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Title: C*I*L*L my doctor! Post by Superpain on Mar 18th, 2004, 12:17pm Is there a rule about cussing on this board? I've gotta vent! I just got off the phone with my new Dr.'s (family practice) assistant after leaving a msg yesterday. He wants my file from the neurologist I saw 17 years ago... How the hell am I supposed to even remember who that was!? I offered to send 20 yrs worth of my files from my family dr in Missouri, that chronicle my bouts with ch, but that is not good enough! So this F#*%!#* douchebag won't even give me O2 without sending me to a neuro! HIS neuro! Who TF is that!? What TF does he know about ch? Maybe he does, maybe he doesn't know his ass from a hole in the ground... But I don't have insurance and this doc knows it, but he wants to see me again, $$$, then send me to his neuro $$$$$$$, then MAYBE get O2, or whatever these two ignorant quacks come up with! I told them I know of better ch doc's here than they do, so what is the point of using his ignorant ass as a middle man!? >:( Just prescribe me a freaking bottle of O2!!!! "No. He's not going to prescribe anything till he know's what is going on with me..." MutherFU$*!#! I just told you what is going on with me!!!!! For Chrissake! It's oxygen, not oxycontin! I hate these quack-erasses. You would think that ch would be studied somewhere in that 8 or so yrs that these people spend in school. So now instead of this guy just being cool and listening to me, because I am the freakin EXPERT on this subject, and giving me a bottle of O2, I have to spend $400 on a specialist to get it. God I'm pissed. >:( Thanks for letting me vent.... 8) |
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Title: Re: C*I*L*L my doctor! Post by Melissa on Mar 18th, 2004, 12:28pm Quote:
Fuck no!! ;;D You go ahead and vent away! Your doc sounds like an not a very nice person, and I'm so sorry you're having problems. I wish there was some way I could help!! :-/ :)mel ok, the board will NOT let you type a*shole, but that's ok by me, LOL |
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Title: Re: C*I*L*L my doctor! Post by kissmyglass on Mar 18th, 2004, 12:34pm Actually you only need to spend around $100 down at you local welding supply shop....and you can be sucking O2 today! Good Luck Kev |
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Title: Re: C*I*L*L my doctor! Post by Superpain on Mar 18th, 2004, 12:36pm It just amazes me the way these people refuse to understand the sense of urgency that we are forced to have... Especially when it comes to OXYGEN! It's in the air! Fuck it... I'm gonna go buy a welding kit... |
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Title: Re: C*I*L*L my doctor! Post by Giovanni on Mar 18th, 2004, 1:15pm Kev gave you good advice...get your own via welding supply. On the internet you should be able to get mask, etc. If you're paying for all the stuff yourself this will be the least expensive way to go. Good luck, John |
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Title: Re: C*I*L*L my doctor! Post by helpless23 on Mar 18th, 2004, 1:21pm I totally understand! We went through the same thing about a month ago. My dr.'s excuse for not writing the O2 script for my husband was because we had children - it was too dangerous. So is CH. In any case, I don't know about O2 - but if you live in the Tri-State area (NJ/NY/PA) then I can give you the name of a very VERY good neuro that knows A LOT about clusters and won't insist that you have migraines. HE get's it and is very educated in CH too. Good luck with the welding kit! Hugz and much love, Toni |
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Title: Re: C*I*L*L my doctor! Post by Superpain on Mar 18th, 2004, 1:52pm I live in Phoenix, but thanks anyway! I know of a few good docs here referred on OUCH, but they're all about $400 for the first visit + medical O2 = about $1000... And sense I just took 2 weeks medical leave from my job... :( I'm all over the welding kit, but need a little more specific info on what I need. Any responses with specifics would be greatly appreciated! PM if need be... |
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Title: Re: C*I*L*L my doctor! Post by Roxy on Mar 18th, 2004, 2:09pm Quote:
Why don't you sign up for the Zomig Clinical trials. Won't cost you anything, and they are using the Mayo Clinic (Dr. Dodick) in Scottsdale for the trial. I use welding 02, works great. |
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Title: Re: C*I*L*L my doctor! Post by Tiannia on Mar 18th, 2004, 2:14pm on 03/18/04 at 13:52:13, Superpain wrote:
Here is the link from the left http://www.headachesupportgroups.com/oxygen/oxygen.htm This should get you started. PF Wishes to you, Tiannia |
