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        New Message Board Archives >> Jan-Mar 2004 >> **UPDATE** LETS RESPOND 2 CBS
        
(Message started by: 357Mag on Feb 21^st, 2004, 5:34am)

Title: **UPDATE** LETS RESPOND 2 CBS
Post by 357Mag on Feb 21^st, 2004, 5:34am

CBS UPDATE:

A huge THANK YOU to those that sent an email to Mary and hopefully 60 Minutes II as well.

I intend to place a call to both Mary and the 60 Minutes producers this week. To that end, it will be VERY HELPFUL if those that did send an email would please confirm that by sending me a simply one or two line message to hadenuff@kdlltd.com

I just need to know how many were actually sent, and if they were sent to both Mary AND 60 Minutes II.

Once again, thank you all for supporting me in this attempt to call attention to our plight.

MODIFIED TO ADD Dr. INFO
CBS News Health Contributor Dr. Jordan Metzl

I needed to complete a bit of research prior to including this as part of the updated information.

Dr. Metzl’s major line of work appears to be in sports and dance medicine, but the mere fact that he has already appeared on a CBS news program and spoken of Cluster headaches only strengthens our capability of being heard. Here is the link to the interview and what Dr. Metzl had to say on The Saturday Early Show….granted, this took place in 2001…….

http://www.cbsnews.com/stories/2001/12/21/earlyshow/saturday/main322188.shtml

So in addition to calling Mary and 60 Minutes II producers, I will also be contacting Dr. Metzl via email and phone this week. I hope to persuade Dr. Metzl to impress upon Ms McGeever that Cluster headaches are indeed a serious disease, and a cause worthy of the airtime that she and/or 60 Minutes II might possibly provide.

Peace to all,
-dan

Title: Re: **UPDATE** LETS RESPOND 2 CBS
Post by toader on Feb 24^th, 2004, 9:37am

Careful what you wish for ...

The press has their own agenda. They are out to sell - which means sensationalize, make a splash - whatever. They may not portray "the cause" in the light you want.

What is the "better" news story?

Medical marijuana? Now how about medical psychedelic mushrooms? See how a group of wacko chronics use the Internet to barter drugs and buy them online with PayPal.

Here's the heartwarming story of a rare condition of headache sufferers and how they cope with their tragic condition.

Title: Re: **UPDATE** LETS RESPOND 2 CBS
Post by Pinkfloyd on Feb 24^th, 2004, 2:16pm

on 02/24/04 at 09:37:58, toader wrote:

Medical marijuana? Now how about medical psychedelic mushrooms? See how a group of wacko chronics use the Internet to barter drugs and buy them online with PayPal.

Well, then I guess I'd have to sue their asses off for slander and collect enough to pay for the clinical trials.

No one is bartering drugs or paying for drugs, or anything illegal, with paypal or by any other method.

It would be an interesting arguement over the facts in court as to whom the "whackos" really are. The chronics that will try a method that was proven in studies over 50 years ago, to be effective, to end their suffering, or the polititions that make this treatment unavailable to everyone.

Even with that show lead in, I'd still be able to reach millions of people about clusters and this treatment. Some of them being cluster sufferers. To those that aren't sufferers or don't understand, I couldn't care less. Our mission is not to help the blind to see, but to help cluster sufferers live a pain free life.

Do you think the cancer patients that are now getting relief and in some cases, seeing improvement in their cancers, care more about finding out the information or reading the stories about the federal government calling them pot smoking druggies?

If you care more about how you're viewed by some a**hole in a suit sitting behind a desk in D.C. than you do about your own health and well being, your families future, the pain you must endure, then.... "houston," you have a problem.

disclaimer: the use of the word "you" in the above statements, is not employed to imply or infer a reference to anyone specific in this group or thread. This has been a public service announcement. However, should the "you" fit, you may wear it.

floyd

Title: Re: **UPDATE** LETS RESPOND 2 CBS
Post by thomas on Feb 24^th, 2004, 2:23pm

Yeah, I agree with Toader, we should all shut the fuck up and suffer in silence. I don't want to hear anymore bitching about how bad your damn head hurts.

Title: Re: **UPDATE** LETS RESPOND 2 CBS
Post by Tiannia on Feb 24^th, 2004, 2:26pm

Having a rough day Thomas?

Title: Re: **UPDATE** LETS RESPOND 2 CBS
Post by thomas on Feb 24^th, 2004, 2:29pm

on 02/24/04 at 14:26:39, Tiannia wrote:

Having a rough day Thomas?

Not at all, my dear, not at all.

Title: Re: **UPDATE** LETS RESPOND 2 CBS
Post by Linda_Howell on Feb 24^th, 2004, 2:37pm

I think Toader was only playing "DEVILS ADVOCATE"

as in: Which is the better story for the greedy news people to sell their stories to.

Number 1.

or number 2.

Just my NOT so humble opinion. lol Linda

Title: Re: **UPDATE** LETS RESPOND 2 CBS
Post by thomas on Feb 24^th, 2004, 2:41pm

Mine was all sarcasm. But I do believe that people should take the time to send a damn e-mail to someone that might be able to get us out there in the media. If you keep beating your head against the wall, eventually, you'll knock a few bricks out. We never know when the big break will come, but we can rest assured that if we do nothing, it will never come. Just my humble opinion.

Title: Re: **UPDATE** LETS RESPOND 2 CBS
Post by Tiannia on Feb 24^th, 2004, 2:47pm

on 02/24/04 at 14:41:59, thomas wrote:

We never know when the big break will come, but we can rest assured that if we do nothing, it will never come. Just my humble opinion.

Kind of like if a tree falls in the woods but no one is there to hear it type thing???

I have to agree that eventually if one of these news guys get enough emails regarding Clusters one might actually decide that it is worth putting on the air.

Actually I have seen somewhere on the web already where people have made comment about the clusterbusters site and that people talk openly abut taking magic mushrooms to releive pain from this particular type of HA. I will have to try and find that article. I did not think much about it at the time, cause well we talk about it all the time here.

Tiannia

Title: Re: **UPDATE** LETS RESPOND 2 CBS
Post by Tiannia on Feb 24^th, 2004, 3:02pm

Here is one article from August of 2003

http://www.wildernessnazarene.com/karlart2.html

And here is another one that makes reference to this as well.

http://www.maps.org/forum/2003/msg00330.html

Title: Re: **UPDATE** LETS RESPOND 2 CBS
Post by Charlie on Feb 24^th, 2004, 4:51pm

Quote:

have to agree that eventually if one of these news guys get enough emails regarding Clusters one might actually decide that it is worth putting on the air.

Bombarding anyone with email won't work. 99% of it will never get a look. I don't think quantity of email is very effective. The only thing that people "complain" about is that they have to open snail mail. Too much chance of a check to ignore.

By the way, the reason that shrooms and marijauana are illegal is that unlike booze, drug companies can't make a buck. Only in Amerika.

Charlie

Title: Re: **UPDATE** LETS RESPOND 2 CBS
Post by thomas on Feb 24^th, 2004, 4:53pm

on 02/24/04 at 16:51:04, Charlie wrote:

By the way, the reason that shrooms and marijauana are illegal is that unlike booze, drug companies can't make a buck. Only in Amerika.

Charlie

You forgot good ol' Uncle Sugar.

Title: Re: **UPDATE** LETS RESPOND 2 CBS
Post by toader on Feb 24^th, 2004, 8:38pm

on 02/24/04 at 14:37:49, Linda_Howell wrote:

I think Toader was only playing "DEVILS ADVOCATE"
Linda

yup

the news is evil
long live the news ;;D