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        New Message Board Archives >> Jan-Mar 2004 >> At my witts end 
        
(Message started by: tnpruby on Mar 18^th, 2004, 8:33am)

Title: At my witts end
Post by tnpruby on Mar 18^th, 2004, 8:33am

Hi there, its me Toni and I was wondering if anybody has experienced medication no longer working in mid cycle ? I am off to the docs this monring and my attacks are unbearable , dont have one now of course but I am so afraid it will hit me on the way. I am still taking Inderal 20 mgs 4 tabs 1x day. Also the Zomig for the eruptions. Last night , I had no relief from either, I thought I was dying, I flung a brownie at my husband last night. I know it sounds funny now but at the peak of my C/H , he asks if I want a brownie. I screamed NO I DONT WANT A GOD DAMN FUCKIN BROWNIE " then I threw it and the pan & started screaming and cryin. I hate myself for being such a nasty bitch but I seriously cant stand it when anybody even looks at me when I have an attck. I called and apologized this morning. :-[

Title: Re: At my witts end
Post by Kevin_M on Mar 18^th, 2004, 8:38am

Long time ago had inderal. Became insufficient as clusters flexed. There are more preventives out there to try. Inquire.

Hope the doc takes you serious and reaches deeper into his medical bag for you.

Good luck,

Kevin M

Title: Re: At my witts end
Post by tnpruby on Mar 18^th, 2004, 8:45am

I thank you for your support Kev, and I believe the Inderal is no longer working. I need somethin else. I wont leave untill they take me seriously. >:(

Title: Re: At my witts end
Post by Bob_Johnson on Mar 18^th, 2004, 1:18pm

If Inderal is the first line response your doc gave you it makes me wonder if he is up to date. It's not very effective with cluster and fell from favor a long time ago.

But, sadly, yes--it's not uncommon for a med to stop working. Med literature is full of this experience as is folks experience reported here.

We all need to keep up to date on currents trends in meds so that, if this problem hits, we have information on the shelf about what to try next. Look at the meds survey (left): it gives a good idea of what has worked for others. I'd print this info out and take to the doc when you present him with your problem. Also, explore www.headachedrugs.com to get ideas about which meds are best.

The basic idea is to walk into the doc's office with a list of what you want to try and some supportive evidence for your request.

Title: Re: At my witts end
Post by Tiannia on Mar 18^th, 2004, 2:08pm

[quote author=tnpruby link=board=general;num=1079601677;start=0#0 date=03/18/04 at 08:33:16]I am off to the docs this monring and my attacks are unbearable , dont have one now of course but I am so afraid it will hit me on the way. I am still taking Inderal 20 mgs 4 tabs 1x day

I flung a brownie at my husband last night. I know it sounds funny now but at the peak of my C/H , he asks if I want a brownie. I screamed NO I DONT WANT A GOD DAMN FUCKIN BROWNIE " then I threw it and the pan & started screaming and cryin. I hate myself for being such a nasty bitch. I called and apologized this morning. :-[/quote]

Toni, I understand been there done that. Way to many times to count. I take inderal as well for the past 8 (OMFG) 9 months. 80 mg 1x at night. No I dont think it does shit to help at all, but the docs are not willing to take me off of it until I find something else that helps more. Currently I am also taking Gabitril 4mg 2x at night as well. Dont see any change with this one either. I tried Topomax, but could not take the side effects, cramping and vomiting constantly. Helped with the HA's if I could of stood feeling like I was 1 month pregnant with morning sickness for the rest of my life.

I know that it is hard on you that you take things out on your loved ones. But I am sure that he understands that it is not because of him. This is a horrible thing that takes away our humanity when we are being hit. Unfortunatly the people we care about the most are the ones that we hurt sometimes. I know that I have yelled, screamed and worse in front of my husband and kids. They have seen the worse. I try very hard to make it so that when I am not getting hit that they know it is not because of them.

Print off info from this site and OUCH about medications that are out there. See if your doc is willing to change you to Verap. It is also a BP med and has worked wonders for many people here. Try and get him to visit this site or OUCH. There are many other treatments out there that you can try. As many have said here. "Don't take no for an answer."

PF Wishes to you. Good Luck
Tiannia

Title: Re: At my witts end
Post by ave on Mar 18^th, 2004, 2:38pm

Toni, your hubby needs a course in supporting somebody who is suffering BIG TIME.
Catch my partner asking something stupid like do I want a brownie, when the beast strikes!