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Title: Re: C*I*L*L my doctor! Post by Mac on Mar 18th, 2004, 2:34pm If the "doctor" knew anything about cluster headaches he wouldn't have hesitated prescribing the 02. I could see if it was a med but that's ridiculous. One other thing my American friends. How can you guys afford to be sick? $4oo.oo for a visit? Holy Fuck! :o |
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Title: Re: C*I*L*L my doctor! Post by jonny on Mar 18th, 2004, 3:02pm Buy a medical regulator on ebay, make sure it goes to 15 LPM. Go to the welding supply joint and buy a 3"X1/4" NPT. Stem (National pipe thread), a CGA-540 02 connecting nut and some teflon tape. Unscrew the medical connector on the regulator and toss it in the trash, Slide the nut over the stem and tape the stem threads with the teflon tape.....screw it tight into the regulator and your done. slap that sucker on the tank and start sucking. When you first turn on the tank put some soapy water on all the connections to make sure there are no leaks, Also.....NPT is very important when buying the stem, anything else wont fit. Happy Sucking ;;D..Dont forget a non-rebreather mask (Medical supply joint) .......................jonny |
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Title: Re: C*I*L*L my doctor! Post by kissmyglass on Mar 18th, 2004, 3:14pm Jonny, instead of all that mumbo jumbo, why not just use a welding regulator? Thats what I do. I have no idea how many LPMs i'm getting but fuck it,it works & my bag is always full.. T, what kind of regulator you use? Kev |
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Title: Re: C*I*L*L my doctor! Post by jonny on Mar 18th, 2004, 3:49pm LMAO.....The mumbo jumbo is the long way of saying "Unscrew and then screw in" Its alot easyier than doing this http://im1.shutterfly.com/procserv/47b3d729b3127cce8e4811732d1e0000001610 ...........................jonny ;;D |
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Title: Re: C*I*L*L my doctor! Post by Tiannia on Mar 18th, 2004, 3:51pm on 03/18/04 at 15:14:58, kissmyglass wrote:
I dont hun. I'm in the same boat as Superpain. But I also have my husband who will not under any circumstances allow me to use welding O2 because he does not think that it is healthy or safe. So until I can get a doc to prescib it, I am Shit Out of Luck. Yes, Mac. Doctors here can charge whatevery they want. That is why hea;thcare is such a big issue over here. Like trying to understand why I can get 12 Imitrex tables a month (6 every two weeks at $25 per fill) or I can get 6 Imitrex NS every 25 days at $50 per fill. Neither one is really enough to handle my HA, so I have to wait until it gets to the point that I know it is going to be a K8+ before I use either. Because according to the insurance company and the pharmacy "no one gets more then 6 HA per month". Like I said I must live a month each and every figging day for the past 9 months now. Hell I've lived 22 1/2 CH years already. Damn no wonder I feel old. ;) Tia |
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Title: Re: C*I*L*L my doctor! Post by jonny on Mar 18th, 2004, 4:04pm on 03/18/04 at 15:51:26, Tiannia wrote:
medical and welding tanks are filled from the same main tank, only diff is that the medical tanks are inspected by the state once a year. $150 will get you a brand new welding tank, BAMM!!!....All is safe ;;D and no rental fees. ....................jonny |
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Title: Re: C*I*L*L my doctor! Post by Tiannia on Mar 18th, 2004, 4:11pm on 03/18/04 at 16:04:36, jonny wrote:
Jonny, I know and I've spent 9 months trying to explain it to him and we just end up fighting about it. :( At the meet and greet here in Vegas, they told me that he was a crappy supporter if he was not willing to get me anything that easily accessable to help with the pain. But it is not worth me losing my family over. :'( I deal. I've gotten pretty good at it. - Tia |
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Title: Re: C*I*L*L my doctor! Post by Superpain on Mar 18th, 2004, 4:26pm Coolness! Thanks for the info guys! I think I'll take the duct tape/welding regulator route for the short term till I can get the parts for the superpro modified class... ;;D That sucks Tiannia... Have you thought about taking some cookies or something to your local firestation? If you have one close it might be a good idea to make friends with those guys for the bad ones. |
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Title: Re: C*I*L*L my doctor! Post by Tiannia on Mar 18th, 2004, 4:33pm on 03/18/04 at 16:26:22, Superpain wrote:
Actually, that is the good thing. I have a fire station right next to my work. Literally we share a dirveway. So everyone at my work knows that if I get hit really bad to help me get over there. They are really great about it too. I've only had to do it once, but it was a life saver. Told me I could come back whenever I needed. Good Luck Sup. PF Wishes Tia |
