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New Message Board Archives >> Jan-Mar 2004 >> Is there pain worse that ch?
(Message started by: thomas on Jan 21st, 2004, 9:39am)

Title: Is there pain worse that ch?
Post by thomas on Jan 21st, 2004, 9:39am
Yeah, I think so......... that's all I have to say right now. :(

Title: Re: Is there pain worse that ch?
Post by JDH on Jan 21st, 2004, 9:42am
For physical pain, nothing's close.

Jim


Title: Re: Is there pain worse that ch?
Post by thomas on Jan 21st, 2004, 9:45am

on 01/21/04 at 09:42:57, JDH wrote:
For physical pain, nothing's close.

Jim

I agree with you on that..............

Title: Re: Is there pain worse that ch?
Post by TxBasslady on Jan 21st, 2004, 9:48am
Thomas        ???

You ok, sweetie      ???

Vibes and a lotta love,

Jean

Title: Re: Is there pain worse that ch?
Post by taraann on Jan 21st, 2004, 9:52am

on 01/21/04 at 09:48:05, TxBasslady wrote:
Thomas        ???

You ok, sweetie      ???

Vibes and a lotta love,

Jean


My thoughts exactly....?  Vibes to you and whatever is going on!

Title: Re: Is there pain worse that ch?
Post by benj on Jan 21st, 2004, 10:00am
hey guys,

I have read that women who have chs say that they are more painful than childbirth - is this true?? I feel this pain pretty bad although I thought maybe it was just me, obviously this site has brought about some more awareness for me but I'd like some perspective..

stories?... [smiley=huh.gif]

Title: Re: Is there pain worse that ch?
Post by JDH on Jan 21st, 2004, 10:03am
OK, I didn't think this was ch related...what up Thomas?
You OK?

Jim

Title: Re: Is there pain worse that ch?
Post by 357Mag on Jan 21st, 2004, 10:12am
Last Aug I had a motorcycla accident and ended up losing a toe in the process....severed it almost clean off and split the foot from front to back. They re-attached the toe but it turned to gaingreen (spl) and had to be amputated.

I can telll you that that was a cake walk (no pun intended) to what I go thru with CH.

BTW: the bike never touched the ground and i was riding 5 wks after the accident.

Peace,
357Mag

Title: Re: Is there pain worse that ch?
Post by thomas on Jan 21st, 2004, 10:16am

on 01/21/04 at 10:12:07, 357Mag wrote:
Last Aug I had a motorcycla accident and ended up losing a toe in the process....severed it almost clean off and split the foot from front to back. They re-attached the toe but it turned to gaingreen (spl) and had to be amputated.

I can telll you that that was a cake walk (no pun intended) to what I go thru with CH.

BTW: the bike never touched the ground and i was riding 5 wks after the accident.

Peace,
357Mag

Sorry about your toe.  I'm not talking about physical pain.  I hardly feel physical pain at all... Your post made me smile and I needed that.  Thank you. :)

Title: Re: Is there pain worse that ch?
Post by benj on Jan 21st, 2004, 10:20am
I hear that the loss of a toe can stuff your balance right up - did you have difficulty walking?

Title: Re: Is there pain worse that ch?
Post by catlind on Jan 21st, 2004, 10:21am
Ok Thomas, you've got me worried.  Spill it, your family can lend you their collectives shoulders at anytime.  I agree that there is most definitely pain worse than ch when it goes beyond the physical realm.

You ok bro?  What do you need?  Say the word and it's yours.

I'll not have my demonic pizza eating brother hurting.

Cat

Title: Re: Is there pain worse that ch?
Post by Mastifflvr28 on Jan 21st, 2004, 10:26am
Thomas,
Vibes goin up to ya and if there's anything we can do, let us know!
Mast

Title: Re: Is there pain worse that ch?
Post by BruceD on Jan 21st, 2004, 10:26am

on 01/21/04 at 10:21:00, catlind wrote:
I'll not have my demonic pizza eating brother hurting.


Right on, Cat! Spill it Thomas cuz I know where you live ... well not exactly ... but I'm not against going door to door to find ya'. Let us know if you need anything. And if you don't ... then watch out because I just may show up wandering around your town with a sauerkraut & Canadian bacon pizza. ;;D

BruceD

Title: Re: Is there pain worse that ch?
Post by 357Mag on Jan 21st, 2004, 10:29am
Benj....no problem w/balance as it was the middle toe. Although it feels like i have a ball of cotton near the ball of my foot.