You yourself need a course in accepting that sufferuing precludes caring for others and making everything all right for others, when you are getting hit.

Took me some while too. I know enough now to care only for me as long as the attack lasts.
As soon as I come out of it I am available again for caring cosseting (or cussing) of male ego's. Not when I am hurting.
You go sit down and learn that, do you hear?

Title: Re: At my witts end
Post by FZfan on Mar 18^th, 2004, 2:51pm

Toni - thanks so much for your post. you do NOT owe your husband an apology. Please do not take this the wrong way, but I laughed so hard reading your brownie story. It's posts like these, relating personal experiences, that remind us all that we are not alone. We all have similar, and possibly even funnier stories to tell.

I don't know if you've mentioned this among your treatments and if you have I apologize. Have you tried o2? I mean really tried it correctly? A couple of years ago I had Zomig fail me during a cycle and o2 came to the rescue.

Title: Re: At my witts end
Post by jonny on Mar 18^th, 2004, 6:14pm

http://jesusdressup.com/sign_hanginthere.gif

...............................jonny

Title: Re: At my witts end
Post by kim on Mar 18^th, 2004, 6:30pm

Anything can happen with meds: Works GREAT ALL the time; works some of tha time, dont work worth a shit ever.........etc.

One time I flung a soup pot at hubby :-/ - and I got good aim. He had an egg on his head for some time. At the time everything was overwhelmng and intense. Now? We crack the HELL UP about it ;;D

Do what ya gotta do****Hope things get betta soon

Well wishes :)

PS: Don't ever waste good brownies again. Give em to me ;) Ya can even throw em at me

Title: Re: At my witts end
Post by vig on Mar 18^th, 2004, 6:38pm

um, I'm hungry.
what kind of brownie was that?

Title: Re: At my witts end
Post by HypnoticFreddy on Mar 18^th, 2004, 11:25pm

Once again I am astounded at the ratio of posts from females vs. males. It does not make sense. I mean 2.5:1 (M/F). I don't think the postings in the message boards reflects this.

Please don't bash me on it, I just find it interesting.

-Freddy

Title: Re: At my witts end
Post by BlueMeanie on Mar 18^th, 2004, 11:34pm

Toni,

LMAO at the brownie story. Sorry to hear your getting hit so hard right now. I'm sure better days will come. Just the Beast has to have its' way for awhile unfortunately. Inderal is a pretty old med for clusters. I took it years ago and like you, it stopped working. Check the meds section here at CH.com, there are lots of newer prevents & aborts that you may have not tried.

Good luck in finding the magic fix to tame the Beast. I'm sure you will find something to help.

PFDAN

Title: Re: At my witts end
Post by Charlie on Mar 19^th, 2004, 4:19am

That you're posting means that you're surving. Stick with it.

I took Inderal 40 but I can't remember the frequency. My guess would 3 a day but I'm not sure. I'm a big guy. It helped me in 5 to 7 days and could usually knock them down a bit. I never took it as a prevenative. It's all I really had way back in the dawn of time.

Charlie

Title: Re: At my witts end
Post by tnpruby on Mar 22^nd, 2004, 8:29am

Thanks to all my sweetie's for your responses. Yes you are my sweetie's . ;) [smiley=heart.gif]. Well went to the covering neuro and he wants to see me again this morning, he gave me vic's to piggyback the zomig, seems to help or lets say mask the hangover from the C/H. At any rate I am on my way in again this morning to ask about the cocktail, O2 ANYTHING at this point. I am up to 4 a day now. This sucks so bad and I just want my life back. Hey I wanted to know too, has anyone ever experienced soreness on the outside of the head where the C/H attacks ?, running a brush threw my hair is an issue at times [smiley=bomb.gif]. Oh and we are still laughing over the brownies , and they were double fudge chocolate chip. [smiley=crackup.gif]

Title: Re: At my witts end
Post by BobG on Mar 22^nd, 2004, 10:40am

Quote:

Oh and we are still laughing over the brownies , and they were double fudge chocolate chip.

Good that you can laugh at it now. But......please
don't do that again. If you must throw something make it liver or broccoli or other nasty stuff.
Double fudge chocalate chip brownies are to be enjoyed.

Throwing brownies is a sin. Says so in the bible.

288 lbs and growing BobG