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Title: Re: C*I*L*L my doctor! Post by kissmyglass on Mar 18th, 2004, 4:36pm Sorry Tia, I meant "T" as in Roxy... :) But Tia, tell hubby to read Jonnys post...THEY FILL THEM FROM THE SAME TANK! K |
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Title: Re: C*I*L*L my doctor! Post by Tiannia on Mar 18th, 2004, 4:45pm on 03/18/04 at 16:36:19, kissmyglass wrote:
Actually we are both Traci's I just spell mine differenty. To be honest, I can t get my husband to even look at these boards. He is there for me when i need him to be, but to deal with this daily he cant handle it so he buries his head in the sand. I cant force him. Everyone on this board gets me through the day to day stuff. Tia/Tra |
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Title: Re: C*I*L*L my doctor! Post by t_h_b on Mar 18th, 2004, 6:16pm Tia, call an oxygen supply company, tell whoever answers the phone that you need for them to explain what Jonny said, and then hand the phone to your husband. Or maybe give your number to Jonny and ask him to call your husband. I imagine that Jonny can be very convincing over the telephone. If he won't listen, just go get your own oxygen. You can order the tank and supplies over the internet and the oxygen company can come pick it up and fill it for you if you are quadriplegic or something. |
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Title: Re: C*I*L*L my doctor! Post by t_h_b on Mar 18th, 2004, 6:22pm on 03/18/04 at 14:34:31, Mac wrote:
That's why only (some) people who work or those who are very poor or fairly wealthy or over 65 years old have insurance and good access to health care in the U.S. If you don't have insurance you can wait until your condition is life-threatening and then go to the ER and get enough care to make your condition non-life threatening. On the other hand, we can have elective surgery scheduled and performed within a week or less if insurance or financial resources are present. |
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Title: Re: C*I*L*L my doctor! Post by jonny on Mar 18th, 2004, 6:38pm on 03/18/04 at 18:16:09, t_h_b wrote:
They wont, Gas suppliers are instructed to never tell the public that the 02 comes from the same main tank. My gas guy only told me cause I have been dealing with him for over ten years, He also converts medical 02 regs for me cause he knows its safe. I will be glad to talk to anyone on this subject. ............................jonny |
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Title: Re: C*I*L*L my doctor! Post by Roxy on Mar 18th, 2004, 6:57pm on 03/18/04 at 15:14:58, kissmyglass wrote:
Hey Kev..... :-* I use both regulators. I have a medical reg on my big tank, and a welding reg on my smaller tank that I carry in the truck. I like the welding regulator better....the bag is never empty, and at 15lpm on the medical reg, I can't keep the bag full. Tia, I agree with jonny. Don't tell the welding company what you are doing, or what you need the parts for. If they know, they are obligated by law to refuse you. I'm like jonny, my place knows what I use it for, but our ranch has dealt with them for over 25 years now, so they let it slide. They know my acetylene only gets filled every couple of months..... ;;D |
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Title: Re: C*I*L*L my doctor! Post by stevegeebe on Mar 18th, 2004, 8:45pm Look...I blazed through this post and all I can say is, "Send this Dr. a fucking invoice! Steve G |
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Title: Re: C*I*L*L my doctor! Post by catlind on Mar 18th, 2004, 8:55pm Tia, my O2 was delivered from a medical home care company - IN A WELDING TANK. In fact, when I sent Jonny the pics of the tank he told me he wouldn't even use that for his shop FOR welding. And that tank was supposed to be state inspected. Soooooo tell your hubby that one, that was when I was still in Upstate NY. Cat |
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Title: Re: C*I*L*L my doctor! Post by bobkip on Mar 18th, 2004, 9:27pm Cussing on this board? No fucking way. People with potty mouth are immediatly banned and told to take their shit elsewhere. As to the O2 shit, I was once very much against using welding O2 but have seen the light. jonny is 100% right, it does come from the same "tank". And of course, if you tell the welding supply people what your intended use is, they're gonna balk so you do have to lie a little. But for the relief O2 gives it's worth it. Now, I can not imagine someones spouse refusing their lifes partner this relief on any grounds and if it was me, I'd say fuck you and go get my O2 myself, whether medical or welding. It's safe and for many of us clusterheads, a Godsend. Thanks jonny for your input on this thread. Kip |
