip that I fell back to sleep.
12/05/05- 3:30am to 4:12am (about a kip3) with a residual "after cluster" that lasted about 30 min. Finally fell to sleep with an ice pack on affected area.

Today I'm going to pick up some Melatonin to add to my arsenol.  Hopefully it'll help.  I've noticed that after the major pain has subsided, I have a sort of residual cluster headache afterwards.  I call it an "after cluster", just wanted to clarify what I meant.

BikerBob- I've tried O2 in the past.  It stopped working 1/2 way through my 2000 cycle, and didn't work at all my last cycle in 2003, so please forgive me if I am not enthusiastic about trying it again this cycle.

Well you guys, myt cycle is normally around 37 days long, so I got 4 days down and 33 to go!!! ;)


Title: Re: Starting Kudzu again...
Post by Melissa on Dec 6th, 2005, 8:16am
12/06/05- 2:00am to 3:00am (kip4).  Tried 9mg Melatonin before bedtime, didn't help (I can always adjust of course).  Wondering if I should instead try increasing the kudzu by 1 pill before bedtime instead and just wait to add in the Melatonin when I'm maxed out on the kudzu.  I have room to increase the kudzu as so far I'm only taking 2 pills a day.  

Only 32 days left and already I'm feeling like I got hit by a Mack truck in the morning when the night is over. :( :( :(

This fucking SUCKS!!!

(sorry, had to get that out)

Title: Re: Starting Kudzu again...
Post by nani on Dec 6th, 2005, 8:28am
You can use kudzu and melatonin safely, mel. If it were me, I would add a kudzu at bedtime and take a melatonin as well. pf wishes and hugs, nani

Title: Re: Starting Kudzu again...
Post by lionsound on Dec 6th, 2005, 8:33am
Mel, I'm sorry you are hurting so much [smiley=hug.gif].


Maybe giving that O2 another go might be helpful. If it doesn't work then it wouldn't have  made you hurt  more. That clustermasx is a winner too. I understand your reservations, but two years is a long time...maybe you could try it at the firestation/rescue first.

Tons of PF's,
Rori

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 6th, 2005, 8:36am

on 12/06/05 at 08:28:07, nani wrote:
You can use kudzu and melatonin safely, mel. If it were me, I would add a kudzu at bedtime and take a melatonin as well. pf wishes and hugs, nani

Thanks nani.  Do you think 9mg is enough or should I go to 12mg instead?  I am definately adding in another kudzu before I go to bed though.

hugs,
mel

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 6th, 2005, 8:48am

on 12/06/05 at 08:33:46, lionsound wrote:
Mel, I'm sorry you are hurting so much [smiley=hug.gif].

Thanks Rori


Quote:
Maybe giving that O2 another go might be helpful. If it doesn't work then it wouldn't have  made you hurt  more. That clustermasx is a winner too. I understand your reservations, but two years is a long time...maybe you could try it at the firestation/rescue first.

I live out in the country Rori, it'd take us 30 min. to get to the nearest occupied firestation.  It'd be too late by then.  I'm sorry if I sound negative, but I am, LOL.  So far the kudzu has me at 1 hit a night.  That is AWESOME compared to my normal 4 per day/night.  I don't get hit during the day, and so far my hit hasn't gone beyond an hour.  Not only that, I'd have to call my neuro., make an appt., which can take 2 weeks, and by that time, my cycle will be 1/2 over.  I'm very fortunate compared to MANy here.... including you hon.

I'm sorry, I feel bad not taking your advice, but there are many reasons why I've decided not to this time around.  Hope you understand.

hugs,
mel

Title: Re: Starting Kudzu again...
Post by MJ on Dec 6th, 2005, 11:47am
Mellissa
Good luck with the Kudzu.

I just wanted to say that I am another who the oxygen has never worked for no matter how many times and how many ways I have tried it. So I understand your resistance.

Very happy it works for so many.

MJ

Title: Re: Starting Kudzu again...
Post by nani on Dec 6th, 2005, 12:09pm

on 12/06/05 at 08:36:34, Melissa wrote:
 Do you think 9mg is enough or should I go to 12mg instead?


I don't know, Mel. I'd say if 9 and an extra kudzu work, stay there...
Having been chronic, I tend to be cautious about too much melatonin. It can be a trigger for chronics. I never went over 6 mgs.
hugs, nani

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 6th, 2005, 12:17pm

on 12/06/05 at 12:09:36, nani wrote:
I don't know, Mel. I'd say if 9 and an extra kudzu work, stay there...
Having been chronic, I tend to be cautious about too much melatonin. It can be a trigger for chronics. I never went over 6 mgs.
hugs, nani

Thanks for the info. Nani.  Maybe because lower dosages tend to have a better effect on me, I should try going down instead of up.  I'm going to add in the extra kudzu right before I lay down, in addition to 6mg melatonin.  We'll see how that goes!

MJ, thanks for the understanding and the support. :-*

Title: Re: Starting Kudzu again...
Post by lionsound on Dec 6th, 2005, 1:47pm

on 12/06/05 at 08:48:51, Melissa wrote:
I'm sorry, I feel bad not taking your advice, but there are many reasons why I've decided not to this time around.  Hope you understand.

hugs,
mel


Mel,
No need to feel bad. I totally understand. [smiley=hug.gif] :) Thank you for taking the time to explain.
Since O2 is all I've got at the moment it gets stuck in my brain ...lol.

I'm very glad  that the kudzu is helping you. :)
-rori



Title: Re: Starting Kudzu again...
Post by Melissa on Dec 7th, 2005, 6:12am
12/07/05- 3:50am to 4:40am (kip3) If Eli hadn't crawled in bed with us, I might of been able to suffer through this hit without getting out of bed.  I lasted 1/2 way laying down, 1/2 sitting up in bed just rubbing my head.  At the very end, I did have to get up and move around.  I also shadowed for about 10-15min. afterwards.   I had taken another kudzu just before bedtime as well as 6mg of melatonin.  I woke up at around 2:00am expecting a ch to come, but was pleasantly surprised when it didn't.  I had hoped I wouldn't wake with one, but alas, I still did, only it was later.  I also didn't go to bed until 11:00pm the previous night, as to where I usually go to bed at 9:00pm.  Also, now that I think about it, I wonder if my being on Cymbalta isn't helping with the HA frequency?

In addition, I called my GP yesterday to let him know my anxiety has ramped up due to not having a full nights sleep because my cycle is back.  Seems he understood, as he called in a rx for me for 60 quick acting Xanax pills.  Of course, beings I DO have anxiety, I started worrying that I was going to become addicted, and scared to even take them.  But you know what?  I also told myself that if I get out of hand, there is always detox to get off.  Not only that, beings I AM scared to become addicted, I'm more careful as to how many I take and how often.

I'm rambling on this thread cause this is sorta my journal in my kudzu/melatonin/cymbalta/xanax journey.

hodgepodge


p.s. 31 days left!  (i think....i HOPE!!)

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 8th, 2005, 7:17am
12/07/05- 10:00pm to 10:45pm (kip4).  Took an extra kudzu before bed.  Didn't help, so won't do that again.  Got hit earlier this time, don't know why?  Seems that with each day passing, makes me believe that maybe there ISN'T a way to eliminate my 1 hit a night.  Unless I kill it with a trex, but I just can't see doing that for such a low level.  I mean, what if I come to the peak of my cycle and get slammed really good?  Then I wouldn't have my arsenol.  Anyway, going to just stick now with the kudzu at 7am, 7pm and just before bed the kudzu and 6mg melatonin.  I can survive, I can get through this, I won't drown myself in the bathtub, that's the easy way out and when in the hell do I do things easy?? ;)


p.s. gonna kick the melatonin up to 12mg tonight and see what happens.

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 8th, 2005, 10:04pm
Ok, took my kudzu and 12mg melatonin 20min ago and am now finishing my mug of roobios(sp?) tea.  My eyes are starting to slam shut, so will be off to bed soon.  I wanted to write this in first so I don't forget it tomorrow.

night night

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 9th, 2005, 5:58am
No more melatonin for me!  I got hit twice this time (first one being a kip5) and am regretting taking anything to alter my body's natural way of sleeping.  Tonight it'll be just the kudzu and a cup of tea.

*cuss cuss cuss cuss cuss cuss*!!!

I'll add more to this post later when I feel like it, lol.

Title: Re: Starting Kudzu again...
Post by nani on Dec 9th, 2005, 7:34am
Mel, are you only getting night hits? I wonder if changing your kudzu dose to (all of it) an hour or two before bedtime might help end the hits altogether? How many are you taking a day now? hugs, nani

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 9th, 2005, 7:40am

on 12/09/05 at 07:34:56, nani wrote:
Mel, are you only getting night hits? I wonder if changing your kudzu dose to (all of it) an hour or two before bedtime might help end the hits altogether? How many are you taking a day now? hugs, nani

Yup, only nighttime hits.  So far I take 1 at 7am, 1 at 7pm and 1 before I go to bed.  Should I skip the 7am does and just add an extra one to just before bedtime do ya think?  Any suggestion is welcome.

thanks

Title: Re: Starting Kudzu again...
Post by nani on Dec 9th, 2005, 7:49am
That's what I would do.  :)

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 9th, 2005, 8:34pm
Thanks Nani ya sweetheart. :-*

Well, took 2 kudzu at 7:15pm.   I'm gonna take 2 more before I go to sleep.

*crossing fingers for a good night*


Title: Re: Starting Kudzu again...
Post by Melissa on Dec 10th, 2005, 9:37am
12/10/05- 12:58am to 1:50am (kip2-3).  Well, last night went better, still got hit with the usual residual headache afterwards (still there, but that's OK).  Found out that the melatonin was making things worse for me, not better.  I took 2 kudzu before bedtime at 10:00pm last night in addition to the 2 at 7:15pm.  Felt out of it when I awoke with an attack, but am cool with that because the less I remember the better off I am the next day, lol.

Am now going to stick with my regiment of kudzu and tea and that's it.  I'll take the damn Excedrin Migraine for daily shadows (trying not to overdo it).

I'll update sometime later in the next week as to how I'm doing, sooner if anything changes.

Title: Re: Starting Kudzu again...
Post by nancyc on Dec 10th, 2005, 11:13pm
With zudzu are you suppose to come off all meds? I am getting desperate here....My meds have stopped working...in the past 2 1/2 years, i have had short periods where i was getting some hits but nothing like this...seems like my present meds are totally useless except for my back problems..THe only thing that helps is the imitrex shots but no preventatives....Maybe I need to try the kudzu...ALso, if you get drug tested, what does kudzu show up as?  smiles,nancyc

Title: Re: Starting Kudzu again...
Post by nani on Dec 10th, 2005, 11:58pm
Nancy, the beta testing leads us to think that kudzu may interfere with the efficacy of Imitrex if taken up to 2 hours before. It doesn't appear to be "dangerous" though. I don't know what other meds you're taking, so I can't comment on those.
If kudzu works for you, it will be as a prevent. It works really well for some people, takes a while for others and doesn't make any difference with a few. If it works, the Imitrex will not likely get used much, if at all.
Be well. hugs, nani

edited to add: kudzu is an herbal supplement, so it shouldn't show up as anything in a drug test.

