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        New Message Board Archives >> Jan-Mar 2004 >> Who is the youngest clusterhead?
        
(Message started by: Lissa on Feb 4^th, 2004, 10:47am)

Title: Who is the youngest clusterhead?
Post by Lissa on Feb 4^th, 2004, 10:47am

I'm 24. :)

Title: Re: Who is the youngest clusterhead?
Post by thomas on Feb 4^th, 2004, 10:57am

kid

Title: Re: Who is the youngest clusterhead?
Post by ZAIRA on Feb 4^th, 2004, 11:00am

I am 25 ;;D

Title: Re: Who is the youngest clusterhead?
Post by thomas on Feb 4^th, 2004, 11:11am

I think poor little Carmerooski is one of the youngest..... :(

Title: Re: Who is the youngest clusterhead?
Post by Margi on Feb 4^th, 2004, 11:48am

Sadly, we've had children younger than Cam talked about here. Shelley's little man was not much older than 3 when she first arrived here.

The saddest CH story I ever heard was of the multiply handicapped child with CH (I forget how old he was now, but not very...) - his dad told us that he had no vision, hearing or speech and also suffered from cerebral palsy. They were able to determine that the "seizures" he was having were, indeed, cluster headache. I'm sure that little guy wasn't much past 6.

Title: Re: Who is the youngest clusterhead?
Post by thomas on Feb 4^th, 2004, 11:50am

on 02/04/04 at 11:48:43, Margi wrote:

It's not fair Margi.............. :'(

Title: Re: Who is the youngest clusterhead?
Post by cootie on Feb 4^th, 2004, 12:20pm

There was a girl on here a while back that was only 16 I talked to few times.......she was havein some family troubles and think her mom had died......real nice girl. Pam that is only 6

Title: Re: Who is the youngest clusterhead?
Post by don on Feb 4^th, 2004, 12:21pm

Which calander are we using?

Title: Re: Who is the youngest clusterhead?
Post by chronic_chic on Feb 4^th, 2004, 12:28pm

I'm 23. I hate hearing that little kids have to suffer with this. I don't even know if I want to have kids because the migraines I have are genetic, and I just don't know if I could watch my kids go through it. :(

Well, guess I should wait until I find the guy to have them with first! :)

~lizzie :)

Title: Re: Who is the youngest clusterhead?
Post by TxBasslady on Feb 4^th, 2004, 12:39pm

Reading on the kids and cluster board makes me cry.

I have not a clue how Camerooski's mom deals with it.

It literally breaks my heart......... :'(

Wish I could take the pain for that little boy..... :'(

Title: Re: Who is the youngest clusterhead?
Post by JDH on Feb 4^th, 2004, 12:42pm

on 02/04/04 at 11:48:43, Margi wrote:

Fuckin' beast!
That's so sad to hear about kids that young dealing w/this crap. Like Thomas said, it's just not fair.

Jim

Title: Re: Who is the youngest clusterhead?
Post by Tiannia on Feb 4^th, 2004, 12:59pm

Very true. I look at my kids and they both have sinus troubles / sinusitis with headaches that they got from my hubby mostly. But I really worry at times that they could be worse. I can tell when my 17m old is in pain and there are times when he will hold his head and just lay on the ground and I find myself praying that he just does not end up with these things. That it is just the preassure changing. At least he is willing to come to me and have mom help and thank the powers that be that I can. Some kids tylenol, warm washclothes to the sinuses and rockig in moms lap and it makes it go away. Hell I dont know what I would do, if I could not help him at all. :'( At least we can verballize and say what we are feeling, they are the innocent victims.

Tia

Title: Re: Who is the youngest clusterhead?
Post by Brian_Y on Feb 4^th, 2004, 1:00pm

Where do those of us who are immortal fall?

Forever young or hopelessly old?

Title: Re: Who is the youngest clusterhead?
Post by fubar on Feb 4^th, 2004, 1:10pm

My 11 yr old girl is starting to have CH. Last month I saw all the tell tale non-fakeable signs, but it was only one attack. I've never been so depressed as at that moment, realizing she was going to go through it. CH is a BIIAAAAATCH.

Title: Re: Who is the youngest clusterhead?
Post by 9erfan on Feb 4^th, 2004, 1:18pm

I can't even imagine trying to deal with this crap as a child. My heart breaks for them.

Title: Re: Who is the youngest clusterhead?
Post by Edski_1 on Feb 4^th, 2004, 1:21pm

Very small consolation for the young ones...

Treatments and diagnosis are better now, and they have the experiences of all the older clusterheads to draw on. Hopefully their Hell will be a *little easier* to del with as they grow older.

Something tells me that the battle will never end unfortunately, though. :'(

Title: Re: Who is the youngest clusterhead?
Post by totka on Feb 4^th, 2004, 2:50pm

I was 23 sometime ;;D

Title: Re: Who is the youngest clusterhead?
Post by Karla on Feb 4^th, 2004, 3:06pm

My son Joshua started having ch when he was 13. I died when I found out he was suffering from them as well as migraines just like me. I am so grateful that he is not chronic like his mother. All his brothers suffer from migraines. I am waiting to see if any more of them develope into clusters. No fair.

Title: Re: Who is the youngest clusterhead?
Post by kim on Feb 4^th, 2004, 3:44pm

If memory serves me (which we all know is usually pretty much kaput), I think the youngest recorded cluster attack was in an 11 month old baby. That really sux.

Title: Re: Who is the youngest clusterhead?
Post by Lissa on Feb 4^th, 2004, 3:54pm

on 02/04/04 at 12:20:21, cootie wrote:

There was a girl on here a while back that was only 16 I talked to few times.......