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Title: Re: C*I*L*L my doctor! Post by Superpain on Mar 18th, 2004, 9:28pm ::) ::) ::) ::) ::) ::) ::) ::) ::) ::) Fuck... I paid for a tank, O2 and a regulator today. What I realize I have once I got home is a tank and a regulator. >:( >:( >:( There's no freaking O2 in it!!! I paid for it, but brought home an empty tank. I thought it was kind of light. :-[ Oh well. No luck on the mask yet anyway. So far today I've only had one shadow. I know it sounds horrible, but I'm almost (keyword almost) going to be upset if my cycle has just ended after spending all this $$$ on an empty oxygen tank. That's just laughable isn't it? Just my luck. |
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Title: Re: C*I*L*L my doctor! Post by Superpain on Mar 18th, 2004, 10:24pm on 03/18/04 at 21:28:40, Superpain wrote:
Holyfuckinshit... I just spoke to the beast for a while... He DOES NOT care for my humor. He said the rest of you better watch your asses too, because he's about to be making his rounds, and if any of you laugh at that, it is the last time you'll laugh. Watch out. He's in a really pissy mood tonight. I'm sorry I ever said anything... |
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Title: Re: C*I*L*L my doctor! Post by Kevin_M on Mar 19th, 2004, 2:31am You guys have made this an excellent thread for an education about oxygen. Thanks, Kevin M |
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Title: Re: C*I*L*L my doctor! Post by Charlie on Mar 19th, 2004, 3:05am Listen to Jonny & Co. Give hubby a print out if he won't come here. O2 is 02. It's not a mystery and not as dangerous as others tell you. You can't start an oxygen fire. You need fuel for that. It wasn't used on the Hindenburg. I'll wager that the oxygen you get from a welding tank is cleaner than the stuff you breathe standing on your doorstep. I hate the idea of your suffering over nonsense. I'm terrible.....sorry. Good luck kid. Charlie |
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Title: Re: C*I*L*L my doctor! Post by Superpain on Mar 19th, 2004, 11:33am Ummm... Oxygen is fuel for fire. It will also explode on contact with H2O I'm told. But I agree about the air on your doorstep! ;;D |
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Title: Re: C*I*L*L my doctor! Post by thomas on Mar 19th, 2004, 11:41am on 03/19/04 at 11:33:38, Superpain wrote:
[smiley=huh.gif] I hope you are joking, because that is complete nonsense. |
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Title: Re: C*I*L*L my doctor! Post by Superpain on Mar 19th, 2004, 11:53am I thought it sounded dumb too... It's just what I was told. Ignorance = gullibility guess. But at least I didn't state it as fact! It was just what I was told. :-[ |
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Title: Re: C*I*L*L my doctor! Post by Widder Happy on Mar 19th, 2004, 12:15pm [quote author=Superpain link=board=general;num=1079615137;start=25#33 date=03/19/04 at 11:53:33]But at least I didn't state it as fact! It was just what I was told. :-[/quote] Glad you semi-retracted your statement, because you were just about to get the ass-burning of your life. Oxygen is about as safe as it gets, unless one has the IQ of a rock, and is trying to go for Win/Place/Show in the yearly Darwin Awards. If you want something REALLY dangerous, go dick around with the gass grill on the back deck. Since you listen to what you're told, listen up: You're from Phoenix. Call the NECH at 203-322-2748. Get the number for the Mayo Clinic in Scottsdale. Sign up for the Zomig Trials which will start in the next few weeks. (This goes for EVERYBODY coming to this place that wants to do something positive.) Fact.......not fiction, RJ (Crap......forgot I was using _Her_ toaster with auto-login. ADHD strikes again.) |
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Title: Re: C*I*L*L my doctor! Post by Roxy on Mar 19th, 2004, 12:19pm on 03/19/04 at 11:33:38, Superpain wrote:
I understand that this is what you were told by someone. But, you should maybe read up on 02 before stating something like that in a thread. We really don't want to put out any wrong info about 02. Here's the link.... http://www.headachesupportgroups.com/oxygen/oxygen.htm |
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Title: Re: C*I*L*L my doctor! Post by Charlie on Mar 19th, 2004, 3:52pm I hope you are joking, because that is complete nonsense. God, I miss Ueli. That would have been fun. Glad you saw the light and I can see where stuff like this comes from. Everyone tells us how dangerous everything is. Too much cable news. This is fun 8) Charlie |
