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        New Message Board Archives >> Jan-Mar 2004 >> CH and anesthesia?
        
(Message started by: suzy617 on Feb 21^st, 2004, 12:04pm)

Title: CH and anesthesia?
Post by suzy617 on Feb 21^st, 2004, 12:04pm

I remember a long time ago reading in here how anesthesia was a trigger for some peoples CH. I am wondering if thats true and if so how did they deal with it?
I'm going into surgery Monday and having missed my cycle this Oct. I thought great, I'm skipping this year. NOT! Wouldnt you know, 4 days before they cut me up, the f--cker decides to come back with vengence.
Was not a good 2 weeks here. 3 broken ribs, a swollen face from abcess, bad mammo report...I thought it couldnt get any worse till I got slammed. I thought stress keeps him away? [smiley=huh.gif]
One good thing, I tried the imitrex injection for the first time, I used pills last time and BAM, 5 minutes later...gone...How I went so many years without meds is beyond me now.
Thanks for anyones input on the anesthesia thing. Its got me a little concerned.
Suzy

Title: Re: CH and anesthesia?
Post by ozzman on Feb 21^st, 2004, 12:24pm

Suz,

Sorry to hear, that your yearly cycle came anyway, though late.

I can't say about anesthesia, but when you're under, you are completely knocked out, so it shouldn't be a problem. My guess anyway.

Ozzy

Title: Re: CH and anesthesia?
Post by jonny on Feb 21^st, 2004, 2:26pm

Nope, I never been operated on so I know nothing about that crap.

Sorry to hear your having a bad week, Suz...What you need is some big ass jonny hugs, the problem is getting them to you, Will a naked picture in e-mail do? ;;D

Hang in there sweetheart, shit has to get better!

I know what you mean about going without meds, I did it for 14 years chronic......What a fucking ride that was.

Things can only get better, Babe....kick some operation ass on Monday!!!!

.............................jonny

Title: Re: CH and anesthesia?
Post by Mark C on Feb 21^st, 2004, 2:38pm

Last October I has sinus surgery, in cycle.. :P...woke up with a headache and kept it till I altered my Therapy. (http://clusterbusters.com/) I don't think the anesthesia had a lot to do with my head but I was so sick when I woke up it's hard to remember now.

Good Luck!
Mark

Title: Re: CH and anesthesia?
Post by Karla on Feb 21^st, 2004, 2:47pm

I have been operated on 3x while being chronic. I must say that I had no problem with ha comming out of surgery. I would think that you should be fine.

Title: Re: CH and anesthesia?
Post by firebrix on Feb 21^st, 2004, 3:01pm

Greetings suzy617

Sorry to hear you've had such a bad week! Please look after yourself; take a bit of a break and indulge yourself a little. (No laughing with broken ribs tho'!) OUCH!

I think you might remember my post about Mopar's reaction to the anaesthetic he had when he had both carpal tunnels operated on. It was all bad I'm afraid, but Mopar is chronic (a real chronic's chronic :'() and the reaction he had is not common - many people on this board have had anaesthetics with few problems. We did however, learn that there is more than one option when it comes to anaesthetic drugs and some are safer to use on clusterheads than others, so talk to your anaesthetist and surgeon and tell them you suffer from CH. This way, you'll get the drug least likely to cause complications.
All the very best suzy617! We'll be thinking about you on Monday.
Please let us know how it went.
firebrix

Title: Re: CH and anesthesia?
Post by bobkip on Feb 21^st, 2004, 3:36pm

Had no problems with anethesia; had 2 colonoscopies (sp?) over the last 4 years and was out compeltely (valium the 1st time, dunno the 2nd). Woke up feeling fine.
Kip

Title: Re: CH and anesthesia?
Post by Mr.Happy on Feb 21^st, 2004, 3:51pm

Yo Fran,

Pisscutter with the surgery and all. Anesthesia may or may not induce a CH for you..........but since you're in the middle of MoFo time......plan on getting slammed while in the hospital. Talk to the docs AHEAD of time......SCREAM into their faces that you use O2/Trex injections, have CH, and are demanding immediate treatment if you get hit. Find out if you can bring your own juice, or if they can have it ready for you in 2 minutes or less. Have it all documented on paper/chart out the yazoo BEFORE you walk in the front door, or you won't stand a chance.
Just did a little overnight visit myself. Took 2 1/2 hours to get a damned jug of water and a cup from the floor nurse. God knows how long it would've taken if I asked for 2 Tylenol to go with that.

Planning is everything,
RJ

Title: Re: CH and anesthesia?
Post by UN_SOLVED on Feb 21^st, 2004, 7:20pm

I did have a problem with it. I was on Topomax for a long time and I just know it's what caused me to get kidney stones (twice). The first time I had to have Lithotripsey (sp). I woke up in the recovery room still drugged up but screaming in pain. It wasn't from the surgery or the stent, it was a full blown CH attack. They gave me an Imitrex injection and I went back to la-la land. Later that day the docs said it was probably the anesthesia that triggered the headache.

UNSOLVED

Title: Re: CH and anesthesia?
Post by Cerberus on Feb 21^st, 2004, 7:31pm

Suz...

I wish I could offer more info on this topic, however, I have not had any surgeries or invasive proceedures that required anesthesia to draw any info from. At least not since the diagnosis of my clusters.

