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        New Message Board Archives >> Jan-Mar 2004 >> Hey all you NEW CLUSTERHEADS!!!
        
(Message started by: Little Deb on Feb 6^th, 2004, 5:13pm)

Title: Hey all you NEW CLUSTERHEADS!!!
Post by Little Deb on Feb 6^th, 2004, 5:13pm

MY GOODNESS!

There are so many of you newbies!!

I just want to say WELCOME to ALL of YOU!!!

You will never be alone again in this hell. There is always someone here. You will find more family than you could have ever imagined.

Thought I would give you a little intro so you ALL could get a little familiar with all of us. Everyone please join in to welcome all of these new folks.

I am almost 40, had CH for 25 years...episodic currently every 2 years.

And I LOVE CH.COM !!

Little Deb
Raleigh, NC ;;D

Title: Re: Hey all you NEW CLUSTERHEADS!!!
Post by thomas on Feb 6^th, 2004, 5:16pm

I have had clusters since 1992. Episodic, ususally have my cycles in the fall. Have skipped 2 cycles, since they started. Cycles last about 3 months 4-8 ch per day. Have been pf now for 3 months. Have lurked around since 1999, just decided to put my oar in the water in 2003.

Title: Re: Hey all you NEW CLUSTERHEADS!!!
Post by River_Rat on Feb 6^th, 2004, 5:27pm

Hello Newbies, Norm here, 39 clusters since I was 18, I usually get hit every fall for 2 to 3 months, I have missed a few cycles over the years and one time I went 3 years pain free. I found that Imitrex injections work well for me, along with Verlin pm as a prevent. Last cycle I used Amerge and it worked very well.

Welcome, Hang in there, we're stronger then the beast, we will win this fight.

Just take it one day at a time, pretty soon the'll be gone.

NORM

Title: Re: Hey all you NEW CLUSTERHEADS!!!
Post by Paigelle on Feb 6^th, 2004, 6:08pm

on 02/06/04 at 17:13:21, Little Deb wrote:

I second this because I have them for 25 years too! and you will find your best friends here.

Title: Re: Hey all you NEW CLUSTERHEADS!!!
Post by jonny on Feb 6^th, 2004, 6:20pm

Hi all new people...so sorry you have to be here!!

Im the fuckin King here so dont give me no shit and we will get along damn it!!! ;;D

With that said....if'in you have any questions about 02, Verapamil, Lithium, Zomig, being chronic, fears of going chronic, Imitrex, ice, wanting to know how to kill someone and not get caught.........Im your man ;;D

Welcome aboard....grab an oar and row before I have Cootie bite your ankles off!!!

.................................jonny

PS...If you cant get a script for 02....I can get you that 02.

Title: Re: Hey all you NEW CLUSTERHEADS!!!
Post by 9erfan on Feb 6^th, 2004, 6:28pm

Hello Newbies,

I'm a 37 year old female who has clusters since the age of 19. I was episodic for the first 13 years, and chronic for the past 5.

This site has SAVED my life!

Welcome!

Virginia

Title: Re: Hey all you NEW CLUSTERHEADS!!!
Post by Jackie on Feb 6^th, 2004, 7:27pm

Welcome Newbies....

I'm married to a chronic. Hang in there.....after years we've finally found a drug combo that works. There is hope.

Bless all your hearts....

Jacks 8)

Title: Re: Hey all you NEW CLUSTERHEADS!!!
Post by Marc on Feb 6^th, 2004, 7:55pm

How does one qualify as a newbie? 8)

Title: Re: Hey all you NEW CLUSTERHEADS!!!
Post by Jackie on Feb 6^th, 2004, 7:59pm

LMAO....sorry Marc ::) You don't qualify.... ;;D

Jacks 8)

Title: Re: Hey all you NEW CLUSTERHEADS!!!
Post by chronic_chic on Feb 6^th, 2004, 8:31pm

Welcome to all the new folks!

I am pretty new to clusters...first got them this past fall. However, not new to headaches. I've had migraines since the age of 8, and a chronic daily headache condition since age 20. I'm a 23 year old female.

Pull up a chair and make yourselves at home! This is a great place! :)

~Lizzie :)

Title: Re: Hey all you NEW CLUSTERHEADS!!!
Post by cootie on Feb 7^th, 2004, 12:34am

Yes....a nice big clusterbuddy hug to all the newbies from the cootster......I am a smartass here.....I been sorta behind lately on sayin my 'hey's'.........by the way........jonny I need to know how to........oh.....never mind ! Pam with a things to kill list :P (aka/ ankle biter and hope I don't miss)

Title: Re: Hey all you NEW CLUSTERHEADS!!!
Post by Callico_Kid on Feb 7^th, 2004, 12:47am

Welcome to all. I try to greet each of you, but if I missed I'm doing it now! ;;D

I'm 49, and have had these things for about 25 yrs. I was episodic until March of last year. Chronic since then.

This site has been a life saver for me. I have been able to find a way to handle this mess finally, plus have met some really wonderful caring people here. We have become a family that is some times raucous, crass, feisty, but alway supportive and caring for those who need it. Please take the time to read enough of what is written to understand a context and a person's personality before making a judgement. I say that only because a few people have misconstrued something that was said and left without taking the time to understand what was being said and what was behind it. You cannot find a more caring group anywhere.

Jerry

Title: Re: Hey all you NEW CLUSTERHEADS!!!
Post by tsayswhy on Feb 7^th, 2004, 1:11am

Welcome All :D

I've been having clusterheadaches for 5 years misdiagnos for 4 years, so only found this site last year
I am episodic, oct-sept. lasting 5 weeks.

tari

Title: Re: Hey all you NEW CLUSTERHEADS!!!
Post by Sean_C on Feb 9^th, 2004, 9:20pm

Hi peeps...

I guess you've come to the right place.....lotta people here that feel what you feel......sounds wierd huh...but its true.

I've been Clusterin since 1980, was Chronic for over 10 then had a three year break (reasons unknown but not complaining) and have been episodic since....Sping and Fall, lasting hopefully six weeks.

Lots of info for you guys around here to help educate yourselves so look around and get comphy, nobody's left yet.

And most importantly jonny is King here and he is a "PRICK" so do what he says and give him your lunch money everyday and he'll leave you alone. Thats what I do and he likes me now;;D

If you need us we'll leave the light on for ya ;;D

PFDAN to all.

Sean..............................................

Title: Re: Hey all you NEW CLUSTERHEADS!!!
Post by lilkjb on Feb 9^th, 2004, 11:30pm

Hi,
Everyone I am new to the board and am currently in a cycle. I am 38 years old and have gotten these horrible HA since I was 8 years old. Right now I am on lithum (300mgx3 a day and 375mgx3 a day of naprosyn) also my nero put me on a 6day prednesone taper. It usually works but not this time. Also I am taking imitrex injections to abort. I was getting day and night HA now just 2 a night. I am thinking of trying melatonin but am not sure. Any thoughts???
Thanks.