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        New Message Board Archives >> Jan-Mar 2004 >> This Cycle is Pissing me the fuk off
        
(Message started by: randal on Mar 4^th, 2004, 7:39am)

Title: This Cycle is Pissing me the fuk off
Post by randal on Mar 4^th, 2004, 7:39am

6 weeks into cycle now and I just want to frigging sleep.
I'am taking verapamil-Imitrex and still doing the O2. I cant take Melatonin as suggested because of other health issues but any more suggestions would be greatly appreciated. I remember the doctors telling me 25 years ago that this would go away as I got older, Man are they full of shit!!!.
I no I'am just whinning again but I feel like 45 going on 90.
Take Care Randal
I no none of you can sleep either [smiley=hammer.gif]
allmost two days away from sledge hammer to head then I can sleep.

Title: Re: This Cycle is Pissing me the fuk off
Post by Kevin_M on Mar 4^th, 2004, 8:35am

Sounds like you're in the eye of the storm.

Hang in. Keep taking care. Relate this to doc.

I just didn't know what to do and took it the last two cycles but got back on this board, read a lot, paid attention and then got another doc.
You sound like you're doing what you can now, but this CH can be cruel. I didn't know what to do either so I don't have much here except, your words sound familiar.

Pulling for you

All the best

Kevin M

Title: Re: This Cycle is Pissing me the fuk off
Post by Gena on Mar 4^th, 2004, 12:27pm

on 03/04/04 at 07:39:01, randal wrote:

I just want to frigging sleep.
I'am taking verapamil-Imitrex and still doing the O2.

I feel ya :-/ I am going through the same thing, although I can take Melatonin (6 mg). Still no freakin sleep. SO I can't offer any advice, but maybe it would help to know your not alone.

Gena

Title: Re: This Cycle is Pissing me the fuk off
Post by Tiannia on Mar 4^th, 2004, 1:22pm

Sorry hun, wish I could help. I am pretty sure that I was up with you doing the midnight dance with you. The Occiptal Nreve treatment has stopped me from rolling on the floor, but they are still bad enough to keep me awaqke and rocking. DAMN there has to be somethign that can help...

PFDaN,
Tiannia

Title: Re: This Cycle is Pissing me the fuk off
Post by ZAIRA on Mar 4^th, 2004, 2:16pm

I don't have any suggestions... :'(.... but Be Strong and don't let the bastard win! Hang in there, Zaira

Title: Re: This Cycle is Pissing me the fuk off
Post by randal on Mar 4^th, 2004, 2:29pm

Thank you for the words of encouragement.I no we cant sleep and I I am sure in the hell glad there are people to talk to.It sounds kind of bad saying I'am glad there are people out there suffering also but you no what I mean.If it where not for this web site I would have jumped off my Fucking roof along time ago.The only way to get sleep for me is to go get a demerol shot 150cc,I no this is s strong drug and does not really help the Cluster but my experiance has been as soon as my wife brings me home I will lay down wake up 30 minutes later with the beast, but after that one episode I can have at least 8 hours of restfull sleep.so once in a while it is very temting to just go get the fucking shot and say goodnight. Amen to the Pharmacutical company that can come up with a opiant free medicine that we can all sleep on.Thanks again you are all the best.
see ya at midnight Randal [smiley=huh.gif]

Title: Re: This Cycle is Pissing me the fuk off
Post by jonny on Mar 4^th, 2004, 3:34pm

Randal,

Listen to me (read my type ;;D) carefully, ask your doc if you can taper up to 600 mgs of Lithium while you are taking your Verapamil.....Im chronic and that cocktail blocks more than 90% of my CH's from ever showing up.

For years Ted (From this board) watched me post about this cocktail and finally tried it....He was in fucking heaven for doing so.

Just a thought, Bro

......................................jonny

Title: Re: This Cycle is Pissing me the fuk off
Post by Charlie on Mar 4^th, 2004, 3:43pm

Sounds pretty schitty. >:(

The only thing I can suggest is to try sleeping in a recliner. Most of the time I would have at least one less nocturnal attack. :-/

Take care and let us know how it's going.

Charlie

Title: Re: This Cycle is Pissing me the fuk off
Post by cathy on Mar 4^th, 2004, 3:54pm

Randal hang in there sending vibes to help you through this!!

Cathy :)

Title: Re: This Cycle is Pissing me the fuk off
Post by randal on Mar 4^th, 2004, 8:17pm

OK Jonny I will do that Monday Morning. Can Lithium be taken along with Imitrex or is there a conflict. Otherwise I will be swollowing that script come Monday Afternoon!!.
Thanks again Bro
Randal

Title: Re: This Cycle is Pissing me the fuk off
Post by jonny on Mar 5^th, 2004, 6:24pm

on 03/04/04 at 20:17:59, randal wrote:

OK Jonny I will do that Monday Morning. Can Lithium be taken along with Imitrex or is there a conflict. Otherwise I will be swollowing that script come Monday Afternoon!!.
Thanks again Bro
Randal

No conflict what so ever

.............................jonny

Title: Re: This Cycle is Pissing me the fuk off
Post by Woobie on Mar 5^th, 2004, 6:35pm

Hey Randal.....

Sorry you're having a rough time........ I know nothing.. just sending you some vibes~!

KICK SOME ASS!! [smiley=hug.gif]

Tina :-*

Title: Re: This Cycle is Pissing me the fuk off
Post by tnpruby on Mar 11^th, 2004, 4:37pm

Hey there, I feel your pain...I too caught in a cycle...would love to sleep , my husband keeps asking what he can do, I am also ready to literally run to the frigin hospital to get a shot. My thoughts are w/ you and I will check w/ you later . Hang in there... Oh and that cocktail sounds good but my neuro is on vaca and I really dont want anybody else near me... >:(

Title: Re: This Cycle is Pissing me the fuk off
Post by Jayne on Mar 11^th, 2004, 4:45pm

I was another one who listened to Jonny. GLAD I DID

He's my brother with the Lithium..

Title: Re: This Cycle is Pissing me the fuk off
Post by randal on Mar 11^th, 2004, 8:23pm

Update
6 Days on the Lithium cocktail now and Im sleeping at least 5 hours every noght. I only wake up about 1 time now and the severety is half as bad and after some O2 I go right back to sleep. I am still getting around 2 or 3 attacks a day but they are not as bad either. If I can just keep my head up and lose this depression from being in cycle so dam long I'll be fine.
This Website ROCKSSSSSSS!!!!!!!!!
Randal

Title: Re: This Cycle is Pissing me the fuk off
Post by jonny on Mar 11^th, 2004, 8:29pm

No Dude....YOU rock for stepping up and grabbing the help you need!!!!

Its what we do here...for you or anyone with CH.

...............................jonny

Title: Re: This Cycle is Pissing me the fuk off
Post by JDH on Mar 11^th, 2004, 11:57pm

Good to hear Randal. Being able to sleep a little should help your outlook big time.
Keep kicking ass,

Jim