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New Message Board Archives >> Jan-Mar 2004 >> Vibes and prayers needed for Renee
(Message started by: TxBasslady on Mar 16th, 2004, 1:11pm)

Title: Vibes and prayers needed for Renee
Post by TxBasslady on Mar 16th, 2004, 1:11pm
Renee is having such a tough time.  

As some of you know, Renee has CH, CPH and some  problems resulting from a botched surgical procedure.
She has very little pf time.  The meds that work for most of us here, do not work for her.  She also is a bit limited due to the fact that she has a normal bp of 90/60.

After a really tough couple of days now, she is scheduled for a triple study in the morning at 10:30.  She will have an MRI with and w/o contrast, and also an MRA.  

As with most of us, she is a bit apprehensive about the tests.  She has already had an ultrasound and knows that she has a limited blood flow on the left side of her brain.  Needless to say, she is a bit afraid of the results of the MRA, but she knows that this has to be done in order to get her the right treatment.

If necessary, Renee will make a trip to New England Headache Clinic for treatment, thanks to Cat and OUCH and the association that has been established with the dr's there.

I have assured Renee that no matter what the results, she will not be alone.  I know that this CH family will send up some prayers and vibes for her and help her get thru this rough time.  I will make the trip to Dallas either today or early in the morning to be with Renee when she goes thru the testing.  Hopefully, her neuro can and will get the results asap and then maybe we can find out what needs to be done.  I am confident that whatever is needed, Renee will have done.

Thanks Jackie, and Cat for bearing with me thru this with Renee.  Your support and love certainly is appreciated by me and Renee, and you both know how rough this has been.  

After all this time, I am still amazed and totally in awe at the support on this board.  I thank you, with all my heart.

Love and thanks and PF vibes to you all,

Jean


Title: Re: Vibes and prayers needed for Renee
Post by thomas on Mar 16th, 2004, 1:18pm
They are on the way.

Title: Re: Vibes and prayers needed for Renee
Post by Samantha_Smith on Mar 16th, 2004, 1:21pm
Renee--

I don't know you but I can pray for you.  Big time prayers coming your way!!!!!!  I live in Vermont so you'll be close and be able to feel my prayers coming in real strong.

Just a quick question--what is an "MRA"?

I don't know if this will help but for what its worth---my neurologist, Dr. David Biondi at Spaulding Rehab Hospital, is located in Boston.  He's one of the best. Thought I'd just let you know in case you wanted to go neuro shopping. Many of these doc's in New England are cream of the crop.  I know you'll be in good hands.  Hang in there baby!!!!!!!  XXX OOO Samantha

PS.. Is there an address where we can send her cards?

Title: Re: Vibes and prayers needed for Renee
Post by broomhilda on Mar 16th, 2004, 1:38pm
TONS, AND TONS OF VIBES AND PRAYERS ON THERE WAY ... wish there was more I could do :'(

Thinking and praying here for you

Hugs
Andrea

Title: Re: Vibes and prayers needed for Renee
Post by helpless23 on Mar 16th, 2004, 1:40pm
Hugs and Much MUCH love to you and Renee!

Prayers and love are with you both.

Toni

Title: Re: Vibes and prayers needed for Renee
Post by Melissa on Mar 16th, 2004, 2:05pm
I'm thinking of you Renee, and praying you get some relief very very soon!  

PF Vibes,
mel

Title: Re: Vibes and prayers needed for Renee
Post by catlind on Mar 16th, 2004, 2:58pm
Hang in there Renee, you know we're all here for you no matter what the outcome!  Whatever needs to be done will be done and we'll get you fixed up, us clusterheads are stubborn that way ;)

Jean you take care of yourself too, and remember you and Renee can call anytime day or night if you need a shoulder or an ear.  Neither of you are alone - no clusterhead is unless they choose to be.

*huge hugs*  Only the best vibes comin your way Renee!!

Cat

Title: Re: Vibes and prayers needed for Renee
Post by Belle on Mar 16th, 2004, 2:59pm
A whole barrel of vibes is coming your way.  We are all here for ya love.

Belle
::)

Title: Re: Vibes and prayers needed for Renee
Post by ZAIRA on Mar 16th, 2004, 3:54pm

I would like to have a magic wand! :'( :'( :'(

Renee...... we know that one day, during your life time, a cure, with your help, will be found..... I am hoping that you will soon be Pain Free....

