Clusterheadaches.com Message Board (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
New Message Board Archives >> Jan-Mar 2004 >> I`m in deep shit
(Message started by: Svenn on Jan 27th, 2004, 4:34am)

Title: I`m in deep shit
Post by Svenn on Jan 27th, 2004, 4:34am
Got home from the doc today from a ordinary checkup.
The order was quit the trex-shots this instant.Im gonna put you up for bypass,he said. :'( :'(

Dont know what to do now    :'( :'(

Take care friends

Svenn

Title: Re: I`m in deep shit
Post by Big_Dan on Jan 27th, 2004, 4:38am
You can't do the DHE shots?...

Or what about the pills or nasal spray?...

I'll be pullin for ya, buddy...  :-/





-Big Dan

Title: Re: I`m in deep shit
Post by Filbert on Jan 27th, 2004, 4:43am
Hi Svenn sorry to hear of your very bad news .Remember however bypasses are usually very successful these days. Take care Filbert

Title: Re: I`m in deep shit
Post by KingOfPain on Jan 27th, 2004, 4:45am
Svenn,

Is it possible to get a second opinion?

Bypass is serious business.

Just a thought.



Super vibes to you, Amigo.

Well wishes & best of luck
on whatever the Dr.'s
(and you) decide.


Pain Free times to you too.

Please keep us advised, the best you can.

Title: Re: I`m in deep shit
Post by KingOfPain on Jan 27th, 2004, 5:11am
Clusterville,


Does anyone know of meds for
CH that are not threatening
to someone with heart problems?

Nothing that has a contraindication
against the heart.

Please help.


Thank you very much.

Title: Re: I`m in deep shit
Post by Giovanni on Jan 27th, 2004, 5:17am
I agree with KOP, get a second opinion.  Did a cardiologist tell you this?

Good Luck,
John    

Title: Re: I`m in deep shit
Post by Kevin_M on Jan 27th, 2004, 5:26am
Yes, sorry to say, the trex and heart probs are incompatable.  Hope they can respond to your need to abort with something safer, but the heart docs might not be the one's to know what to do about clusters in this situation.  Get medical counseling advise about what to do about abort.  I'm sure you have inquired.
I'm no doc, so I've not any solutions.  Then there's the period after the bypass too, same prob, what to use.  I'm sure they can suggest something for you.
 Pulling all I can for you.  The bypass has a very good success rate and is done daily by the docs who do that.  You will be alright, sore, but alright.  Please, let us know how you are doing.  It's a situation, but a solution is out there.  Best to you through this time.  Will be thinking about you.

Kevin M

Title: Re: I`m in deep shit
Post by ZAIRA on Jan 27th, 2004, 6:04am

Svenn, I'm so sorry you are not well! But you must fight  and fight, and get yourself well again. I'm sure that if you can live through CH, you can live through anything. Vibes coming your way..... Zazi  :-/

Title: Re: I`m in deep shit
Post by ClusterChuck on Jan 27th, 2004, 6:17am
Damn, my mad viking buddy, that is tough news!!!  I know how much trex has kept you sane (well, ALMOST sane, anyhow).  Maybe the patch will be able to keep you relatively pain free, until the bypass?

I hope you know, that my prayers and vibes are there for you.

You know how to get in touch with me.  Let me know how I can help.

Chuck

Title: Re: I`m in deep shit
Post by Paigelle on Jan 27th, 2004, 6:39am
Oh Svenn, I am so sorry to hear this.  You will make it through, I know you will.

Title: Re: I`m in deep shit
Post by Wifeofchman on Jan 27th, 2004, 8:30am
Svenn, By-pass surgery is extremely safe with less than 1% morbity/mortality. I've harvesting vein and assisting on these surgeries for over 10 years now and they continue become more routine. As for the no imitrex, I think it will be longer than expected but they should be able to come up with a safe alternative. My prayers go out to you and don't stress over the by-pass situation. things tend to work themselves out in the long run. "CHMan"

Title: Re: I`m in deep shit
Post by thomas on Jan 27th, 2004, 8:36am
Give 'em hell Svenn, you'll make it through this........ We'll all be pulling for you...... :)

Title: Re: I`m in deep shit
Post by Patrick_A on Jan 27th, 2004, 8:36am
Hey Svenn, I truly hate that for you, I suppose you will now have to learn alternative methods for dealing with the Beast! Just remember, Imitrex has only been around now for 8 years. I am sure you will find a way to deal with these.

