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Title: Oxygen usage tips Post by ClusterChuck on Aug 8th, 2005, 10:09am There seems to be a lot of questions about usage and effectiveness. Here are some ideas that seem to work for me. BTW, I am NOT a doctor nor a respiratory therapist. I am just a clusterhead who has tried various methods, and found some that work, for me. If you don’t have a non-rebreathing mask The nose canula CAN work, if used this way: Do not put it in your nose. Put it in your mouth, close your lips around it, and inhale. Open your mouth to exhale, and then close your lips around it to inhale. Breath only through your mouth. Do not inhale any “room air” only the O2. If you can’t get a moisturizer Make your own. Take an empty (and cleaned) mayonnaise jar (or something like that), drill two small holes in the lid, the size of the O2 air line. Cut your hose, a foot or so from where it hooks to the tank. Stick the hose from the tank into the lid, and far enough down so that it touches the bottom of the jar. Take the hose that goes to the mask, and stick it into the other hole, but just far enough to stick through the lid. Seal around both hoses with a silicon type sealant. Put an inch or two of water into the jar. I attached mine to the tank with a bungee cord. BTW, if you put ice cubes into the water, it will cool the O2 somewhat. Many feel this helps it to work. If you are using a non-rebreathing mask I hold the mask to my face with my right hand. I hold it firmly to my face with the palm of my hand. When I inhale, my index finger goes over and covers the holes on the left side of the mask (the ones with the rubber valve over them), this is to make sure the valve seals fully. I place my thumb over the holes on the right side of the mask (the ones without the valve on them). I use my right hand, so that my thumb covers the holes on the right side. My thumb is larger than my fingers, so it does cover the holes completely. When I exhale, I just lift the finger and thumb (keeping the mask to my face by the palm of my hand), and let the air out of those holes. Some people tape over them. It works better for me, the way I describe it, as you don’t have to lift the mask, when you exhale. When and how long to use the O2 Grab the O2 as SOON as you feel it coming on. Speed is the name of the game. The sooner you get on the O2, the better the success rate. Stay on it for 15 to 20 minutes. If it has not killed the hit, stop using it. Bear through 10 minutes without the O2, and then hit it again. If the O2 does not work the first time, the second time is almost always the charm for me. Something about that 10 minute break seems to do it, for me. You don’t need to stay on it for the full 20 minutes, if it stops the hit well before that time. BUT, stay on it for 5 minutes AFTER the last of the pain is gone. The first and last place I have pain is just above my cheek bone, at my temple. I press my finger into that spot, and if I still feel some pain, I stay on the O2. If O2 does not or stopped working for you Try it again. I have gone through periods where it did not work at all. There have been other periods, where it only worked about 20% of the time. Keep trying it. Even if it only works a few of the times, those are hits that you did not have to take imitrex or suffer though a full hit. It has far fewer side effects than any other medication. It is worth it to keep trying. I hope some of these ideas will help you deal with the beast. O2 is the only abortive I can use. It has saved my life and sanity. I hope you get good results from it. Chuck |
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Title: Re: Oxygen usage tips Post by rextangle on Aug 8th, 2005, 2:38pm Thank you Chuck! 02 is the only thing I use now with some Melatonin at night. Your info will be valuable to all new users. BUMP! ;) Rex |
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Title: Re: Oxygen usage tips Post by Peppermint on Aug 8th, 2005, 11:08pm Chuck, glad you started this, I learned something NEW about 02 this weekend. Of course, the blabber that I am, I was in to see my doctor for yet another problem, and he prescribed steroids. I have the right to yell at my doctor, been going there for about 15 years now. So to make the long story short, I segued into a discussion about how I have come to know about the "cumulative" effects of steroids..... yadda, yadda, yadda... I end up asking him if he has clusterheadache patients, etc. Well, we get into a discussion, (course I got the requisite questions about what the heck do I know about any of this - fine by me ) asked him if he ever prescribes 02. He said not really. I yelled at him some more. Then I lecture him. He goes to pull out the very latest edition (16th Edition) of Harrison's Principles of Internal Medicine. He said 8-15 lpm was WAY too much 02 and that it had to be wrong...and the rebreather mask... OY....he wanted to confirm and prove me wrong. I thought I was going to end up having to argue with him some more. LO and BEHOLD!! It's IN THE BOOK as a valid treatment/therapeutic (don't remember the exact wording here) use for clusterheadaches. Don't that beat a dead horse !! So now, when your physician refuses you, you have a reference book that your doc may keep in the office. Not a 100% guarantee he/she will agree.... Mind you of course, he insisted that sterioids and treatment with verapimil and/or lithium (which I was surprised to know that he knew more than I expected) are the treatments to give because they work. Don't have to tell you what I said to him now do you? Baby steps. p.s. I think my doctor put me back on the pain in the ass list. You're the man Chuck, love you- Patty |