Love, Zaira  :'(



Title: Re: Vibes and prayers needed for Renee
Post by cootie on Mar 16th, 2004, 4:14pm
Lots of good vibes goin Renee's way from snowy Ohio.......extra good vibes of fast results and a good treatment 'that works' and PF vibes will be in with it all !!! Vibe'n with the family plan Pam

Title: Re: Vibes and prayers needed for Renee
Post by BarbaraD on Mar 16th, 2004, 4:27pm
Jean - take care of our girl. Will try to call you guys tonight.

You know my prayers are with you.

Renee, you're going to be ok -- Mom has spoken....

Big hugs and vibes to ya  BD

Title: Re: Vibes and prayers needed for Renee
Post by ShariRae on Mar 16th, 2004, 4:40pm
Much love & huge vibes goin out to you Renee...
Jean..remember to take care of YOU along the way as well :)
Huggs
Shari

Title: Re: Vibes and prayers needed for Renee
Post by Jackie on Mar 16th, 2004, 5:27pm
Jean,
Good job, Sweetie.....you've got her on the move now and that's a good thing.  
I'll be waiting to hear from you tomorrow or tonight or anytime....you always know where to find me.
Please take care of yourself too....it's gonna be OK.


Renee,
We're all here pulling for you.  Blake says for you to behave or he's gonna send me to Texas... ;;D  Remember to call anytime too.

Big hugs and positive thoughts and vibes headed to Texas.

Love to you both,
Jackie

Title: Re: Vibes and prayers needed for Renee
Post by Slammy on Mar 16th, 2004, 6:17pm
Jean,

Renee is lucky to have you.... our thoughts are with Renee and you!   :-*




Slammy   8)

Title: Re: Vibes and prayers needed for Renee
Post by toader on Mar 16th, 2004, 6:40pm
vibes to you - hope you find the answers

thanks your words of support to me

;)

Title: Re: Vibes and prayers needed for Renee
Post by Tim_w on Mar 16th, 2004, 6:47pm
Renne Vibes and prayers headed your way!!
Hope you get some Pain Free time real soon!
TimW Happy Pappy

Title: Re: Vibes and prayers needed for Renee
Post by Kevin_M on Mar 16th, 2004, 8:18pm
Renee,

VIIIBBBRRRRRRRRRRRRAAAAAATIONS  TO YOU!!!

Identifying is the fastest road to treating.  

Let 'um have a good look.

Hoping NONSUFFERITIS will be something they can discover for you.

With you in thoughts,

Kevin M


Title: Re: Vibes and prayers needed for Renee
Post by Renee on Mar 16th, 2004, 8:36pm
Thanks ALL for your support!

I would Love to be diagnosed with eternal NONSUFFERITIS and I've give each of you a starter kit of your own, kinda like the friendship bread thing.

btw...anyone have a starter for friendship bread?

My head hurts but my tummy is just fine!

Jean....you are such an angel.  Cat, thanks so much for your support and Jackie...love to you too and please don't send Blake after me as I've lost 5 pounds since the meet and greet and he might land a good one and send me sailing.  On second thought...you said he might send you!  Come on down to Texas!  I have lots of empty bedrooms and we can have a ch slumber party!

Ya know...a CH slumber party via ch.com sounds fun!  Anyone willing to join sometime?

thanks again for everyone's vibes, love and support and I will keep y'all posted on my test results. I have mixed emotions on getting the test results.  I'm afraid they'll find something that is BAD but I'm also afraid they won't find anything and I'll be back to running out of meds to try and no quick fix...just a very large demon that always lives in my head!

love to all
renee

edited:  forgive if it doesn't make sense...i'm still messed up from demerol and phenergan!  

Title: Re: Vibes and prayers needed for Renee
Post by Rick_K on Mar 16th, 2004, 11:36pm
Renee,

Our thoughts and prayers are with you, if there is anything you need, remember were not far away.

PF times to you.

Rick

Title: Re: Vibes and prayers needed for Renee
Post by bobkip on Mar 16th, 2004, 11:58pm
Best to you Renee.
Kip

Title: Re: Vibes and prayers needed for Renee
Post by Mastifflvr28 on Mar 17th, 2004, 12:58am
BIG HUGE VIBES going up to you and your family Renee.
Take care and good luck,
Mast

Title: :-*Re: Vibes and prayers needed for Renee
Post by Woobie on Mar 17th, 2004, 2:21am
Renee -  :-* [smiley=hug.gif] :-*:-* [smiley=hug.gif] :-* [smiley=hug.gif]

I'm thinkin of you and sending you vibes!!!  