Patrick

Title: Re: I`m in deep shit
Post by benj on Jan 27th, 2004, 8:50am
I was given Imigran injections (what you call Imitrex) eleven years ago [smiley=huh.gif] - just an aside.

why not O2? - I'm familiar with triptans being bad for heart conditions, but as I do not take O2 yet, I'm not sure. Wouldn't this be OK for you to try?

Title: Re: I`m in deep shit
Post by Mastifflvr28 on Jan 27th, 2004, 9:19am
I've got no advice for you Svenn,
Just know I've got HUGE vibes going up to you!!
Take care sweety,
Be strong,
Mast

Title: Re: I`m in deep shit
Post by Pinkfloyd on Jan 27th, 2004, 9:26am

on 01/27/04 at 05:11:34, KingOfPain wrote:
Clusterville,


Does anyone know of meds for
CH that are not threatening
to someone with heart problems?

Nothing that has a contraindication
against the heart.

Please help.


Thank you very much.



Yeah........mushrooms

www.clusterbusters.com

PF

Title: Re: I`m in deep shit
Post by echo on Jan 27th, 2004, 9:30am
Sorry to read about this new development Svenn.  You'll come through this with flying colors.  Take care brother

Title: Re: I`m in deep shit
Post by JDH on Jan 27th, 2004, 9:30am
Svenn,
Good luck to you and please consider Pinks suggestion.

Jim

Title: Re: I`m in deep shit
Post by aprilbee on Jan 27th, 2004, 10:07am
huge vibes going out to you, and I agree with KOP...second opinions have actually saved my life!  Good luck sweetie!

Title: Re: I`m in deep shit
Post by Woobie on Jan 27th, 2004, 10:29am
Svenn - you get to play with a new set of nurses!!   Yeah!!!    

I am sending you vibes ....... and you will be OK.  A second opinion wouldn't hurt.......
Get betteR~~~!!!
tina

Title: Re: I`m in deep shit
Post by Ann on Jan 27th, 2004, 10:38am

Zaira...is that your hon?  WOW    :o  hat a babe!!  ahhhh...sorry!!! ::)

Svenn.... have you tried oxygen?  It works great for me and I love it more than my trex!!

Dad had triple bypass surgery about 8 years ago...he's doing great.  With today's technology, I wouldn't be too worried.  Of course it's the heart and any surgery is a risk...but I think it's worth it.

good luck
hugs
Ann

Title: Re: I`m in deep shit
Post by Edna on Jan 27th, 2004, 11:16am
OK

I'm speechless here.

my friend needs me right now...........I'm not taking time to read any responses because he's more important.

SHIT, this sucks.

Svenn, you know I love you dude!!!!!!!!!!!

feel my hugs and how much I care,
EDNA

Title: Re: I`m in deep shit
Post by AlienSpaceBabe on Jan 27th, 2004, 11:26am
Svenn, my friend....
I'm sorry....
No imitrex sucks.....
BIG BUTT vibes going out to you!!!
Lizzie

Title: Re: I`m in deep shit
Post by Mark C on Jan 27th, 2004, 12:20pm

on 01/27/04 at 09:26:10, Pinkfloyd wrote:
Yeah........mushrooms

www.clusterbusters.com

PF


A Miracle. Saved me.

Title: Re: I`m in deep shit
Post by Jackie on Jan 27th, 2004, 1:37pm
Bless your heart, Svenn.  You know we're all keeping  you in our thought and prayers.

Big Vibes.....

Jacks 8)

Title: Re: I`m in deep shit
Post by Tiannia on Jan 27th, 2004, 2:18pm
Svenn,

I know that the trex has helpped me so very very much, but you have to stay with us so there has to be other things that you can take.  You stay strong and you will get through this. We will all be there for you.

Tiannia

Title: Re: I`m in deep shit
Post by Elaine on Jan 27th, 2004, 2:36pm
Vibes and Prayers soming your way friend.
Stay strong and know we are here for you.