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Title: Re: C*I*L*L my doctor! Post by fubar on Mar 19th, 2004, 4:14pm Here's how stupid I am... I thought that superpain was really joking when he said O2 would 'explode on contact with H20'. I didn't think anybody would actually believe that! Superpain, find whoever told you that and please catch them and let us all severely beat the crap out of them. That's not just bad info, it's dangerous misinformation. Also, for Tia, I'm sorry that your hubby is so think-skulled that he won't listen to reason. If he thought about this for 1 minute, he'd probably be able to pull his head from the nether region where it is apparantly stuck right now. Welders who use O2 need the purest O2 they can get, otherwise their work is ruined. I can understand where he might get this misconception. It used to be that SCUBA tanks that weren't filled properly were a great danger. This was only because the idiots who filled them would put the gas powered compressor right next to the air intake (or just way too close) so the tanks would end up being filled with things like carbon-monoxide, oil-contaminated air and such. Oxygen is fundementally different. Only absolutely pure O2 is suitable for welding. Contaminents cause crappy welds. The O2 that is used for welding is as pure as you could ever hope to get. -Fu |
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Title: Re: C*I*L*L my doctor! Post by Superpain on Mar 19th, 2004, 4:31pm Alright, you guys have had your fun... I thought it sounded stupid too, but compressed gasses was not my major, and certain inert compounds in liquid or compressed form do behave differently than in their natural state... But I am smart enough to know that O2 and fire=combustion. I haven't slept in 5 days and I'm pretty much braindead at this point, but if this entertains you, go ahead I'm a good sport. Rip away. :P |
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Title: Re: C*I*L*L my doctor! Post by Scooter on Mar 19th, 2004, 4:55pm I know just how you feel, my Dr. asked me what worked for me in the past I told him prednisone which he prescribed for me but HAs have always returned when done with prednisone regament. So I found a Doctor in the same medical group who works in urgent care and has a special degree in pharmacy or something. I had everything written down on what I was takeing and had taked and explained I wanted to try and find something new that I learned from this web sight (magnesium topamax etc.), any how he said you need a shot of imetrix and I said isnt that just used to abort a headache he said that it would help in my situation so he gave me a shot and a few minutes later his nurse askes how is my headache then the doctor says I thought you had a headache. I had told him and the nurse before hand that I was there to discusse meds. What a dumb A--. Any how nothing accomplished except I know that I can take imertix if I have to. Thanks for letting me vent. |
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Title: Re: C*I*L*L my doctor! Post by jonny on Mar 19th, 2004, 6:06pm on 03/19/04 at 11:33:38, Superpain wrote:
[quote author=Superpain link=board=general;num=1079615137;start=25#33 date=03/19/04 at 11:53:33]I thought it sounded dumb too... It's just what I was told. Ignorance = gullibility guess. But at least I didn't state it as fact! It was just what I was told. :-[/quote] You all know that I am the first one to slam any snake oil or mis- information coming to this board, but I think this new dude has said (In a way) that he fucked up. Five years ive been climbing up peoples asses and chasing them out of here, I dont think this one meant any harm. Hey Superpain in my ass!, you have a name? Aint seen it posted, then again I aint been me. ........................jonny |
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Title: Re: C*I*L*L my doctor! Post by Mr.Happy on Mar 19th, 2004, 7:27pm on 03/19/04 at 16:31:50, Superpain wrote:
That's the spirit, mate! In a state of Completely Justifialble Paranoia, and Extended Periods of Sleep Deprivation, you made an "OOPS." And acknowledged it. Aces. RJ |
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Title: Re: C*I*L*L my doctor! Post by Superpain on Mar 19th, 2004, 9:18pm ;;D Thanks guys! Chris Stuckey |
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Title: Re: C*I*L*L my doctor! Post by Mark C on Mar 19th, 2004, 9:39pm Hi Chris! Welcome to the board. Don't forget to obtain a non-rebreather mask to obtain max results. 10-15 LPM works! http://www.allmed.net/catalog/showitem.php/4168 Good Luck! Mark |
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Title: Re: C*I*L*L my doctor! Post by jonny on Mar 19th, 2004, 9:42pm 2 Fucking CHE' , Mark! ...............................jonny |
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Title: Re: C*I*L*L my doctor! Post by Superpain on Mar 20th, 2004, 12:11am on 03/19/04 at 21:39:19, Mark C wrote:
Yeah, I've been looking all over town for on of those. Unfortunately they require a script here, which I don't have. Fortunately I have a new angel that is sending me one! :) Thanks again btw... Right now I'm just pulling from the hose with a welding regulator. It pumps out with enough pressure to fill my lungs very quickly. It's just a pain in the ass to have to twist the reg up and down with every breath, but so far it's working pretty well I think. Thanks for all the help! |
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