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New Message Board Archives >> Jan-Mar 2004 >> CH free for over 24 hrs
(Message started by: Janzokris on Jan 15th, 2004, 3:01am)

Title: CH free for over 24 hrs
Post by Janzokris on Jan 15th, 2004, 3:01am
Hey

This is great I havent had a CH in over 24 hrs,(maybe I shouldnt say that)  I guess I should be going and doing all those things I want to do but cant when I have a CH.  As the CH I had started in November, it lasted 10 wks, thats shorter than the last one I took it lasted 6 months.  
Could it be because of the jabs I have now got.  The only thing is I will be pain free when I go see neuro, but with all the knowledge I have at least I can explain to him properly what is going on in my head.

A very happy
Janet  ;;D

Title: Re: CH free for over 24 hrs
Post by amen on Jan 15th, 2004, 10:35am
Congrats!!!! Hope it stays that way!!!
Andrea

Title: Re: CH free for over 24 hrs
Post by aprilbee on Jan 15th, 2004, 10:40am
nice to be pain free even if its for a small span of time!  thats two posts I've read today that someone has been pain free, its so great to hear!

Title: Re: CH free for over 24 hrs
Post by AlienSpaceBabe on Jan 15th, 2004, 11:31am
Congrats, Janet!   :D

Title: Re: CH free for over 24 hrs
Post by thomas on Jan 15th, 2004, 12:59pm
I'm soooooo happy for you......... :)

Title: Re: CH free for over 24 hrs
Post by Belle on Jan 15th, 2004, 3:18pm
Congrats as well.  Hope you stay PF forever.

Cheers

Belle
::)

Title: Re: CH free for over 24 hrs
Post by grumpett on Jan 15th, 2004, 3:28pm
oh   what a feeling!

that is great! [smiley=sayyes.gif]

Title: Re: CH free for over 24 hrs
Post by Tiannia on Jan 15th, 2004, 3:39pm
That is great. May the beast never darken your doorstep again...

Tiannia [smiley=me&mb.gif]

Title: Re: CH free for over 24 hrs
Post by ZAIRA on Jan 15th, 2004, 4:36pm
This news makes me happy for you! ::)
It means that the bastard sometimes gives for someone of us a present!

I wish that the beast leaves you definitively!

Regards, Zaira

Title: Re: CH free for over 24 hrs
Post by Janzokris on Jan 15th, 2004, 4:53pm
Still pain free and have had a very very stressful day  ;;D

I wish more of us could be pain free for a while.

Thanks for all your kind words.

Janet

Title: Re: CH free for over 24 hrs
Post by 5-string on Jan 15th, 2004, 6:54pm
Three cheers for Janet!
That's great news! That's a long, blessful, time..keep'em comin'.
...Mark..

Title: Re: CH free for over 24 hrs
Post by pubgirl on Jan 15th, 2004, 7:01pm
Hurraaaahhhhh!


Long may it continue

Wendy

Title: Re: CH free for over 24 hrs
Post by Prense on Jan 15th, 2004, 7:05pm
KICKA$$!!  Keep it up!   ;;D

Title: Re: CH free for over 24 hrs
Post by TxBasslady on Jan 15th, 2004, 9:52pm
;)

Very good news, Janet           8)

Hang in there!!!!!!!

Sending lotz of wishes for lotz of pfdan's

Jean

Title: Re: CH free for over 24 hrs
Post by CHmess on Jan 16th, 2004, 2:24am
[smiley=headbanger.gif]    That's what I like to hear!!

Stay PAIN FREE!!!!!!!!! ;;D

Title: Re: CH free for over 24 hrs
Post by jmorgan52 on Jan 16th, 2004, 9:47am
Good news Jan, as several guys predicted it would, your cycle seems to have ended or is near to ending anyway.

Some advice/suggestions though, being as you have had such mean doctors as I recall who refuse you enough imigran.

When you get to see that neuro don't tell him your cycle has ended just yet, so that when he pronounces you an "official" CH sufferer (like you need really him to confirm it  >:( ) you can make sure you get some more imitrex ready for the next cycle which unfortunately may be only a year away (sorry  :( ) Don't leave without a multiple repeat prescription for the injections. Keep pestering that doctor! He will probably happily let you get 2 a month once you explain how well it works for you.

Experience on this board says that the injections last well beyond the stated expiry date. Keep refilling those prescriptions during the year so that you have a stockpile for next time around. Kep them in a cool dark place and they will keep just fine for years. Many of us do this. Sorry if this dampens your spirits a bit thinking about the next cycle, but better to be prepared to win the next fight without too much suffering.

Good luck
John

Title: Re: CH free for over 24 hrs
Post by Tiannia on Jan 16th, 2004, 9:51am

on 01/16/04 at 09:47:25, jmorgan52 wrote:
Keep refilling those prescriptions during the year so that you have a stockpile for next time around.


Very good advise.  Just in case the beast ever knocks again you will have a way to fight him and you wont have to struggle until you can get into see the doc again. As I know that appointments can be weeks out.  

I pray that you never have to use your stockpile, but it is better to be prepared.

Tiannia

PS - I am so very happy for you.   :) :) :)

Title: Re: CH free for over 24 hrs
Post by echo on Jan 16th, 2004, 10:03am
Great news!  Glad you are still PF.  Gives those of us presently dancing hope that the dance will end soon.



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