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        New Message Board Archives >> Jan-Mar 2004 >> Need a vibe or two... BAD
        
(Message started by: bobkip on Mar 25^th, 2004, 8:48am)

Title: Need a vibe or two... BAD
Post by bobkip on Mar 25^th, 2004, 8:48am

Sitting here at 8:40 AM, waiting for the neuro's office to open and hurting like hell. But it's not CH, I fixed that fucker 3 weeks ago. My prob now is peripheral neuropathy, a nerve disorder that affects the extremities, mostly hands and feet, painful but nothing compaired to CH. Oh yeah, how did I fix the beast? I started drinking booze again. It aggravates the shit out of the neuropathy but the pain of CH far surpasses the pain I get in my hands and feet. I will not go back to a CH every hour during sleep and O2 not doing all that great. I hope the hell this new neuro has a clue 'cause I'm reaching the end of my rope. No, not that rope. But any input will be appreciated and thanks in advance.
Kip

Title: Re: Need a vibe or two... BAD
Post by thomas on Mar 25^th, 2004, 8:54am

Hey, hero, vibes on the way, man. ;;D

Title: Re: Need a vibe or two... BAD
Post by bobkip on Mar 25^th, 2004, 9:05am

Thanks bud, we all have our downs, don't we. Ain't gonna let this one get me, just haven't figgured out how yet.
Kip

Title: Re: Need a vibe or two... BAD
Post by Melissa on Mar 25^th, 2004, 9:17am

Dammit Kip >:( When are you gonna get a friggin break? I'm keeping you in my thoughts, and I hope everything turns out alright and whatever pains you're having takes a flying leap. Lemme know if there's anything I can do for you.

love,
:)mel

Title: Re: Need a vibe or two... BAD
Post by thomas on Mar 25^th, 2004, 9:18am

You know the family is always here for you, my friend. ;;D You will get through this, you are not a weak person by nature, your strength is what will get you through, plus the love and support of your family, of course. :)

Title: Re: Need a vibe or two... BAD
Post by KarynG on Mar 25^th, 2004, 9:29am

I'm hoping that the neuro can do something for your pain. Nerve pain is so difficult to treat and so very debilitating. I don't have any input or words of wisdom, but ALL of my thoughts/vibes are coming your way wishing that you are pain free very soon
Karyn

Title: Re: Need a vibe or two... BAD
Post by Mastifflvr28 on Mar 25^th, 2004, 10:04am

Big Vibes goin up to you Kip,
Good luck at the docs, let us know how it goes.
Take care,
Mast

Title: Re: Need a vibe or two... BAD
Post by AlienSpaceBabe on Mar 25^th, 2004, 10:13am

HUGE VIBES

Title: Re: Need a vibe or two... BAD
Post by Samantha_Smith on Mar 25^th, 2004, 10:25am

[[[[[[{VIBE ONE]]]]]]]]

[[[[[[{VIBE TWO]]]]]]]]

Title: Re: Need a vibe or two... BAD
Post by Cerberus on Mar 25^th, 2004, 10:27am

BK,

Tossin a few up for ya man, hope ya feel better soon!

Ramon

Title: Re: Need a vibe or two... BAD
Post by bobkip on Mar 25^th, 2004, 10:28am

Thanks loads. Called the neuro's office, told them I had CH, and the gal wanted to know if I needed to come in today. Good sign? Sure hope so but I deferred 'til April. It should be interesting tho. I'm hoping this guy knows more about CH than we do. It would be nice if he knew something about neuropathy too. But I/we can sure as hell educate the uninitiated on CH, can't we.
Kip

Title: Re: Need a vibe or two... BAD
Post by cootie on Mar 25^th, 2004, 11:09am

Sorry for all your pain kip......but don't neuro's know how to treat neuropathy.....I mean......wouldn't the visit today of helped figure out sumething effective for that ? I'm not totally familiar with it so whada I know but would hope there's something that'd work out there. Anti-pain Pam

Title: Re: Need a vibe or two... BAD
Post by pubgirl on Mar 25^th, 2004, 11:12am

Sorry Bob

Took me a while to reply. I didn't know what peripheral neuropathy was so I didn't want to reply without having some idea what you are suffering from or the words would feel a bit empty.

Looked it up on the neuropathy trust page. I had no idea there were so many people who suffer from this.
How dreadful to have this in addition to CH.
Also yet another thing that has a multitude of causes and is hard to treat.
I really am sorry, and send you as many Big Brit vibes as I can that you get some relief soon.

Wendy

Title: Re: Need a vibe or two... BAD
Post by Tiannia on Mar 25^th, 2004, 11:22am

Sorry you are in pain. I hope that he can help you. I am very sorry that you are having to many problems.
Vibes headed your way.

-Tia

Title: Re: Need a vibe or two... BAD
Post by ClusterChuck on Mar 25^th, 2004, 11:30am

What the Kipster needs, the Kipster gets!

VIBES Heading your way!

Hang in there, buddy!

Chuck

Title: Re: Need a vibe or two... BAD
Post by aprilbee on Mar 25^th, 2004, 11:30am

Huge Okie PF vibes comin' your way! Hope you can get some relief soon sweetie!

Title: Re: Need a vibe or two... BAD
Post by 357Mag on Mar 25^th, 2004, 11:51am

Quote:

My prob now is peripheral neuropathy, a nerve disorder that affects the extremities, mostly hands and feet,

Bob,
Major vibes Bro...since Carpal Tunel fits that category, I understand your pain.