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 11th, 2005, 8:55am
12/11/05- 12:48am to 1:55am.  Kip 2-3.  Had taken 2 kudzu at 7pm and 2 kudzu and 1 xanax before bed the night before (I think I freaking overdid it >:().  This morning I feel like absolute SHIT.  It feels like someone put my head between a wall and a door and just slammed it over and over again.  So, this morning for my daily pill regiment, I am going back to 1 kudzu at 7am and 1 at 7pm and no xanax before bed.  The xanax didn't help worth a crap for sleeping.  Still got slammed last night.  BUT, I take 1 .5mg pill each morning to help with my anxiety from losing sleep and it helps the shadowing immensely.  For the rest of the day if they get worse, I just hit the tea (or coffee) and excedrin migraine to take care of them.  I am now just accepting that no matter what I do, I'm gonna get hit at night.  I'd reach for my trex to kill it, but I'm trying this cycle med free because I am on enough stuff as it is right now.  Oh, and P.S. I went to bed at 8pm and woke at 7pm with that one hit inbetween, so I guess you can say I can sleep longer, but end up feeling more like shit in the morning.  Go figure.  I don't know why in the hell I keep messing with things that work to begin with.... I think it's because I want the attacks completely WIPED OUT.  Guess I'm looking for that fountain of youth, pot of gold at the end of the rainbow, etc. etc.  Well, I'm going to stop that.  If I get hit, I get hit.  I wanted a better quality of life during this cycle, but it looks like I'm making it worse, so I'm going back to what I began with, and that includes getting less sleep.  Hey, at least I can laugh in the morning. :-/


NANCY- The Kudzu may not take them completely away, just want you to know that.  It might lessen the frequency and severity though.  No matter what you try, just stick with the original and don't mess with things if you're unsatisfied right off the bat that it ain't working immediately.  That's one thing with us CH'ers, we want it NOW, but that's because the pain is so fucking excruciating. :(  Hang tough sis and let us know what you decide to do.



Title: Re: Starting Kudzu again...
Post by E-Double on Dec 11th, 2005, 9:10am
[smiley=hug.gif]

Tough as nails lady!

Be well and hope you have a quick ride

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 12th, 2005, 7:56am
OK, after going back to my original regiment of 1 kudzu at 7am and 1 at 7pm, and xanax as needed for anxiety (and not shadows), I am happy to say that I went to bed at 11pm last night, woke up at 4:00am with a kip3 that lasted approx. 25min.  Then went back to sleep and was woke with a shadow at 6am, did some visualization (a new thing for me with a subject i like) and it left in about 5min.

No heavy shadows so far, just a tiny one in the back of my head, but I could be stressing my eyes from being on the puter so damn much too. :-/

Bah, don't matter.  I feel so much better today and I do believe the kudzu is really working for me. :)

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 14th, 2005, 8:15am
WTF???  That mother fucker is just messing with me. >:(  Awoke at 1:43pm last night with a kip 7 or 8, had all the things I hate, moaning, crying, stand up, sit down, lean forward, move back, hit head repeatedly, etc. etc.  I felt like I should be in a washing machine. >:( >:(  Rode the fucker out and in the midst of my slam dancing decided I'm going to try the RC seeds.  I'm not going to suffer anymore.  I don't deserve this!  None of us do!!!  What really sucked was that after the attack was gone at 2:55, I was shadowing bad.  But I was so exhausted I went back to sleep, and woke again at 4:55 with another fucking attack.  It wasn't as bad as the previous, only a kip 3, but being so pissed off, anxious and out of it, I went ahead and downed 2 xanax and sat in the sofa to rock it out.  Sometimes I had to hold my head still tilted up with my mouth hanging wide open because the pain seemed to paralyze my jaw. [smiley=huh.gif]  Anyway, within 15 minutes I could feel the xanax kicking in and my CH started to go away.  Wasn't too much longer (I'd say about 5 min.) and it was gone completely.

I'm tired.

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 14th, 2005, 7:12pm
Well, since my other thread got hijacked ( ::)), I'll just continue on here.  I have decided to try the RC seeds and have now joined the CB site.  Due to my cycle ramping up like nuts, I've decided I'm just going to kill the cycle all together.  No more of this riding out B.S., or waiting to see if something will kick in.  My cycle is too short to wait for things to kick in, and because I still have enough time left to see if I will have success with the RC's, it'll still be important to do it anyway as reference for others.

Now, I'm not looking forward to tonight, but I AM looking foward to when my seeds get here and I can dose.  I'm not scared, but only hopeful.  

If it is brutal again tonight, I will take some xanax tho.  I refuse to just ride anymore out.  

I will update daily from here on out.  At least they'll be a before, during and after here.

p.s. I want to enjoy Christmas dammit!!!!

Title: Re: Starting Kudzu again...
Post by nani on Dec 14th, 2005, 7:34pm

on 12/14/05 at 19:12:30, Melissa wrote:
 Due to my cycle ramping up like nuts, I've decided I'm just going to kill the cycle all together.  


You GO, Melly! Keeping my fingers crossed that you'll have as much success as many of us have had.
hugs, nani

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 14th, 2005, 8:10pm
THANK YOU NANI!!!
;;D

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 14th, 2005, 11:28pm
I was sooooo tired I kept falling asleep sitting up, and finally at 8pm I couldn't take it anymore so I laid down in bed.  I fell asleep so fast I didn't know what hit me... until 9:23pm.  OMG the pain, the fucking pain, just thinking about it makes me wince.  I took 2 xanax with some water right away and hoped it wouldn't be a bad one, but within a few minutes I knew I was going to get my ass kicked.  It peaked at a kip 8 and that lasted until 10:15pm, where then it quietly tiptoed away...the bastard.  I have now put on a full pot of coffee as I am afraid to fall asleep again.  Dammit, I feel like I live on Elm St. or something. :(

*sigh*, I wish I had my seeds like yesterday, but it looks like the soonest would be Friday or Saturday.  Then I guess I'll get slammed pretty good after dosing, but hopefully that doesn't happen with everyone (namely me!).  Please Spirit, help to make it stop...

:'( :'(

Edited to add that as I got out of the shower (because the water had turned cold), I started to cry and moan amidst the twinges of pain, my husband came into the bathroom and just put his arms around me and held me.  He said he loves me and then asked if he should stay.  I just kept telling him over and over again that I was sorry.... My heart just breaks for this man who has given me his world.  Anyway, I sent him back to bed so I could finish my dancing alone.  And now that I think about it, I've told people that this is my cross to bear.  I think that's total bullshit.

Title: Re: Starting Kudzu again...
Post by Mr. Happy on Dec 14th, 2005, 11:59pm
If only you'd had canned air and a proper masx, (http://clustermasx.com) everything could've been different.

Maybe next cycle.
RJ

Title: Re: Starting Kudzu again...
Post by nancyc on Dec 15th, 2005, 1:00am
Mel, you are in my prayers, sis...hang in there..WE will make it thru this round...smiles,nancyc

Title: Re: Starting Kudzu again...
Post by jon019 on Dec 15th, 2005, 1:09am
Dear Melissa,

No hon, not yours to bear alone. Knothead here in Seattle who is thinking of you. Never met, talked or corresponded but think of you as family.

What happens to you, happens to me and and the whole CH family. Wishing you strength and courage, you already got my prayers.

Jon

Title: Re: Starting Kudzu again...
Post by MJ on Dec 15th, 2005, 1:25am
Ditto

MJ

Title: Re: Starting Kudzu again...
Post by zwibbs/Scott on Dec 15th, 2005, 1:53am
Hi Melissa---My prayers go out to every cluster sufferer. I'll special intention for you. The spirit will help. Just stay strong---I feel the same way with my wife. She doesn't need this added baggage, But they wouldn't have it any other way !

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 15th, 2005, 3:55am

on 12/14/05 at 23:59:12, Mr. Happy wrote:
If only you'd had canned air and a proper masx, (http://clustermasx.com) everything could've been different.

Maybe next cycle.
RJ

Yeah, could have, especially if I didn't have such shitty luck with it the past 2 cycles.  But I did talk to Cat on the phone, and will be purchasing a "masx" for next cycle.  But ya know, if everything works out on this new venture, I may not have to worry about it.

Nancy- Thank you sis, I can feel your caring through the miles.  Yes, you are right, WE will make it through. *hugs*

Jon- It feels very good to know that there are wonderful supporting people such as yourself, who don't know me from a hole in the ground, but will time out of your life to give encouraging and caring words.  Thank you so much.

MJ- That goes for you too!

Scott- that love is awesome.  Amazing, isn't it?  Thank you dear.

Everyone, this thread is my journal, and I do not mind anyone posting in it, but I may cry, complain,  bitch and more due to the experiences, but that's only going to be done on this thread.  I'm not going to complain anywhere else anymore.  At least here there'll be a log of my actions and feelings throughout the whole process of something that might be the end all of this suffering.  I do have a good feeling about it, now if I could only become an insomniac for the next week. ::)  lol

edited to add: I am happy to say that I have NOT started smoking again!!!  So I am VERY happy about that and will stay strong to resist going out to buy a pack in order to help cope this cycle.  *Deep Breath* ;)

Title: Re: Starting Kudzu again...
Post by nani on Dec 15th, 2005, 5:23am
Mel, IAMSHAMAN always delivers my stuff within 2 days, and I'm in NM. Being so close, my bet is you'll get yours today. Hang in there, hun. hugs, nani

Title: Re: Starting Kudzu again...
Post by Chillrmn1 on Dec 15th, 2005, 6:31am

on 12/14/05 at 23:28:00, Melissa wrote:
sigh*, I wish I had my seeds like yesterday, but it looks like the soonest would be Friday or Saturday.  Then I guess I'll get slammed pretty good after dosing, but hopefully that doesn't happen with everyone (namely me!).  Please Spirit, help to make it stop...


Hi Mel,
Getting slammed after dosing with LSA is not guaranteed. Hopefully you'll respond like I, just needed 1 dose and that was it, ended my cycle. I didn't experience any post hits except one silent one.

Wishing you great success!
Bob

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 15th, 2005, 7:14am
Posting this from another thread because I want everything to be in one spot...


Quote:
Flash wrote:
People with psychosis should not take hallucinogenic drugs beyond the threshold level.  But it might be OK to start with small doses of RC seeds and gradually increase these either until you find relief or start to feel a slight buzz.  But you must stop at the onset of a buzz.  Another option would be daily sip dosing which is sub hallucinogenic.  However attempt either of these and you must monitor your mental state very carefully, the slightest sign of any trouble (and I'm sure you know what those signs are) STOP!

Hallucinogenics may help depression, but depression may also lead to a bad trip.

Some antipsychotic drugs as reputed to bring people down off hallucinogenics, in which case they obviously block some of the actions.  Whether cymbalta is one on these drugs I do not know.  

Melissa wrote:
Flash, thank you. That was the answer I have been searching for.  My natural state of mental being is what I want, not something else.  I think I will get the seeds (after I figure out how I do that) and then test with small doses.  I am very intune with my mental capacity and follow my intuition very closely.  Any sign of trouble, and you bet I'll take action.  Thank goodness small doses of ANYthing work for me, so I know I won't go overboard.  I'll be doing more researching before I attempt and will keep everyone updated.

And to everyone else who responded to this thread, I do appreciate your imput.  Thank you.  


Flash wrote:
Start with 7-8 of the RC seeds and increase in increments of of 7 or 8 seeds.  Please note the applies only to RC seeds and not HBW seeds!  You probably should not exceed 30 RC seeds.

RC seeds should be ground and soaked for 24 hours in either water or alcohol.