Thomas....sorry i misunderstood, but glad I gave U a smile. As stated by others.....we are family and ready to listen and help if we can. When you are ready, please unload the burden you must be carrying at the moment.
357Mag

Title: Re: Is there pain worse that ch?
Post by Tiannia on Jan 21st, 2004, 10:30am
Thomas,

I can definatly say that there is worse pain then ch when it is emotional, cause there is no stop to it. The ch you know even though it will be back, is only going to last a short time.  But emotional pain can knaw away at your soul it seems and make you feel empty.  Please if there is anything that I can do, let me know.  I am sorry that you are in pain my friend and anything that I can do to make it bearable, please let me help.

Tia

Title: Re: Is there pain worse that ch?
Post by thomas on Jan 21st, 2004, 10:32am

on 01/21/04 at 10:29:14, 357Mag wrote:
Benj....no problem w/balance as it was the middle toe. Although it feels like i have a ball of cotton near the ball of my foot.

Thomas....sorry i misunderstood, but glad I gave U a smile. As stated by others.....we are family and ready to listen and help if we can. When you are ready, please unload the burden you must be carrying at the moment.
357Mag

Can't/wont spill it, but thanks for all of the support..... I'm usually the last person to ask for ANY kind of help... So this feels a little akward.......... but thanks for listening and caring...... I love all of you guys/gals, even the ones I disagree with from time to time.

Title: Re: Is there pain worse that ch?
Post by benj on Jan 21st, 2004, 10:44am
fair's fair mate - but at least let us know a Thomas "toe" story of your own...

...as for me I had an au-anesthetised root-canal once.....

Title: Re: Is there pain worse that ch?
Post by BruceD on Jan 21st, 2004, 10:49am

on 01/21/04 at 10:32:20, thomas wrote:
Can't/wont spill it, but thanks for all of the support..... I'm usually the last person to ask for ANY kind of help... So this feels a little akward.......... but thanks for listening and caring...... I love all of you guys/gals, even the ones I disagree with from time to time.



OK, being a guy I can certainly understand that ... but that pizza offer still stands.

Take care Bro,
BruceD

Title: Re: Is there pain worse that ch?
Post by 357Mag on Jan 21st, 2004, 10:53am
Understand Thomas. If you noticed, as a newbie, I haven't put my whole story into words either, nor asked for assistance.

I tend to want to offer assistance to others and handle my situation on my own. Been like that in my work, personal and social life. Always the provider, protector, fixer, but never the one in need.

Many prayers and vibes to you, that you will have strength and fortitude to work it all out.
357Mag

Title: Re: Is there pain worse that ch?
Post by thomas on Jan 21st, 2004, 11:01am

on 01/21/04 at 10:44:48, benj wrote:
fair's fair mate - but at least let us know a Thomas "toe" story of your own...

...as for me I had an au-anesthetised root-canal once.....

You want a story....... here goes....... airborne school in FT. Benning, I broke my leg on my first jump (non weight bearing bone).  Had to run 2 miles on the road in boots  every day and make four more jumps in 4 more days.  Cake walk compared to a ch...........  

Title: Re: Is there pain worse that ch?
Post by benj on Jan 21st, 2004, 11:04am
shoulda joined the navy... :D ...all we had to do was eat crappy food...

Title: Re: Is there pain worse that ch?
Post by KingOfPain on Jan 21st, 2004, 11:56am
Loss of a loved one (on other levels/

different kind of pain),

yes.


Although I have no children of my own,

I do believe a loss of your child would

also be a yes.


When it comes to losing family

& friends, yes.



Heartache is one of the most

painful things.   :(   :'(



Whatever it is (which is none of

my business) for the reasoning

of your question, I only wish you

the best Thomas.



Whatever it might be :


May you have the wisdom & insight

to understand it,

& the strength & support to

survive it.

Title: Re: Is there pain worse that ch?
Post by Jackie on Jan 21st, 2004, 11:58am
OK, Sweetie...