Mind sharig a little background? Many causes of this malady and I am hoping that you can help narrow the field a bit.

I have a couple of family members going thru similar situations and hope I can shed some light on it for you.

If you prefer, feel free to respond via email hadenuff@kdlltd.com

Peace Bob,
-dan

Title: Re: Need a vibe or two... BAD
Post by 9erfan on Mar 25^th, 2004, 11:55am

Sending prayers your way Bob.

V.

Title: Re: Need a vibe or two... BAD
Post by stevegeebe on Mar 25^th, 2004, 12:26pm

Badda bing Bob and badda boom Bob.

Steve G

Title: Re: Need a vibe or two... BAD
Post by ShariRae on Mar 25^th, 2004, 12:37pm

HUGE huggs & vibes on the way..
Feel better bob!
Shari

Title: Re: Need a vibe or two... BAD
Post by broomhilda on Mar 25^th, 2004, 12:41pm

Huge hugs and Canadian vibes coming right over to you!!!!

Keep us posted

Andrea

Title: Re: Need a vibe or two... BAD
Post by miapet on Mar 25^th, 2004, 1:15pm

sending *positive energy and light*
miapet

Title: Re: Need a vibe or two... BAD
Post by ave on Mar 25^th, 2004, 5:23pm

Some very careful hugs coming your way and choice vibes from across the Atlantic.

keep well

Title: Re: Need a vibe or two... BAD
Post by KingOfPain on Mar 25^th, 2004, 5:29pm

VIBES !

VIBES !

VIBES !

You asked for a vibe or two......

You got three.

:)

Best of luck to you Bob.

Title: Re: Need a vibe or two... BAD
Post by BlueMeanie on Mar 25^th, 2004, 6:21pm

Sending vibes your way KIP. Hope they find & fix the problem soon. You could sure use a break.

Title: Re: Need a vibe or two... BAD
Post by Charlie on Mar 25^th, 2004, 6:31pm

Geeze Bob:

As I always say: How about one effen thing at a time?

http://www.netsync.net/users/charlies/gifs/VIBES & MORE.png

Charlie

Title: Re: Need a vibe or two... BAD
Post by BobG on Mar 25^th, 2004, 6:36pm

Vibes, prayers, good wishes and get well soon going out to you Bob.

Title: Re: Need a vibe or two... BAD
Post by jonny on Mar 25^th, 2004, 7:22pm

You hang in there Kip, your one of the strongest dudes on this planet with all youve been thru.....Your not done yet my friend!!!!!

................................jonny

Title: Re: Need a vibe or two... BAD
Post by Kevin_M on Mar 25^th, 2004, 8:10pm

Get better vibers to you. Hope there's something he can do. Don't know about it but keep fightin' it.

No neuro today?

Dim the lights and play spin the bottle.

Hang in there

Kevin M

Title: Re: Need a vibe or two... BAD
Post by Leesa on Mar 25^th, 2004, 8:22pm

HUGE VIBES for ya Kip and even bigger prayers for ya dear. Keep us posted on what the Neuro says. I hope this doc is the light at the end of the tunnel for ya hun.
Leesa

PS: send Judy my love :)

Title: Re: Need a vibe or two... BAD
Post by Sean_C on Mar 25^th, 2004, 8:47pm

Vibes comin Kip

Sean..................

Title: Re: Need a vibe or two... BAD
Post by Woobie on Mar 26^th, 2004, 12:49am

When you reach the end of the rope - hold ON!!!

Vibes comin -

tina :-*

Title: Re: Need a vibe or two... BAD
Post by Peppermint on Mar 26^th, 2004, 1:01am

Speedy Vibes to you Bob.. .

Pep

Title: Re: Need a vibe or two... BAD
Post by Mark C on Mar 26^th, 2004, 2:28am

BIG BOB VIBES!

Title: Re: Need a vibe or two... BAD
Post by sandie99 on Mar 26^th, 2004, 5:23am

Vibes are on the way!!!! ;;D
I hope that things will turn out for the better...

Best wishes & PFdays,
sandie99

Title: Re: Need a vibe or two... BAD
Post by juvy on Mar 26^th, 2004, 5:40am

The vibes are late but with good intentions. how are thing going?

Cheers,
Juvy

Title: Re: Need a vibe or two... BAD
Post by Luke63 on Mar 26^th, 2004, 9:57am

http://www.ninds.nih.gov/health_and_medical/disorders/peripheralneuropathy_doc.htm Try that link ok? Dont know if this helps...but my oldest brother is going through chemotherapy right now..and he has the neuropathy as well...supersensitivity...especially to cold..and he was given nuerontin....took about a week to work..but he's said the sensitivity has been greatly reduced......Good luck and VIBES!!! Luke

Title: Re: Need a vibe or two... BAD
Post by Tom on Mar 26^th, 2004, 6:42pm

Hi Bob,

years ago, when no MD could help my old father's extremely painful diabetic polyneuropathy I performed a research of the medical literature and after that gave him quinine (a known malaria drug) at a dosage of only 100 mg at night that resolved the problem immediately (he only had the pain during the night).

May be you would need more than 100 mg, and not only at night. Also carbamazepine and clonidine may be helpful.

Look at:

http://www.vh.org/adult/provider/familymedicine/FPHandbook/Chapter09/06-9.html

http://www.cheos.ubc.ca/Nervous.pdf

Wish you ATB!

Thomas