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        New Message Board Archives >> Jan-Mar 2004 >> YES!!! FINALLY! NEW DOC EXCELLENT!!!
        
(Message started by: helpless23 on Mar 2^nd, 2004, 10:25am)

Title: YES!!! FINALLY! NEW DOC EXCELLENT!!!
Post by helpless23 on Mar 2^nd, 2004, 10:25am

:D

Hi guys!
Very excited! We went to the new Doc today! WHAT A GUY!!!! KNEW HIS STUFF BOY! Gave hubby Verapimil. Took him off Indomethacin, said that it's not effective in treating CH at all! Wants to see him back in 2 months too, to see how his BP is doing with the meds!

We are both very excited and happy! This guy seems to know what he's talking about. For the first time since the CH's came back, this is the FIRST Dr. that we didn't have to fight with to get the right diagnosis!

:o

Much love,
Toni

Title: Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
Post by thomas on Mar 2^nd, 2004, 10:56am

Great news, Toni, thanks for the update.

Title: Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
Post by Melissa on Mar 2^nd, 2004, 10:57am

What wonderful news Toni! ;;D ;;D ;;D I'm very happy that your hubby has a great doc to support him. He is very lucky to have him!

:)mel

Title: Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
Post by helpless23 on Mar 2^nd, 2004, 10:57am

Hi Thomas!

*hugz* I'm totally pumped up! 357Mag put it best. It's like liberation! Maybe I'll join him in Washington after all. :-X

Much Love,
Toni

Title: Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
Post by helpless23 on Mar 2^nd, 2004, 11:00am

HI Mel!

I know! I've only been dealing with Ken and this CH for a few months, but I'm sure all of you know it seems like a lifetime of fighting with Doc's from giving the wrong diagnosis down to the Insurance Companies.

I'll tell you one thing, this doc is NOT afraid to write a Letter Of Medical Necessity!

Oh, and thanks to Bob_P for giving me that information. I am greatful.

Much Love,
Toni

Title: Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
Post by amen on Mar 2^nd, 2004, 12:43pm

Wow!! That's great! Second Good news post I read in a row. ;;D
Andrea

Title: Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
Post by bobkip on Mar 2^nd, 2004, 1:12pm

Great news Toni. Now what can I do to get him to move to Florida? lol
Kip

Title: Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
Post by helpless23 on Mar 2^nd, 2004, 1:39pm

Hey Kip!

Gee, I don't know. This doc cares though. It's rare that you find a doc who is true to the Dr's oath!

:-(

I'll ask if he a brother in Florida for you! :-/

Much Love,
Toni

Title: Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
Post by Bob P on Mar 2^nd, 2004, 2:16pm

Hey "Helpless",

Good for you and even better for Ken. Hope the verap works well. Make sure to keep uping the dose until, as Doc Goadsby says, the headaches stop or side effects make him stop taking more. Doc Robinson, in Vancouver, said he had people as high as 1080mg/day of the verap.
Good luck.

Title: Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
Post by ZAIRA on Mar 2^nd, 2004, 2:31pm

Wonderful news.... it's every day more difficult to find a doctor who understands you... :-[

Wishing you PFDAN.... Zaira :-*

Title: Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
Post by Charlie on Mar 2^nd, 2004, 5:24pm

Great post and good for you and yours.

Nice to see that March is coming in like a lamb for ya and that you found a MD that pays attention.

Charlie

Title: Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
Post by Tiannia on Mar 2^nd, 2004, 5:38pm

Great news. Now if we could just get him to talk to the rest of the doctors in the Country. hehe

Tiannia

Title: Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
Post by jonny on Mar 2^nd, 2004, 5:41pm

Thats great news, Toni.....finding the right doc is one in a million.

I got lucky too, My insurance changed back to where the Neuro that diagnosed me is, he gave me anything I wanted to try, was my age, had a harley and a vette....plus he didnt like his wife much.......We had lots in common, visits would last 40 mins just shooting the shit......ROTFFLMMFAO ;;D

When it comes to docs all is right in this dudes world ;;D

.............................jonny

Title: Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
Post by Cerberus on Mar 2^nd, 2004, 7:42pm

Is it just me...(probably) or are more people finding good doctors that know their stuff? AND is it a result of US and OUCH that it is happening?.... [smiley=huh.gif]

The good doc theme seems to be spreading :)

Either way....

FUCKINEH! WTG helpless!

Ramon

Title: Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
Post by helpless23 on Mar 3^rd, 2004, 6:54pm

Yeah!

Ken is on 480 a day. First doses are a bit weird, and different pills, but only for the first 6 days. I'll keep you posted. I know the Indomethacin has been giving him wicked shadows - but no CH's full blown. I don't know if that's good or bad. According to him, the shadows are annoying. But doc said that Indo is NOT the proper medication to treat CH. Right then and there I knew he knew his shit!

Again, what a relief!!!!
I don't know what's working here - but as long as there are at least some Doc's with the knowledge of clusters like the guy I found - then there is always hope.

Zaira - Love your name and love your pictures! I'm Italian too and love to sing! ;-)

Bob - What can I say? I hope your sense of humor is a lot better than your sense of spelling. [smiley=laugh.gif] Chill down, my sense of humor is GREAT! (Trying to make peace here). ;;D Smile Bob.

Jonny - Glad to hear that things worked out for you too! And you get to shoot the shit with someone. :-)

Charlie - Thank you. PFDAN's to you too.

Tianna - I was shocked too when I saw how smart and NICE he was. I'll talk to him about the rest of the country. *wink* ya never know! :P

Ramon - Love your ending. FUCKINEH is right!

And everyone else who I didn't get - or didn't respond to, THANK YOU ALL SO MUCH FOR BEING SO WONDERFUL!!!! I love this place!!!!

Much Love,
Toni