Ya better get over here and sit down by me....  ;)

Where have ya heard me say that before ::)

Love ya,
Jacks 8)

Title: Re: Is there pain worse that ch?
Post by thomas on Jan 21st, 2004, 12:04pm

on 01/21/04 at 11:58:20, Jackie wrote:
OK, Sweetie...

Ya better get over here and sit down by me....  ;)

Where have ya heard me say that before ::)

Love ya,
Jacks 8)

Wish I could right now dear........

Title: Re: Is there pain worse that ch?
Post by JDH on Jan 21st, 2004, 12:09pm
Thomas,
I think you'd better listen to Jackie, she's a very wise lady...now get over there and sit down!
Seriously though, you've got a lot of people on your side and we're here for you when/if you wanna talk.
You take care of yourself brother,

Jim

Title: Re: Is there pain worse that ch?
Post by Jackie on Jan 21st, 2004, 12:17pm
I wish you could too.....you know I'd be pattin' on ya....probably hug on ya some too.... :)

Oh....words from an ole' broad.....Whatever is troubling you will probably work itself out and all will be well....things have a way of doing that ya know.


Love ya,
Jacks 8)

Title: Re: Is there pain worse that ch?
Post by Paigelle on Jan 21st, 2004, 12:25pm
You know where I am at when you are ready to talk.  You know I understand.

Title: Re: Is there pain worse that ch?
Post by 9erfan on Jan 21st, 2004, 12:47pm
Thomas-

Whatever you are going through right now my heart goes out to you.
You know if there is anything that anyone can do, we'll jump to help.
I believe in the power of prayer, and I will keep you in mine.

Virginia

Title: Re: Is there pain worse that ch?
Post by Woobie on Jan 21st, 2004, 1:20pm
[smiley=hug.gif] [smiley=hug.gif]  I'm huggin ya RIGHT NOW - Can you feel me?

I'm late again - but DAMMIT Thomas.... I hope you're ok!

Heart pain sucks way more than physical pain -  hurts deeper and longer..... scars ya too.  

Listen to Jackie - (get em jacks!)

I suck at words.... sorry!  Vibes to you Thomas!
TIna [smiley=heart.gif]

Title: Re: Is there pain worse that ch?
Post by thomas on Jan 21st, 2004, 1:30pm

on 01/21/04 at 13:20:56, Woobie wrote:
[smiley=hug.gif] [smiley=hug.gif]  I'm huggin ya RIGHT NOW - Can you feel me?

[smiley=heart.gif]

Yeah, thanks Tina..... :)

Title: Re: Is there pain worse that ch?
Post by wip5150 on Jan 21st, 2004, 1:43pm
The only time I've ever felt pain worse than a CH was, as many said above, emotional.   It's a long, sad story with a happy ending so I'll spare the details.   Thomas, hang in there brother - things always have a way of working out.  Best of luck.


Title: Re: Is there pain worse that ch?
Post by aprilbee on Jan 21st, 2004, 2:05pm
Thomas, sending you HUGE Okie vibes!  and prayers too...don't know if you're a praying man, but it has gotten me through a lot of heartache... "mental" pain is horrible, you're so wrapped in your thoughts, and with physical pain at least you have your thoughts to help keep the pain away...I sincerely pray and hope all will be ok with you...

LOTS of love!  [smiley=heart.gif]

April Bee

Title: Re: Is there pain worse that ch?
Post by River_Rat on Jan 21st, 2004, 3:01pm
Tom, give me a call so's we can have a chat, I've been through a lot of sh*t in my life maybe I can help.


NORM

Title: Re: Is there pain worse that ch?
Post by Hirvimaki on Jan 21st, 2004, 3:55pm
Thomas,

Don't forget you can reach out to me. Sometimes just talking with a friend can give you that little extra wind you need to keep sailing. Know that I am here.

Hirvimaki

Title: Re: Is there pain worse that ch?
Post by Roxy on Jan 21st, 2004, 5:07pm
Thomas....hope it gets better for you.  I know that it will, but it's hard to see that sometimes.  

Wish I could sit down beside you and give you a big old Texas hug.

PFDAN,
T

Title: Re: Is there pain worse that ch?
Post by Turts on Jan 21st, 2004, 6:16pm
Gday Thomas,

2 things

firstly:

I believe that when physical pain occurs anywhere throughout the body, the mind is able to limit or block the pain receptors to minimise the pain felt, unfornately it is unable to do this with CH because the pain occurs in the head (away from nerve receptors)

AS I said I Believe There would be anatomical info to imply otherwise. This is my rationalisation to help me cope with the invetiable CH attack, and justify its existence.  

