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        New Message Board Archives >> Jan-Mar 2004 >> Re: DO CH cycles decrease in remission time
        
(Message started by: thomas on Mar 22^nd, 2004, 6:32pm)

Title: Re: DO CH cycles decrease in remission time
Post by thomas on Mar 22^nd, 2004, 6:32pm

Sorry I can't give you a good answer, but some cyles are longer than others and some are more intense than others. If you are having them after sleeping, I recommend melatonin. I think t_h_b mentioned it earlier, it definately made a HUGE difference in my last cycle.

Title: Re: DO CH cycles decrease in remission time
Post by Superpain on Mar 22^nd, 2004, 6:34pm

Mine vary. Remissions have been as short as 6 months and as long as 2 or 2 1/2 yrs.

But... Each cycle is longer. :(

Actually now that I think of it, I think each remission gets longer and so does each cycle as time goes by.
So I guess I'm either looking at being PF for a long time or totally chronic within the next few years.

Title: Re: DO CH cycles decrease in remission time
Post by BlueMeanie on Mar 22^nd, 2004, 6:40pm

Hi Freddy,

From my 25 yrs with the beast I can say that every year I get them. No change in length between cycles. Pretty much (4 months on/8 months off) every year. The length the cycles last does change however. It's different every time. Anywhere from 8 - 18 weeks long.

Hope your cycle ends soon and is a short one.

ps. Have you read the Imitrex tip to the left of this page ? It has been a lifesaver for me. I get 2x aborts for the price of one.

PFDAN

Title: Re: DO CH cycles decrease in remission time
Post by FZfan on Mar 22^nd, 2004, 7:07pm

I think you'll find that remission periods and cycle lengths vary widely among the participants in this fascinating game. In my case, it varies. Shortest was 6 months, longest 18 months, but I can't really distinguish a pattern. Last remission was 9 months. My cycles run from 3 weeks on the short end to 6 weeks on the long end.

Predicting what this beast will do seems to be an impossibility. I haven't been on this board long, but in that short time, i've read lots of posts and I dont' think I can find any two people that have the same characteristics, life styles, or experiences fighting the beast. The only common denominator among all of us seems to be the horrible, horrible pain. In my mind, this lends credibility to the research into the hypothalamus as the root cause. In other words, I believe this affliction to be a birth defect. Each person's unique "biology", and possibly environment, accounts for the varying experiences (chronic vs. episodic, age, meds, etc) each person has with this defect.

Anyway, that's my stupid little theory. I hope your next remission comes very soon, and is a very long one. Right now wouldn't be too soon, would it? ;;D

Title: Re: DO CH cycles decrease in remission time
Post by Prense on Mar 22^nd, 2004, 7:12pm

on 03/22/04 at 18:28:46, HypnoticFreddy wrote:

Do CH cycles become more frequent as you get older. I am 31.

Mine have, but I am chronic.

Title: Re: DO CH cycles decrease in remission time
Post by Giovanni on Mar 22^nd, 2004, 7:13pm

My cycles have gotten much longer, but one long session each year versus two shorter cycles previously. The past two years I averaged 5 months of headaches each year. I have never been without a cycle in the later winter/early spring until this year using the alternative treatment. I am now pf for the first time in about 10 years for this time of year. I'm still holding my breath until the end of this month.

Back to your question. In my case, the headaches have gotten worse/longer as I get older.

Title: Re: DO CH cycles decrease in remission time
Post by FZfan on Mar 22^nd, 2004, 7:36pm

man, i'd go for the shrooms before i went for the opiates.

Title: Re: DO CH cycles decrease in remission time
Post by stuey on Mar 23^rd, 2004, 11:47am

I get them it seems every 3 years. The last cycle lasted over 8 weeks. I posted to you earlier in another post that verapamil finally stopped my cycle, because I, like you, wanted to bathe in imitrex and just couldn't get enough. Verapamil's a calcium channel blocker and a good one and 960 finally stopped it. I tried 720 and that didn't do it, but finally going up to 960 mg SR it finally stopped the cycle. I hope this helps in some way. Thomas thanks for mentioning the melatonin. I get them waking me up all the time too and I never tried melatonin for them. THanks. Stuey

Title: Re: DO CH cycles decrease in remission time
Post by Cerberus on Mar 24^th, 2004, 12:08pm

Hypmotized,

I am an Episodic sufferer, and Usually I experience a cycle in spring usually around Mid March and running until early april. THEN I have the "big one" in October that lasts as long as three months.
Here's the kicker, I haven't had a cycle in spring for two years, but, have always had the fall cycle like clockwork. This year...I can feel the bastard there but his power in spring doesn't seem to be as strong as in fall and so far I havent had anything I could call a CH or even a shadow.
I can also say that it is not uncommon for CH's to stop for years and suddenly come back, and/or suddenly change sides of your head. the point being nothing is impossible with CH so far as I can tell.
My final comments....It really appears to me that chronic sufferers have a harder time finding consistant relief than Episodics being whatever reasons there may be for that. Not a fact so much as an observation from my perspective.
I can also offer some light as to how to make your meds last longer......PM me if you are interested.

Ramon