That's about the age my headaches started. I was either 15 or 16. I can't remember now. I'm getting too old. ;;D

Title: Re: Who is the youngest clusterhead?
Post by Big_Dan on Feb 4^th, 2004, 5:13pm

23 now... in and around 16 when they started...

-Big Whippersnapper

Title: Re: Who is the youngest clusterhead?
Post by Giovanni on Feb 4^th, 2004, 6:17pm

Quote:

fubar Posted on: Today at 2:40pm
My 11 yr old girl is starting to have CH. Last month I saw all the tell tale non-fakeable signs, but it was only one attack. I've never been so depressed as at that moment, realizing she was going to go through it. CH is a BIIAAAAATCH.

I've read (can't put my hands on it now) that some people only have one attack and that it--never again. Surly hope your daughter is one of these.

John

:-/

Title: Re: Who is the youngest clusterhead?
Post by manana on Feb 4^th, 2004, 6:29pm

They say it's not genetic...my father suffered, both of my grandfathers suffered, I've suffered since I was 18 & I'm now 48, & my 20 yr old daughter has suffered since she was an adolescent although she hasn't been "officially" diagnosised (I pray it's not ch with her). What makes me angry is that there are treatments but they are expensive & way too difficult to obtain. I sure hope someone can organize ch'rs & get some results for the next generation if not for us!

Title: Re: Who is the youngest clusterhead?
Post by chronic_chic on Feb 4^th, 2004, 7:05pm

on 02/04/04 at 18:29:46, manana wrote:

There's actually research being done as we speak on the genetic thing. I think it is a distinct possibility that it may be genetic for some people. If you have migraine, you have a 50/50 chance of having a kid with migraine. If both parents have migraine, the child has a 75% chance. I don't know that the odds are quite as high with clusters, but they are definately looking into the possibility that it IS genetic.

Title: Re: Who is the youngest clusterhead?
Post by Opus on Feb 4^th, 2004, 9:13pm

Coots,
Her name is Cassie aka night owl, she is 7 now and going through a bad time, her father is military and being shipped out somewhere. Plus he head is bad too. She doesn't write much anymore.

Opus/Paul

Title: Re: Who is the youngest clusterhead?
Post by cootie on Feb 5^th, 2004, 12:00am

Yeah that's who it is Paul.......you mean she's 17 now rite ? I remember her talkin bout her mom dieing and she had went thru some very bad stuff previous....poor girl.....hope she is hangin in there. So young to go thru so much !!!!! Pain makes you humble Pam

These poor kids sure grow up fast when they have to go thru all the PAIN....and they miss so much inbetween !

Title: Re: Who is the youngest clusterhead?
Post by LasVegas on Feb 5^th, 2004, 12:13am

Mine started at age 11 right after a closed head injury. Now i'm 35 and still episodic. At 11 it was more difficult than now because I have found this board to help me with support including education that I did not have when I was 11. This board rules!
Gregg in Las Vegas

Title: Re: Who is the youngest clusterhead?
Post by Eeyore on Feb 5^th, 2004, 3:06am

I am now 22 and turn 23 February, Friday the 13th. My first attack was in September of 1999.

Title: Re: Who is the youngest clusterhead?
Post by Paigelle on Feb 5^th, 2004, 6:15am

Mine started at 10 years old. I am not so young anymore.

Title: Re: Who is the youngest clusterhead?
Post by mikeyd on Feb 5^th, 2004, 7:56am

Jeez, been so long I almost can't remember that anymore, but I think it was 1992 when mine started. 37 now...sigh, I feel old....clusters, back surgery (6 screws and 2 pins in May last year. I have 2 boys 11 &13 and no sign of CH...thank God!
My remission should be good for another year...Wooohooo!!!!
Already ordered my O2 for Feb1,2005...is that planning too far ahead? lol

It is a cruel joke to play on a child, they should not have to suffer like this! I can't imagine being that young with that much pain..nor do I want to!
oops...too late :'(
MIkeyd

Title: Re: Who is the youngest clusterhead?
Post by TomM on Feb 5^th, 2004, 1:52pm

on 02/05/04 at 06:15:51, Paigelle wrote:

Mine started at 10 years old. I am not so young anymore.

Holy Crap!
Now I know I'm special because I started at the ripe ole age of 31 and I'm now 41.
TomM

Title: Re: Who is the youngest clusterhead?
Post by Brian_Y on Feb 5^th, 2004, 2:19pm

Yo mamma

Title: Re: Who is the youngest clusterhead?
Post by Jayne on Feb 5^th, 2004, 2:34pm

One of the nicest things I heard was from Paul (VIG)
he said when he is getting hit he thinks of it this way
That he is having a headache instead of a child having one.

Title: Re: Who is the youngest clusterhead?
Post by athos on Feb 5^th, 2004, 8:57pm

Connor, my little one he is now 6 started CH at 4... has two episodes a year... Fall and Spring....

I would take 100 kip 10's in a row to save him from 1.

Title: Re: Who is the youngest clusterhead?
Post by vig on Feb 5^th, 2004, 9:03pm

it breaks my heart to even IMAGINE a little tyke getting ONE of these things...

:^(................

Title: Re: Who is the youngest clusterhead?
Post by Cerberus on Feb 5^th, 2004, 9:16pm

Sad, hearing about all the young'ns getting CH. Its a shame.....

I gotta wonder though...How the hell would you diagnose an 11 mo. old with CH? Considdering that the same cant fall to the floor and say where it hurts only that it does??? Just curious.

damn shame it is.....why can't the kiddies get a reprive? don't know what I'd do if one o mine came down with this horrible ordeal......specially chronically.

Oh and BTW I don't qualify in this contest :D
Ramon