There has also been posts from Clusterheads about how the medical profession belives the CHers  develop a much higher pain theshold that "civilians". AS they endure other pain better than others.

Secondly:
Emotional pain is the worst as there is no escaping it. Like Ch it invades your sleep and dreams and controls every waking moment.


Emotional pain too is unforgiving, but when the time comes, this pain also becomes bearable.


Wishing you PFDNs from whatever your pain may be my friend.

Turts

Title: Re: Is there pain worse that ch?
Post by Patrick_A on Jan 21st, 2004, 6:24pm
Hey Thomas, You are Old enough and wise enough to know the difference between physical and emotional pain. I aint gonna try and give ya no advice on that.
But to answer the question...

Yes, I have had physical pain that was far worse than a CH. But i knew it was going to go away and not come back. CH's bombard you into submission.

Emotional pain? Sorry, I cannot compare the 2. Emotional pain never goes away, At best it just fades away, but it always lurks underneath the surface.

My example of the absolute worst physical pain for me was a "Root scaling" on my teeth. OMG. After the dentist was through finally. I told him in no uncertain terms, that he would never do this to me again.

Good luck Thomas, You've got lots of friends here that want to help you. Just reach out and take someones hand!

Patrick  :)

Title: Re: Is there pain worse that ch?
Post by thomas on Jan 21st, 2004, 6:30pm

on 01/21/04 at 18:16:02, Turts wrote:
There has also been posts from Clusterheads about how the medical profession belives the CHers  develop a much higher pain theshold that "civilians". AS they endure other pain better than others.

I completely agree with this statement, I've said before on this board, for ME (qualifier) There is no physical pain outside of ch.  Maybe discomfort, but ch has opened the world of pain to me like nothing I could ever imagine.  It's THE most grueling physical torture I've ever had to endure, it doesn't give new meaning to the word pain, it is THE meaning of PAIN itself.

Title: Re: Is there pain worse that ch?
Post by t_h_b on Jan 21st, 2004, 6:39pm
Thomas, emotional pain really hurts a lot in your heart and chest but even more in your soul and you never believe that it will ever end even though it always does.   It's totally different from CH and it's like comparing apples and oranges.  Probably all together heartbreak's worse than CH but the physical component alone is not, at least to me.  Could be to you.  That you would even try a comparison shows that it hurts a hell of a lot.

Second worst physical pain I've ever had was acute idiopathic brachial plexus neuritis--the brachial nerve in my arm died.  Very painful and lots of twitching, etc.  When the nerve dies, the muscles wither, too.

Sometimes I think CH does something like that to your brain.  Certainly emotional pain does that to your heart, but it's not permanent.

Title: Re: Is there pain worse that ch?
Post by Mark C on Jan 21st, 2004, 8:08pm
After being here a while some of you supporters pointed out how painful watching a loved one go through an attack. If one of my children (God forbid!) ever has this curse I do not know what I would do. I cannot even go to the Doctor with them when it's shot time, I can't stand it.

Physical? I really doubt it. I have had three (!) broken arms, at diffrent times. One was a double compound fracture of the ulna and radius, I got to see both jagged edges sticking out of my forearm. It hurt, bad, but it healed. My head is still fucked.

It will pass brother, it always does. Hang in there...vibes your way.

PFDAN's
Mark

Title: Re: Is there pain worse that ch?
Post by BlueMeanie on Jan 21st, 2004, 8:37pm
Believe you me. I know CH's are super bad. Just not sure if some other pains are alot worse. Burns definitely rank #1 in my book. It sure sucks knowing we have to keep getting them over & over. People say it's like a Freddy movie. It's kinda like the movie groundhog day too. Have to wake up to the same old thing everyday except we can't change it.

It's hard to compare physical to emotional pain. In our case with Clusters, it's kinda the same though because we can never forget the pain.

Hey Thomas. I sure hope everything works out for you.  Time seems to be the only way of healing a broken heart. I truly wish you the best.