Dose once every 5-7 days.

***

An alternative is sip dosing.  To sip dose:

1) Grind 15 seeds and soak for 24 hours.
2) First thing in the morning, shake the container, pour out 1/3rd of the mix, and consume in 1 gulp.
3) Prepared another 15 seeds and leave them soaking till for the next day.
4) 8 hours later... shake the container, pour out 1/3rd of the mix, and consume in 1 gulp.
5) At bedtime... shake the container, pour out 1/3rd of the mix, and consume in 1 gulp.

Repeat this every day for 1 week then take it from there depending on your success rate.

The basic idea is to consume 5 seeds every 8 hours.

This method sometimes works best after an initial dose of 20-30 seeds.

***

Another alternative is to only sip dose at the onset of each attack, but consume no more that 15 seeds in any 1 day, with the exception of the larger weekly doses.

I hope this information helps.  Post back if any part of it is unclear.  Be sure not to run out of seeds.


Title: Re: Starting Kudzu again...
Post by Melissa on Dec 15th, 2005, 7:20am
Nani- Oh man I hope so.  Especially since I gotta let them soak for 24hrs.  :-*

Bob- Oh that gives me hope!  Do you think maybe that chronics get slammed after dosing more so than episodics?  I mean, I can get through it, would definately NOT look forward to it, but it would be like having the rising sun on my face to not have to deal with that.  btw, thank you!

Title: Re: Starting Kudzu again...
Post by Chillrmn1 on Dec 15th, 2005, 5:08pm

on 12/15/05 at 07:20:41, Melissa wrote:
Bob- Oh that gives me hope!  Do you think maybe that chronics get slammed after dosing more so than episodics?  I mean, I can get through it, would definately NOT look forward to it, but it would be like having the rising sun on my face to not have to deal with that.  btw, thank you!


Mel - I can't answer on the chronic vs. episodic, and post hits seem to be the norm, BUT there are exceptions and hopefully you'll be one not to experience post hits. I'm hoping for ya!  ;)

PF Wishes At Ya!
Bob

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 15th, 2005, 8:46pm
Holy fucking shit. >:( >:( >:( >:(  BAD fucking time.  I have been so fucking exhausted that I just wanted to take a little nap sitting up in the recliner tonight.  I fell asleep at 4:30 and then woke at 5:30 with a fucking kip 8!  Holy shit, in front of my Eli, my Lily, my husband Jesse, I had no control.  I screamed, I cried out for it to stop, and I screamed again and again.  I have not felt that much pain since 2000.  I tried 3 excedrin migraine and 2 xanax at the onset, but it didn't do SHIT.  I'm even wondering if it made things worse.  Anyway, the hit lasted until 6:40pm.  Please God, if you are listening, may my seeds be in the mail tomorrow, for tonight I am NOT going to sleep.  I can't, I just can't bring myself to do it. :'( :'( :'( :'(  I do have trex to take, but want to give the alternative a chance to work and kill the mother fucker before he takes anymore of my life or scares the shit outta my little boy again.  Oh my poor Eli, he did not understand what was happening.  Jesse tried his best to explain it to him, but how does a 2 year old understand??  Once in awhile he would come over by me and say, water, ice, coffee, water, ice, coffee.  That is what i had sitting on the table next to the recliner.  When I had to scream, he left and ran by his daddy.  After the major bout went by and I had a nasty residual ch left, I went to the shower and sat in there for awhile.  When I got out, I laid down on the bed in just a towel, and was so comfy I almost fell asleep.  Well, that fucking BASTARD is still there in my head, so I got up as fast as I could, got dressed and got more coffee that Jesse had brewed for me.  I haven't stayed up all night in years, this is going to be trying for me.  Fuck, this is crazy, and I'm going to do anything to stop it.  My family is behind me and I'm confident in the people I have put my trust into.

Title: Re: Starting Kudzu again...
Post by E-Double on Dec 15th, 2005, 8:55pm
HUGS!!!

I'll hang out tonight if ya need.

E

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 16th, 2005, 7:35am
Oh wow...I tried so hard to stay awake last night.  So hard....  I ended up taking my pillow along with a thick fleece blanket, and just laying down in front of the fireplace after putting another log on.  I don't even know how fast I fell asleep, but I remember wakingi up feeling very cold.  I noticed the fire was out, so I grabbed my blanket and went into my bedroom, put it on top of the comforter, crawled in and passed out.

Next thing I knew, my husband was telling me bye  before he left for work.  It was 5am.  I don't know how, but I slept.  I SLEPT!  I am just breaking down in tears because it was like diamonds to me.  I told Jess that I must have been so deprived that it just "happened".  He said yes, and that he was happy that it "happened"., because I really needed it.

After my hit last night, kip 8 is as much as i can describe it...could of been closer to a 9, but afterwards, when I was able to speak, I said to him.  Now you understand why I am willing to do anything to end this.  He said yes, he does, and hugged me so hard. :'( :'( :'( :'(

I don't care if the seeds work or not, but I do have faith that they will,  but I feel like total ass for not even t rying something like this years ago.  Everyone here, and I mean EVERYONE, owes it to themselves to give yourself your life back.  No more crying from the pain that is so down deep within your heart from all the suffering you have been going through.  We are good people, so lets start treating ourselves better.  FUCK THIS SHIT, and dammit, I'm not  gonna take it ANYMORE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

edited for really bad typos due to stuff, lol

Title: Re: Starting Kudzu again...
Post by nani on Dec 16th, 2005, 8:14am
I'm glad you're not gonna take it anymore, Mel.  :)
Good to hear that you slept all night, too.
You know, it took me 18 months to try these alternatives, and I could just kick myself for not trying sooner. I could have saved myself all that pain and suffering. I'm optimistic about the relief you'll get from the seeds. They have helped so many of us. Thanks for keeping us posted, and sorry your other thread got hijacked.  :-/
hugs, nani

Title: Re: Starting Kudzu again...
Post by lionsound on Dec 16th, 2005, 8:15am
YAY! sleep!  :D

Title: Re: Starting Kudzu again...
Post by E-Double on Dec 16th, 2005, 8:22am

on 12/16/05 at 08:15:13, lionsound wrote:
YAY! sleep!  :D


What the basketball rack said

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 16th, 2005, 12:51pm
Fuck I hate being in cycle.  It's no wonder so many of us are on antidepressants. >:(  I felt like a lead head when I went to take a hot shower an hour ago, due to the xanax I took earlier.  I've decided, after crying in the shower and feeling extremely depressed (not suicidal, just depressed...I'm sure people here understand what I mean), that I'm quitting the xanax all together.  I'm not me when I'm on it, I don't like me when I'm on it, and it's a nice temporary fix of relief, but not something that one should live off of.

You know what I want?  What I REALLY want?  To fall into bed to sleep, with no worries about if Eli will hurt himself, or get into things and break them, or the dog having to go outside, or to have to answer the phone or the door.  I want to sleep, and sleep PF, and when I wake up, I don't wanna feel hungry or like shit.  Sleep should make a person feel recharged, refreshed and relaxed.  I hate feeling depressed.  It is not good when you feel like life sucks and it's a waste to even breathe.  Like I said before, I am not suicidal.  I do not feel like ending my life, killing myself, or any of that jazz.  I am just tired.

This morning I said to my daughter, "now do you understand why sleep is very precious like gold to me?".  She said, "yes I do mom, I really do".  I don't think she'll complain much about not wanting to sleep again, lol.  I love my family, and I will return.  Melissa WILL be back, I just wish she'd get here sooner... :-/

Title: Re: Starting Kudzu again...
Post by zwibbs/Scott on Dec 16th, 2005, 2:12pm
It will happen...You WILL return--------   :)

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 16th, 2005, 3:24pm
I am just balling right now.  OMG.  The tears won't stop coming, because today, I feel like I'm going to be saved.

I needed some sleep, just a little sleep.  I laid down at 12:30pm and set my alarm for 2:15pm (that's when the mail would be there).  Wouldn't you know it, I get awoken at 1:30 with a kip 8 again.  I think my head is going to turn black and blue because I beat it so fucking hard on the shower wall. :'( :'( :'( :'( :'( :'( :'( :'( :'(

It left me at 2:03.  I finally was able to get my clothes on and venture out to the mailbox.   :'( :'( :'( :'(  There it was... OMG I started to cry, I am still crying....  I wanted to take a fucking shotgun to my head only 30 minutes before then.  

Now I have to go crush some seeds, get out that beautiful bottle of wine, and let er soak...

*huge sigh* and more tears...

mel

Title: Re: Starting Kudzu again...
Post by Wendy on Dec 16th, 2005, 3:37pm
Wow, Mel just a few short weeks ago I felt just like you. I tried the seeds and I am a new person soooo I am sure it will work for you. Keep the faith and soak the shit out them first :-*

sleep is not far away
Wendy

Title: Re: Starting Kudzu again...
Post by LeLimey on Dec 16th, 2005, 3:40pm
Good luck Mel, I'm sure you are doing the right thing. Just remember everyone here is rooting for you and backing you every step of the way  [smiley=hug.gif]
lots of love
Helen

Title: Re: Starting Kudzu again...
Post by Margi on Dec 16th, 2005, 3:43pm
Aw, Mel - I wish I could just give you a big old hug and let you cry.

I'm sending up a prayer that these seeds are the magic you've been looking for.  

I'm a wee bit worried that you are just quitting the xanax though - is it safe to do that suddenly, do you know?  Honey I know you're at the point that you don't care and you just want the pain to stop - I want that too for you, you know that - but please do be careful ok?  

Keep us posted, Mel and, btw, you got TEN OUT OF TEN on the trivia today, ya little shit.  ;)  See?  Even totally sleep deprived, you still rock!

hugs, love and prayers,
Margi

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 16th, 2005, 3:58pm
Margi-

First off, LMFAO on the trivia, hahahaha. ;)

Secondly, yes Margi, it's the quick acting kind and it's for anxiety.  I'm already on Cymbalta for anxiety/depression, so the xanax is taken as needed.  Well, ever since I went into cycle, the anxiety did rise, but now I'm finding that it's not helping me lift my spirits, it's downing them.  Thanks as always, for the wonderful caring and support you give. *hugs*

Wendy and Helen, thank you both also.  For some reason, my gut feeling tells me that this will do wonders to end my cycle.  I am not afraid anymore.  At first I was all concerned about any "weird" reactions from any mind altering stuff, but after I thought about it, I probably get even more fucked up and loopy on the xanax!!! ;)

Right now, the seeds are ground up (I used my ultimate chopper) and they are soaking in a tiny A&W shotglass mug of Eli's, haha.  I have 2 hours set on the clock, and will try to hold out as long as possible, but my head is at a constant k2, which makes me very impatient.

I'll keep updating, promise.

Title: Re: Starting Kudzu again...
Post by Margi on Dec 16th, 2005, 4:04pm
good, Mel - I shoulda known you'd be on the ball.  ;)

Now go do that Santa Simon Sez thing that Ghost put up.  That will get you through some time and hopefully give you some smiles until the seeds are ready.

BIG hugs, keep us posted, ok?

Title: Re: Starting Kudzu again...
Post by Wendy on Dec 16th, 2005, 4:06pm
How many did you do? And soak as long as you can possible stand it, k? It took me quite a few of them but I am kinda tough headed ,LOL, But it worked like a charm!  I am rooting for ya!

