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Title: MRI Results? Post by t_h_b on Jan 31st, 2004, 5:30pm Did any ClusterHead ever have an MRI that showed anything important or that affected treatment or is it just a c.y.a. thing for neurologists? |
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Title: Re: MRI Results? Post by brad267 on Jan 31st, 2004, 5:46pm It's definately a CYA thing. Normal MRI here, although if you met me, you'd doubt that diagnosis.... Born without a soft spot, needed surgery, very lumpy head... ;;D ;;D -Brad |
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Title: Re: MRI Results? Post by Kevin_M on Jan 31st, 2004, 6:59pm Actually very funny. Yesterday I had a brain c t scan. I can't wait for them to send it to my doctor and have it to be found to have "nothing unusual". Yes, it is required for most entries into a headache institute. My thoughts are so that they can take a look to see if there is anything physical which they can see so they have no liability for having not diagnosed an obvious problem which may have appeared. But for cluster headaches, mine have come back basically irrelevant. The one I took yesterday, I am going to ask for a complete interpretation and see if they spend more than ten seconds explaining anything on it. Thanks for the honesty. Kevin M |
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Title: Re: MRI Results? Post by Callico_Kid on Jan 31st, 2004, 10:24pm It is not just CYA for the docs. You hope they come back normally. As bad as clusters are a slow cerebral hemorhage can also give headaches, as can some tumors or aneurisms. We lost a good friend to a ruptured aneurism above the right eye two years ago. He was 21. Jerry |
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Title: Re: MRI Results? Post by Tiannia on Feb 1st, 2004, 12:38am When mine started I had a MRI right away. Came back perfectly normal. Which is why it is funny when you get the "its all in your head comments" cause you wanna say well they already proved its not. ;;D Tiannia |
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Title: Re: MRI Results? Post by ave on Feb 1st, 2004, 7:38am With respect, tia, but is your hypothalamus located in your left knee or something? It IS in your head, and the enlarged hypothalamus does show up, but is not a diagnostic tool for clusters (yet). Also, thanks Callico, for pointing out the usefulness of MRI scans. I'll go further, any type of test that comes back negative, is useful, because it excludes conditions you maybe would not like to have, really. My patience with the "let's knock doctors because they can't cure clusters and earn money" party, must be wearing thin today... |
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Title: Re: MRI Results? Post by Kirk on Feb 1st, 2004, 7:59am My only MRI was 12 years ago and came back normal. An obvious case of malfunctioning equipment. Atleast thats what my family thinks. [smiley=beer.gif] |
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Title: Re: MRI Results? Post by Giovanni on Feb 1st, 2004, 9:05am "Normal" ;;D |
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Title: Re: MRI Results? Post by 357Mag on Feb 2nd, 2004, 6:41am on 02/01/04 at 07:38:33, ave wrote:
I would be happy if those ‘professionals’ that have failed to diagnose the Beast would simply admit it. If they could come down off of their pedestals long enough to listen to those of us that suffer and have done the research, maybe, some would not have to suffer as long. |
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Title: Re: MRI Results? Post by fubar on Feb 2nd, 2004, 10:39am It's been documented, they looked in my head and found nothing. [smiley=smartass2.gif] |
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Title: Re: MRI Results? Post by hdbngr on Feb 2nd, 2004, 3:00pm Yep. They found my brain, and appearance was normal in 1997 (despite me feeling like I must have a brain tumor, nothing ordinary could hurt this bad) The annual MRI's every year since have also been normal. Beats the alternative, but the ONLY test that ever showed anything was a thermography test where they could actually "see" the cluster attack, which was interesting. Whatever is wrong with CH doesn't seem to show up on the average MRI scan. V |
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Title: Re: MRI Results? Post by t_h_b on Feb 2nd, 2004, 7:22pm Quote:
If they are normal every year then why the heck do they keep doing them? That really sounds like a waste of your time. Callico_kid/Jerry, sorry about your friend. Obviously there are many cases where the diagnosis is unclear or the extent of a problem needs to be investigated. I was not questioning the value of MRIs in general, just for people who clearly have CH. The signs and symptoms of CH are so unique and easy to identify IF you know what to look for. My neuro didn't seem to think one was necessary to rule anything out, but apparently it's very common to order them. |
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Title: Re: MRI Results? Post by chronic_chic on Feb 2nd, 2004, 7:32pm It's generally a rule of thumb for neurologists to order an MRI if someone presents with a new headache or a change in their current headache condition. While the MRIs generally turn up clear and normal, the docs have to make sure. I had one 3 years ago when I first got my chronic daily headache, and then I got one again when I was recently diagnosed with clusters because there was such a marked change in the nature of my headaches. A word of caution: headache is often not the first symptom of a brain tumor or aneurysm. Some people have had aneurysms with no headache at all before it blew. A "thunderclap" headache is often the sign of an aneurysm if that is the cause. Brain tumors often have a first defining symptom of a seizure or other neurological deficit. The headache often only occurs after the tumor has progressed fairly far along in its path. I think these are reasons they often order MRIs. They have to check for things that may or may not have a symptom of a headache. Jerry, also very sorry to hear about your friend. Take care, Lizzie |
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Title: Re: MRI Results? Post by BlueMeanie on Feb 2nd, 2004, 7:48pm They are very important as you and your doc do not know what is causing your headaches. At least anything major can be ruled out. I know Cluster Headaches seem to be major to us that feel the pain. A brain tumor can kill you. Cluster Headaches do not. |
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Title: Re: MRI Results? Post by KarynG on Feb 2nd, 2004, 7:55pm Had a cluster while I was in the machine having my MRI and MRA 7 years ago didn't show anything abnormal according to the neuro |
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Title: Re: MRI Results? Post by ClusterChuck on Feb 2nd, 2004, 9:07pm on 02/02/04 at 19:55:25, KarynG wrote:
Damn, woman, are you whining, AGAIN???? Sheesh!!! WDGCH!!! Dern freeking wimmins!!! Chuck PS: Love to ya, Darling! SO happy to have met you at Deb's house! Welcome to my heart! |
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Title: Re: MRI Results? Post by KarynG on Feb 2nd, 2004, 10:20pm Chuck, STFU!!!! Joe is on the phone with my sister trying to fix the hard drive on my desktop and they are talking about masters and slaves and things...I know we'd all be having some fun with it... |
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Title: Re: MRI Results? Post by Thorns on Feb 2nd, 2004, 10:36pm My CT came back a little scary. It was followed up by an MRI w/wo contrast that revieled a "1.4 cm rounded lesion in the region of the anterior portion of the 3rd ventricle/region of the foramen of Monro, in the midline" [smiley=huh.gif](quoted from the report). Basically, the legion is characteristic for a classic colloid cyst that my neuro informed me is usually found in pre-natals and usually disappears within the first few years of brain growth and development. Apparently mine stuck around and as my neuro tells me has no significance in relation to the clusters because of its location and it was reported as having no associated hydrocephalus. Also, she said that if it were going to cause problems it would have done so by now. |
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Title: Re: MRI Results? Post by KarynG on Feb 2nd, 2004, 11:40pm Chuck, Had to cut that short to check the status of my computer. What I meant to say was STFU AND Ditto on your P.S.!!!! I can't wait until we get together again. Computer is fixed. There were two hard drives in there and only one of them was broken. Fancy that. Blond hair dye works as well as the original... |
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