Hope ya get better soon,
Ramon

Title: Re: CH and anesthesia?
Post by Giovanni on Feb 21^st, 2004, 7:37pm

I had minor procedure while under anesthesia (short time under) and did not have a CH (was in cycle). Maybe you'll get lucky?--Hope so.

Happy gave you good advice. Prepare your doctor(s) for this and have advanced permission for imitrex injection or something in case you do get one.

Good luck,

John

Title: Re: CH and anesthesia?
Post by suzy617 on Feb 22^nd, 2004, 7:17am

Thank you all for the info and vibes.

Hugs to ya,
Suzy

Title: Re: CH and anesthesia?
Post by Peppermint on Feb 22^nd, 2004, 9:40pm

Suzy, I'm glad you shared this - cover your ass and cover it well if you can is good advice.

8am tomorrow and on, you'll have lots of prayers for you my buddy, I hope it is all good, rather, It WILL be all good, positive thinking....its been one hell of a month for you sister.

Lots of love from me and Ericka to you, she sends you a big gentle hug [smiley=hug.gif] and says "its going to be ok and try not to be nervous".

Stay Hard Runaround ... Patty :-*

Title: Re: CH and anesthesia?
Post by JDH on Feb 22^nd, 2004, 9:52pm

I was in a cycle and on the pre-op table waiting to go into surgery and you know who showed up. I started getting scared when it got to about a k6 and the anesthesologist comes in, ask me how I'm doing and I tell him I've got a bad headache coming on. He says we'll take care of that and sure enough he did, 6 hours later I woke up with no headache....probably the best abortive I've ever had, lol. I was even able to sleep that night but the next day it picked up right where it left off.
Good luck tomorrow,

Jim

Title: Re: CH and anesthesia?
Post by Peppermint on Feb 23^rd, 2004, 11:12am

http://www.millan.net/minimations/gpixie.gif THe Vibe Fairy Bumping for Suzy today [smiley=heart.gif]
----(((((( GOOD VIBES, GOOD VIBES)))))) SUZAROONY!!!

Title: Re: CH and anesthesia?
Post by Major_Headcase on Feb 23^rd, 2004, 5:33pm

Suzy,

I vaguely remember reading a thread from earlier this month (thinking it was about Svenn's surgery) that suggested that surgical anesthesia sometimes disrupted the Beast's cycle ... and might even get you off the hook for this year's cycle if you're lucky. Since it's Monday it's probably too late to be of help in easing your pre-op concerns, but I'll be hoping the Beast gives ya' a break since you're paying your dues elsewhere.

-John

Title: Re: CH and anesthesia?
Post by firebrix on Feb 23^rd, 2004, 6:34pm

You're firmly in our thoughts suzy617!
All the very best!
firbeix

Title: Re: CH and anesthesia?
Post by Peppermint on Feb 23^rd, 2004, 9:52pm

So far, so good..

A loved one says Suzy is doing well - she was sleeping at the time.
Today is a day of rest.

More vibes for my bud.

***BUMP***

Title: Re: CH and anesthesia?
Post by cootie on Feb 23^rd, 2004, 10:41pm

I remember readin several posts about anestetic induceing CH.....but then.....there were thousands on here that didn't post it caused that to happen rite ? Hope the operation went well and knocked ya OUT of cycle Suz.....guess I missed what happen'd to cause the broken ribs....been there done that........super good operation and healin vibes to ya girl !!!! Pam the busted up wonder supporter of the house

Title: Re: CH and anesthesia?
Post by suzy617 on Feb 24^th, 2004, 9:07am

Thanks all for your rockin vibes. All went well, no CH's, havent had one since Friday.
Now I get to play the "waiting game" and sit here jumping out of my skin till the biopsy reports come in.
Hey, besides my imitrex, vicodin rules. ;)
A special thank you to my pepsi cola buddy Pep. :-*

Suzy

Title: Re: CH and anesthesia?
Post by ozzman on Feb 24^th, 2004, 9:18am

Glad to hear you came out OK. Will just keep praying for those biopsy results..

Ozzy

Title: Re: CH and anesthesia?
Post by henzey on Feb 24^th, 2004, 12:46pm

Suzy: I too am having a minor surgery event on Thursday so you really posted a timely message. I sure hope your biopsy is 100% good news. I will have to have a biopsy as well and I know that I am very nervous about this, so I can relate to what you are going through. Please keep us posted and I will do the same.

Title: Re: CH and anesthesia?
Post by Peppermint on Feb 24^th, 2004, 1:50pm

on 02/24/04 at 09:07:24, suzy617 wrote:

Don't jump out of your skin run-around, that can't be a good look for you...

YW BUD, just try to distract yourself until the report comes in... maybe I can tell you more stories...[smiley=sgrin.gif]

Title: Re: CH and anesthesia?
Post by Tiannia on Feb 24^th, 2004, 2:08pm

I hope that the biopsy comes out for your well.

I actually am having out patent surgery tomorrow and will be put under so while I am not glad that you had to have the surgery, thank you for this post I had not even thought about this aspect of it. :-/

Title: Re: CH and anesthesia?
Post by suzy617 on Feb 24^th, 2004, 3:18pm

Tiannia and Henzey, good luck to both of you on your surgeries. When it rains, it pours but thankfully the sun eventually shines thru.
Let us know how your both doing.

Suzy