Title: Re: Is there pain worse that ch?
Post by jonny on Jan 21st, 2004, 9:04pm
I just talked to the big man (Thats Thomas for you idiots) and everythings is working out just fine......all is cool!!!!!....Yes ;;D

.................................jonny

Title: Re: Is there pain worse that ch?
Post by Tim_w on Jan 21st, 2004, 9:12pm
There is one pain worse than the pain of CH
That is a broke Heart! :'(
just like the pain of CH you dont konw the pain unless you have been there :-/
Timw Been there done that/ not fun

Title: Re: Is there pain worse that ch?
Post by don on Jan 21st, 2004, 9:24pm
On a purely physical level if I were given the option of (1) CH  attack or (1) good swift kick in the nuts well...................


Better hand me the imitrex.

Title: Re: Is there pain worse that ch?
Post by Kevin_M on Jan 21st, 2004, 9:51pm
CH pain is pretty leveling.  Liked getting whacked in the temple with a ball pien hammer.  No kidding.  That's how I can describe it.  Let someone sit with that picture and say it don't hurt much.
It was only one time, but I gotta say, a terribly infected root canal was bad ass pain too.  But that was curable.
Kevin M

Title: Re: Is there pain worse that ch?
Post by Kevin_M on Jan 21st, 2004, 10:02pm
I think I learned as a teenager about that feeling of emptiness when losing someone you loved.  Of course this is just the emptiness of losing a girlfriend, or a breakup.  That empty gut feeling, it's just God's way of showing you how much room you have for something new in your life.
As far as the death of a loved one, I don't think that is very consoling, but for the emptiness of a breakup, it always helped keep my chin up, wits about me and kept me moving on.
Kevin M

Title: Re: Is there pain worse that ch?
Post by Timmi on Jan 22nd, 2004, 12:02am
I've been unfortunate enough to have broken the same ankle twice.Been shot in the arm and have been burnt badly on my job.I can honestly say that while they all were painfull the injuries were almost a pleasure compared to a full blown CH.Mabey the burns come close.CH's also do other damage to your mind and self confidencs durring a cycle.

Title: Re: Is there pain worse that ch?
Post by Timmi on Jan 22nd, 2004, 12:05am
Hope it works it's self out for you Thomas.

Title: Re: Is there pain worse that ch?
Post by jminmilwaukee on Jan 22nd, 2004, 4:03am
I'd have to guess that 3rd degree burns over 50% plus of your body would be worse than a cluster. Yes, Clusters are intense but burn patients actually die from the pain alone at times (so I have read).

Gotta agree with the high pain threshold we CHers have. Broke my tailbone about 7 years ago, just about healed and broke again. Jammed toes smart also but for me its just kinda like "yeah...ow...." and thats about it.

Thomas...you know where I live. Let me know if you need to get together for lunch or coffee if things get out of hand.

Jeff but you can call me Jim

Title: Re: Is there pain worse that ch?
Post by Turts on Jan 22nd, 2004, 4:56am
Just when you thought things could not get any worse, you start getting jonny ring you up. Now youve got a pain in the arse as well!!??!! hehe lol

Just jokin king jonny.


I wish we all could have someone around to lend the support that you do!!

But i could'nt resist.
;;D

Title: Re: Is there pain worse that ch?
Post by Paigelle on Jan 22nd, 2004, 8:08am

on 01/21/04 at 21:04:07, jonny wrote:
I just talked to the big man (Thats Thomas for you idiots) and everythings is working out just fine......all is cool!!!!!....Yes ;;D

.................................jonny


Thanks for getting in touch with him Jonny.  He needed a friend to talk too!  You are such a sweetie!

Title: Re: Is there pain worse that ch?
Post by Tiannia on Jan 22nd, 2004, 1:06pm

on 01/22/04 at 08:08:46, Paigelle wrote:
Thanks for getting in touch with him Jonny.  He needed a friend to talk too!  You are such a sweetie!


And he always tries to convinse everyone that he is a hard ass.  But we all know the true story....

Someday I will get to see him in person.  I really want a hug. I love a man with long hair.  Can never get my hubby to grow his long, but my best friend has long haor and I just LOVE his hair (like Hirvi's).

Tiannia

Title: Re: Is there pain worse that ch?
Post by thomas on Jan 22nd, 2004, 1:41pm
Ok, thank you everyone for all the well wishes, I am much better, now please do not post to this thread any more.  Thank you.



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