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Title: Re: Oxygen usage tips Post by lionsound on Aug 15th, 2005, 7:25am Thanks, Chuck! :) Used some of these the other night! -Rori |
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Title: Re: Oxygen usage tips Post by BikerBob on Aug 15th, 2005, 6:13pm Tanks, Chuck ;) Another oxygen tip: Don't run out, always know how long your oxygen supply will last and how long it will take to get a resupply. At 12 lpm an E tank will only last 44 minutes. An H tank will last 8.3 hours. Here is a calculator to determine how long your oxygen supply will last: http://www.monroecc.edu/depts/pstc/backup/paraoxca.htm BB |
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Title: Re: Oxygen usage tips Post by ClusterChuck on Aug 16th, 2005, 12:24am Thanks, Biker. I had seen that calculation page once before, but could not find it, when I wanted it. Glad it is in this thread. Next thing to add to this thread: Does anyone know of a site or chart that lists all the common tank sizes, names, dimensions and weights (empty and full)? Once we get all the pertinant info, maybe we can get DJ to add it to the oxygen button, or sticky it up here. Chuck |
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Title: Re: Oxygen usage tips Post by birdman on Aug 16th, 2005, 9:48am If you remove the head band from the mask it forces you to hold it against your face. I hated having those straps on my face. Plus I almost feel asleep a couple of times which is not smart. Thanks for the tip with the mayo jar. Gonna have to try that one, ice cold O2 sounds awesome |
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Title: Re: Oxygen usage tips Post by Chillrmn1 on Aug 16th, 2005, 3:33pm Good tips Chuck, especially like the jar and ice water for the moisturizer. Thanks, Bob |
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Title: Re: Oxygen usage tips Post by Salvelinus on Aug 16th, 2005, 9:19pm Thanks for posting the info, Chuck. This stuff is pure gold. :D I just recently came here and discovered O2. The first time I used it, I didn't know much more than to use a non-rebreather mask at 15 liters. I work at a hospital, so the equipment wasn't an issue. That's a good thing, because lately my hits have been coming in the middle of the morning. Anyway, I can't just leave my patient for 20 minutes without finding someone to cover for me, so I just sucked O2 as deeply as I could. I found that the pain reduced considerably within a few minutes, and went back to work. After a few more (up to 10) minutes, the pain was gone. For me, at least, staying on the O2 longer wasn't necessary. Just an idea for those trying to extend their tank life . . . I hope it works for someone else! Namaste, --Scott |
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Title: Re: Oxygen usage tips Post by Roxy on Aug 20th, 2005, 12:23am I think this thread needs a bump to the top. While catching up reading the site tonight, I noticed that there are many threads with people talking about the amounts of meds and triptans they are using.......but they almost never mention 02. Like Chuck says....if it didn't work for you before....try it again. Make sure you have all the equipment right. There is a picture of everything here: http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm There is also a new mask out that works great. I got mine from Mr. Happy, so I'm not sure where you buy them....but I'll ask him. I also use mine without the bubbler about half the time...they don't work well with a welding regulator... ;;D. It's drying on the throat and lungs....but I never notice at the time. Even if the 02 doesn't work real well for you, and at times if has lost it's effectiveness for me, it still helps me to get that mask on and breathe. I use it as a focus point. Just like in childbirth when they teach you to focus and breathe through the pain.....it works the same for a ch. I found out a long time ago that the pacing, crying, headbanging.....it only intensifies the pain. Roxy 8) |