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 16th, 2005, 4:12pm

on 12/16/05 at 16:06:50, Wendy wrote:
How many did you do? And soak as long as you can possible stand it, k? It took me quite a few of them but I am kinda tough headed ,LOL, But it worked like a charm!  I am rooting for ya!

Wendy, just 8 of them.  That is what Flash recommended for me as did BobW, since I am already on an antipsychotic.  I will try and soak as long as possible, but plan on at least drinking it down before bedtime.  

Thank you for the roots!!! ;;D

Title: Re: Starting Kudzu again...
Post by BikerBob on Dec 16th, 2005, 5:00pm
Wishing you the best, Mel.

If you're going to soak less than 12-24 hours you should stir it up every once in a while.

BB

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 16th, 2005, 5:32pm
Thanks BB, will do.

I had said earlier, either in this thread or another, that I had also ordered a stress tonic tincture from iamshaman.com.  I was told to hold off on using any of it, as it can be quite potent stuff.  Well, beings that my head, especially the right side around the temple, is extremely bruised, I figured I'd try just a tiny bit to see how potent it was.  Now the directions on the bottle say 30-40 drops 3X a day with water.  I only put 4 drops in a mug of my rooibos tea, and unbelievably, I can feel the effect.  It is definately calming, but yes, POTENT, lol.  

Just wanted to add that in here.

:) looking forward to this evening as I will not be laying down to sleep right after taking my dose.  Besides, I'm terrified the way it is to fall asleep right now. :(

Title: Re: Starting Kudzu again...
Post by nani on Dec 16th, 2005, 7:21pm
Keeping my fingers crossed for you, Mel. I'll be with you in spirit. I'll be doing a 9 seed maintenace dose tonight. It's been a month since my last dose, and even though I'm not really having any symptoms, I want to be sure I don't let the fucker back in. Keep us posted. hugs, nani

Title: Re: Starting Kudzu again...
Post by cmoore on Dec 16th, 2005, 7:53pm
somewhat odd coincidence, melissa. my seeds arrived today as well, are soaking in white wine as I write, and will be washed down this evening.  :)

We'll be fighting a joint venture across the nation. I will soon be posting my headache journal from this cycle and my soon to be experience with RC Seeds. My cycle is already on its way out, and in a way I don't really have to dose tonight, but if I can do it and i will not have any shadowing or attacks, i am down! Plus, I have decided, since this cycle was sooooo hard on me, that I am now dedicated to doind a dose the first of every month for the rest of my life, or until it doesn't work any longer, or until I do not need it!

Best of luck.
Chris Moore

If anyone uses AIM and wants a fellow clusterhead to talk with, I'll be online for a little while tonight.

AIM - chrismo5555

PFDANS to all

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 16th, 2005, 10:22pm
Chris, that's awesome!!!  Hope everything goes nice and smooooth for ya!! ;)


Thought I'd update right now before I head back to sleep (Jesse woke me up at 9pm because he had made a big fire in the fireplace for me to sleep next to.  I told him that I'd just take my pillow and blanket and sleep there, he said, "well I'll come and sleep out there with you".  I said, "but you have to work in the morning", and he's like, "I'll take my alarm out there".  I then said, "you just want to keep and eye on me", and he said, "well of course I do, I love you".  Hahahaha ;)

Ohhhhhhhhh K now, here we go:

2:30pm 8 RC Seeds (ground up with an Ultimate Chopper) began to soak in a jigger of Lambrusco (red wine)

6:00pm with no food on tummy for at least 2 hours, I drank down the jigger of wine + 1 of water to get all the seeds down.

6:16pm Felt a warming of my ears, sleepy, like I was just a little bit drunk.  I could feel a cluster trying to break through but with something trying to block it.

At 6:30pm I ground up 10 RC seeds to soak in another jigger of wine for my dose tomorrow.  Then I laid down to sleep.

9:00pm, hubby woke me up to come out to the family room and now here I am writing to update you all.

Basically, I should have gotten hit like a mofo approx. 1 hour after falling asleep.   Guess what?.... I didn't. ;)

I am not going to say ANYTHING right now as to what may or may not happen, because currently, I feel like something is trying to break through.  What is really cool, is I can roll my neck, even crack what is left to be cracked, and nothing happens.  

Will update again in the morning.

Love you all, have a good night.
melly

Title: Re: Starting Kudzu again...
Post by E-Double on Dec 16th, 2005, 10:26pm
Brought me a smile.

My wife is on board finally so I hope to join ya soon.

Hugs

Title: Re: Starting Kudzu again...
Post by Chillrmn1 on Dec 16th, 2005, 11:30pm
Mel - Glad you're responding well. Wish you a PF, restfull nights sleep with NO HITS.   :)

Eric - Great news you have your wife's support with the treatment. May you find complete success!

Bob

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 17th, 2005, 1:31am
Ok, it's 12:30am, I woke getting hit.  I have NO CLUE as to how high it's going to go.  So far, even tho I am having some pain, I can type...  sorta

I'll update this post when it has passed...

Ok, the bitch finally left at 1:23am leaving me feel like crap, but the pain level only went to a kip 4.  I drank a mug of rooibos tea (no time to make coffee) and took it in the shower with me because basically, I didn't know what else to do. :(  Anyhow, I am hoping that's the only hit I get tonight.  

Ok, one thing that I will be doing differently than others, is a 2nd dose tomorrow.  I know Flash says to wait to dose again in 5 days, but I'm not sure I can wait that long.  I do have 10 seeds soaking, and will decide tomorrow whether or not I'll take them.  And if I do take them, I will then wait the required 5 days to dose again...

TTFN

Title: Re: Starting Kudzu again...
Post by zwibbs/Scott on Dec 17th, 2005, 3:35am
Good morning Melissa- I hope that you are sound asleep at the time that I am typing this. Man I hate these damn things----I will keep you in my thoughts, and hope that the end is near. There has to be a reason that God gave us these. I am still searching for that answer, but  maybe---just maybe-----He thinks that we are strong enough to handle it. Out of several people in my family---I am the ONLY one to get these.....28 years and counting....every two years......My wife cringes when I say...UH OH---MY CYCLE IS BACK. Only this year did I find this board, and it is truly wonderful......Last week I went to my wife's business dinner and one of the guys at the table asked why I don't drink.........so I told him the truth, and he said he was also a ch sufferer..........unbelievable-----we acted like long lost brothers...........BE WELL AND STAY POSITIVE---IT IS ALL WE HAVE SOME OF THE TIME !

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 17th, 2005, 7:07am
4:30am, woke to hubbys alarm.  I wanted to go to bed and back to sleep, but was shadowing, so decided to stay up.  I am still shadowing now, and for about an hour from 4:45-5:45am it was at a kip 2.  I've decided that I am going to dose again today.  I am determined to knock that fucker out.

zwibbs- glad to hear you found someone with a common bond to know you're not alone, but pissed off yet another one suffers with this shit. >:(

Everyone, I want to thank you from the bottom of my heart for all your support and help throughout all of this.

mel

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 17th, 2005, 2:34pm
With the heavy shadowing I was doing this morning, I took 2 ginger capsules on a tip to help them.  I couldn't believe such a thing would help that sort of pain, but sure enough, they almost disappeared.  

10:30am- Still shadowing lightly, got very tired so laid down to take a nap until 12:50pm.  Woke up twice from the kdis, but that was about it.  Am now shadowing lightly again.  Took a ginger capsule and am now eating a shrimp ring (I have been sooooo hungry lately).

Will update later.


Title: Re: Starting Kudzu again... (UPDATED w/new route)
Post by Melissa on Dec 17th, 2005, 4:54pm
2nd dose, 3:40pm 12/17/05, 10 RC seeds in 1 shot glass (Mast's light up Christmas Tree, hehe) of Lambrusco that had been soaking for 19 hours.  Things are a little bit more acute and pronounced right now.  Will update later.

Title: Re: Starting Kudzu again... (UPDATED w/new route)
Post by LeLimey on Dec 17th, 2005, 5:17pm
Good for you Mel, smiles all the way  :-*

Title: Re: Starting Kudzu again... (UPDATED w/new route)
Post by E-Double on Dec 17th, 2005, 5:29pm
feel good!

Title: Re: Starting Kudzu again... (UPDATED w/new route)
Post by Melissa on Dec 17th, 2005, 11:53pm
Ok, had a 30-40min kip2 attack just a little bit ago.  Stomach is feeling queezy, but that is my fault, haven't eaten much today (spent a lot my time sleeping, LOL).  The only think I wish is that I had some 7up in the fridge. :(

Anyway, looks like the attacks are not only going down in pain level, but also time wise.  

I'm not staying up, my tummy is too upset, gotta grab the bucket and lay back down.  Hopefully I don't get woken up again tonight.

buh bye

Title: Re: Starting Kudzu again... (UPDATED w/new route)
Post by Mr. Happy on Dec 18th, 2005, 12:32am
Ahhhhhhhhhh.........the bucket. Something every parent of a projectile vomiting kid desires.
Eat a hoagie, Mel......or at least a Prune Danish. Topped off with 8 oz OJ, the regurgitant is most acceptable.

You da man, girl.
RJ

Title: Re: Starting Kudzu again... (UPDATED w/new route)
Post by Melissa on Dec 18th, 2005, 11:00am
Since the puter screen hurts to look at, I'll type this as quick as I possibly can.

First off, BIG HUGE MISTAKE on my part to do a 2nd dose so soon AND to let it soak in wine for as many hours as I did.  I had one hell of a mother fucking hangover (and then getting hit on top of it).  Holy shit I wanted to die last night.  Between the pain, the nausea and anxiety attacks, I didn't know if it would ever end.

Anyway, I survived (thank GOD).  I'll tell ya though, ginger caps being thrown back up HURT LIKE A MOFO. :(  

Things I did to help myself through this shitty time:

1. threw up (hahaha Hap, love you too)
2. cold packs, constantly on back of the head and forehead
3. kept warm, 2 thick blankets
4. when I could keep a pill down, I took a xanax.  After that one kicked in, I then took a second.
5. stayed in bed, slept off and on
6. 3 excedrin migraine
7. as soon as my tummy could tolerate more, I'd take sips of water.  OMG I cannot stress water consumption!  It's vital.  (it's also something my hubby told me was the best thing to ingest for a hangover, and he's right)

Ok, as of 9:30am, I am feeling a CH trying to break through.  The pain is maybe at a kip 1 (or 1/2 even), so I will be able to shower, get dressed and maybe DO something today!  In the past 24 hours, I have gotten hit a total of what, 3 times?  And of all the hours I slept, that is actually a really good record!

Next dosing time, it'll be with only 6 seeds soaked in water for only 2 hours, and I'm waiting at LEAST 5 days before I do that.  I do not want to go through this crap again, LOL.

Please God, let my cycle be broken...

Thanks everyone, for everything.

love,
melly

Title: Re: Starting Kudzu again... (UPDATED w/new route)
Post by Melissa on Dec 18th, 2005, 4:41pm
Okie dokie smokie, hehe.

It is 3:39pm here.  Since 11:00am, I have been 99% pain free.  I did have maybe 1 or 2 twinges, but that has been IT.

Tonight is the real test to see if I broke my cycle.  

BTW, I feel GREAT right now!  No headache, no tummy ache, no anxiety, just a little weak.  I am happy to report also, that we (hubby, Eli & I) are going shopping tomorrow for some much needed groceries and to finish our Christmas shopping! YAY!!!