Wish I could do more!

tina :-*

Title: Re: Vibes and prayers needed for Renee
Post by sandie99 on Mar 17th, 2004, 3:57am
Renee,
loads of prayers and good vibes are on the way!
And I know that the prayers of this lot can do miracles! :)

Best wishes & PFdays,
sandie99

Title: Re: Vibes and prayers needed for Renee
Post by Roxy on Mar 17th, 2004, 11:07am
Renee.....you know I love ya girl.  If you need me, I'm only two hours away, just call me.

Sending out huge ass vibes,
Tracey

Title: Re: Vibes and prayers needed for Renee
Post by Charlie on Mar 17th, 2004, 1:20pm
http://www.netsync.net/users/charlies/gifs/VIBES & MORE.png

Hang in there...

Charlie

Title: Re: Vibes and prayers needed for Renee
Post by aprilbee on Mar 17th, 2004, 1:52pm
Lots of HUGE Okie vibes and tons and tons of prayers!  GOOD LUCK!  

Title: Re: Vibes and prayers needed for Renee
Post by Giovanni on Mar 17th, 2004, 2:20pm
Best to you Renee...vibes headed your way.

John

Title: Re: Vibes and prayers needed for Renee
Post by Elaine on Mar 17th, 2004, 2:27pm
You know I am praying ! Been praying since the day I met ya.

Title: Re: Vibes and prayers needed for Renee
Post by Renee on Mar 17th, 2004, 8:48pm
Thanks all for the support and kind thoughts!

Had the triple study today (MRI w/out contrast, MRI with contrast and MRA).  

Unfortunately, I got a copy of my films although I don't have a radiology report yet and neither does my neuro.  AND...my neuro won't be back in the office until Friday.

The unfortunate part of having my MRA films is they show an obvious bulge in my carotid artery on my left (CH) side about midway up my neck.  After researching the internet tonight, they call this bulge an aneurysm.

SO>>>>just to let y'all know I'M SCARED TO DEATH and have a ha on top of that!

Thank God for angels like TxBassLady.  She drove all the way up here to be with me during this ordeal.  I think I'd be in a straight jacket by now if it weren't for her.  

I WANT AN ANSWER..NOW!!!  What is I fall asleep tonight and have a stroke!

i'm very scared!  please pray for me!   :'( :'(
or find me a neuro that will look at these films ASAP!!!
renee

Title: Re: Vibes and prayers needed for Renee
Post by Rick_K on Mar 17th, 2004, 9:22pm
Hang in there Renee, our thoughts and prayers are with you...

Jean, you truly are an angel, bless you for all you do...........take care of Renee


Title: Re: Vibes and prayers needed for Renee
Post by Kevin_M on Mar 17th, 2004, 10:31pm
Renee,

You will be ok until the doctors advise with their best ideas.  I wrote you a long "thinking of you message" but I got a 502 connection failed and it disappeared.

Suffice to say, I've a candle for you with a nice bright light.  

My 94 year old grandmother has a bulge in the main artery just before it splits down each leg.  Big artery.  She has had it for years.  Her arteries are much weaker than your younger one.  You will be ok until they talk to you.

Care for you much.

Good job Jean.  

Kevin M

Title: Re: Vibes and prayers needed for Renee
Post by Renee on Mar 18th, 2004, 10:01pm
Just givin' an update here!

TxBassLady is home, safe and sound!

I should here from my neuro tomorrow, hopefully, BUT....thanks to my ch family another neuro looked at my radiology reports today and said there was nothin' urgent that had to be addressed in the next few days.  So, i'll hopefully hear from my neuro tomorrow and from the other neuro on Monday.

thanks so much Jean and Cat and Tracy and Jackie and anyone else I left off the list!
You'll never know how much I appreciate all you've done for me and the support you've given me.

jean...you are a godsend!  i love you

I have one thing to add:

"Most of the important things in the world have been accomplished by people who have kept on trying when there seemed to be no hope at all".

hugs and pf times to all
renee


Title: Re: Vibes and prayers needed for Renee
Post by Rick_K on Mar 18th, 2004, 10:31pm
Renee,

Thank you for the update, you are a strong and wonderful person

Our thoughts and prayers are with you.....

Rick & Debby

Title: Re: Vibes and prayers needed for Renee
Post by Kevin_M on Mar 18th, 2004, 11:13pm
Renee,

Just log on and we have flower power of words for you.

Glad you are in better spirits.

Kevin M



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