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Title: Re: Oxygen usage tips Post by ben_uk on Aug 20th, 2005, 6:36am Well done Roxy, Happy you’re getting along with your mask ok Can I quote you? “it is saving my life at the moment” …. “It is simple and brilliant and is not only aborting my attacks faster but is also using way less 02 to do it.” – pubgirl “This is truly an industrial strength mask, worthy of any CHead. this setup is ON TRACK, given a 9.9 by the judges, and the wave of the future. “there is NO waiting for canned air. It's a must have item for anybody” - Mr Happy “Its an incredible device and aborts faster than a usual mask because it allows you to just keep breathing without waiting for the bag to fill. It also ensures you get a really tight seal to the face but with maximum comfort so you really do get nothing but 100% o2. I can't recommend it enough. O2 changed my life and this masx improved on that which I didn't think possible. I can't recomend it enough so go and take a look at them at www.clustermasx.com A lot of us here in the UK are using them and I for one will never go back to the old type!” – LeLimey ”I have to say that it ROCKS If anyone has gotten weak results with O2, I strongly suggest using this thing! The soft "air gasket" on the mask seals tight to my face and the check valve works perfectly - zero leakage keeps 100% O2 flowing. The large bag provides a reserve for taking a deep breath without drawing in any room air.” - Marc I can certainly vouch for the clustermasx! - LeeS “works great” – Roxy Just hit the link at the bottom of this message :o |
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Title: Re: Oxygen usage tips Post by LeLimey on Aug 20th, 2005, 8:45am Good Grief Ben, all the raving I've done about your masx and that was all you've printed?!! I honestly cannot recommend these masx enough folks oh and Ben.. please add that they are also available in Jasper-size ;) |
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Title: Re: Oxygen usage tips Post by Roxy on Aug 20th, 2005, 2:48pm on 08/20/05 at 06:36:50, ben_uk wrote:
You can quote me all you like Ben. I think I can do better than "works great"!! ;) This mask is awesome. The old masks would, after heavy usage, lose their form around the face. It would take both hands to hold the mask in place to get a good seal. I have to have one hand free.......something about holding and pressing the side of my head and eye, and holding an ice pack at the same time...LOL. This mask stays in place and seals with barely a touch. I agree with the quote....."this mask is a lifesaver". And I love the large bag, but I do still have to wait for it to fill. I can empty it with about three breaths. I also discovered that if you let the bag fill and then turn off the 02, it keeps the 02 in the bag....full....waiting for the next go around. So no sitting there waiting for that BIG bag to fill before you can get air. If I could, I would buy one of these masks and send one to everybody that uses 02. They are damn well worth the money. Roxy 8) |
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Title: Re: Oxygen usage tips Post by jon019 on Sep 14th, 2005, 10:27pm Hello ClusterChuck, Although I do not use moisturizer EVERYTHING you said is true. Its like you were there watching me! Hey everybody lissen to this guy!!!! One question, WHERE CAN I GET THE MR HAPPY MASK. PLEASE< PLEASE< PLEASE< I GOTTA HAVE IT. Regards Jon019 |
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Title: Re: Oxygen usage tips Post by Mr. Happy on Sep 14th, 2005, 11:01pm on 09/14/05 at 22:27:58, jon019 wrote:
Praise Wotan, son......your prayers have been answered. Mask of the Gods, and possibly a moisturizer will be yours, all in the same damned package. Give me your mailing address (randy@ouchpanj.org).....but hurry. The tide's going out, and we'll be clamming for the duration. Time is money, RJ |
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Title: Re: Oxygen usage tips Post by Donna on Sep 16th, 2005, 2:36am Hey Chuck, I am a new kid on the this site - though not new to clusters ( unfortunately ) I, finally, after having these God awful things for around 25 years have found helpful info from this site. To cut to the chase - my Doc agreed to the oxygen, but she refused to set me up with a mask or any high level dosage. I got only a tank with the hook up only for the nose - it goes up to 7 as the highest. I read your message regarding breathing it by mouth instead. Is this okay to do without any moisture ? Like I said the highest this puppy will go is 7, but I sure hope it helps. Do you know anyone who has gotten relief using it in their nose - or is that a complete waste. I was armed with info including the mayo clinics web site - but my Doc said that was too much oxygen. Geez... Any suggestions? Thanks so much!! Donna |
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Title: Re: Oxygen usage tips Post by Mr. Happy on Sep 16th, 2005, 6:55am on 09/16/05 at 02:36:06, Donna wrote:
Buy your own stuff. The nose tubes aren't worth squat. Get bubblers here (http://www2.mooremedical.com/index.cfm?PG=CTL&CS=HOM&FN=ProductDetail&PID=676) Get a Clustermasx here (http://homepages.nildram.co.uk/~tritech2/clusterx/index.html) Buy your own regulators on EBay, or give me a yell. Still got a bunch of 540's and 870's in the O2 box. Think long term.........once you have the O2, make sure you have the right accessories for proper delivery. Don't count on anybody else to provide the Right Stuff. You're gonna be at this for a while, RJ |