In good spirits....
;)melly

Title: Re: Starting Kudzu again... (UPDATED w/new route)
Post by Melissa on Dec 18th, 2005, 7:47pm
Nap at 4pm-6:30pm.  No pain.  In fact, I found it hard to even get out of bed.  Don't understand why that is, could be due to being able to sleep without waking up in pain, or maybe I am just that exhausted since my cycle began. :-/  I told hubby I didn't want to get out of bed, he said I didn't have to....  That was cool. :)  I do remember tho, before I fell asleep, that I was so apprehensive of waking up in pain.  I'd crack my neck, and wait to feel that all familiar start of a cluster... but nothing happened.  I am so scared because it feels way too good to be true.  I guess only time will tell.  I'll update again tomorrow.

Title: Re: Starting Kudzu again... (UPDATED w/new route)
Post by Melissa on Dec 19th, 2005, 12:42am
11:00pm-11:30pm, kip 4.  Took 3 Excedrin Migraine at onset then danced in the shower with a cold pack.

I think next time I'll also have the coffee ready to go and try to abort with that and the shower together instead of any analgesics.  But we'll see.

I have also decided, that when I dose again, I will only do 4 seeds.  More is not always better. ;)  I have learned a very valuable and hard lesson.  I hope others do NOT make the same mistake I did and when someone tells you (namely the people at CB) that the LEAST amount is best, please do listen to them.



Title: Re: Starting Kudzu again... (UPDATED w/new route)
Post by Wendy on Dec 19th, 2005, 7:36am
Mel, sounds like you had some night? Mel, now how many did you end up doing all together. Now, I am not the person that knows but it would seem to me if you could take that many seeds time after time and be okay. Maybe, just maybe you could do a decent amount all at once. ONLY and only a decent amount works for me. I eat oyster crackers the WHOLE time while doing the seeds....before, during and after. I just suck on them and it helps alot with for the tummy. Ask the guys what they think as long as you didn't have a real trip issues and you did sound like you did alot just at different times, but close together. Maybe you could blast the bastard away???? Best of Luck, I am thinking about you :-*

Wendy


edited to say.....then you wouldn't be drinking so much wine either. I use very little. Its not easy going down but I DON'T DO WELL WITH ALCOHOL EITHER!

Title: Re: Starting Kudzu again... (UPDATED w/new route)
Post by Kevin_M on Dec 19th, 2005, 8:58am

on 12/19/05 at 07:36:50, Wendy wrote:
Maybe, just maybe you could do a decent amount all at once. ONLY and only a decent amount works for me.

Maybe you could blast the bastard away????


The concern for results can be accomplished in different ways but there are negative feelings to contend with which are real consequences for each to experience if it is not right for them.  Caution and gradual are good limits to adhere to with an individual's procedure to a new tactic, in this case, for something that can attain success in time.  

Title: Re: Starting Kudzu again... (UPDATED w/new route)
Post by Melissa on Dec 19th, 2005, 9:03am
Wendy, I did a total of 18 seeds within a 24hr period.  WAY TOO MUCH!!!  And way too close together.  I should have just tried 6 seeds soaked in water for a couple of hours for the 1st dose, and then wait at LEAST 5 days before doing a 2nd dose of either 4 or 6 seeds.  Because of what I did, I screwed myself royally.   I feel like crap, my anxiety is skyrocketing and I'm tired a lot.

Never again.  I am definately NOT ok.  I'll keep updating as the days go by, but I'm afraid being PF by Christmas is out of the question.  I should have never of been impatient, it was stupid and I could have probably either fried my brain or worse.  As a very very good friend told me, when we are in pain, and we say we'll try ANYTHING to rid ourselves of these headaches, we really have to know that when we say "anything", we really don't mean it, because there can be consequences that are worse off than what we had to begin with.

Sorry for the ramble, just had to write that out.

Title: Re: Starting Kudzu again... (UPDATED w/new route)
Post by Melissa on Dec 19th, 2005, 6:37pm
4:40pm-5:30pm, kip 3

I didn't even get a chance to sleep, we came home from shopping all day, and within 15 min. of laying down to catch a few z's before taking my daughter to Karate class, it slammed me.  *sigh*  

Hanging in there.

Edited to add:
8:40pm-9:13pm, kip 3

Title: Re: Starting Kudzu again... (UPDATED w/new route)
Post by catlind on Dec 20th, 2005, 1:28am
Keep hangin Mel, there's always someone to tie a knot at the end of your rope.  You will get through this, and you will be ok.   You've got my number, call me anytime, or if you want me to call you (flat rate long distance here) email me or IM me and I'll call you.

Cat

Title: Re: Starting Kudzu again... (UPDATED w/new route)
Post by Wendy on Dec 20th, 2005, 8:04am

on 12/19/05 at 09:03:24, Melissa wrote:
Wendy, I did a total of 18 seeds within a 24hr period.  WAY TOO MUCH!!!  And way too close together.  I should have just tried 6 seeds soaked in water for a couple of hours for the 1st dose, and then wait at LEAST 5 days before doing a 2nd dose of either 4 or 6 seeds.  Because of what I did, I screwed myself royally.   I feel like crap, my anxiety is skyrocketing and I'm tired a lot.

Never again.  I am definately NOT ok.  I'll keep updating as the days go by, but I'm afraid being PF by Christmas is out of the question.  I should have never of been impatient, it was stupid and I could have probably either fried my brain or worse.  As a very very good friend told me, when we are in pain, and we say we'll try ANYTHING to rid ourselves of these headaches, we really have to know that when we say "anything", we really don't mean it, because there can be consequences that are worse off than what we had to begin with.

Sorry for the ramble, just had to write that out.


Sorry to hear that Mel, Hoping things get better for you. Not trying to tell you to do anything that not right for you, thats why I suggested talking to the guys. Which I see you did from the other site we use. Just was thinking out loud?? And we are all so different when it comes to this stuff but hopefully in the end you will find what works what way for you. From the bottom of my heart I am wishing you and your family a PF Christmas.  Be well

Wendy
:)

Title: Re: Starting Kudzu again... (UPDATED w/new route)
Post by Melissa on Dec 20th, 2005, 8:31pm
5:30pm-6:00pm, kip 3 in freaking WALMART!!! >:( >:( >:(

That was the 1st, and hopefully LAST, time I ever got hit anywhere outside my home.  I don't know why my hits have moved to early evening, but it's PISSING ME OFF. :P


Cat- love you hon, I really do...thank you

Wendy- I understand I haven't taken it that way, so don't worry.  I just wrote on a tangent for others who may take the same route I have, in order so they don't make the same mistakes. ;)

edited to add:
10:00pm-10:30pm, kip 4...getting very very tired here... :(

Title: Re: Starting Kudzu again... (UPDATED w/new route)
Post by Melissa on Dec 21st, 2005, 10:10am
Well... I've been doing lots of thinking lately.  I think that perhaps my Cymbalta is having a blocking effect on any effectiveness of the seeds.  Each day is different from the last, whether it be times I get hit, or if I'm shadowing bad, or not at all.  I have decided, that I don't think I'm going to dose again.  I think it'd be a waste of seeds at this point.  Perhaps this is not the right cycle to be trying the alternative, as I am still trying to heal from my anxiety/panic disorder and being on the med I am, it is interfering.  I cannot get more than 2 hrs. PF a day, which is probably at fault of my Cymbalta somehow I'm sure. :(

I am now going to go back on the kudzu, see if that'll help at all, but if it doesn't, it doesn't.  I have ordered a clustermasx, and if I get it in time (which who the hell knows now with all the shit happening), I'll call my doc and have him rx me some O2.

According to past cycles, I shouldn't have any more than 17 days left of this shit.  Seems like forever to me right now....


UPDATE:

I talked with my doctors office, and they said it is OK for me to take the trex and also they are working on getting me some O2.  So, even if I only have 5 days left of my cycle by the time I can use it, at least I can find out whether or not it will work for me again.

Title: Re: Starting Kudzu again... (UPDATED w/new route)
Post by cmoore on Dec 21st, 2005, 2:37pm
Melissa - I dosed at the same time you did on friday night. I used 7 seeds, noticed no "highness." I had been reading in another thread that other people were using 10 seeds as a "sipping dose" (please let me know if you do not know what a sipping dose is) so I decided that my 7 seeds should not have an interaction with doing a larger dose on saturday night. I did 11 seeds on saturday night. I have been experiencing a lot of eye stwitching, tons of shadowing and get hit pretty hard last night.

Tonight will mark 4 days since my last RC dose and I plan to dose again. I am preparing a 25 seed dose. Because I have not experienced any psychoactive effects at all from the 9 or 11 seed doses and since I have read of other people doing as much as 50 seeds, I do not feel that the 25 seed dose will cause my to freak out.

From reading around on this site, I think that the RC seeds people have been ordering from iamshaman, need to be taken at higher doses than recommended on the clusterbusters website. This is just what i think!

I believe that the 9 and 11 seed dosings I have done have just kind of thrown my beast off its normal tracks. The hits have become less frequent, slightly less severe, but more than anything, they have last their predictablility. I just feel that my doses were not sufficient to shock the beast away.

Anyway, I will definately keep you posted on how my dosing turns out tonight. Best of Luck, if you would like to talk in greater lengths I am completely open to phone calls. Send me a message on this board or email me at moore.c.m@comcast.net

Title: Re: Starting Kudzu again... (UPDATED w/new route)
Post by Melissa on Dec 21st, 2005, 5:44pm
cmoore- Good luck to you with your treatment with the seeds!  I truely hope it works for you as it has for others.  Unfortunately for me at this time, it is not a feasible treatment to be following due to a medication I need to be on, but it is definately in mind for my arsenol for next cycle.

Ok, as of today I have only had shadows, and am supposed to get my lovely 2 attacks tonight before 11pm, so we'll see how that goes.  I have so far taken 1 kudzu at 8am and 1 at 3pm and will take 2 at 8pm, which is approx. 1 hour before I go to bed.  I'll keep on updating!!

:)mel

Title: Re: Starting Kudzu again... (UPDATED w/new route)
Post by E-Double on Dec 21st, 2005, 5:48pm
Good luck kid!!!

Try not to take your body & soul on a rollercoaster ride.

Wishing you relief quickly.


E

Title: Re: Starting Kudzu again... (UPDATED w/new route)
Post by Melissa on Dec 22nd, 2005, 7:32am
My attacks have now gone back to during the night like they were before.

1:38am-1:48am, kip2
3:24am-3:34am, kip2

As you can see, they were only 10 minutes in duration.  They are the kind where I just sat up and bed and rubbed my head until they dissipated.

As of right now, I am shadowing, but I think that's because my last kudzu dose was last night at 8:00pm.  I am scheduled to take another one at 8:00am.  So for the time being, I will probably just have 1 or 2 cups of coffee (no more, as I found out yesterday it aggrivated my shadows instead of improving on them) or tea.

Yesterday after my shadows had finally quieted down, I was PF for about 7 hours, which is the most I've been in quite some time.  So I'd say the Kudzu has definately started to work again.  Now if I can only keep the weather from moving 2 low fronts at once into the state, I'll be mostly PF till it's time for my cycle to move on! ;)

Modified to add: That since going back on the 'zu, I haven't needed any Xanax. ;)

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 23rd, 2005, 11:27am
I just wrote a bunch of stuff and hit "Post" then realized I wasn't even online. ::)  Lost it all.  So all I'm gonna say, is that this pain sucks, it's constant, and I want it GONE! >:(

14 more days!!!!