Title: Re: I`m in deep shit
Post by Little Deb on Jan 27th, 2004, 2:47pm
Here's my theory.  Schedule the surgery as fast  as possible.  Then you don't have to get hit and not be able to use the trex.

And. The surgery may just give your system a jolt that will knock the beast out of you for awhile.  

Just a thought.

prayers and vibes with you my friend....little deb

Title: Re: I`m in deep shit
Post by ave on Jan 27th, 2004, 3:09pm
Agree with li'l Deb; some op[rations seem to put the beast off its stride.

I hope it will all pass quickly and perfectly.
Will be thinking of you/

Title: Re: I`m in deep shit
Post by KingOfPain on Jan 27th, 2004, 8:57pm
Amigo bump.

[smiley=worried.gif]

Title: Re: I`m in deep shit
Post by TxBasslady on Jan 27th, 2004, 10:28pm
My prayers and vibes going up for ya, Svenn

Take care........

Jean

Title: Re: I`m in deep shit
Post by Charlie on Jan 27th, 2004, 10:49pm
Bypass is something to approach carefully but it's great that it's available. Look around for a time if you can.

I agree with Ave and Deb. Big operations tend to have a welcome effect on clusters. Who knows what will happen afterwards? Our bodies seem to know what's important.

Sorry to hear this Svenn but you're a pretty tough Norwegian.

Charlie

Title: Re: I`m in deep shit
Post by cathy on Jan 28th, 2004, 4:01pm
Svenn Im so sorry to read this post...not been on or around much recently, as you know Wes has only been able use the O2 since his heart attack....sending vibes to you..

Cathy & Wes  

Title: Re: I`m in deep shit
Post by jminmilwaukee on Jan 28th, 2004, 6:18pm
Svenn,

Bypass is like an outpatient surgery now days. Scary as hell I am  sure but being a CH veteran, I am sure you will pull through fine.

Someone in the post stated that living without trex is hell, I disagree.

Consider reading up on the proven effective alternative treatment and you will do better than you ever have with trex.

Good luck to you and your family.

jmin

Title: Re: I`m in deep shit
Post by Major_Headcase on Jan 30th, 2004, 11:41am
Svenn,

SO SORRY to hear your news. Your "cocktail" recipe has really helped me, now to be denied that yourself just ain't fair ... sending you strong vibes of health and hope! I've not tried 'shrooms myself yet but if I were in your shoes I'd sure give them a chance ... don't give up, keep on keeping on till you find a new cocktail that works for you.  [smiley=hug.gif]

John

Title: Re: I`m in deep shit
Post by taraann on Feb 7th, 2004, 2:40pm
Oh man catching up on some posts I missed and I see this,  is your surgery scheduled yet?  How's the patch working out for you?  I hope its helping get you through!  Hug kickass vibes to ya friend!

Title: Re: I`m in deep shit
Post by bobkip on Feb 7th, 2004, 3:15pm
O2 is a good alternative to drugs IF it works. The only drug I've tried was verap and it had no effect on the beast. Best of luck to you.
Kip

Title: Re: I`m in deep shit
Post by Samantha_Smith on Feb 7th, 2004, 6:45pm
My dear Svenn,
I'm soooooo sorry to hear about this new situation.  I'll be praying for you and I'll tell others to pray for you too.  May you be granted a special comfort beyond all human understanding during this trial of suffering. May God look after you and keep you close to Him.  May He protect you and be with you during your times of intense need and pain. Finally, may the doctors heal your heart (and also you headaches.) Please let us know how everything works out. I agree with everyone else...get a second opinion. Doctors LOVE to give their opinions.

Title: Re: I`m in deep shit
Post by toader on Feb 7th, 2004, 7:31pm
hang in there!!

wishing you the best, Svenn   :) :)

Title: Re: I`m in deep shit
Post by cootie on Feb 7th, 2004, 7:53pm
Small butted person vibes to a guy with a real big boo-boo'd heart !!! Can you take trex after the surgery or in due time ? Hope it all works out PF for ya no matter what ya do. Natta midget small person Pam

Title: Re: I`m in deep shit
Post by RevDeFord on Feb 10th, 2004, 8:40am
Will be praying for you Svenn.



Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.