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Title: Re: Oxygen usage tips Post by Donna on Sep 16th, 2005, 10:44am Hey Mr Happy, Well, had 3 hits last night - You are right. I tried the basic oxygen set up for the first time - didn't do much -may have helped a hair...Also, my nose and throat became extremely dry. I was lucky this time - the first 2 hits weren't off the charts...The 3rd was though, ugh. Okay, forgive my medical ignorance, but I am not sure what I need exactly and how to connect all this stuff. Obviously, I need the mask and humidifier, but do I need something else ( a converter) to hook it all up? Again, I just have a big tank that goes up to 7 and the nose canula (?) Thanks for your help - I would be happy to buy any stuff that will get me through one of these horrific bastards. |
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Title: Re: Oxygen usage tips Post by Margi on Oct 18th, 2005, 11:51am bump - this is still a wonderful resource on o2 usage. Thanks, Chuck! |
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Title: Re: Oxygen usage tips Post by zanychef on Oct 19th, 2005, 3:49pm excellent tips everybody got my first o2 in 10 years today and had forgotten how to use it :-[ lol zany |
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Title: Re: Oxygen usage tips Post by Mr. Happy on Oct 20th, 2005, 11:50pm I really hate the idea of "Bumping to the Top." If a thread is good enough, it should live on it's own.......but in this case, so many have heard O2 for so long, so often, letting it slide is no big deal. There are many that haven't heard this for the first time. Sort of like Paul McCartney getting requests for Hey Jude. He must hate the song by now, but still sings it every time just like the first. That's professionalism. There are so few first's left in life. At least for me, that I can still do. O2. Cool stuff. RJ |
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Title: Re: Oxygen usage tips Post by jon019 on Oct 21st, 2005, 1:05am Ahh Mr Happy, Joe Dimaggio was once asked at the end of his career (not saying you're there) why he still played so hard. His response: There might be a kid out there who has never seen me play, I owe it to him! I got to see you play. Awesome stuff. Thanks. Nah nah nah, nah-nah-nah-nah, nah-nah-nah-nah, hey jude. Jon019 |
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Title: Re: Oxygen usage tips Post by jcmquix on Oct 21st, 2005, 10:12pm I just wanted to say Thanks for these tips, it helped me alot during my last cycle... wanted to move it to the top again.. Thank You Again.. God Bless Ya Charlie |
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Title: Re: Oxygen usage tips Post by zanychef on Oct 30th, 2005, 11:58am bump ;;D |
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Title: Re: Oxygen usage tips Post by Mr. Happy on Oct 30th, 2005, 6:31pm on 10/30/05 at 11:58:36, zanychef wrote:
Do you tip hoors _not_ to Nail you? This thread needs no bump. It stands on it's own merit, or fades into oblivion. Victory or Death. RJ |
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Title: Re: Oxygen usage tips Post by rextangle on Oct 30th, 2005, 9:29pm Bump! [smiley=biggrin.gif] |
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Title: Re: Oxygen usage tips Post by zanychef on Nov 7th, 2005, 12:04pm as so many people are finding out the joys of o2 better give a quick .......... bump ;;D |
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Title: Re: Oxygen usage tips Post by The Warden from Hell on Nov 24th, 2005, 10:09pm My dad was looking for a list of all the different tank sizes. The measurements, not the capacity. Did anyone find that information? I am trying to get it for him. Any help any of you can give me about where to find that, would be appreciated. PFDAN Steph |
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Title: Re: Oxygen usage tips Post by Mr. Happy on Nov 24th, 2005, 11:11pm Here's the only thing I've got with sizes, but it's incomplete.... http://mushys.com/pix/O2Tanks.jpg Here's a link from Rex that lists commercial stuff: Tanks? You're welcome. (http://www.generalair.com/gas/cylsizechrt.htm) |
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Title: Re: Oxygen usage tips Post by Jonny on Dec 2nd, 2005, 3:39pm Royal Bump! ;;D |
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Title: Re: Oxygen usage tips Post by E-Double on Jan 22nd, 2006, 12:56am :) |
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Title: Re: Oxygen usage tips Post by Mr. Happy on Jan 22nd, 2006, 3:19am Quit resurecting old threads. Let them live or die of their own accord. http://mushys.com/despair/persistance.jpeg |
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Title: Re: Oxygen usage tips Post by pattik on Jan 30th, 2006, 2:36pm BUMP ;;D |
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