Title: Re: Starting Kudzu again...
Post by cmoore on Dec 23rd, 2005, 4:22pm
I have noticed that you have stated the exact number of days remaining in your cycle a few times. You have the ability to know exactly how many days you will be in cycle?

just curious...

-chris

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 23rd, 2005, 8:33pm

on 12/23/05 at 16:22:12, cmoore wrote:
I have noticed that you have stated the exact number of days remaining in your cycle a few times. You have the ability to know exactly how many days you will be in cycle?

just curious...

-chris

Chris, I have never had a cycle go beyond 37 days.  So, if I seem confident on the number of days left, you know why.  AND, obviously, I am hopeful it NEVER goes beyond that amount of time! ;)



current update: I now have 2 m60 O2 tanks and a couple NR masks, but was let known that my clustermasx is on its way to me!! :) :)

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 24th, 2005, 6:30am
OK here, I cannot believe it, but I got a whole 7 hours of uninterrupted sleep last night!!! :o :o :o  I think it's because I decided to take 3 excedrin migraine before going to bed (which works for me to kill shadows in addition to my prevention herb of choice, Kudzu).  

1 hit, 4:22am-4:42am.  20 min. it took for the O2 to kill it.  That was a long time, but at least it DID kill it!  The highest I could feel it ramp up to was a kip 4, so I think it was going to be a very nasty one. :(  Anyway, I'll be very very happy when Ben's mask gets here, as I am hoping to slice that time in 1/2. ;)

I may have found a regiment that works for me.  Kudzu, O2 and Excedrin Migraine.  I'll add to this post tomorrow with an edit as to how Christmas Eve goes....


Title: Re: Starting Kudzu again...
Post by cmoore on Dec 24th, 2005, 6:38am
i hope christmas goes well for you. I had a fine pain free day today and will be posting my whole experience from this cycle soon.

best of luck - chris

Title: Re: Starting Kudzu again...
Post by E-Double on Dec 24th, 2005, 7:14am
[smiley=hug.gif]

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 25th, 2005, 8:11pm
It was nice.  Was PF all day yesterday.  Well, at least till an hour after I went to sleep. :(

1:55am-2:03am, kip 7 knocked out with O2 pretty quick.  The next one didn't fare as well.

3:15am- 3:50am, kip 7 again, did 20min of O2 which didn't knock it out, so after huffing on that I headed to the shower to rock and rub it away.  After it finally left I went back to bed with wet hair (as usual) and a cold pack.  Slept until 5am when my daughter threw open our door and asked if she could open gifts from Santa. ::)  I think the past couple nights have been so active because of the weather, switching from rain to snow. (high and low fronts, barometric pressure has always been a PITA for me)

I am home early today from hubby's grandparents as I could barely keep my eyes open.  I'm trying to at least stay awake until 8pm when I take my Kudzu dose.  

I hope everyone else's Christmas was a PF one!

Title: Re: Starting Kudzu again...
Post by Mr. Happy on Dec 26th, 2005, 12:33am
If only you'e had a Clustermasx (http://clustermasx.com) to aid you in your time of chagrin.

Alas.
RJ

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 26th, 2005, 8:34am
Yes RJ, if only the post had 8 flying reindeer and Santas magic... *sigh*


ok, last night: 8:50pm-9:36pm, kip 7, $#^%#&%$&*##@@

this morning: 3:09am-3:21am, kip?,  killed with O2
                     5:20am-6:05am, kip 4


I've been disoriented lately, due to lack of sleep, so there have been times I haven't grabbed and turned on the O2, but found it easier to strip off my clothes and hide in the shower whilest rubbing my head. :-/  Probably because it's a little easier to coordinate than holding a mask on for 20min whilest rubbing head  [smiley=huh.gif].  Who knows.  I do know that I probably have 1 hit left on my tank and then I'll have to take her in for a fill up.  Good thing doc rx'd 2 of them, eh?

I'm going to nap again today as soon as I take my a.m. kudzu dose.  I am so very fortunate I don't get hit much during the day!!!!!

8)

Title: Re: Starting Kudzu again...
Post by Pinkfloyd on Dec 26th, 2005, 3:48pm

on 12/26/05 at 08:34:18, Melissa wrote:
but found it easier to strip off my clothes and hide in the shower whilest rubbing my head. :-/  Probably because it's a little easier to coordinate than holding a mask on for 20min whilest rubbing head   8)


Seriously, have you tried, or considered, taking the mask into the shower with you?


On a lighter note, I can see a promotional video in Ben's future if such a thing proved useful.  ;)

Hope things improve Mel,
Bobw

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 26th, 2005, 4:01pm

on 12/26/05 at 15:48:10, Pinkfloyd wrote:
Seriously, have you tried, or considered, taking the mask into the shower with you?

Actually no Bob, I hadn't even thought of that!!  I'll put the tank next to the shower, also that way I won't wake Jesse up.  Poor guy, that damn whooshing of the air makes him jolt up in bed. :(  I'll let ya know how it goes. :)  Only thing is, I hope I don't cut the air flow off in the shower door, LOL.



Quote:
On a lighter note, I can see a promotional video in Ben's future if such a thing proved useful.  ;)

Hope things improve Mel,
Bobw

Hahahaha, you know what?  I told Jesse (hubby if you didn't know by now) that he could film me during an attack, but because I tend to do the shower thing, I wasn't sure it was such a good idea. :-/  Obviously some think otherwise, LOL! [smiley=laugh.gif]

Thanks hon  :-*

Title: Re: Starting Kudzu again...
Post by zwibbs/Scott on Dec 27th, 2005, 1:20am
Hey Melissa---I just wanted to check in to see how things have been going....hoping you're getting more and more Pain-Free experiences---and, of course sleep!!!! My cycle is almost over. I never took prednisone/Verapamil before and this is like my fourteenth, or fifteenth cycle in 28 years......so...I'll keep on hoping that once I stop the meds that the pain is long gone.

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 27th, 2005, 10:19am
Hey Zwibbs, thank you so much!  I truely hope your cycle has ended for you. :)

Ok, last night: 9:58pm-10:06pm, O2
This morning: 4:21am-4:37am, O2, 8:04-8:25am, O2

I am increasing my Kudzu dose from 1 pill at 8am to 2 pills and am going to eliminate my pill at 3pm as I keep forgetting to take the damn thing anyway.  I will stay with my 2 pill dose for 8pm.


Title: Re: Starting Kudzu again...
Post by Melissa on Dec 27th, 2005, 5:35pm
I received my Clustermasx in the mail today!  I did use it for a shadow, which took it away in 3-4 minutes, but right now it's trying to come back.  I think that's because I have now sat down to relax after picking up around here and doing the dishes (which I haven't been able to do for almost a month now).  I am using the mouthpiece that comes with it, as I am having a blond day and couldn't figure out how to put the mask on so the O2 doesn't go out the wrong way (or something to that effect).  The mouth piece works great, but I only have one problem with it, and that is it makes my throat really really dry.  So I do need to take it out after a few huffs and cough, but since I think I'll be able to knock out attacks quicker, I can put up with the coughing. ;)

The big test will come tonight and I'll report in the a.m.!

:)melly

Update: 9:48-10:30, at least a kip7.  Used Bens clustermasx with the mouthpiece, but it didn't kill it like I'd hoped.  I ended up with a burned feeling in my throat and climbing into the shower and then to bed with an ice pack on my head.  Before I went to sleep tho, I made sure and detach the mouthpiece and attach the mask instead.

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 28th, 2005, 9:24am
4:36am-4:59am, heavy shadow that I decided I'd try killing with O2.  Brought the pain down considerably with the clustermasx (with mask attachment).  I then iced the area as much as I could stand, then went and had a hot mug of coffee.  Mind you, it takes me a considerably long time to get going in the morning, lol.  Anyway, I like the mask better than the mouthpiece, but am waiting until I get a "normal" hit to really put it to the test.  I'm going to start a new thread as I have questions for others about the mask itself.

Anyway, I'll update this post again if I get hit again before midnight.

Supposedly only 10 more days!!!

oh, and p.s. I will venture to town by myself today to do some shopping and refill an O2 tank.  Should be interesting!  HA HA, ack ack :P

Title: Re: Starting Kudzu again...
Post by cmoore on Dec 28th, 2005, 5:32pm
are you using a "bubbler"??? normally when the water is ran through the hydrating bubbler thing it is supposed to take care of the dry throat problem.

Title: Re: Starting Kudzu again...
Post by zwibbs/Scott on Dec 29th, 2005, 12:39am
I am having a blond day and couldn't figure out how to put the mask on so the O2 doesn't go out the wrong way (or something to that effect). ----------------------------------------------------------------------------------------------------------Now that is funny !!!!

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 29th, 2005, 3:36am
Chris- no, I don't have a bubbler (and I know what you're talking about)

Scott- ha ha ;)


2:15am-2:28am, used O2, I know it would have been a screamer.... I just know it.  I did have to take a Xanax because I was feeling a bit like a basket case with all the crap that happened yesterday. :(

5:05am-5:12am, used O2, killed it pretty quick
7:18am-7:34am, O2, THAT was going to be a bad one.

Title: Re: Starting Kudzu again...
Post by nani on Dec 29th, 2005, 9:43am

on 12/29/05 at 03:36:08, Melissa wrote:
I know it would have been a screamer.... I just know it.  
THAT was going to be a bad one.


Sounds like the kudzu and O2 are making a difference.
Yay!   :)

Way to hang in there, melly!  hugs and PF wishes, nani

Title: Re: Starting Kudzu again...
Post by zwibbs/Scott on Dec 30th, 2005, 1:11am
MELISSA--IT SOUNDS AS IF THE 02 has taken a very positive effect !!! That is truly  wonderful. My Neuro told me if the prednisone and vberapamil didn't work--then it was O 2 for me......Only problem is I smoke, and I had visions of blowing myself and my house up !!! I feel positive that you'll be getting some valuable rest ! Have a happy New Year.

Title: Re: Starting Kudzu again...
Post by E-Double on Dec 30th, 2005, 1:21am
Awesome Mel!!!!!!



and Scott get yor doc to stop sitting on the tank!!!
verap an dpred are prophylactic. it is disgraceful to withold an abortive wiuth a wait and see attitutde

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 30th, 2005, 7:08am
Yes, I suppose the O2 IS working!  I just wish it was a little quicker, but at least I'm not screaming in pain, just moaning a little bit. ;)

Scott- the O2 is an abortive you really need to try and there are MANY clusterheads who smoke, so unless you decide to light up while using it, you don't need to worry.  Also, if it bothers you that much, smoke outside instead of in the house.

Last night sucked, and it is either one, or both, of 2 reasons.  1. It snowed and 2. I decided to try taking melatonin again. :(  I think that with the combination it SUCKED!  I just can't take the melatonin, and I only took 6mg.  Oh well, at least I gave it a shot!

12:01am-12:19am, O2
2:32am-2:53am, O2
4:36am-5:17am, no O2 because by the time I realized what was happening it ramped up pretty quick, so I headed to the shower and rode most of it out until I calmed myself down enough to go lay down in bed with my head propped up on 2 pillows, with an ice pack at the base of my skull, and then sucked some O2 until I felt the shadows subside.

I'm freaking tired.

edited to add: I am going to use the mouthpiece on the clustermasx tonight.  I noticed if I turn the regulater down to 10 or 12, I can keep the bag filled and not burn my throat so much while breathing.  Also, today hubby took in one tank to be refilled and he got 2 of them and brought them home because I had just ran out of gas on the 2nd one I had.  He is so GREAT!  ;;D

Title: Re: Starting Kudzu again...
Post by zwibbs/Scott on Dec 31st, 2005, 1:20am
As I get ready to ship off to work---( anyone who thinks that being in your own business makes you a millionaire--NONSENSE) ---------------------Just wanted to drop you a line hoping that you wake up with no pain ! Have a happy New Year..................Scott-NYC

Title: Re: Starting Kudzu again...
Post by Melissa on Dec 31st, 2005, 10:36am
Scott- thank you so much, that was sweet!  A Very Happy and Pain Free New Year to you as well!! :)


Well, last night sucked. :(  I went to bed at about 11:30pm (fire hadn't died down in the fireplace yet) and woke up at 12:30am-12:47am, used O2, was definately a kip8 and almost got scared that the O2 wouldn't kill it, but thank the Spirit it DID!  

I did wake up again with another CH after moving to the sofa because the son decided to kick me out of my own bed after a nightmare.  Well, inbetween him going back and forth and waking me up so many times, I just grabbed an ice pack out of the freezer around 2am and froze the bastard to death.  That was the 1st time I ever had done that, so it was cool!  

The rest of the night was spent falling asleep off and on and when I woke up it was 8am.  I feel like I haven't slept a wink.

Oh well, onto the New Year!  Supposedly I shouldn't have more than 7 days left of this cycle....uh huh, yeah right. >:( >:( >:(   (Fuck!)


Title: Re: Starting Kudzu again...
Post by Melissa on Jan 1st, 2006, 9:44am
Cycle day 31...

12:39am-12:49am, kip 8 definately, killed with O2
3:06am-3:11am, killed with O2

I've noticed a change in the effectiveness of the Oxygen, and I believe it is due to my taking an extra 2 kudzu pills at 2:30pm yesterday.  

I also know why now I have such a bad headache every morning when I wake up.... I have a very bad cold.  Hopefully it's not a sinus infection, but it could be possible. :(  The pain for that is more centered between the forehead and the top of my head, and on the bridge of my nose.  My neck would be stiff every morning and my head felt like lead.  I believe the trigeminal nerve on both sides are also affected by it, so I was naturally confusing the pain with shadowing.  I also thought my ch's were trying to switch sides. :-/  Anyway, I took some AlkaSeltzer Cold medicine about 15 min ago, so hopefully that'll help.  Well, I think I'll need some asprin too.  Yup, happy new year to me, LOL.


Title: Re: Starting Kudzu again...
Post by Melissa on Jan 2nd, 2006, 6:56am
Last night 11:57pm-12:02am & 3:58am-4:04am, both killed with O2.

My regimen so far is as follows:

2 Kudzu (1200mg) three times daily
Multivit, Calcium, Magnesium & Vitamin C once daily
Cymbalta 30mg once daily (for anxiety/depression)
Alka Seltzer Plus Cold Medicine (for head cold)
2 Excedrin PM before bedtime
Oxygen with a Clustermasx to abort

Ever since I noticed I had a head cold, and it wasn't due to my CH's that my head felt like lead all the time (because I can confuse it with the nasal congestion I get from the CH's), the Oxygen has worked wonderfully to kill my attacks.  I do believe also, that there was no way I'd abort them this quick with the standard non-rebreather from the medical equip. place.  The Clustermasx has done an excellent job!

Title: Re: Starting Kudzu again...
Post by Melissa on Jan 3rd, 2006, 10:04am
What is today, day 33??  I think I actually may be at the end of my cycle.  It feels like it's beginning to wane.

Last night I had 2 hits, one from 7:25pm-7:50pm, killed with O2 when I finally made it to the tank 10 min. into my bout, and the second one was from 9:24pm-9:26pm.  Yes, you read that right.  I looked at the clock when it started and when it left.  I used O2 for that one also.

I am beginning to feel like myself again after I've had my Alka Seltzer Plus in the a.m.  I wake with a heavy congested head and a headache on my CH side, but it goes away pretty quick after I have the medicine.

The longest cycle I've ever had is 37 days long.  I hope that will always be the longest I'll ever have!

I'll keep updating until I don't get hit anymore, and I don't want to jinx anything, but I'm not superstitious, so I really do believe it's the beginning of the end for me. :)

TTFN

edited to add: I have decided that I am going to start tapering off the Kudzu.  I will be eliminating my morning dose for approx. 1 week, and then will eliminate my afternoon dose for 1 week, and then eventually eliminate my evening dose.  Hope it all goes well!  If anything ramps up, I won't reduce.

Title: Re: Starting Kudzu again...
Post by zwibbs/Scott on Jan 4th, 2006, 1:33am
What is today, day 33??  I think I actually may be at the end of my cycle.  It feels like it's beginning to wane.
--------------------------------------------------------------------------------------------------------------------------------------------------------Oh Melissa---I am sure hoping for you!!!!I've now gone 25 days with sleep---but during the day I get the little twinges, the end of these cycles are always so wonderful !!!

Title: Re: Starting Kudzu again...
Post by Melissa on Jan 4th, 2006, 8:56am
Thank you Scott :)


3:00am-3:12am, killed with O2.  Hits are getting to feel different lately, almost like they are weakening, but still trying to get me.  I woke up a lot last night, but I think it was due to my head cold, and confusing my sinus pain with cluster pain. :-/  I have to make an appt. with my doc to get checked for a sinus infection.  yuck.

Today is day 1 of kudzu taper.  I am not taking my morning dose.

Title: Re: Starting Kudzu again...
Post by teajay5779 on Jan 4th, 2006, 4:03pm
I'm new here Mel and I want to thank you for all this useful info. I've been meaning to keep a CH journal but never get my stuff together. I have been getting CH for 5 years now, Imitrex stopped working and I'm currently using O2 and Melatonin. I'm going to try Kudzu, (is that over the counter?) and I'm getting a clustermasx ASAP. Thanks again for the info
T

Title: Re: Starting Kudzu again...
Post by Melissa on Jan 5th, 2006, 9:36am

on 01/04/06 at 16:03:06, teajay5779 wrote:
I'm going to try Kudzu, (is that over the counter?) and I'm getting a clustermasx ASAP. Thanks again for the info
T

Yes, it is a root that is available OTC, but most order it online through vitacost.com, as most co-op's and health food stores do not stock it.  I am very glad to hear you have already ordered a clustermasx, it will save you precious time and pain! :)


Ok, went to the doc yesterday and he rx'd me some Bactirium (sulfamethoxazcle/trimethoprim, antibiotics for short, lol) for the sinuses.  I got hit twice last night, possibly more, but I think my sinuses are triggering my attacks because sometimes the sinus pain will merge with the CH pain and feels like a heavy shadow... if that makes any sense. :-/

2:30am-2:40am, O2
4:39am-4:49am, O2


Title: Re: Starting Kudzu again...
Post by nani on Jan 5th, 2006, 9:40am
Makes a lot of sense, melly. Hopefully once the infection clears up, you'll get some really noticeable relief. Last time I had a sinus infection, it almost killed me, LOL. The pressure is a huge trigger for me.
Keeping my fingers crossed that your cycle is over...
hugs, nani

Title: Re: Starting Kudzu again...
Post by Melissa on Jan 6th, 2006, 9:53am
2:39am-2:58am, O2
5:00am-5:04am, O2

The first hit I waited a whole 2 minutes to see if it'd ramp up before I hit the O2... what a difference 2 minutes makes. >:(  I was not happy with that one.

After my first hit, I woke up almost every hour.  What a crappy night.  :P

Title: Re: Starting Kudzu again...
Post by zwibbs/Scott on Jan 7th, 2006, 2:47am
Hang in , Hang in, Hang in !!!!!!!!!!!!!!!!!!!!

Title: Re: Starting Kudzu again...
Post by E-Double on Jan 7th, 2006, 2:53am
:-*

Title: Re: Starting Kudzu again...
Post by Melissa on Jan 7th, 2006, 7:37am
Scott needs pom pom's and Eric needs some lipgloss. ;;D  jk.. thanks you guys...

Yesterday I made an appt. with my Chiropractor as I am thinking my constant regular HA's are due to my neck being out of whack....again.  I had only seen him twice last year to help with my anxiety, which it did, and was doing awesome until the bitch knocked at my door.  (yes, the beast is a female, cause honestly there is no more dirty low down rotten mean thing I can think of, LOL)  I cannot wait to see him!  I go on Monday the 9th as he could not get me in yesterday as it was too late when I called.  I am so lucky that he sees me the same day 99% of the time.

Ok, last night 3:12am-3:17am, O2

That's it. :-/  They are getting weird now.  I didn't even wake up any other time than when I got hit.  The only thing I had done differently the night before is take my Kudzu dose before bed, as I forgot to take it at 8pm.  (so I took it at 10:30pm)  If I start getting hit twice one night and once the next, I have a feeling it IS actually starting to subside.... but we'll see.

Today is day 37.  I've never had a cycle last beyond 37 days.....   Guess I'm not that lucky this time around. :'(

Title: Re: Starting Kudzu again...
Post by Kevin_M on Jan 7th, 2006, 8:02am

on 01/07/06 at 07:37:08, Melissa wrote:
I have a feeling it IS actually starting to subside.... but we'll see.



:)

Title: Re: Starting Kudzu again...
Post by zwibbs/Scott on Jan 8th, 2006, 2:43am
My son is graduating from the " Culinary Instsitute of America" in April. Really smart kid---was accepted to the US Coast Guard Academy  ( one of the hardest schools to get accepted to) # 2 in his class---at the end of his first year calls home and says I want out !!!He was always a chef throughout High School so he always wanted this....At any rate I went to one of their restaurants for lunch yesterday---and ordered a drink ( 3 to be exact) ---first time in 2 months---AND-------I didn't have a problem !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!  Without the POM POMS I am pulling for you to be at the end !!!!

Title: Re: Starting Kudzu again...
Post by Melissa on Jan 8th, 2006, 7:03am
After 38 days, I did not wake up in pain last night. ;;D





The only pain I felt was when I woke this morning at 5:30 with a screwed up neck again (it'll stay screwed up till I see my Chiropractor) which I believe has been caused by a combo of falling asleep in weird positions, a TON of tension and possibly hitting my head repeatedly on the shower wall. :-/  I do believe that it has helped me for the past 2 nights, taking 1/2 a Xanax before bed and falling asleep with an ice pack at the base of my head/top of the neck.

Anyway, I can't WAIT till I see him tomorrow!  He is like a God in his field.  Never cracks me at all either.  I drive 45min just to see him, and I rarely see him more than twice a year.

It'll be interesting to see what happens, if anything, tonight! ;)

Title: Re: Starting Kudzu again...
Post by E-Double on Jan 8th, 2006, 7:10am
Sleep is good!

I miss it.

Hugs to you and continued PF times.

E

Title: Re: Starting Kudzu again...
Post by Melissa on Jan 9th, 2006, 7:19am
Got hit only one time again last night.

1:16am-1:23am, O2.  

I had woke 3 min. before that, but was unsure as to what kind of HA I was getting, LOL.  Between my CH's, tension HA's & sinus HA's, it's like now that my cycle is winding down, they like to meld with one another. :-/

Anyway, hope tonight is PF!  

Oh, and since today is day 6 of my Kudzu taper, I have decided to start today on cutting my afternoon 2:30pm dose.  All that will remain is my 8pm dose for the next 6 days.... then I'm stopping it completely.

p.s. thanks E2.  The sleep will come for you, it will! :-*

Title: Re: Starting Kudzu again...
Post by Melissa on Jan 9th, 2006, 5:50pm
Update- I went to my Chiropractor today and I definately needed some adjusting.  First off he told me that if I ever was to slam my head repeatedly into the shower wall again, that Jesse is supposed to drive me there to see him the next day.  Secondly, he said the constant headaches I've been getting are due to my anxiety and tension of the muscle that surrounds the very top bone of the spine that also protects the nerve bundle of the spinal cord (with the myleian sheath(sp?).  Anyway, because that muscle has tensed to the point of hardness repeatedly, it caused that bone to shift.  He did the adjustments on T1-5 on my spine, that one in my neck and also one on my forehead.  I could finally turn my head to the right side again!! (yay!)  

Well, to end off my appointment, he said that I HAVE to start worrying more about myself and less about everyone else, or I will just keep on having the problem.  You see, my cycle began due to stress in my neighbor lady, who is like an adopted mom to me, being diagnosed with breast cancer.  It was very stressing (and a shock) for me as that is what my Mom died from.  I won't go into details but some here know how traumatic that was for me.  To make a long story short, he said to practice more relaxation, take quiet time out for myself and worry about myself first, then family, then community, etc.  He also recommended a book to read to help that I'll be purchasing off Amazon.

Onward and upward!!

:)melly

Title: Re: Starting Kudzu again...
Post by nani on Jan 9th, 2006, 6:29pm

on 01/09/06 at 17:50:00, Melissa wrote:
Onward and upward!!

:)melly


GO, girl!   ;;D  hugs, nani

Title: Re: Starting Kudzu again...
Post by zwibbs/Scott on Jan 10th, 2006, 1:38am
Hey Melissa--As I have been checking in on your diary every morning--I hope this is the END. Pain Free days and nights for you !!!!!!!

Title: Re: Starting Kudzu again...
Post by Melissa on Jan 10th, 2006, 10:01am
Thank you Nani and Scott!!! ;;D


17 days.  That's how long it's been since we've seen the sun here.  It is FINALLY blue skies this morning and the sun is OUT! :D  That is awesome, because it goes with how my day will be today.

Last night, nothing to report!  Slept straight through again.  And that is even with only having 1 dose of Kudzu yesterday. (the 8pm, 2 pill dose)

Before I went to bed last night, I did have a full Xanax pill (due to my tension HA getting out of control due to coming home and DH being, uh, drunk :-X), but all it did was make me sleepy.  I also went to bed with an ice pack at the base of my head, as my Chiropractor told me to ice it as much as I possibly can.  So that is also what I did this morning as I awoke with another tension HA.  That has pretty much been the norm for me for the past 4 weeks, but at least I know what it is from now!

Today, hubby took Eli with him to work with his Dad, so I am here all alone.  I have some errands I need to run this a.m., but this afternoon I will use to my advantage to soak in the whirlpool tub with some sore muscle stress reducing bath packet.  I refuse to let shit pile up on me today.  I'm gonna do things at my own pace.

I also cannot wait till Thursday as I will be purchasing my wine!  I've decided that I will wait until I have 3 PF nights before partaking in a glass, instead of a full week.  If I DO end up getting hit, I get hit. :-/

Title: Re: Starting Kudzu again...
Post by E-Double on Jan 10th, 2006, 10:05am
Sounds like you're doing well kiddo.

Awesome!

Title: Re: Starting Kudzu again...
Post by Melissa on Jan 10th, 2006, 10:26am

on 01/10/06 at 10:05:41, E-Double wrote:
Sounds like you're doing well kiddo.

Awesome!

You amaze me Eric.  I know you gotta be hurting bad, yet you still are happy for me.  You know you're in my thoughts everyday hon...  :-*



Ok, wanted to add that for the past 6 days, my Grandma has been in the hospital.  She went in because she was very anemic.  Her iron count was 7, when it's supposed to be between 11 & 17.  Anyway, they checked her stomach, small & lg. intestines and her rectum.  They cannot find out where she is bleeding from.  They wanted to do a bone marrow biopsy on her yesterday, but the lab guy said he doesn't want to jump into that.  So instead, he wants her to take some iron pills for the next 2 weeks and then wants to check her again.  Right now they are working on getting her stronger, and she's already arranged for meals on wheels and a lady to come assist her when she gets back home.  That is such a huge load off of me, as when I took care of her after her back surgery last time I almost got burned out.  So, just wanted to add that to my thread. :)

Title: Re: Starting Kudzu again...
Post by E-Double on Jan 10th, 2006, 10:28am
It's all in my head ;)

Hugs to you and granny

Title: Re: Starting Kudzu again...
Post by Melissa on Jan 11th, 2006, 8:40am
Last night, nothing to report. ;;D


3 more nights of this and I will no longer be updating this thread.  ;)

Title: Re: Starting Kudzu again...
Post by Lissa on Jan 11th, 2006, 8:44am
:)

Title: Re: Starting Kudzu again...
Post by vig on Jan 11th, 2006, 10:18am

on 01/10/06 at 10:26:06, Melissa wrote:
You amaze me Eric.  I know you gotta be hurting bad, yet you still are happy for me.  You know you're in my thoughts everyday hon...  :-*

my thread. :)

I'm happy for both of you.
;;D

Title: Re: Starting Kudzu again...
Post by zwibbs/Scott on Jan 11th, 2006, 4:51pm
I think the end is HERE !!!!!!!!!! [smiley=laugh.gif :o

Title: Re: Starting Kudzu again...
Post by Melissa on Jan 12th, 2006, 6:52am
2:48am-3:01am, started the O2 after 8 minutes had passed.


Title: Re: Starting Kudzu again...
Post by pattik on Jan 13th, 2006, 12:18pm

on 01/11/06 at 08:40:15, Melissa wrote:
Last night, nothing to report. ;;D


3 more nights of this and I will no longer be updating this thread.  ;)


It sounds as if things are finally winding down for you, Melly.  Just keep trying to take that good advice about taking time for relaxation and centering.  Vibes to you AND your grandma. [smiley=hug.gif] [smiley=hug.gif]

Title: Re: Starting Kudzu again...
Post by Melissa on Jan 13th, 2006, 6:19pm
Nothing to report for last night either.


Thank you so much Patti!! ;;D  My Grandma is at her appartment now and sounds so much better.  I would have brought her home with me, but the last time was quite difficult, so I told her I just couldn't do it this time.  So now she has Meals on Wheels bring her food and a home care assistant to help her with the rest.

Title: Re: Starting Kudzu again...
Post by Melissa on Jan 14th, 2006, 9:04am
I just noticed my spelling is something to be desired in my previous post. ::)

Anyway, one hit last night, 3:17am to 3:27am.  I did not use any O2, just put an ice pack on the affected area.  I kept poking myself in the forehead, just above my eye, to see if it was still there and if I could get it to ramp up.  I was doing some testing with self inflicted pain...if you will, LOL.

That's all for now.

modified to add: DOH!!!  I left out that I had forgotten to take my 8pm (and only) dose of Kudzu yesterday.  SO, I have decided that since I did that, I'm not going to continue to take it for this cycle.  I am sure I'll be 100% CH free, it's just going to take a few days before it's gone for the next 18 months again. :-/

Title: Re: Starting Kudzu again...
Post by E-Double on Jan 14th, 2006, 9:21am

on 01/14/06 at 09:04:46, Melissa wrote:
I just noticed my spelling is something to be desired in my previous post. ::)

Anyway, one hit last night, 3:17am to 3:27am.  I did not use any O2, just put an ice pack on the affected area. I kept poking myself in the forehead, just above my eye, to see if it was still there and if I could get it to ramp up.  I was doing some testing with self inflicted pain...if you will, LOL.

That's all for now.


I can treat your self injurious behavior.
I'll give you my card ;)

Title: Re: Starting Kudzu again...
Post by Melissa on Jan 14th, 2006, 10:50am

on 01/14/06 at 09:21:38, E-Double wrote:
I can treat your self injurious behavior.
I'll give you my card ;)

LMFAO Eric!!!!!!!

___________________

Forgot to add, we finally went out to dinner last night, just hubby and I. :)  We went to a place called the Tempura House, and both had the Hibatchi Lobster & Shrimp.  OMG, yummmmmmmy!!!!  And right now, I am craving a cup of Sake. :(  We got a bottle of it from my Father-in-law (it is opened due to my brother in laws trying it, and not liking it.  Well DUH, they were drinking it COLD!!  YUCK! :P lol) who had gotten it from my bro-in-law who was stationed in Japan at the time (over the holidays).  Anyway, as it came with the pitcher and 4 cups, I was pulling them out of the box to get washed and noticed some Sake residue at the bottom of one cup.  I took a big whiff of it and BOY did it smell GOOD!!!  (yeah, I know, I'm pathetic ::))  

Now I have 3 yummy bottles of wine and some Sake to drink when I'm done with this blasted cycle! ;;D

Title: Re: Starting Kudzu again...
Post by pattik on Jan 14th, 2006, 11:22am
http://techhelpers.net/e4u/drink/trink39.gifI will make a toast with you, and I hope its soon (assuming I'm not in cycle) ;;D

Title: Re: Starting Kudzu again...
Post by Melissa on Jan 15th, 2006, 10:02am
TY Patti :)


Last night, nothing to report other than waking up due to son being sick, coming into bed and kicking me out, LOL.  I ended up sleeping in his bed while he slept with daddy. ;)

I did actually pour myself 1/2 a glass of Lambrusco yesterday... I sipped it, to taste what I could of any fruit, but I noticed that it all it did was make me tipsy real quick (and I only had maybe 8 sips??) and it was much more bitter and fizzy than I remember...  Basically, it's not a dry wine, but definately not a sweet one. :-/  And here all along I loved the stuff, but it is true that it'd mellow me out REAL quick!

I did notice some very slight shadowing, even after only having just a little bit, but no hits.  Needless to say, the rest of the glass got poured down the drain.  I am now going to wait until Dec. 27th to open my new wines and have a 1/2 glass.  That should be a good time to do so.  I'll be at DavCon in spirit!

Title: Re: Starting Kudzu again...
Post by Melissa on Jan 16th, 2006, 7:00am
Last night, no activity to report.

Title: Re: Starting Kudzu again...
Post by Melissa on Jan 17th, 2006, 1:10pm
Last post for me on this thread, and also last post from me for awhile on this message board, as I am going to be taking a break for awhile

Again, last night there was no activity to report.  I think it's safe for me to say that I am out of cycle now.

TTFN & I hope more become PF very very soon!

:)melly

Title: Re: Starting Kudzu again...
Post by E-Double on Jan 17th, 2006, 1:44pm
So happy to hear it!!!

Ya better keep in touch!

E

Title: Re: Starting Kudzu again...
Post by zwibbs/Scott on Jan 18th, 2006, 1:50am
Melissa--Great News!!! Have a great party, and don't be nervous. My cycle ended in December when I reached a point where I just got so pissed off that life was going on around me and I wasn't a participant !!! Enjoy these wonderful pain-free  moments !!!



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